Behind the Bastards - Part One: The Grifters Behind The Fake Autism 'Cure' Industry
Episode Date: April 1, 2025Robert and Mangesh Hattikudur explore the birth of the "unorthodox biomedical movement", which is a fancy way of saying "fake doctors who poison children to cure Autism". https://tinyurl.com/Help-Myan...mar freeburmarangers.org See omnystudio.com/listener for privacy information.
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Hi everybody, it's James here. If you don't listen to it could happen here, you might
not recognize me. My name is James Stout and I am the guy who pops onto this feed every
few months to tell you something very sad and then ask for your money. And that's why
I'm here today. A terrible earthquake struck Myanmar today, the day I'm recording this,
which is Friday the 28th of March. It was
7.7 on the Richter scale. We know of more than 100 deaths, but it's likely the death
toll is much, much, much higher. Lots of the telegraph and internet infrastructure has
been taken out by the earthquake and the Hunter restricts internet and social media access.
So we don't really know the full extent of the death, but we can imagine it will be
very high as one of the areas most affected was Mandalay, which is the second largest city in
Myanmar. I've spoken to half a dozen sources in Myanmar today, people who Robert and I have
interviewed before, they're all okay, but they all shared how terrible things were. They said things
were as bad as they were at the time of Cyclone Nargis, which was a terrible disaster in 2008. If you would like to support the people of Burma who are
currently fighting against tyrannical dictatorship as well as dealing with the consequences of
this natural disaster, there are a couple of ways you can do so. I was actually already
running a fundraiser on my Patreon for Moby a PDF. They are a casualty evacuation team in southern
Shan State right at the fiercest part of the fighting right now.
And they don't fight what they do is they go and they evacuate
people who have been injured, and they provide medical
services to internally displaced people. They've been doing this
since 2021. They're incredibly brave people, and they've saved
more than 300 lives. You can
read more about them by going to my Patreon post which also includes all the links for donation.
The website for that is tinyurl.com slash help hyphen Myanmar. That's tinyurl.com slash h-e-l-p
hyphen m-y-a-n-m-a-r. If you'd like to donate somewhere else, an organization that you can donate to is the
Free Burma Rangers, freeburmarangers.org.
They're a fantastic NGO.
They've been doing a lot of medical work in the liberated zones of Myanmar for a very
long time.
They've also worked in Rojava and lots of other places around the world where people
need help.
I spoke today from FPR today.
He's well, and he told me that they're already starting to respond to the disaster.
So to donate to them, free BurmaRangers.org.
Thanks very much. We appreciate your support.
Oh, welcome back to Behind the Bastards, a podcast
that is happening right now to your ears.
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But don't do that listen to these great episodes that we have with my good friend
Mengesh Mengesh welcome to the program
Thank you so much for having me Robert and Sophie. I'm thrilled to be here
Thanks so much for having me, Robert and Sophie. I'm thrilled to be here.
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Mango, you used to work at the company
that we currently work at, and now you're independent.
You're a pirate, you know, flying your own flag
in the middle of the sea, but the sea is podcasts.
Yeah, I mean, a jolly pirate, I hope.
Yeah.
All pirates are jolly pirate, I hope. Yeah. But all pirates are jolly.
And you co-host a podcast with our boss and friend, Will Pearson,
called Part-Time Genius.
Our boss friend.
But friend and boss.
Notice how I ordered that.
And people should listen to it.
It makes me, it's like a podcast that'll make you happy.
You'll get to learn a thing, but it'll be fun.
That is so sweet.
It really is.
It's like the way that we used to talk in college,
really nerdy and late into the night
and just making each other laugh.
And it feels nice that we get to do that still
all these years later.
Excellent.
Well- That's beautiful.
You're not gonna feel good after we tell you
We're gonna what we're gonna talk about today is not something that will make you feel good
It's gonna make you feel really bad. Yeah
We're gonna talk about the history of quack snake oil cures that kill children in an attempt to cure them of autism. Oh my gosh
I'm not laughing at that. That's that's That's horrible, which is why we're talking about it.
But it's such a fucked up thing to be like,
hello good friend.
I was so excited to come here and just like,
like have a box of popcorn and listen to you
tell me stories.
Yeah, 10,000 words of some of the bleakest shit
you've ever heard is about to be coming your way.
Congrats.
Oh no.
Thanks for showing up this week.
I can't wait.
The legendary escapologist Harry Houdini was obsessed with the afterlife.
I see a little boy. He is in a happy place.
Join me, Tim Harford, for a cautionary tales trilogy on the world's most famous magician
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They're going to kill me.
Listen to cautionary tales on the iHeartRadio app, Apple podcasts, or wherever you get your
podcasts.
If you truly believe in liberation, if you have to cover everybody.
Hi, I'm Georgian Johnson, a bestselling author with the second most fan book in America.
In this week's episode of my new podcast, Fighting Words, I talk with the iconic actress
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of today's backlash against black and queer communities.
If you are more concerned about what your fellow racists think about you, you've already
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Listen to Fighting Words on the iHeartRadio app, Apple Podcasts, or wherever you get your
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My name is Brendan Patrick Hughes, host of Divine Intervention.
This is a story about radical nuns in combat boots and wild-haired priests trading blows
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Listen to Divine Intervention on the iHeartRadio app, Apple Podcasts, or wherever you get your podcasts.
Hi, I'm Bob Pipman, Chairman and CEO of iHeart Media.
I'm excited to introduce a brand new season of my podcast, Math and Magic, Stories from
the Frontiers of Marketing.
I'm having conversations with some folks across a wide range of industries to hear how they
reach the top of their fields and the lessons they learned along the way that everyone can
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I'll be joined by innovative leaders like Chairman and CEO of Elf Beauty, Tarang Amin.
Legendary singer-songwriter and philanthropist, Jewel.
Being a rock star is very fun, but helping people is way more fun.
And Damian Maldonado, CEO of American Financing.
I figured out the formula is you have to work hard, then that's magic.
Join me as we uncover innovations in data and analytics, the math, and the ever-important creative spark, the magic. So, I'm going to start this by saying we're talking about like autism quote unquote cures.
There's no way to cure autism, which is a thing we now understand is like a condition.
It's a way some people are, but it is treated often still as a disease that needs to be
eradicated as if it's like a plague.
And a lot of harm comes from kind of the discrepancy between the reality of the situation and how
a great deal of people see it.
And this week we're going to talk about specifically the grifters, a group called the Biomedical
Movement, which is these are all people who are adjacent to guys like Andrew Wakefield.
They're all people who sell different kinds of, we're talking about like chelation therapy
and shit, all sorts of different like treatments and cures.
They call them interventions.
And ultimately the impact of all of this stuff is that it poisons a lot of children.
Oh no.
So the inciting incident for me working on these episodes,
and maybe you heard about this story, Mangesh,
is on January 31st, a five-year-old child
suffering from ADHD and sleep apnea
was admitted to the Oxford Center
in the Detroit suburb of Troy for treatment.
Now that name, the Oxford Center, sounds great, right?
That sounds like a legitimate place
of medical science, right?
Oxford.
We all know that's a good name.
That means something real.
Has nothing to do with the college.
Has nothing to do with academics at all.
It is instead a place where parents take their children
to have unproven medical experiments
conducted on them for profit.
One of those experiments was the use of hyperbaric therapy to treat ADHD and sleep apnea.
Now, to be very clear, hyperbaric therapy is a thing.
It's a very real medical thing, right?
I think it got its start in use.
Basically, it's like pressurizing and oxygenating an area, a room, or in the case of what this kid was being put
in a little glass too.
But it starts with like if people diving and when you're diving, particularly at like certain
depths for too long, you get like all of these gases building up in your blood.
