American Thought Leaders - What the Mental Health Industry Doesn’t Tell You: Laura Delano
Episode Date: May 14, 2025“This system I had been turning to for help through all of these years, through the most formative years of life, that I had been assuming existed to take care of me ... was actually a system of con...trol. And I just hadn’t seen it for what it was, because I had never said no to it before,” says Laura Delano, author of “Unshrunk: A Story of Psychiatric Treatment Resistance.”For 14 years, Delano was a “professional mental patient,” as she puts it, after being diagnosed with bipolar disorder when she was a teenager.Now she wonders whether the dominant, medicalized approach to mental illness is actually making us as a society sicker.“Sixty-five million American adults and 6 million American children are currently on psychiatric drugs, and there are zero off ramps for getting them off these drugs safely within the mental health industry. Zero,” she says. “This is not about being ‘pro’ or ‘anti.’ This is about using straightforward, honest language to talk about what these drugs are, to talk about our limits of knowledge around what these drugs are and how they actually affect us, and then to let people make their own decisions from there based on their own life circumstances.”In this episode, we dive into Delano’s story and discuss the dangers of relying solely on medical treatments to treat mental health issues and of rapidly withdrawing from psychiatric drugs.Views expressed in this video are opinions of the host and the guest, and do not necessarily reflect the views of The Epoch Times.
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This system I had been turning to for help through all of these years that I had been assuming
existed to take care of me was actually a system of control. And I just hadn't seen it
for what it was because I had never said no to it before.
For 14 years, Laura Delano was a professional mental health patient, as she puts it,
after being diagnosed with bipolar disorder when she was a teenager.
Now, she believes the dominant, medicalized approach to mental illness is actually making us sicker as a society.
65 million American adults and 6 million American children are currently on psychiatric drugs.
And there are zero off-ramps for getting them off these drugs safely within the mental health industry. Zero.
She is the author of Unshrunk, a story of psychiatric treatment resistance.
This is not about being pro or anti. This is about using straightforward, honest language
to talk about what these drugs are and how they actually affect us. And then to let people
make their own decisions from there based on their own life circumstances.
This is American Thought Leaders and I'm Jan Jekielek.
Laura Delano, such a pleasure to have you on American Thought Leaders.
Thanks for having me on. It's great to be here.
What is it that we get wrong about the mental health system in America?
wrong about the mental health system in America? I think at the heart of the problem
is the fact that we've given a monopoly to this medicalized
way of understanding ourselves, to this idea of having
mental illness or of being mentally healthy.
This whole framework, this medicalized framework, has taken on a monolithic status in our culture
such that all the other ways that we might make sense of the struggles that come with
being human get pushed to the side.
And when you're viewing your struggles through this medicalized lens, you have one logical
next step to take, which
is to get treatment, which is often pharmaceutical treatment.
And so I think to me it's about how much power and dominance and ubiquity the mental health
industry has over our culture that's really the heart of the problem here.
And just qualify for me, what does mental health industry mean exactly? That's like a kind of a whole compound of different groups or... Yes, you could call it a
mental health industrial complex if you wanted. I think for me, the word industry is an important
one to use as opposed to system, I think, because it shines a light on the fact that this is about
fact that this is about very powerful corporations between drug companies, the hospital industry, managed care, medical devices, the list goes on and on.
I think naming that this is in large part about corporations who are selling products
and services, I think, is why to me, industry is the right word here.
And it's all built on this idea of mental illness and mental health.
There seems to be a trend, especially online, people like to identify things that sometimes
you might even consider personality traits or quirks or something like that as a particular
disorder.
For example, people self-diagnosing
as ADHD and things like that. Is there a connection here?
I think you hit the nail on the head. We've normalized pathologizing ourselves to such
a degree that it's become just part of the cultural milieu. In the air that we all breathe, this idea of noticing a problem in oneself, some
kind of discomfort, some kind of challenge, and instantly concluding, uh-oh, what if this
is a symptom of a condition?
And I think because in part we have direct-to-consumer advertising where we are constantly being
bombarded with this message that if you know, if you're having
a hard time, maybe you could try XYZ treatment.
In part, it's that.
And I think in part two, it's that because we have this monolithic mental health industry,
it's kind of created this taken for granted assumption that struggles in life are problems to be
diagnosed and treated. And so we've normalized it so much that we don't even realize it's
actually a story, one story of self. There are countless others as well.
Two things. You're just reminding me, I remember someone recently actually was telling me about
a situation where in Kentucky, people were suing doctors for not prescribing them the
pain medication which they wanted.
Because these are consumer products that are being marketed and sold to people, they come
in to their doctor's office knowing what they want. And
so doctors are put in this difficult position where if they are actually critical of the
drugs they're prescribing, what do they do when their patient comes in wanting them?
