Culture Apothecary with Alex Clark - I Was Put on Psychiatric Drugs at 7…I’m Still Paying the Price | Danielle Gansky
Episode Date: August 14, 2026Millions of people take antidepressants every day. Far fewer are told what can happen when they try to stop.Danielle was first prescribed antidepressants at seven years old. Now, she's 30 and stil...l on them. After what she describes as severe neurological injuries from decades of SSRI use, she's become one of the leading voices calling for informed consent, safer tapering protocols, and recognition for the millions of people who believe these drugs have harmed them.💊 Antidepressant Coalition for Education Thank you to our sponsors!SAVA: Use code "ALEXCLARK" for 15% offCROWDHEALTH: Use code “CULTURE” to get your first three months for only $99/monthJOOVV: Get an exclusive discount on your first red light therapy orderCOWBOY COLOSTRUM: Use code “ALEX” for 25% OFFPRIMALLY PURE: Use code ALEXCLARK for 15% off your first orderVOTE ONLINE:Our Guest:Danielle GanskyDanielle's Links:WebsiteInstagramYouTubeTikTokX FOLLOW ALEX:Instagram | @realalexclarkInstagram | @cultureapothecaryX | @yoalexrapzYouTube | @RealAlexClarkApple Podcast | Culture Apothecary with Alex ClarkSubscribe to ‘Culture Apothecary’ on Apple Podcasts and Spotify. New episodes drop 6pm PST/ 9pm EST every Monday and Thursday.DISCLAIMER: This content is for informational purposes only and is not medical advice. Always talk to a qualified healthcare professional for any health-related questions or decisions.
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30 years old and you've been medicalized since you were seven.
I don't know who I am underneath it all.
My life I do feel like was stolen from me.
I experienced literally what felt like a chemical lobotomy.
You don't hear your own voice in your head reading.
It's blocked for me.
It almost feels like I have dementia.
My entire brain development happened under the influence of psychiatric drugs.
The withdrawal from the SSRIs dropped me into a living nightmare of nonstop physical and psychological torment.
The pain was unlike anything I had ever known.
I became bedridden, disabled, suicidal.
It was like a chemically induced anxiety.
Doctors are trained to prescribe these drugs.
They've received no education on how to safely help patients come off of them.
Millions of people take antidepressants every single day.
For many, they're life-changing.
For others, they say the real nightmare doesn't begin until they try to stop.
For decades, the conversation is centered on whether these medications work.
Far less attention has been paid to what can happen after years of use, or why some people say they can't get off of them without devastating consequences.
Today's guest was prescribed antidepressants at just seven years old.
She is now 30 and says that she is still trapped by them.
After suffering severe neurological injuries, she attributes to long-term SSRI use.
She's become a leading advocate calling for informed consent, safer tapering practices, and recognition of the millions of people who believe that they've been harmed.
You will notice in this interview that she often forgets what she's saying and relies on notes for details of her story.
All side effects of the damage that has been done to her brain.
Watch this episode on the real Alex Clark YouTube channel or Culture Apothecary on Spotify.
If there was ever an episode to share on social media, this one is it.
Please welcome Danielle Ganski to Culture Apothecary.
I want people to understand who you were before all of this.
So who was little Danielle?
I was a very happy, sweet, sensitive child.
I was outgoing.
I was also a little bit shy in class.
I loved the Disney Channel.
I loved Cartoon Network.
What was your favorite Disney show?
Well, I really loved, like, Hannah Montana.
That was my favorite show.
But I think I grew up watching, like, That So Raven.
Loved That So Raven.
That was the best.
Oh, my gosh.
But that's just, like, I had a really beautiful, incredible childhood.
I had a really happy home life.
I was just very naturally happy, go lucky kid.
And do you feel like that version of your life was stolen from you?
Absolutely.
So I guess it all started when I was in school and a teacher noticed I just wasn't fitting the school system exactly how they think you're supposed to be.
And I was a bit fidgety, distracted.
I also wasn't fully keeping up academically.
So one of the teachers suggested that I be evaluated for something called ADHD.
And you were seven.
I was seven.