And if you like surface, even if you're doing it slowly, there's a certain point which you
can't surface on your own slowly enough to like have that stuff dissipate and not fuck you up.
So you go into a hyperbaric chamber
and it basically purges that shit.
That's for like the bends or whatever.
Right, yeah, yeah, yeah, essential.
So this is like people who are doing like very deep sea
like when they're welding at the bottom
of like oil rigs and stuff.
That's one of the things you use this for.
But they found there's other things hyperbaric chambers
are great for actually
over the years. Because it oxygenate, it like forces so much oxygen into your tissues. There
are people who have certain kind of like injuries that won't heal, like people with diabetes,
right, often can get injuries in like their feet that don't heal. A hyperbaric chamber
can like force the healing process to start basically.
And don't they use it for like NFL players or like there's some, I feel like certain
athletes do it, right?
And there's some discussion that there may be some like benefits there.
That's when we get more into the snake oil, right?
Because most of, much of what hyperbaric chambers use for is not the stuff where it's proven
to help.
You know, again, there's maybe some sports medicine benefits to it.
And there's stuff like if you have radiation injuries, hyperbaric chambers can help.
So there are some real uses.
These are actually very, this is actually a very powerful therapy for certain proven
things.
However, there's no evidence that it does anything for ADHD or sleep apnea.
Zero.
Oh, man.
Just not things that it helps with. But there's
this widespread belief that comes out of this biomedical movement for like
trying to treat and cure autism that hyperbaric chambers are useful for that.
And I know I said this kid has ADHD and sleep apnea. Kind of the gist of the
story that we'll be telling is an awful lot of these same people believe ADHD
is another type of autism
Which is not the mainstream scientific consent
But that is that is part of why this gets lumped in
And it gets lumped in because you can then sell hyperbaric therapy to more people with kids, right?
So again hyperbaric chamber chamber is pretty cool
but they're not useful for the problems that
this five-year-old kid, Thomas Cooper, had.
And because the Oxford Center existed to take money from parents with kids who had autism
and other stuff going on, they didn't really care about scientific rigor or even basic
safety protocol.
So here's the thing about doing a therapy like this.
You have essentially
like a hundred percent oxygen. Now, do you remember, Mengesh, what happened to that Apollo
mission that back when they were using a hundred percent O2 inside of the spacecraft?
It doesn't seem like a smart idea.
It caught on fire on the inside and everyone died a horrible death. Yeah. Now there's a way to deal with this, right?
Because there's a part of the benefit
of a hyperbaric chamber when it's useful
is how much oxygen there is in there
and the way that like the pressure works with that.
But when you have this much oxygen,
you have to take a lot of weird precautions
to make sure that everyone inside the chamber
doesn't get incinerated.
So among other things,
if you're in a properly run hyperbaric chamber,
you are going to be only wearing like cotton fabric, right?
Because wool and polyester can cause extremely tiny sparks
when it rubs against other fabrics
or whatever in such an environment.
And normally you don't notice that,
but the smallest spark can cause an explosive fire
that instantly burns you to death, right?
The other thing that you do if you're putting someone in this in addition to making sure they're wearing the right fabric
Is you put a grounding thing on their wrist, right?
If you if you've ever like built computers out of parts you you've used one of these and it's to stop you from like
A static discharge from fucking up this very precious machinery
that you're putting inside of a box.
When you put those on a person and that also reduces the risk, right?
None of this was done in this situation.
This kid was wearing whatever he was wearing, I think he was wearing polyester, right?
And he was, he had like a polyester blanket too.
Nobody really made sure and he wasn't grounded, right?
And so at one point he like
turned over and there was a spark and his entire body immediately ignited. And the hyperbaric
chamber he was in was a small glass tube, just big enough for a person's body. So he had no move.
There's no escaping. There's no way to get out. He's just in a tube of glass on fire. His mom,
who's sitting nearby, there's no medical professionals nearby,
breaks, tries to break him out.
Wait, no medical professionals nearby?
Of course not, of course not.
Again, this isn't a medical procedure really.
You know, it should be, but that's not how they're treating it.
Yes.
No.
Yeah.
So his mom is sitting nearby
and she tries to break into this contraption
and suffers
third degree burns to her arms trying to save her little boy.
Her lawyer later said, it's literally the worst thing any parent could experience.
And poor Thomas, his last moments of life were being engulfed in flames and perishing
in front of his mother.
He was certainly aware of what was going on.
Oh my God.
And yeah, the kid dies.
It's unimaginably horrible. As an aside, every time this yeah, the kid dies. It's unimaginably horrible.
As an aside, every time this happens, the person dies.
This is a 100% fatality rate problem.
When it's in a chamber this small,
if you're in like a much bigger chamber,
there's like some ways that you could potentially escape.
But when a fire, when this kind of fire happens,
this kind of condition, people don't live, right?
Like that's just the way it is
And so so for these treatments are they just coming like once is it like like what?
No, it's not nearly as much money people do this as many times as you can get them to pay
Oh, so so like and was this the first time that this kid had been there or had it been?
I think this was the first time for this kid, but I'm not actually certain of that. And there's no medical professional nearby,
nobody, nothing, classic.
No, there's usually someone, generally like a retired doctor,
it's kind of like getting a pot prescription used to be
where like you've got some guy who's not really,
you know, he used to be a fucking ENT doctor
and he doesn't do that anymore,
but he like signs some paperwork, right?
Maybe he comes by once a week.
Yeah.
You're like, you're like.
Because it's weed.
This is, it's not fun when it's the,
when it's the burn you to death chamber.
No, it's like, you know, you go home
and Google the person who gave you the prescription
and go, what fucked up thing did you do to get here?
How many people did you get killed?
Yeah.
Why do you barely have a medical license?
Oh, bad.
Those were the days, my friend.
Venice speed.
So Michigan, which is where this happens,
had no rules at the time.
It happened in Michigan?
Yeah, and there were absolutely no rules
about how hyperbaric chambers had to be maintained
when you were doing stuff like this.
Absolutely no standards.
But the government does come in,
they find out that the Oxford Center had old machines
that were way past the date
in which they would have needed to be refurbished
to operate safely.
And to make matters worse,
there's like a, because these are devices where people die
if they're not working properly,
there is a life cycle indicator
that tells you how many times it's been used.
So you know if it has to be refurbished before further use and they had illegally dial back that number like you do
Like use cars dealers do on a car. Yeah
Yeah, but on the death chamber that burns children alive
Further investigation by the authorities found per this USA Today article quote the Oxford Center staff failed to meet the following safety standards on the day of Thomas's death.
Number one, conduct a daily maintenance check and pre-dive safety check.
Number two, have a medical doctor or safety supervisor at the Troy facility at the time of Thomas's treatment.
Number three, provide a licensed technician to perform the treatment.
Number four, require Thomas to wear a grounding strap during his treatment.
None of this was done.
Ultimately, both the facility safety director and the CEO of the company were charged with
negligence.
The CEO, Tamela Peterson, has to go down as the most irresponsible single individual in
this story.
When it became clear that this five-year-old had died in her center, detectives showed up
because a five-year-old burnt to death.
Right?
You're gonna send some detectives in.
And she immediately fleece the scene
and takes her laptop to her young son
and tells him to scrub it.
Now.
Great.
Good mommin'.
Immediately implicate your kid too.
Excellent work.
Responsible parenting. We love to see it.
This is a helicopter parent,
but in the sense that helicopters are extremely dangerous
and kill everyone inside of them.
So thankfully, again, the youth these days,
not great with computers,
her kid doesn't really know how to scrub a laptop.
And so it doesn't get scrubbed.