Because if it's not going to be them, it'll be someone else. So shouldn't it at least
be them? Because they can at least help educate the patient about risks, about
the lack of long-term outcomes, the negligible evidence base for long-term efficacy.
So these critically minded doctors, ironically, who don't want to be prescribing these drugs,
often end up prescribing them because they know if they're not going to do it, another
doctor who probably isn't critically minded will.
And so it is a real problem.
It's only the US and New Zealand that actually allow for advertising of drugs on television.
I didn't watch a lot of television in my life. I wasn't fully aware of it.
In recent years, I've discovered just how much of it there is in these
very long ads that also list all these terrible side effects.
I thought to myself, is it possible that people actually
respond to these ads? Because, you know, the side effects
don't sound so good.
I think we've been so desensitized to that those, that
soporific voice listing the side effects at the end that
people don't even hear it. They just glaze over and what they
absorb is the image of the depressed, gloomy woman
who's now suddenly running on a beach smiling.
I think people are so desperate for relief.
I think we live in a time where there's so much struggle.
People are overwhelmed by anxiety, by despair, by a sense of meaninglessness, futility to change circumstances,
that people want this quick fix promise that is provided to them in these advertisements.
And I do think people see these ads and believe what they're telling them because they are
just desperate for change.
And I was once the same way.
I was once so desperate for relief from this intense suffering that I'd spent so many years
in that I was ready to believe anything I was told, especially by a doctor, because
I was tired of trying to find the answer for myself.
Well, so, and of course the book is your journey,
indeed with anecdotes and actually a lot of data
and information on various illnesses and treatments
and things like that.
I mean, a fascinating structure, fascinating story,
but just kind of give me a thumbnail of it very briefly.
Like you've spent 14 years, I believe, in this mental health industry system.
Yep. It's basically the story of my 14-year relationship to the diagnoses, the drugs,
the mental health professionals, the hospitals, and then how I decided to end that relationship and what that looked like and why I ended it.
At age 13 was my entry into a therapist office.
You know, I was an angry, intense,
despairing, self-injuring, teenage girl,
and my terrified parents didn't know what else to do
and I think felt immobilized themselves
and not empowered to help me.
So they did what so many loving American parents
are taught to do.
If your kid is struggling,
you need to seek professional help.
So that began my journey.
A year later, I was sent to my first psychiatrist.
I received a diagnosis within my first appointment
with that psychiatrist.
My whole life was basically reduced to, you
know, what I was told was an incurable mental illness called bipolar disorder.
And I was put right on meds and then spent a few years refusing to accept this diagnosis.
Something in me knew that the struggles that I was experiencing were actually healthy responses
to the environment that I was in, to the pressures I felt on my shoulders at school, with sports. I was this very
driven perfectionist, perfectionistic kid. I knew that was the problem, not anything inside of my
brain. But when you're a kid, you don't have power, you don't yet have a solid sense of self. And so I eventually kind of lost touch with that knowing and then spent the final 10 years in
the mental health industry as a very compliant, obedient, deferential psychiatric patient.
There's one chapter in your book, which is kind of pivotal.
You, for the first time, you decide not to comply and you're faced with the fact that it's really
not your choice and that changes things. Just kind of tell me a little bit about that.
Sure. I loved writing that chapter. So prior to this moment you're pointing out I had been
this compliant patient just so desperate for relief that I basically turned my entire life over to my doctors
and eventually my seven person treatment team
and just said, just, you guys are the experts on me.
Just tell me what to do.
What meds to take, what therapy do I need to be in?
What program do I need to sign up for?
Because I just wanna feel normal.
I just wanna feel like I belong here.
And with every passing week, month, year of being this compliant patient, my life kept
falling more and more apart.
I kept getting physically sicker, chronic health issues, mentally and emotionally. I kept, you
know, spinning out my ability to care for myself, just completely dissipated, and I
was completely dependent on my family. But I kept every step of the way
turning my life over to these doctors. And so by 2010, at the age of 27, I had basically become a
professional mental patient, as I like to put it. And it's a provocative phrase, and
I use it deliberately because I was the embodiment of this just crazy, unhinged, completely non-functioning, barely there human.
And I was in a program, it was February 2010,
I was again, I was 27,
so in a program going to the hospital every day
from nine to five for groups and therapy and all that,
and a psychiatrist caught wind of the fact
that I was maybe becoming suicidal, which I was.
But I wasn't actually in that moment going to kill myself.
And he said, you know, why don't you just check yourself in
and just get taken care of.
Go to the short-term unit.
You'll feel more rooted, da, da, da, da, da.
So I said, yeah, that's a great idea.
I'm just going to go home and get my belongings.
I'll come back later this afternoon.
And he wouldn't let me leave to do that.
Things escalated.
I began raising my voice.