Yeah.
And had your parents noticed the same types of signs with you?
I think it all came from the teacher because at home I was complete, like they weren't
complaining or noticing something was off or wrong.
It really just came down to the one lens that teacher saw me fidgeting or like staring
out the window and was like, oh, I think she might have some.
something wrong with her, why don't you get her checked out? So you get on ADHD medication at the
age of seven, and then how old were you when the next medication was recommended? And what was that
medication? So I was put on the stimulant riddlein, and those caused very severe, like, adverse effects.
They were very stimulating. And at the end of the day, they left me very agitated and moody and
angry in ways that were completely out of character for me. So really, instead of recognizing those
changes as adverse drug effects, they were interpreted as evidence that something else was
psychologically wrong with me. So they were saying, little Danielle at seven years old has depression
or anxiety, and now we need to give her an antidepressant? Exactly. That's exactly what happened.
And so that quickly spiraled into a cascade of antidepressants, benzodiazepines, mood stabilizers,
and antipsychotics all before I was even 10 years old. Before you were 10 years,
years old, you were on multiple antidepressants, benzos, antipsychotics? Yeah, I was cycled between a lot of
different ones. I would be pulled off one, ripped off another. And I think at the time, I was having
really severe adverse effects even from that. I now look back. Like, at the time, I didn't
really have the language to explain what I was experiencing. I was so young. I didn't even really
know what I was taking. But they would cause me to become, sorry, sometimes it happened. I lose
my train of thought. I apologize.
You're good.
It's important.
I think that's important to let people see that and hear that in the podcast.
This is all, these are all side effects from your medication.
Yes, absolutely.
They caused very severe cognitive damage.
I used to be very smart, quick with it.
I now literally, I'll be saying something and I'll forget what I'm saying while I'm saying it.
Sometimes I get like delirious and confused.
Like, it almost feels like I have dementia.
So were you able to continue?
going to a normal school setting at such a young age with all these medications, or did you
end up homeschooled or what happened? Yeah, so I actually had to switch to a different school.
So the school that I was at basically told me I had a learning disability. So I went to a special
school with kids with learning disabilities, ADHD, dyslexia. Everyone there was medicated.
Do you think that everybody there actually had problems, or do you think a lot of them were like
you that were being overly medicated and had side effects and nobody was diagnosing it?
correctly. I do believe that's the case that I was merely a shy, fidgety girl, shy girl who
didn't fit neatly into the mold of how a child was supposed to behave in a classroom setting to
these preset norms. And because of that, I was singled out and diagnosed medicated and it ultimately
led to lifelong harm. So before you're put on all of these different medications, at any point,
did doctors sit your parents down and say, hey, so here are the risks and side effects.
that Danielle could experience going on these meds.
My parents were never given the information needed to make a truly informed decision on my behalf.
So my entire brain development happened under the influence of psychiatric drugs.
No one told my parents that the long-term effects of antidepressants on the developing brain had never been properly studied.
And it's really unknown.
And essentially, we're conducting a mass experiment on children's developing brains with little understanding of the long-terminal.
term consequences. I often wonder a lot who I might have been without them, you know, how they have
shaped or even stunt at parts of my development during some of the most formative years of my life.
Because you're how old now? I'm 30. 30 years old and you've been medicalized since you were
seven? Yes. You've never been without pills. No. So I don't know who I am underneath it all.
I don't know. And sometimes that fills me with a lot of grief to be like, what have I missed out on?
You cry? I do a lot. It's hard. It's it's it's hard to come to terms with to be like, you know, I think it's hard too because I was so injured that. Sorry. You're good. It's so emotional. It's all right.
My life I do feel like was stolen from me. It's a hard emotional topic. Sorry. Of course it is. I can't imagine what that feels like. Like, I'm a lot. I'm sorry. I. I can't imagine what that feels like. Like,
I know myself, but also I don't, because is this even the real version of me?
Exactly.
That's exactly.
Like would I like different TV shows?
Do I actually like different music?
Right.
Different boys.
I mean, you must have these thoughts all the time.
I do.