And I'm gonna quote from an article
by the Detroit Free Press here.
"'Still police found electronic messages
on Peterson's devices,' said Detective Danielle Trigger,
great name for a detective by the way,
including an exchange in which Peterson sent photos
of the boy's burning body and wrote something
to the effect of, if my leg was on fire,
I would at least try to hit it and put it out.
He just laid there and did nothing.
She is roasting a dying five-year-old
with pictures of his corpse.
Oh my God.
And roasting's the wrong word.
Lock this lady up.
Also Danielle Trigger,
that's like an airport mystery novel series character, Dave.
That can't be a real detective, same.
That's some Nancy Drew shit.
It is very funny.
If you are Danielle Trigger,
you just kind of have to become a detective.
You try to be a beat cop and they're like,
no, no, no, you're going right to murders.
I can't get it.
I can't get it.
Completely.
Take off that uniform, you are putting on a trench coat.
Peterson's messages also show that when she was asked whether the company was promoting hyperbaric chambers
to treat erectile dysfunction,
she responded, whatever gets bodies in those chambers, LOL.
According to-
Jesus Christ.
LMAO, love my crimes. Those chambers, LOL. According to- Jesus Christ.
LMAO, love my crimes.
What the fuck, lady?
So this is the story that got me looking into the stuff that led to the writing of this episode.
We're going to be going back in time from this point,
but I wanted to start kind of at the end because we're going to explain why this is a thing,
right?
Why there is such an industry for quack medicine like this that promises to deal with whatever
learning disability or condition your child has by giving them dangerous, absolutely scientifically
unverifiable interventions.
If I had to name the root cause of all of this, it would be the fact that autism has,
for the most of the time that it has been in use as a diagnostic term, been considered
like a disease, like an illness, and generally a life-ruining one.
I need to separate here the diagnostic term autism from what we know today as autism
because they're very different things.
As I said in our episodes, we did some episodes on a guy named Bruno Bettelheim, who was a
pioneering quack in the child development and child abuse fields.
In the 30s and 40s, every child who didn't behave in accordance with the desires of adults
at the time was labeled as autistic.
Now, there were other labels that they used. The terms psychotic and schizophrenic were used interchangeably
with autism in diagnoses of kids who had basically any kind of behavioral issue up until the
1980s, which is when we started to gain a better understanding of what those terms mean.
Until the 1980s? Yeah. That's crazy.
And like you will hear childhood like psychosis used interchangeably with autism a bunch in the mid century.
And the actual facts of the matter
is that what we now call autism,
we know actually makes you less likely
to develop schizophrenia,
although we really don't know why, right?
It's just kind of like the data suggests
that people who have been diagnosed with autism
have lower rates of schizophrenia
than kind of the general population.
But it shows how off base people were about the basics of this stuff for a very long time.
And you could view the change that occurred in the 1980s as broadly positive, which is
autism stops being seen as, you know, basically childhood psychosis and starts being seen
as a disorder of development.
So it's no longer being treated as a psychiatric illness,
which means the parents of these kids
start to deal with a lot less stigma.
And the fact that there was stigma to begin with
does go back to our friend Bruno Bettelheim,
who had argued that quote unquote,
refrigerator moms, cold mothers caused autism.
Like if your mom isn't nice enough to you,
that's how you get autism.
Not the truth.
But this also goes back deeper to Sigmund and Anna Freud,
who had positive view of mental illness
that often blamed the actions of the parents
for most problems in children, right?
In other words, they weren't seeing a lot of this
as like genetic, as just kind of structural or chemical.
They were seeing this as your mom or dad fuck up and so you wind up with whatever illness.
And so there was a deep stigma if you were a parent with a kid who had any kind of developmental
disorder or illness that you had done something to cause it, which is obviously very bad for
parents and not any better for children.
And one of the results of this is that once stuff starts to change, this first generation
of parents who are starting to get closer to correct diagnoses when their kids get diagnosed
with autism, also were generally raised in a culture where parents have usually been
blamed for what happened to their kids in this way.
And that's starting to change, but they still have this deeply rooted desire to prove, I'm
not why this happened, right?
It's a huge part of the story that we're going to tell.
I mean, that still must be the case, right?
There's so many high performing perfectionists,
like parents who have kids who are autistic.
And one, they don't want to believe their kids
are autistic for a very long time, right?
They don't see it in front of them.
But that sense that you can fix it or cure it their kids are autistic for a very long time, right? They don't see it in front of them. But
that sense that you can fix it or cure it is so desperate for so many of them. Yeah. Yeah. I mean, we're going to talk about that. And it's also just the fact that at this
point in time, when kids get diagnosed with autism, they're generally kids who,
they, number one, have other things going on. There are different kinds of developmental disorders and even physical disabilities that
sometimes happen alongside autism.
It's like not necessarily caused of effect, but like they're correlated.
And most people who we would understand today as having autism aren't being diagnosed with
it, right?
Because most of people who have autism are generally able to still live
independent normal lives. But most people who are getting diagnosed with it these days aren't. So
there's also that attitude that like this is a life ruiner, right? That's how a lot of... And
I'm not saying anything bad about like people who do have more severe disorders or that like
life ruining is a good way to talk about that. But that's how people are talking about it in this period of time.
So there's both this stigma and this incredible fear around it.
And there's also this attitude, it started to change the idea that the parent has to
be to blame, but there's still this very American attitude that someone has to be to blame,
right?
And all of these different factors are the real root of the biomedical movement that
brings us in the 21st century to RFK Jr. and that five-year-old kid burning to death in
a hyperbaric tube.
And you know, I think I should also state here that increasing numbers of people do
not think it's responsible or good to talk about autism as a disability or as like a
disorder. It's just kind of a way people are. I tend
to think there's a lot to that attitude. But again, part of the issue is that a lot of
the people getting diagnosed in this period of time have other stuff going on and have
a lot of very severe problems. When I was working in special ed, all of our kids were
just described to me as kids with autism, but they all had a lot of severe issues.
I'm talking about like a lot of them were quadriplegics because of birth defects.
A lot of them had had like a lack of oxygen to the brain.
And so these were kids who, I mean, we dealt with grand mal seizures every single day.
These were kids who were often very sick and often in a lot of pain.
And that is a lot to a lot of people's understanding of the time, just what autism is, which is
not accurate.
One of the things that we have learned over the years, when I was teaching, and this is
close to 20 years ago, I think the understanding was that something like a third of people
with autism had average or above average IQs.
Every few years, that number has left at the point that
now it looks like 60% or more.
And I'm sure it's basically the same distribution as the normal population.
And I'm not trying to reduce everything to IQ, but again, initially the people getting
diagnosed and so our understanding of what autism is, is deeply skewed by the fact that most people who have
it are just sort of like still living in, like not getting a diagnosis and going about
their day. The fact of the matter is that like David Bern and David Lynch were never
formally diagnosed with autism, right?
Yeah. No, I mean, there's an article, like an opinions piece in the New York Times this week from
the editor of the journal Science who has, you know, said he figured out he had autism
at age 53 and was talking about how like, you know, it's made him so much better of
a scientist and he sees things that other people don't.
But also that late understanding that like he's in this field and didn't realize
that he had autism until such a late period.
I think that's, again, increasingly the way it's seen today and probably the right way
to look at it is that it's a different way of being a person. It's not the same way everyone
is, but it's not an inherently bad or deleterious thing. It's just you're different, and so there are different ways that you're going to interact
with and view the world and different things that are going to work when we're talking
about educating people with autism.
And again, our understanding of this is still very much developing, but it's in a very primitive
state in the 80s and 90s, right?
Right.
Now, people do know Asperger's syndrome is a topic of discussion by this time
in like the eighties and such.