He called security.
And that was the moment that I realized that this system I had been turning to for help
through all of these years, through the most formative years of my life, that I had been
assuming existed to take care of me, to help me feel okay in my skin, was actually a system
of control.
And I just hadn't seen it for what it was because I had never said no to it before.
And that changed everything for me.
And I, it dislodged this faith that I had had through all those years in my doctors
and the pills and the hospitals, just this unquestioning faith that these people
were going to eventually help me feel okay.
questioning faith that these people were going to eventually help me feel okay. And suddenly in an instant, it all just kind of blew up. And I suddenly was like, what have I been participating in? How
did I not see this? When people are suicidal, the protocol is to, you know, prevent them from going through it, and they lose some of their ability to exercise
their agency for their own good. That's how I understand it. And you had been suicidal
before in earlier chapters, but in those cases, you agreed to what was suggested to you as
opposed to resisting. Doesn't it make sense that this doctor would do that?
It's such a good question. And I think, and, you know, all
these years later, when I look back, I completely understand
his logic. He had no choice but to incarcerate me against my
will, because he was legally and ethically mandated to basically keep his patient alive.
And so I think in many ways, we've put this profound responsibility on the shoulders of
psychiatrists and other mental health professionals to prevent death and to see into the future.
Because of course, part of what happens is that if a doctor senses
that you are or might in the future become suicidal, they also feel obligated and are
obligated to put your safety over anything else.
And so we've given them this tremendous responsibility and I don't think it's a fair one.
I have to imagine that a lot of psychiatrists
and the other psychologists who also have this power,
if they didn't feel this terrifying liability issue
looming over their shoulders,
they might actually be willing to hang in there
a bit longer with their patients,
to ask more questions, to be curious,
to be open to talking
about suicide.
But they don't have that opportunity.
The way the whole mental health industry is set up and the legal power that we've given
to doctors makes it impossible for them.
And I think having now spent 15 years on the other side, outside of the mental health industry, having
spent, I couldn't begin to count the number of hours with suicidal people, I have found
that when someone is in that state, often what they need most is to be heard.
They need to be able to talk about all the things that are making it such that they don't want to be
alive anymore.
They need to be able to talk about death and why it's calling to them.
And it's when we shut down that space and we basically, you know, instantly kind of
say, oh, panic mode, like, incarcerate person, medicate person.
I think ironically, it ends up making a lot of people more suicidal because they feel
even more alone with their struggles.
You said you're not a mental health professional, but in
that role of creating that space, aren't you kind of
taking on the role of being a mental health professional?
It's an interesting question. And I think it actually gets
to this monolithic power that the mental health industry has in our culture, that we assume that helping someone
in suicidal despair is acting like a mental health professional.
It's almost like we don't even know it's possible to do that, to be that role in someone's
life as just a fellow human, as a fellow citizen,
as a fellow layperson.
And I think, you know, obviously when I'm with friends or colleagues or, you know, people
I'm working with who are feeling suicidal, they obviously know I'm not a mental health
professional because I make clear that I'm not one, make clear that I'm a lay person and that it's my own personal
experience with all of this that has led me to be in this place where I'm
wanting to support other people. So I think, you know, I know for a fact
that a lot of people think that's dangerous and that for whatever reason,
a non-professional sitting with someone who's in suicidal despair is going to make it more
likely that that person kills themselves.
I would just say I profoundly disagree.
And having been a suicidal person through many, many years of my life, that's the one
thing I never actually got.
I never actually had anyone sitting with me and truly ready and kind of like brave enough
to hear me talk about all the reasons why I didn't want to be alive.
I just never had that chance.
I think it might have led me down a very different path.
Because human beings have been helping each other through suicidal despair since probably
the dawn of time.
And yet in these final seconds of our evolution as a species, we now have kind of lost touch
with the fact that you can be in
so many different roles.
You can be a family member, you can be a friend, you can be a pastor, you can be a rabbi, you
can be a community leader and be with someone in suicidal despair.
We have that power.
We have that ability.
Everyone does, but we've just lost touch with it because of this kind of professionalized
understanding so many of us have of what help means.
How did you ultimately make this decision to, I guess, leave the system and all its manifestations?
So after that forced hospitalization, I had two more encounters with this power that mental health professionals have to force
and coerce.
One was being made to take a medication that I didn't want to take, and the other was having
the police called on me when I was so tranquilized by that medication that I slept through a therapy
appointment. So those three encounters with psychiatric power really just so blew up this faithful relationship that I'd had through all those years.
That I was in this kind of adrift space where I didn't know what to trust anymore, what was true, what wasn't, who to rely on, least of all
myself, because I had gotten myself largely into this situation.