I really do because, you know, so actually throughout like my teenage years, I, whenever I told the doctors, like, how awful I felt, what I now understand were symptoms of drug.
harm and adverse effects. I was told that my anxiety was simply getting worse and that I needed
higher doses of the drugs to correct it. I couldn't get out of this cycle of meds because every
concern I raised was interpreted as proof of my underlying condition rather than recognition that,
hey, these medications, these psychoactive brain-altering chemicals might be contributing to my
change in behavior and how awful I was feeling. But no one recognized that. And
And, you know, there were points in high school, you know, when I was prescribed such high doses of Xanax that I could barely wake up and I let alone make it to school.
I actually missed so many days that I nearly faced truancy charges until my psychiatrist, he actually medically excused my absences.
Did you ever feel at any point like these drugs were helping or working?
Did you feel like, hey, my anxiety is less or anything?
I 100% know intuitively, no, they not at all ever were helpful.
They only ever caused me harm.
I know for a fact they made like my mental health worse.
They made me feel agitated and more anxious and they would cause like looping thoughts.
And I would feel just really out of my mind.
But doctors just weren't recognizing that.
And I don't think I was able to express it properly because I was so young.
and I don't think I could, I probably was using words like, I feel depressed or I feel anxious.
And they're like, oh, okay, then you need more of this drug.
So it wasn't seen as a drug effect.
But I do know now that it was looking back and understanding and seeing and looking back.
So did you ever experience suicidal ideation or thoughts at a young age on all this medication?
There were times where when I was really not doing good when, yeah.
So there was times when I felt flattened and numb and just completely gone and I just would zone out and literally stare at people like in the hallway because I was so out of it.
People talk about that like a Lexapro stare.
Oh, interesting.
I've heard about that.
Yeah.
So that's probably what it was.
And people would literally say to me, they'd be like, I think some people would comment to me like, why you like give it an issue.
What's wrong with you?
You're like staring at people and I would be embarrassed, but I couldn't help it.
Like I was like, it couldn't control it.
And, you know, other times, because I was also at a stimulant at certain times on and off throughout my adolescence.
And that, you know, there was times when I was unable to sleep, it would be so stimulating that it would almost make me feel like psychotic.
And I wouldn't eat.
So I'd be down to like 90 pounds.
I honestly, they felt, they made me feel like I was losing my mind.
So that would those were times where you started to have dark thoughts?
Yes.
I would say that's been things start it to feel not so great because they can induce like they can make you like induce really dark suicidal thoughts.
I mean, they can make people violent.
They can do all sorts of things that we're not warned about.
So absolutely.
We've all met him.
Every tee ball team has a dad named Kevin.
Kevin still tells people he used to be pretty athletic, you know, until I had that ankle injury or that knee injury or shoulder injury.
And then Little Timmy hits a ground ball and accidentally starts running toward the parking lot.
Well, now Kevin has to chase him.
About 15 feet in, Kevin's making sounds I've only heard from people climbing Mount Everest.
His Apple Watch calls 911.
The other dads are stretching just from watching it.
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to deliver everybody's babies, and things are not going great. Meanwhile, of course, he doesn't
know anything about birth. He's like 24 just graduated, but he's got the white coat and the ego and
the credentials, this fancy education. And then there's Martha, who's actually delivered hundreds
of babies and has decades of real-world experience, right? It's funny how little things have
change since the late 1700s. We're still taught that the biggest institutions automatically know best,
right? If it's a doctor, he has a degree. Well, he must know everything and we just have to trust.
Well, just like Martha, back then, I agree. We shouldn't just be handing over our control of our
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Take us to the day where you decided I want off of this ride.
I want off of this treadmill of pharmaceutical intervention.
I want something different.
How did you get the ID to come off?
Did you have any idea how hard it would be?
As I got older in college, it became, I think that's when it became a real tipping point.
I began to slowly kind of wake up and question the effects, these drugs were having on me.
I started realizing that the medication I had always been told we're helping me might actually be causing me harm.
But of course, same as always when I brought those concerns up to my doctor, asking if these medications could be harming me.
I was kind of doing my own research, seeing other people going through some things and explaining some harms from antidepressants.