And so there is an understanding that like
some of these kids are like,
it's this idea that like some of them get superpowers, right?
Which is not really an accurate way to view it,
but like some of, we do know that like there are
people with autism who are like super high,
like highly intelligent and capable in specific
areas.
But the general understanding, if you get this, is that your kid is never going to live
a quote unquote normal life, right?
That's how people talk about it.
So if you're keeping track in the late 80s and early 90s, you got a couple of things
coming together.
You have a generation of parents who are still used to and traumatized by the thought of
being blamed for their kid's condition, who are also used to seeing autism depicted as a fate worse than death
Feeding into this complex churn is the fact that as the term autism grows to encompass more people it loses what author and
Doctor Michael Fitzpatrick describes as a sense of coherence
Michael wrote a great book about the biomedical movement titled, Defeating Autism, a Damaging Delusion.
And in it he writes,
the autistic spectrum stretched from children
who are nonverbal to severely disabled
to those who are of high intelligence,
but behave strangely and had no friends.
The spectrum included children with Rett syndrome,
a neurodegenerative disorder with an identified genetic cause
with fairly superficial similarities to autism.
It also included children with atypical autism
or in the USA, pervasive developmental disorder,
not otherwise specified,
a label that merely exposed the incoherence
of the diagnostic framework.
As one authority commented,
any classification system that includes atypical versions
of one entity as a separate diagnosable entity,
all its own, has to be next to useless
as the basis for scientific progress.
Which is a really good point.
Like, yeah, there's this thing
and also the opposite is also the thing.
Like, it's like, yeah, maybe we didn't have it right.
Maybe that's not a super useful term
to be describing this ass.
You know, stuff like this is a moving target
and it's both worth acknowledging like the
harm that the fact that this is deeply incomplete and fucked up has on a lot of kids and parents
at this time and also, well, you were never going to get this right straight away.
So the confusion here is the final ingredient to what comes next.
The unorthodox biomedical movement, which is how Fitzpatrick
describes this movement that kind of terminates in that five-year-old in the tube, starts with
parents who are angry and shocked that their kids are, as they see it, broken. And they're also angry
and scared of the thought of being blamed themselves. The clinical definition is flawed,
and this produces the opportunity for them to question it, starting with the rejection of the idea that autism is, quote, purely genetic.
Now, if you remember, guys like Betelheim had argued for years that autism was caused
by refrigerator moms, while science had increasingly come to the conclusion that the roots of autism
were largely genetic.
Now, no one ever argued that was the whole story.
In fact, an interesting thing about autism is that identical twins, in cases of identical
twins, both only have autism about 90% of the time, which means there's some degree
of... When we say environment, that means something other than genetics that's playing
a role, right?
Fitzpatrick succinctly summarizes what happened next.
The biomedical activists emphasize environmental rather than the constitutional factors in
the causation of autism, which they insist is a biomedical, metabolic, or immune system
disorder.
While some activists seek to redefine autism as a form of mercury poisoning or as the result
of some process of vaccine injury, others regard it as primarily a gastroenterological
disorder.
They reject the focus of the autism mainstream on genetic research, demanding the redeployment
of funds into the study of putative environmental factors.
And some of this is like a pride thing where they're like, if it's genetic, that means
it's my fault again, which is like not how you should look at that, but people do too
often.
And yeah, so we're going to be focusing on the bastards and the quack experts kind of
at the core of this movement.
But we're also going to talk about a lot of these activists.
I don't want to act like that's the only division happening here though.
From the flawed state of affairs in the early 1990s, you also have, that's not the only
thing happening within the community of people with autism. In the early 1990s,
you start to have the first neurodiversity activists. And these are people like Jim Sinclair, who was a man with autism who wrote in
1993 this kind of very beautiful piece in which he talked about like, I understand
why parents might mourn not having the child they had expected to have. But then he went on to write,
"'We need and deserve families who can see us
and value us for ourselves,
not families whose vision of us is obscured
by the ghosts of children who never lived.
Grieve if you must for your own lost dreams,
but don't mourn for us.
We are alive, we are real, and we're here waiting for you.'"
And yeah, we're not gonna talk about that side
of the story enough because this is a podcast
about bad people.
But I thought it would be an error not to include
that deeply affected quote.
That's really beautiful actually.
You know, like you think about these parents,
obviously they spend so much time warning the kids
that they thought they'd have, right?
Right, and trying to fix them,
that they're not actually there engaging with, appreciating, and raising
their child who needs them.
You said that with kids who don't play the high school joc who's kid doesn't play soccer
as well as he does or whatever, right?
And you think about the difference between that expectation versus someone who's severely
autistic.
It's this thing that happened, and it's so much of the root of the modern fascist movement
is like the parental rights movement, quote unquote, which is really just people who want
to have this ancient Roman understanding of like, I get to choose exactly who my kid becomes.
And no, you don't.
No one ever has.
That's not how people are.
If you're going to have a kid, you really need to accept that they're just gonna do whatever
Zero control you cannot make them into a specific you can if you're generally you can make sure that like they're not like a murderer
Horrible criminal like that's really your goal is making sure they have like
Or a horrible criminal like that's really your goal is making sure they have like empathy
And like the ability to understand how to survive in the world
Well, you should teach them to scrub a computer early
Come on now So we're not anyway, we're not gonna be be talking about the Jim Sinclair's and like the neurodiversity
movement nearly enough in here, but I wanted to kind of
bring that side of it into this
because it would be irresponsible not to.
Now, let's get back to the cranks.
You know?
But first.
But first, you know, it's not a crank.
Our sponsors.
Oh, we're back.
Boy, I love that hyperbaric chamber rat.
I was thinking these things were death traps until they said 15% off.
Wear whatever the fuck you want.
Let's go.
And use the coupon code.
Polyester.
Yeah.
So one of the first and most important organizations in this history is the Autism Research Institute,
which was founded in 1967.
And through its long life, it's effectively been a couple of different kinds of organization.
But in its early days, at the start, it was founded by a doctor named Bernard Rimland.
Rimland was a research psychologist with a son who was diagnosed with autism back in like the 50s, right?
When it was blamed on cold and distant refrigerator moms.
Now, Remland is not a sympathetic character in this story.
He's a bad guy, but he comes from a sympathetic start, which is that his son gets diagnosed
with autism, which is blamed on the mom being cold.
And he's like, that's not my wife, right?
Like this is not on her. And he's like, that's not my wife, right?
This is not on her. And he's right.
It's not on his wife.
She runs hot.
Yeah. She was a loving mother, I'm sure.
And so he comes to the very reasonable belief that like,
well, then that's obviously this doesn't explain autism.
We're wrong about what this is.
Unfortunately, he decides that autism is caused by biomechanical issues triggered
by what he termed environmental assaults. And this is where, this is the core of the
anti-vax movement, right? This is the birth of it. The very, before they're really even
focusing as much on that, just this understanding that this is something environmental has fucked
with my kid. And that's why they've got this, right? That's where it all starts.
And Rimland is a big anti-vax guy, but that's like the origin of it.
Now, again, in the initial era, 67, he's not being a crank for theorizing this because
we don't know anything, right?
And some of his observations are accurate.
The issue is that Rimland continued to hold to his belief about environmental contagions long after the evidence put light to that. In between serving as the technical
advisor on the 1988 film Rain Man, he concluded that vaccines were the quote, prime suspect
as the cause of autism due to the inclusion of a mercury based preservative known as the rain man guy.
Yeah, yeah.
Wow.
In 1995, the Autism Research Institute launched a program known as Defeat Autism Now!
Or just Dan with an exclamation point.
That exclamation point is critical.