And then in that state of questioning and rethinking, I happened upon a book that had
this compelling cover with a phrenology head, a phrenology illustration on the cover, you know, one of
those old drawings where the human skull is kind of broken up into different compartments.
And instead of the kind of now debunked, you know, oh, this region is for this personality
type or that trait and this one's for that, it was each compartment had a different psychiatric
drug name in it.
And I was looking at this cover and I was like, I've been on that drug. I've been on that
drug. I've been on that drug. I've been on almost all of these drugs. I wonder what this
book is about. I'm going to buy it. And I sat down to read it without even knowing what
it was about. And the fact that I could even read it, I think, was a miracle because I was on five
medications at this point.
I was on lithium, lamictal, abilify, effectsor, and Ativan.
So two mood stabilizers, an antipsychotic, an antidepressant, and a benzodiazepine.
And this is like a standard regimen for someone with a bipolar diagnosis. So reading anything, thinking,
absorbing information was very hard. But I somehow took in the words and the name of
the book was Anatomy of an Epidemic by Robert Whitaker. And he set out to answer this curious question that he'd realized he had, which
was, why do long-term studies of people diagnosed with schizophrenia, why are the outcomes better
in countries that don't have ubiquitous pharmaceutical treatments? Why are the outcomes worse in the US and, you know,
other kind of developed countries that have access to all these amazing
medications? This is such an interesting question. Why? So he went on this quest
to figure out an answer and basically in a nutshell realized that the story we've
been told or sold about the safety and effectiveness of psychiatric drugs when used over the long
term is completely lacking in a strong evidence base.
And that if you actually look at outcomes, there's a strong case to make that psychiatric
drug use over the long term is making us sicker, more disabled.
There I was on five medications.
My job through my 20s had been treatment, literally, year after year after year,
of just progressively worsening dysfunction,
eventually to the point where I was declared so sick as to be treatment resistant
because none of these drugs were
helping me.
I just kept getting worse.
It's so tragic.
Poor Loris.
Bipolar disorder is so severe.
And after reading this idea, just in looking back on my life, I thought to myself, what
if it hasn't been treatment resistant mental illness this whole time?
What if it's been the treatment?
In an instant, my faith in these drugs, you know, that I just never once had stepped back
to question ever, literally from freshman year of college onwards, you know, I had questioned
them at the very beginning, but I'd forgotten that I wasn't even in touch with that, those
instincts. I wasn't even in touch with that, those instincts at that point.
It blew up my faith in this kind of quick fix, the promise, the quick fix promises of the psychiatric drug paradigm.
And now suddenly, like what if there's another path for me?
What if there's another way? What if it's not one of these two options? And I felt curious for
the first time about my future, which I had had no opportunity to feel because I had believed
for so many years in this life sentence of, you know, chemical imbalance in my brain.
Oh, you know, you can manage it with meds, but it's incurable. I mean, that's a hopeless
story of self. And so that kind
of began this journey I've been on ever since. And you in that moment, I have to give myself
a chance at figuring out who I might be beyond these drugs and beyond the diagnoses as well.
Is bipolar in fact incurable? Well, it's a hard question to answer because you have to kind
of sink to the deeper question, which is what is bipolar
disorder in the first place? And what does it mean to cure the
mental illness? And through my entire career as a patient, I
took for granted that the DSM, the Diagnostic and Statistical Manual of Mental Disorders,
which is copyrighted by the American Psychiatric Association and it's considered the Bible
of psychiatry, it's where all the diagnoses live, I had assumed that it was this scientific
text.
There must have been extensive extensive rigorous research behind the scenes
over at the APA, you know, going into understanding schizophrenia and like what it is and bipolar
and major depression and social anxiety disorder.
I just took for granted that these were discrete illnesses of the brain without ever once asking myself or any doctor, how do you
know that?
You know, I just assumed.
I just never questioned.
And I learned that the DSM is really, all it really is, is this book that has been written and edited by a relatively small number of psychiatrists
who discuss in a very subjective way what they observe in their patients, and then they
basically vote in and out which diagnoses they think should be in it or not.
So for example, homosexuality was a mental illness
until it was voted out in the third DSM.
And so when I kind of stepped back and thought about
what this actually means for me,
I realized I've been assuming that there's pathology inside of me without
everyone's asking for proof.
Sometimes I get accused of denying the reality of mental illness.
And I find that fascinating because of, you know,
so much of what I write about and speak about is about how hard it is to be
alive and how, how intense and profound it is to struggle and how real
it is and how, you know, when you lose touch with reality and, you know, you are spinning
out and you don't know up from down and you don't know what's true and what isn't.
I mean, it's debilitating. It's,. Of course it's real. These experiences are real. People
hallucinate. People have delusions. People want to kill themselves. People have
panic attacks. These are all real things, but this idea of them being symptoms of
a brain disease, that's kind of the level that I'm critiquing here.
And I think when you disentangle yourself from that very subjective level that we,
so many of us, take for granted as objective, then it opens up all this possibility for change.
You know, I met the criteria for bipolar disorder for years.
I was not misdiagnosed.
I don't anymore.
I would definitely meet the criteria for other DSM diagnoses, like social anxiety disorder,
for example, but I don't really care because it doesn't mean anything to me. A lot of the change for me in curing my bipolar disorder
was about changing the way I was making sense of my experiences, what my experiences meant
and therefore what I needed to do about it.
What did it mean to leave the mental health system? I mean, some of that is coming off
of these five drugs that you were on.
And I understand that is a very difficult process to do.
I mean, people that have gone cold turkey have got all sorts of terrible side effects
sometimes, or other people would say their illnesses are relapsing when that happens.
I mean, how did you manage that without knowing the things you know now?
I'm so glad you're bringing this up because the issue of coming off psychiatric drugs
is a hugely important one. And as you said, it is an incredibly dangerous, risky thing to do.
Another thing I'm often accused of is being dangerous, you know,
that I'm dangerous because I talk about coming off these drugs. I talk about
coming off of these drugs because I want to help people do it as safely as
possible because it is so dangerous. I completely agreed. And so I think what I
didn't know in 2010 when I decided to come off those drugs was the fact that my central
nervous system had become completely dependent in a physiological sense of
you know not in the addiction sense where I had cravings and would kind of
seek out the drug despite it causing harm that's kind of the conventional
definition of addiction this This was purely physiological.
My brain had completely reacclimated itself, its structure, how it functioned, as had my body,
because of these drugs that had been in my system for so many years. And so coming off of them,
And so coming off of them, it doesn't just flip a switch and then your body goes back to how it was prior to you ever taking them.
Coming off of them too quickly actually ironically disrupts the homeostasis that your body has
developed to compensate for the presence of these drugs.
Someone quitting any psychoactive
drug, cold turkey, that they're dependent on will go through symptoms of
withdrawal. What's challenging in the case of psychiatric drugs is that
withdrawal symptoms mimic the symptoms of the very diagnoses, the reasons why
they're taking these drugs in the first place. And so, as you said, withdrawal
symptoms often look like a relapse of an illness.
So let's say you've been on an antidepressant for 15 years,
for whatever reason you've decided that you don't want
to take it anymore, you come off, you feel horrible.
You have, your anxiety is surging, you're not sleeping well,
you're feeling exhausted and fatigued and unmotivated and just your thoughts are racing
about despairing things.
And if you go to your doctor and you say this, your doctor will say, see, you're having a
relapse of your illness.
This is why you need to be on medication.
You don't want to feel this way indefinitely, do you?
And so people get stuck in this vicious cycle of thinking that who they are when they
stop their meds is who they would always be, therefore they need to stay on them.
So I didn't know any of this when I came off.
I came off basically cold turkey.
I came off five drugs in about half a year, which is very fast.
And I went through unspeakable pain.
You know, just the struggles that I had on the drugs
were just magnified, amplified, projectile vomiting,
boils breaking out of my skin, debilitating migraines,
light sensitivity, you know, panic responses
at any kind of stimulus, paranoid racing thoughts, just utter
fatigue and then insomnia at night. I mean, just I could go on and on and on
about how brutal withdrawal was. It was only as I started to recover from that,
which took a lot of time, it began to click just how unsafely I'd come off
them. And what also clicked for me was that I was able
to survive cold turkey withdrawal in large part
because I had a lot of resources at my disposal.
I had a family who could take care of me.
I didn't have to work, I didn't have kids,
I didn't have to pay a mortgage.
And so that was when I realized some people feel
really helped by these medications.
I totally respect that.
But some people don't, and they should have the right to know how to come off of these drugs safely.
And right now, it's almost unbelievable.
65 million American adults and 6 million American children are currently on psychiatric drugs.
And there are zero off-rs for getting them off these drugs safely
within the mental health industry. Zero.
And when you say zero, I mean, I actually had a psychiatrist on recently that actually
specializes in doing this. So it's not zero.
It's a good point. So there are individual practitioners and kind of what might be perceived as fringe
and have resources cropping up around tapering.
But the system itself, the kind of official, whether it's the National Institute of Mental
Health or the American Psychiatric Association or the American Academy of Child and Adolescent
Psychiatry, none of the official bodies that are looked to as, look to for guidance, look to for
guidelines, for protocols, for establishing standard of care, there's zero acknowledgement there,
and there are zero off-ramps there. And so it's forced those of us lay people who've had to figure out safe tapering for
ourselves, and then doctors like Josef Witt-Doering and the small handful of others who are kind
of seeing this need and building resources for people kind of at the outskirts. This is why we do what we do.