It's always used in there and autocorrect.
What's me to have the next word be a new sentence, which is very annoying for me.
So Dan's goal is to put together parents
with physicians and researchers
to collectively explore new treatments and cures
with the ultimate goal of defeating autism,
a condition that cannot be defeated
because again, it's just the way they are.
I am not gonna make that point every time this comes up, A condition that cannot be defeated because again, it's just the way they are. Right? Right.
Right.
Yeah.
I am not going to make that point every time this comes up, but I do feel the need to emphasize
it here at the jump.
So Dan is the tumor which would eventually metastasize into our entire fantasy medicine
industrial complex, which itself is a major booster and contributor to the modern fascist
movement.
You can tie the presidency of Donald Trump directly to this organization
and the things that inculcated in our society.
So the physicians who are interested in Dan,
were not as a rule, people in,
I don't know how else to pronounce it.
Every time you say it,
I was thinking about the exclamation points.
I'm glad you're also making the audience think about it.
It's also gonna really be a jolt for our editor, Dan.
Our editor Dan?
Oh!
Oh!
So the physicians who were interested in Dan
were not as a rule, people in the prime of their career
functioning within their chief area of medical competence.
A doctor is not a doctor, right?
It's one of those things,
if you've got a doctor who specializes in heart surgery,
he could be a great heart surgeon.
He probably knows how to deliver a baby,
like intellectually, but he wouldn't be your first choice.
You know?
Like again, better than a regular dude
off the street probably.
Are you talking about Dr. Oz right now?
Is that who you're talking about?
No, I'm not even shitting on Dr. Oz.
I'm just saying like, doctors have specialties, right?
I know, of course.
Because medicine's a big field.
Again, a guy whose specialty is like your urinary tract,
you might not want like examining your eyes
because he's not an optometrist, not his specialty.
But with stuff like this, they function on pot doctor rules,
which is, hey, did you age out? Are you retired?
Are you tired of being like a family practitioner or whatever?
Come into this field, say you're an autism expert now, you'll get called a hero for prescribing
anything, and you can keep getting money for not actually doing any work, right?
Now when young medical professionals who have some actual relevant expertise get involved,
it's generally because they have kids who get diagnosed with autism.
And so some of these people are like psychotherapists, psychiatrists and stuff like that.
There are some neurologists who get involved in this.
But for the most part, it's like older doctors who are kind of aging out of the profession
and looking for a grift.
Again, we should have kept the pot doctor system going
as like a, just a way to keep these people off the streets.
Right?
It's like a boys and girls club for old doctors.
No, no, no.
Let them give out pot prescriptions.
It's the farm of North.
Yeah.
So these experts are not mostly doctors though.
And in fact, among the most influential of them
is former school teacher, Sue Palmer,
author of the book, Toxic Childhood, published in 2006.
And she is one of the first people to look
at this massive surge in diagnoses of autism, ADHD
and other conditions, not as evidence
that we were beginning to understand these conditions
and thus correctly recognized how many people had them,
but that there had been a quote, special needs explosion that must have been caused by an environmental
factor.
She believes it's either junk food or video games generally, right?
There's different theories people have.
Palmer is one of the first experts who lumps autism in with ADHD, as well as dyspraxia,
dyslexia and several other learning disorders.
And again, this is why I started with the story that kid is not diagnosed with autism,
it burns to death.
He's diagnosed with ADHD, but that is a death related to this movement that is sparked by
fear of autism, right?
Because they just start lumping in with every other thing that we're now diagnosing properly
more often because they think, wow, so many more kids have this.
And now probably about the same amount have it who always have.
We just know what it is now.
You know, another biomedical practitioner, Kenneth Bach lumped autism and ADHD together
with asthma and allergies and labeled them before a disorders.
In both cases, what these people are doing, these experts are doing is mixing autism with
things that aren't autism in a way that allows practitioners to make the case
that there's been an explosion
in what they term developmental disorders.
It looks even more stark if you're lumping
all of these things together as the same kind of thing,
right?
And thus they can make the case is that there's a crisis
that only bold experimental medicine,
like they happen to be selling, can treat, right?
In other words, by mixing all these things together, they're creating a grouping of potential
clients that include basically every parent because almost every parent is going to have
a kid who has one of these things, right?
That is incredible.
Yeah.
It's just such a grift.
It's unbelievable.
Yeah.
It's like if you're a mechanic and you're like, yeah, you know, I, uh, I deal with, I got this great way of fixing busted tires, uh, and also, you know, bad
spark plugs, fucked up transmissions and yeah, and it's waving an incense stick over your
cheeks.
So bring it in.
Yeah.
Uh, as Fitzpatrick writes, Brian Jepson, another defeat autism now practitioner suggests
that autism, which he characterizes as both an environmental illness and a multi-organ metabolic
disease, has increased because the general toxic load in the environment has risen to
a point where so many of us have reached our genetically determined toxic tipping point
that the human species has now edged into a state of what we might call a herd vulnerability.
Though everybody is considered to be at risk from environmental dangers, campaigners believe
that children are more vulnerable than adults and that babies are the most vulnerable of
all.
And just as a quick aside, because mercury is probably the most common thing people blame
for this, they took that mercury-based preservative out of vaccines in like 2001.
Rates of autism diagnoses continued to rise
after we stopped,
because it wasn't doing anything.
It has nothing to do with the vaccines.
We're just getting better at diagnosing it.
All of the human history
has been filled with people with autism.
We just didn't call it that.
Anyway.
It is amazing that like,
obviously like mercury poisoning and mad hatters
and all that, like,
you know that mercury has effects on people.
Oh yeah, and it's had, back when they put it in the hats,
it definitely had an impact on the population, yes.
But we're like, we're totally cool with like,
Botox being botulism, but you can't differentiate
between like the mercury in a vaccine.
No, it's also like, chemicals are bad,
but also I'll shoot whatever into my kid
if a fake doctor says it'll treat their autism.
It's like, you're scared of vaccines
and you're putting these other shit in your baby?
Like, what is wrong with you?
I know, I know.
Now, I think this all kind of helps to explain
why that little boy with ADHD dying
in a hyperbaric chamber is relevant this episode.
It's unclear when hyperbaric therapy first started gaining popularity as an autism treatment,
but by the late 90s to the early 2000s, it was well underway as a practice among biomedical
experts.
That's when they start doing this.
Now, the most fucked up part of all of this is that hyperbaric therapy is less dangerous
than a lot of the treatments that get prescribed
because there are some potential negative consequences
when it's done properly, right?
You can have some issues with it
because it's super pressurized,
but generally people are fine after hyperbaric therapy,
right, if it's done properly, right?
This is not true of a lot of the drug-based treatment
regimens that develop over the years.
The first of which-
Yeah.
When you mentioned hyperbaric therapy, I know there are so many wealthy families that have
tents and stuff in their house and they're trying to reverse their kids' autism.
I had never heard of the glass tube.
That is just horrifying.
Yeah.
It's a nightmare.
I know Brian Johnson, that Live Forever guy does hyperbaric shit and fine. He's in his 40s
He's got five million dollars
Adults if you want to put yourself in the death chamber and potentially burn to death
I don't give a fuck do it right people should be allowed to do a heroin if they want to
Don't put your five-year-old in these things. They can't make that choice
So the first of these autism drug remedies
that really takes a hold
is known by the incredibly sus name secretin.
Oh my gosh.
Now secretin is a real thing.
It's not like some made up bullshit.
It's a hormone that stimulates the secretion
of digestive fluids from the pancreas, right?
It's an and giving people that hormone can be useful for a number of things
Part of why there there's a there and it's legitimate researchers who think well
This might be helpful in treating some of the things that are correlated with autism because people with autism
Often have a number of different GI tract issues, right? It's very common.