I would love to not have to spend all day every day
talking about safer psychiatric drug tapering
because it's just so ubiquitous.
The information is everywhere.
Doctors inform you of this when you,
you know, before starting a medication.
The American Psychiatric Association acknowledges this.
There are safe protocols on its website. The NIMH has a research, a whole research arm
focused on studying withdrawal and tapering. I would love for that all to exist so that
I don't have to spend all my time shouting from the rooftops how dangerous it is to come
off of these drugs.
And just to be clear, what you just described
is what you would like to see, not what exists.
It's what I would like to see.
None of it exists.
It's my hope that these changes will take place
in the coming years because we have a crisis on our hands.
This epidemic of people on psychiatric medications,
even if 5% of people out there decided
they wanted to come off their meds,
that's still a few million people.
And they need a place to turn.
They need reliable information.
They need support and resources.
And right now, besides those individual doctors like Joseph Whit-Doring, it's literally only
those of us laypeople who have built our own kind of mutual aid networks and figured out
our own tapering protocols.
We are all that exists right now.
And that's a real problem. But thank goodness that laypeople are helping one another because
otherwise people would have nothing.
What are psychiatrists thinking when it comes to a plan for people coming off of large amounts of medication.
You're saying they just don't think about it at all?
It's another almost kind of unfair position that we've put psychiatrists in.
If I put myself in the shoes of a psychiatrist who's seeing his patient once a month, very possible just for
15 minutes, maybe an hour, but that's pretty rare.
And then, you know, that person who I see once a month comes in and she's on four medications
or five medications and she says, Doc, I want to come off.
Of course that psychiatrist is going to instantly freak out.
Well, what do you mean?
Because that psychiatrist is set up to fail here.
That psychiatrist doesn't have the time to properly support that person, has the liability
risks of operating outside the standard of care, doesn't know the patient enough to even really know what their support
system looks like, what their nutrition is like, what kinds of stressors are on their
plate.
I mean, so I get why psychiatrists are so terrified of helping their patients come off.
I think another piece too is that psychiatrists often have in their mind the previous times their patients tried to come
off and it didn't go well, which is usually cold turkey or rapid withdrawal.
People think slow is a few weeks, a few months, maybe even a year.
Oh, that's very slow.
That's actually a year is fast for a lot of people, however shocking that sounds.
And so I think doctors just, it's a combination of fear and then just how ill-equipped they
are.
And it's no fault of their own that the system around them has kind of set them up to fail
in this way.
And I think that's why, you know, the nonprofit that I founded in 2018, Intercompass Initiative,
our mission is to help people make more informed choices about psychiatric drugs, about psychiatric
diagnoses, and about safer tapering off these drugs.
Our hope is that we are seen by the psychiatric profession as a relief, as a resource, as
a partner, as a collaborator in this,
because of all these poor psychiatrists
who don't have the resources, the time, the bandwidth
to properly help their patients come off,
it takes a lot to come off of a psychiatric drug.
It can.
Certain percentage of people don't have problems.
It's a mystery who is gonna have an easy experience
and who isn't.
For the people who have a hard time coming off, it might take years. How many people
have the resources and support to do that successfully? Not many.
So I've looked at some of the criticisms of your, especially since you came out with your book, and some positive reviews,
and some very critical reviews, that maybe one
basket of criticism is that you're promoting hesitancy
to use drugs which help people, which can actually
make a real difference in people's lives, and that,
you know, as a result, people may be harmed. How do you react to that? I am sharing my own personal story and I'm sharing some basic facts
that I learned for myself too, after not knowing them for many, many years. You know, that people
years. You know, that people hear that as, you know, me kind of pushing an agenda that, you know, people stop their meds or don't take these drugs, I think speaks to the understandable
fear of unknown terrain of beyond the quick fix of you know pharmaceuticals that are so ubiquitous in our society. I get why people are threatened by my
story. 15 years ago had I read this book I wouldn't I mean first of all I
wouldn't have been able to read it. I would have been so offended and convinced that this was trying to push an agenda on
me.
When you have invested, whether it's for yourself in your own life or for your child or you're
a psychiatrist, when you've invested years, money, time, attention in this medicalized story of mental illness,
needing indefinite treatment, anything that calls that into question, it calls your whole
world view into threat.
And so I wrote this book to start a conversation.
I knew it would scare people because I would have been scared of it too.
But my only agenda here is around informed choice.
My story is a story of what happens when you do not have the information you need to make
a meaningful choice for yourself about whether and how to engage with the mental health industry.
I want people to have all of that information so that they can make whatever choice is right for them,
which might be to take these drugs.
I'm not anti-psychiatric drug.
I have friends who feel helped by these drugs.
I think they can be helpful.