I don't know that, I don't think we really know why,
because again, we don't, we really have a,
still to this day, we don't know very much about autism
compared to like what we would like to know,
but this is a thing.
And so the idea that like, okay, well,
this hormone that stimulates digestive fluids
from the pancreas, that might help
with some of these side issues,
not an unreasonable point, right? So there's a, they carry out a test because there's a, I think that might help with some of these side issues. Not an unreasonable point, right?
So they carry out a test because there's, I think, a mom who gives some of this to her
kid and she claims a pretty dramatic effect.
So they bring in like two other kids and they do like an initial study on this stuff.
And again, just three kids and this is an unblinded study, right?
So everyone getting the drug knows they're getting the drug, both
the researchers and the people getting it, which is like, again, if you're kind of just
exploring initially, that's not, you shouldn't base anything on this. If things have been
done properly and they've done this first one, then they're like, okay, maybe we should,
we need to do a blinded study now, which does actually happen. If that's all that had happened,
I'd say, yeah, nothing wrong here. You know, you do this first thing that shows
there might be something to look into.
You do a better study with more kids
that's blinded next, whatever.
Unfortunately, the media being what it is,
always looking for a story,
and there being a lot of parents
with kids who are interested in this,
immediately run with the whole,
there's been a miracle cure found, right?
As soon as this unblinded study comes out.
And the biomedical treatment activists in Dan
believe that they're dealing with a calamity, right?
To them, autism is a disaster
that is severe and time sensitive, right?
If you don't really get to fixing this in your kid
by the time they're three or four,
you have a ticking clock
and they're just gonna be fucked forever, right? So you really have to jump out.
You can't wait for science, right?
And so our friend, Dr. Rimland, who's the founder of Dan,
takes out a patent on secretin
before any other studies are done.
Secretin as an autism treatment.
I don't think you needed to yell patent, by the way.
Oh, sorry.
So he gives a patent.
Misplaced exclamation point.
He takes out a patent on this this drug this hormone as an autism treatment and he sells it to a company called
replicant again so many evil
Industries evil but not replicant
Okay, man, I don't know. I don't know, man.
It's a name I trust.
His bullishness on this hormone is based entirely on one mom, this lady, Victoria Beck, who
claims that her child shows dramatic improvement with secretin, such improvement that Dr. Rimland
describes secretin as the most important development in the history of autism.
Months later, in the summer of 1999, secretin makes its way over to the United Kingdom,
where TV news crews film a boy with autism before and after secretin injections, showing
dramatic change.
Now, UK media is not the only, you know, not alone in this behavior, as writer Nancy Schute
notes in a piece for Scientific American.
Media outlets, including Good Morning America and Ladies Home Journal recounted parents'
joyous tales of children's transformed.
Now as is always the case with this, that video was facilitated by a shady clinic offering
a lot of trendy bullshit medicine, right?
That kid who gets filmed is provided with secretin by this clinic that sells nonsense drugs.
Per Fitzpatrick's book, this course was provided by a private GP who also offered treatments for jet lag,
chronic fatigue, and aging at a cost of 1,500 pounds.
Oh wow.
So this is just like a, is this thing not regulated yet? Absolutely.
We'll shoot it into you, what? 1,500 bucks. Take it. Hand me your kid.
I'll shoot him with whatever.
I love that.
I love that it cures everything from autism to jet lag.
Yeah.
I think that's different nonsense drugs.
Oh, I see.
So unfortunately for secretin advocates, within six months, a double blind study of 60 children
had come to very different conclusions.
Secretin was at best useless.
This was not enough to immediately kill the industry, however, as Nancy Schute writes.
By May 2005, five randomized clinical trials had failed to reveal any benefit.
An interest in secretin waned.
It took years for that to play out, says pediatrician Susan Levy, who helped conduct several of the trials. Research is very labor intensive and progress may be slow.
Parents may feel helpless," she adds, and they don't want to leave any stone unturned."
And there's like a kind of weird tragedy that comments thing here, which is like, if your
kid gets diagnosed with the thing that we don't understand well, how to help with, or even what it is,
you may be best just like loving them
and trying to help them figure out life
and waiting for the science to figure stuff out
because the alternative is you do what these parents do,
which is just you're shooting random crap into your child.
And I get, it's this, one of the biggest problems
in like emergency situations, obviously there's the issue
of like people just not do the bystander effect,
but there's also this issue of people feeling
like I have to do something and then making the problem worse.
When you're trained in like emergency medicine,
one of the first pieces of training is like,
don't just jump in there.
You need to evaluate the scene
because the worst thing you can do is try to go be a hero
and add a casualty to the situation, right?
Oh my God, of course.
This is why you get like a downed power line.
The whole family dies rushing to save one person, right?
Because the stress of not doing anything,
which is sometimes the best thing to do, is really hard.
And that's what's going on psychologically here too.
So by the point that we are at now, there have been more than a dozen double blind studies
that all repeatedly made the same case.
Secretin just doesn't work this way.
Science and the sheer ineffectiveness of secretin has eventually brought it to, I don't think
it's entirely extinct, but it's not as common as it once was.
But obviously a lot of children are drugged and and thankfully, the side effects of this aren't
as bad as the next thing we're going to talk about, but their parents are robbed blind.
This is not cheap.
Michael Fitzpatrick, himself a physician, writes this, one day in surgery, the mother
of a boy with autism told me that she had spent the equivalent of his disability living
allowance for one year on a course of secretin injections provided at a Harley Street clinic.
For a single parent reliant on benefits, the outcome of this encounter with a biomedical
practitioner was not only disappointment when the miracle cure failed, but financial hardship
for the whole family."
And obviously these people don't care.
They're laughing all the way to the bank.
They don't give a shit if any of this works.
Yeah.
Yeah.
That's horrifying.
And it's going to get worse because again, at least Secretin doesn't seem to
really fuck people up too much, right?
It's just kind of useless.
But the next thing is not just that.
You know what doesn't have any hype to it because it's just that good?
Our ads.
All right, everybody, we're back.
So while these studies are accumulating and the hype over secretin is dying down, the
con men offering cures to desperate Dan parents spun up a new strategy for interventions.
They had long believed that mercury poisoning was a root cause of autism.
So of course, the logical place to look for a potential cure was treatments that could
reduce the amount of heavy metals in a child's blood, right? If it's metals that are causing it, why
don't we look at ways to strip heavy metals from from somebody's system,
right? And there is a way to do that. It's called chelation therapy, right? Like
hyperbaric therapy, this is real medicine. If you have like lead poisoning, for
example, chelation therapy can do a lot
of good for you, you know? And it's basically, there's a couple of different drugs that could
do this, but you dose people with a drug and it converts the lead, the mercury, and other
heavy metals that are in their body into less dangerous compounds that you kind of pee out,
right?
Right.
So it's great if you're like a miner who has heavy metal exposure, you know
Sure, sure, but very few children really do because we don't let them work in mines anymore
Kids with autism very rarely have massive lead levels, you know
And if they do it isn't that generally doesn't have anything to do with their autism. It's because they grew up in like Flint, Michigan, right?
And maybe then they do need chelation therapy.
Some kids do, unfortunately.
It's a lot of Michigan slander in this episode today, Robert.
It's not slander, it's just a fact.
They had a left problem.
It is the birthplace of my parents.
Yeah.
Well, they might need some chelation therapy.
I don't know.
So you- I won't ask some chelation therapy. I don't know. So you.
I won't ask.
Chelation is great if you've got heavy metal exposure,
right?
But if you don't, it's harmful because the process of like
pulling all of these metals out of,
because we all have heavy metals in us all the time, right?
Yeah, of course.
Trace levels, it's fine, right?
It's fine.
Sometimes it's in some cases you need them, but in other cases it's just time, right? Yeah, of course. Trace levels, it's fine, right? It's fine. Sometimes in some cases you need them,
but in other cases it's just fine, right?
Teeny tiny bit of mercury, very normal.
Ask people who eat a lot of fish, right?
But so if you're doing this,
this has an impact on your body.
This is a drug that has a pretty profound effect on you
and that means it does bad stuff.
If you have way too much lead or whatever in you, it's worth that cost, right? Because
the lead is going to cause problems. But if you don't have any problems that are caused
by heavy metals, you're going to hurt yourself with this shit for no reason.
Now before we get into the use of chelation for autism, I wanted to start with, I didn't
see this in other articles on chelation therapy, but I found a 2009 piece in Slate by Arthur Allen that talks about the starting
point of chelation as a snake oil cure, and it does start before autism.
Quote, well, before it was used for autism.
Quote, chelation therapy became a craze in the 1980s as a treatment for atherosclerosis
in adults.
Proponents claimed patients were being harmed
by mercury from their fillings.
Dentists use this as an excuse to pull teeth
and even remove jawbones from their patients.
Wayne Haley, a University of Kentucky chemist
was the high priest of the amalgam wars.
When the thymorosal theory emerged on the scene,
Haley and other chelationists shifted their focus
to autistic children.
So again, these are people who are like,
yeah, let's get with these crank dentists.
Let's start pulling teeth and jaws out of people,
giving them chelation therapy.
It's your fillings.
And then like that kind of dies.
But then suddenly they see people blaming, you know,
mercury for autism.
And they're like, guys, we got a new grift.
Move on over here.
Move on over here.
These parents aren't looking for shit.
So in the year 2000, this was still a fairly small number.
It was fairly uncommon for children with autism to undergo chelation therapy.
And at least you got to assume some of the small number of kids with autism actually
like had heavy metal exposure that was unrelated, but you know, might've actually needed chelation.
By 2005, there were more than 10,000 children with autism in the US regularly undergoing
chelation therapy. Almost none of them had any reason to do so than 10,000 children with autism in the US regularly undergoing chelation therapy.
Almost none of them had any reason to do so.
10,000 kids?
Yeah.
And this is like a five-year period of time from a handful to 10,000.
Right.
On a regular basis.
So unlike secretin, chelation therapy involved dosing children with an extraordinarily powerful
drug that had dangerous side effects.
Chelation can cause kidney failure,
especially if administered in IV form,
which is exactly what most biomedical experts advise
when treating autism.
The standard of care, you only really use IV
if you have to, you have other ways.
There's like pills, I think there's creams
that are less harsh on your body,
and you can generally do that
with people who just have heavy metal exposure
for a variety of reasons, including to get more money from it.
These guys are like, no, you got to do an IV, right?
Which we know is the most dangerous way to do this.
Chalation therapy can also cause heart problems, which again is why you don't take this unless
you have to.
One person who absolutely did not need chalation therapy was Abu Bakr Tariq Nadama, age five. He was the son of a physician
in Britain who had been diagnosed with autism, Tariq had been. Tariq's family described
him as a happy and energetic boy. But despite this, they also searched desperately to cure
him, eventually subjecting him to 10 different kinds of quack medical therapy, including
hyperbaric chambers. Now, Fitzpatrick makes this incredibly important note when he writes about this in his book,
quote, this is characteristic of the unorthodox biomedical approach, which recommends a wide
range of interventions, which are often pursued simultaneously.
This makes any judgment of which treatment may be working or causing adverse effects
impossible.
And again, it's one of those things you're a parent, you're terrified, you want everything, give them everything, try everything. Yeah, you want every single effects, impossible. And again, it's one of those things, you're a parent, you're terrified,
there's a take, you want everything,
give them everything, try everything.
Yeah, you want every single possible, yeah.
But like, that's not how medicine works.
If you give them everything,
you don't know what's working or not, right?
There's a reason why you're like,
well, we're gonna try one thing,
we'll see what happens, then we'll try another, you know?
Cause otherwise it's not satisfying,
but you just can't do it any other way, right?
It's like that old sailor saying, right?
Like if you can't tie a good knot, tie a lot of bad ones.
It feels like that.
But I mean, I was just thinking about the IV aspect of it.
IV looks like the most scientific of those things, right?
Like if someone prescribed you a cream, like-
This is serious medicine.
Yeah, yeah.
This is real science happening. Yeah, yeah.
It's just more dangerous for your, again, small child.
Oh my God.
Yeah.
None of these interventions are based in sound medical science or any science at all, and
they don't work.
So Tariq's family, as they're trying, they're putting them in hyperbaric chambers and shit.
They continue to shop around for experts and diagnoses.
And eventually they find themselves leaving the UK, crossing the pond to seek treatment in the United States, which is how
they wind up seeking out Dr. Anju Usman, director of the True Health Medical Center in Naperville,
Illinois.
Now, Dr. Usman happily diagnosed Tariq with heavy metal poisoning.
Specifically, she blamed his case of autism on very high aluminum levels.
Now actual blood tests didn't support this.
He had low levels of iron.
He did have a slightly elevated lead level, although we'll talk about why.
It's not because he necessarily had normally a high lead level.
There's no evidence that his aluminum levels were raised at all.
We don't really know why she came to this conclusion, but still he was prescribed an
extensive series of chelation treatments, which would ultimately end in his death.
Now, Dr. Anju Usman is the still to this day, as far as I can tell, the director of the
True Health Medical Center, which brags on its website to have provided integrative and
biomedical treatments that enhance traditional medical care since 2003.
Her bio on the website says that she got her degree from Indiana University Medical School
and carried out a residency at a family practice in Cook County Hospital, Chicago.
She writes, during residency, I had my first daughter who had severe food allergies and
asthma.
My second daughter, who was born shortly after, was diagnosed with juvenile onset diabetes. My third daughter had chemical
sensibilities to environmental substances like cleaning agents, perfumes, pesticides, and
synthetic clothing. Even with my extensive education and training, I felt ill-equipped
to handle their medical issues. I began questioning my role as a physician and healer."
Now she, that's obviously a difficult situation. It's never...
I was a sick kid with horrible asthma.
I have sympathy for that.
It's scary, right?
Yeah, of course.
She claims that this experience as a mother led her to shift her attention to treating
the underlying cause of the disorders rather than the symptoms.
And again, she talks about her extensive education.
None of it is in doing this.
Being a family practitioner does not teach you how to secure asthma. Yeah, not especially. Yeah, especially in doing this. Being a family practitioner does not treat, like teach you how to secure asthma.
You know, that's just not how it works.
Yeah, yeah.
That's like, you know, I'm an expert race car driver,
which is how I know how to drive an 18-wheeler
for 37 hours.
Like, no, there's a different skill.
There's maybe some ways in which they correlate,
but honestly, I would prefer a truck driver do that job.
She worked as an alternative health clinic
called the Pfeiffer Medical Center in Warrenville,
which was named after Carl Pfeiffer,
a researcher who the CIA had paid to carry out
LSD mind control studies as part of MKUltra.
So great namesake for the Fifers Medical Center. No
notes. Cool. I will say Dr. Usman's children's allergies were more significant even than
she writes on her bio for the center. And I'm not blaming her for that. I understand
why, because her three daughters all suffered severe allergic disorders. One had conjunctivitis so bad it caused cellulitis in her eyes.
And her eldest daughter, Priya, died in 2003, two years before Tariq came to her clinic
after an anaphylactic reaction to peanuts.