It's about the stories that we tell ourselves
about why these drugs are helpful
that I think distorts our ability to make true choices about them.
These drugs are not medications treating diseases.
They're psychoactive drugs that are disrupting brain function.
That disruption might feel helpful for you.
The work of Joanna Moncrief, she's a British psychiatrist who herself gets called anti-medication all the time, and she's very much not.
I remember when I found her work many years ago, it just helped me click right into the nuanced understanding that we need to have about these drugs.
This is not about being pro or anti. This is about using straightforward, honest language to talk about what these drugs are,
to talk about our limits of knowledge around what these drugs are and how they actually affect us.
And then to let people make their own decisions from there based on their own life circumstances.
And if they decide they don't want to take these drugs, they should have the right to not take
them and they should have options. If they decide they do't want to take these drugs, they should have the right to not take them and they should have options. They decide they do.
I completely support that.
What would you say is the most important information that you weren't given in your process that
that you would want everyone to have when they're considering helping themselves using
medication?
Because I imagine there's millions upon millions of
people that are considering this every day.
When it comes to the drugs, I think what I was not told,
what my parents were not told, is that these drugs are
approved by the FDA on the basis of very short-term
trials, six to eight weeks on average.
There is zero evidence base for polypharmacy.
So these drugs have never been studied in
combination with each other. Their safety and efficacy, I should say, have never been
studied in combination with each other. And every single psychiatric drug across all the
different drug classes is dependence forming. Meaning if, as I said earlier, if you take
this drug for any length of time, your body may well
completely alter itself to accommodate the presence of the drugs so that if you want
to come off of it one day, you might have a really hard time doing that.
And you might need years of tapering.
And I think especially for women, for girls and women who are teenagers or entering into their young adulthood, childbearing years,
it should be a legal requirement that doctors tell us before we start these drugs that if
you want to have a child one day, you need to build in a long-term exit strategy here
so that you don't find yourself in a situation where
you need to stop this drug abruptly and potentially cause harm, significant harm to yourself.
So I think a lot of it is about just the straightforward facts about the evidence base upon which all
of these drugs are prescribed. And I think part of my outrage that a lot of it is fueled by how in the dark so many
of us are about what we actually know about these drugs.
And what's wild is that it's all available right now.
Don't take my word for anything I just said.
You can go to the FDA website right now.
Drugs at sign FDA. You will be taken to the website where you now, drugs at sign FDA.
You will be taken to the website where you can search for the drug label of any psychiatric
drug you're on.
You can read the whole thing.
You can see the two or three trials that were used to approve the drug.
You can see how long it lasted.
You can see what they called effective, which you may or may not be
surprised to know is often quite small. And then from
there, decide what you want to do.
Another one of the criticisms I've seen come up is that, you
know, that your story or your book or this approach will be
used to actually cut back mental health services and help and
offerings of help which are available
to people at large. How do you respond to that?
That's a big question. And what are the true causes here of this so-called mental health
crisis that we're in? If it's not chemical imbalances in our brains or faulty brain pathology,
which it isn't, There's no evidence base
for any of that to this day. The NIMH acknowledges that. It's
not too hard to kind of come to the conclusion that it's about our relationship
to the world we live in. Of course,
people need support and resources,
but do we need them in the arena of getting people more treatment,
more diagnoses?
Or do we need them actually where people's struggles emerge from, the circumstances of
their lives?
And if I would argue that's where funding needs to be directed to the community level,
to neighborhoods, to helping people, you know, get their basic needs met.
So I have yet to see my story actually be used
by any policymaker as a justification.
So I don't take that critique too seriously,
but I do think the deeper fears behind that critique
are valid, I share them.
I just don't think the solution is to fund more mental health treatment. I think it's to actually
redirect funding to the circumstances of people's lives, which is what leads them to have the
struggles that get them diagnosed and medicated in the first place. And one quick additional point to that is, as I found for myself, long-term mental health
treatment was actually quite disabling for me in mind, body, and spirit.
And I do think we have a crisis of psychiatric iatrogenesis.
And for anyone not familiar with the term, iatrogenesis is basically harm caused by treatment,
by doctors.
I'm not saying they're doing this on purpose.
I think these are well-meaning people who wanna help,
but the mental health industry
can have this paradoxical effect where it promotes itself
as being this resource that will help people feel happier, feel more
productive, feel more connected, capable, and yet ends up producing the very opposite
in people.
And so I think we need to address that as well.
We need to direct funding towards helping people recover from the harms that have been caused by their
treatments, which in turn, I think will help people return to their lives and to meaningful
work and meaningful connections and purpose and all of that.
I know a number of people who strongly believe that they've been helped by these drugs and
were able to come off them later. And I guess there was some plan for that.
They didn't feel like there was a relapse.
You're not against these drugs, but everything you're telling me
suggests that there's serious problems here with how we think
about them, what we're told about them.