So what we've got here is a legitimately traumatized mother who was trained in medical science,
but like not the kind she's going to be practicing.
And she can't really accept that sometimes
horrible things happen to your kids and that sucks.
So she goes on a crusade after concluding
that aluminum toxicity causes everything
from allergies to autism.
And so she's just like over prescribing
for everyone to save every kid essentially.
Yeah, I think that's kind of what's going on here.
Kind of comes from a good place.
It comes from like, I understand how you got here
But you are just going to
Compound harm, you know, yeah
I mean it feels like a different type of horrible than like the yeah the person who was sending text messages about the right
Right, right get as many bodies in this shape. Although
Actually, she has a she's got a sketchy history with hyperbaric chambers. We'll talk about that
So who's mon was a member of Dan and a fellow Dan doctor, Kenneth Bach, agreed with her
about aluminum.
He has noted that he's disappointed that she hasn't really published much of anything about
her findings on aluminum, which I suspect is because there aren't any.
In a bio for her clinic, Dr. Usman engages in common biomedical practitioner tactics of
lumping every issue she can name together and insinuating, hey, these all
might be caused by the same environmental toxin, which in her case is
aluminum poisoning. Quote, I wanted to know more about why my children and so
many other children and adults in epidemic proportions are suffering from
chronic degenerative autoimmune disorders such as asthma, allergies,
arthritis, diabetes, OCD, mood disorders, attention deficit disorder, ADHD, and autism
spectrum disorders.
Now like a lot of these people, Dr. Usman considers ADHD to be part of the autism spectrum.
Again, mainstream medical science doesn't really feel this way.
On True Medical's website, she provides us with a clear idea of how she and her peers
view people with autism.
Quote, the mission in opening True Health Medical Center
came from my journey to help my own children
with these chronic disorders,
to lead productive and healthy lives.
This simple dream has been shattered for so many families.
Right?
It's again, this idea, nobody with autism,
no kid can ever live like a happy life.
And like, I don't know,
maybe if you weren't drugging them more would.
I don't know if Tariq Nidama would have ever been productive in like the capitalist sense
of the word, but again, his family described him as a happy, energetic child.
So at least that was in the cards for him until quack biomedical treatments killed him.
As I explained last episode, Dr. Usman had diagnosed him with heavy metal toxicity, despite
there being very little evidence that we have that that was the case.
Now, one widespread belief among parents in this community is that by the time a kid is
three or four, you don't have much time to reverse the damage that they believe causes
autism.
So time is of the essence, which is why you have this shotgun approach to extreme therapies.
One of my sources for these episodes was a Chicago Tribune article, which quotes Dan,
affiliated pediatrician, Dr. Elizabeth Mumper, when she testified before federal court that,
quote, we feel some urgency that we can't wait for 10 or 20 years.
And that urgency is what leads to treatments like this.
So Dr. Usman recommends Tariq undergo EDTA therapy, which is like that's a specific type
of drug you could do chelation
with.
The treatment is administered by a different doctor at the center named Roy Carey.
Roy is again a retired ENT surgeon.
So none of this is within what you'd call his wheelhouse.
In 2005, Dr. Carey was 68.
He was not yet a listed Dan practitioner.
He did the year after Tariq died, complete the intensive eight hour training necessary
to get that requirement.
So that's good.
Tariq was his first time administering chelation therapy to a child with autism.
Now Dr. Usman's website includes this very friendly photo of her looking like a lovely
competent family doctor.
And I want you to see this picture that she puts on her website as I
read this description of the therapy that she endorsed and that Dr. Carey carried out
on young Tariq. I'm going to quote from Michael Fitzpatrick's book here. Tariq's records
indicate that to administer an intravenous infusion, he had to be restrained by at least
four adults using a papoose board.
This device is a flat wooden board with attached fabric straps which are wrapped around the
child's body and limbs to prevent struggling during treatment.
It was obviously impossible to restrain Tariq for the period of several hours, generally
recommended for the chelation infusion.
Hence, in contravention of specific cautions issued by the manufacturer, Tariq, suitably
restrained, received this medication over five to 10 minutes in a rapid IV push.
Oh, wow.
So they are strapping him to a board, holding him down, and instead of, again, the safest
ways like do a pill or a cream, the least safe way is an IV, but when you're even doing
an IV, it should take hours because you don't wanna do this too fast.
They are shotgunning hours worth of medication
into his body, his five-year-old body,
in five to 10 minutes while he's strapped to a board.
Wow.
So we have known for a long time that this is bad, right?
Doing EDTA, even if you do it properly,
people can develop irregular heart rhythms
and have seizures or even die.
This is why the standard of IV care is a slow IV infusion, but because this kid doesn't
like being strapped to a board and shot up with drugs, they do the most dangerous version
of the thing, and he undergoes this three times.
Tariq finally dies after his third infusion.
Dr. Carey wasn't even in the room.
He gets bored and he leaves it up to another doctor and a nurse to do this.
He gets bored of the short procedure.
He doesn't describe it as getting bored. That's my editorializing. But like, he doesn't want
to be there, you know? He's 68, whatever. He's on a boat or some shit. Per his medical
records, Tariq's released during a subsequent lawsuit. During the IV push, Tariq's mother,
Marwa Ndama, said that something was wrong. Dr. Mark Lewis took Tariq's released during a subsequent lawsuit. During the IV push, Tariq's mother, Marwa Ndama, said that something was wrong.
Dr. Mark Lewis took Tariq's vitals and then Tariq went limp.
Nurse Teresa Bicker called 911 and helped with CEPR while the ambulance was on route.
Tariq was taken by ambulance to Butler Regional Hospital, where he was pronounced dead.
Oh my God.
It's just so horrifying that the treatment itself is horrible and then you're shock-gunning
the treatment and then and this kid is like strapped down and there are professionals
there.
Like the fact that there are, I mean there's a doctor and a nurse there, but like they're
not doing what they should be.
You know?
Yeah.
If you had anyone whose expertise was in chelation therapy, they'd be like what the fuck are you doing?
This isn't how we do it if you're gonna give him this don't give him this but if you are like him a pill fuck
Yeah
so a
forensic pathologist later identified to Rick's cause of death as diffuse acute cerebral
hypoxic ischemic injury and
sub-endocardial myocardial necrosis
injury and sub endocardial myocardial necrosis. Carey was ultimately charged with involuntary manslaughter. He surrendered his medical license in 2008, but the charges were dropped. Although
in the summer of 2009, his license was suspended for six months over the incident and he was placed
on a two-year probation. So that's where we're ending part one.
I have to say, I mean, this is the most I've smiled in an episode about children dying.
It's how else do you fucking I don't know.
Do you look at this?
It's awful.
You yelling Dan is funny every time.
Yeah, it does.
I really knew that that was going to be a load bearing part of getting people through
these episodes.
It's been very helpful to me personally.
Me too.
Mango, you have anything you want to plug before the end of part one?
You know, we also talk about terrible things, but our terrible things on Part Time Genius
are more like the sunniest place to hide your taxes or like why Ayn Rand took Social Security
and was a total hypocrite and stuff like that. But it's, I don't know, I would love for people
to check out the show.
Yeah, listen to the Michelin star episode that you guys did when you brought the
show back recently. Like, I don't know, it was like a year ago, maybe.
Yeah. Yeah.
And that was a fun one for me.
We did a really fun one recently on Pablo Exkobar, the guy who was stealing rare
bird eggs.
Excellent. Excellent. That's recent too.
Excellent.
That's fun.
That's great.
I love that.
Robert, should we go?
Yeah, let's bounce.
Let's get the fuck out of here.
All right.
That's part one.
Behind the Bastards is a production of Cool Zone Media.
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