What role is there for these drugs
in people's lives in your view?
I mean, human beings have been altering themselves
with psychoactive chemicals for countless thousands
of years and I think, so I think it's natural for us
as humans to disrupt our own consciousness
for all kinds of reasons.
And so psychiatric drugs are one of a vast array
of other substances we turn to,
from coffee to alcohol to psilocybin
to a long list of other psychoactive substances.
So I think they can be helpful for people.
And used especially in the short term,
I think these drugs can have a place in our society.
I'm against them being forcibly used.
But beyond that, yeah, I really think
it's about changing the language that we use
to talk about these drugs and our conceptual framing
of what they are. I knew someone quite well who ended up becoming arrested for stabbing someone in a corner
store and was out of his mind at the time and he was forcibly treated.
And in some interactions I had with him later, seemed to be happy about that fact.
But you can kind of
imagine situations where people are really not in their mind and they need some kind of treatment
that they would never consent to. How do you react to that? Well, I think seeing someone in a psychotic
state in a public space, I mean, when someone's reached that point, basically every system has failed them, every
support, every resource, or perhaps lack thereof.
And so I think in those rare circumstances, if forcibly drugging someone is the solution
that we have decided is the best thing to do as a society, let's at least just call it what it is,
which is sedation. It's not actually treatment. And perhaps being on psychiatric drugs,
stopping them abruptly, starting them, stopping them, people often end up forcibly drugged
because they've tried to come off their drugs in the past and they did it cold turkey and it leads them to go crazy. But also being human, people lose it. We're violent. Like it's a part of being human
as well. And so I think this idea that we could somehow get rid of violence is denying
our nature. Obviously I don't like violence. I wish it didn't happen.
Well, and we incarcerate people and we remove them from society because of that,
and I would argue very rightfully so.
Yeah, well, and that brings up the issue of how a psychiatric diagnosis can strip
people of responsibility for their actions.
Because there's a big difference between someone who has not committed an act of violence and
someone who has.
So once an act of violence has been committed, if you're telling that person, oh, this happened
because you're sick, it's not your fault, you need treatment, there are serious consequences
to that message versus holding someone accountable for their
actions.
I think the insanity defense and this whole idea of absolving people of responsibility
for their actions by telling them they're sick may end up creating more problems than
we realize for those people and then also just for our broader society.
Well, you know, perhaps I'll have a chance to invite you back on the show to talk about that.
That's a very, you know, kind of fascinating vantage point that I'd actually love to explore
in the future. Before we finish up, tell me about the Intercompass Initiative and, you know, what
you have built here.
Our mission is to help people make more informed choices.
We don't push any kind of agenda.
We've been painted that way by certain media outlets recently, but really we have
a lot of free information on our website where people can learn about the history of the DSM,
how psychiatric drugs are researched and brought to market, the rating scales that are used to
diagnose people, how those rating scales come into being, basically all the information that we should be given prior to
accepting a diagnosis and starting a
psychiatric drug.
We have a community of people at our,
it's called Intercompass Exchange, for anyone thinking critically about the mental health system.
And it's all built on this idea of the power of lay people helping each other, of expertise,
not through the institution, through the letters after your name, but through
having lived it yourself.
So there are support groups there, there are discussions happening, people are...
No one's telling each other what to do, no one's telling people how to, you know, that
they should come off their meds or anything like that.
It's just people sharing about their own experiences with one another and providing hope and support and basically filling the void that we all wish the mental health industry was doing a better job
addressing around, you know, helping people who've decided for themselves they want to come off these
drugs. And I think the other big piece of what we do is, and what we're really focusing more on
in the coming months and years, is helping
people's stories, the power of storytelling.
This information has been available all along about the DSM, about the drugs, about all
of it.
These FDA drug labels have been sitting on the internet since each of these drugs were
approved, and yet here we are with an epidemic of people on these drugs were approved. And yet here we are with an epidemic of people
on these drugs.
So clearly the data itself isn't gonna change things.
It's going to be our stories.
It's going to be the power of identification,
of seeing yourself in someone else's experiences
that helps you kind of step back and rethink your life
and make decisions that are actually true decisions
for yourself.
I think so we have a stories library that we're in the process of developing where we're
going to help people tell their stories of engaging with the mental health industry and
then disseminating those stories more broadly.
For anyone who feels something in them that's like wondering like is this the path that I want for
myself? Are these drugs really my end game here? Is there another way for me? Is there another way
to make sense of my experiences? Well Laura Delano, it's such a pleasure to have had you on. Thanks
so much for having me on. It's been so great to chat with you and I'm grateful to be here. Thank
you all for joining Laura Delano and me on this episode of American Thought
Leaders.
I'm your host, Jan Jekielek.