And I was like, could they cause brain damage?
I've been on them my whole life.
How do I know who I am underneath?
and he basically I was dismissed and he told me that these fears were simply symptoms of my underlying
OCD and anxiety and that I actually needed higher doses of the SSRI to treat it effectively and I wasn't at
the therapeutic dose and he would constantly be like hey you need to go higher and higher I was 23 I had
graduated college and I was like okay it's finally time to come off I want to see who I am underneath
it all what is my baseline and you know despite the fact that
that I had been on these drugs my entire life, all while my brain was literally developing.
He tapered me off over the course of just six short weeks.
Oh, my gosh. Yeah, yeah. And but, but here's the thing. He wasn't technically being reckless.
He was following the standard medical guidelines doctors are taught to use. So, but this is actually
far too fast and can be really dangerous. And that's, it led me into a withdrawal crisis and
So the withdrawal from the SSRIs dropped me into a living nightmare of nonstop physical and psychological torment.
The pain was like unlike anything I had ever known.
Can you describe it?
So basically that doctor directed rapid taper triggered a life-altering withdrawal, meaning so it really felt like my life changed overnight.
I became bedridden, disabled, suicidal.
It was like a chemically induced anxiety and terror.
And my brain felt like it was on fire.
Every sound light and movement literally felt like an attack on my raw, exposed nervous
system.
I experienced acetygia, which is an extremely...
So acethesia is a chemically induced neurological state of terror and inner agitation.
And that it can become unbearable and it leads a lot of people to commit suicide.
it happens a lot in withdrawal.
This is a disease that Jordan Peterson has now.
His daughter, Michaela Peterson, came on the show a couple months back if you guys missed that
episode, and she described acetygia and what her dad is now going through, which her dad has
been off Benzos, which is what I believe he was struggling with.
He's been off meds for a while, but this is a withdrawal symptom that has popped up way
later.
So sometimes your withdrawal symptoms are not immediate.
They can also, like, show up randomly, right?
after you've been off them. You think, oh, I'm good. I got off perfectly fine and then bam,
your hit with something. Exactly. And it's so awful what he's going through. I mean, my heart
breaks for him. And it's, it's, it's, but exactly these, because they're really injuries, right?
It's not really a withdrawal. Withdraw is a misnomer. It's really a nervous system injury.
And it can show up, yeah, it can show up years later. People have something called delayed onset
withdrawal and they don't, they come off and they feel okay. And, and they're,
then three months later, they're hit with withdrawal. When I was hit with it, I was crawling out of
my skin, rocking back and forth on the floor and fetal position, screaming at the top of my lungs.
So what did you think was happening? Did you think, oh, I actually am depressed. I have anxiety.
I have to have these meds. Or did you know something about withdrawal at that point to know
what was happening to you? Yeah. So I actually, at that point, because I'm a really great researcher,
I was on the Reddit forums, and I actually came across a site called surviving antidepressants,
which is an online peer support forum with millions of users.
People who are in withdrawal go to this as a resource to document withdrawal symptoms, help people safely taper off.
And I found this and I read through all the stories and I was like, oh my gosh, I'm in withdrawal.
Like this is exactly what I'm going through.
And I printed out some of the stories from the forums and I brought it to my doctor and I told him I'm in withdrawal from the SSRI.
He dismissed it immediately.
he said that the medication cannot be causing my symptoms and that this isn't withdrawal because withdrawal is mild and short-lived.
And, you know, I was told, again, what I have been told my whole life.
This is proof my underlying condition is worsening and exactly why I needed to be on the antidepressant in the first place.
So what did you do?
So basically after that, I was left, I had no support.
So essentially, I felt completely trapped inside this life-altering neurological crisis that no one around me.
seem to understand or believe. It was profoundly traumatizing to be suffering so severely while being told
the very thing harming me could not possibly be the cause. So here I am struggling. I can't escape
the torment inside my own body. The more I desperately tried to explain to the people around me what
was happening, the more my suffering was pathologized and used as evidence that I was mentally unwell.
Eventually, what I had to do was, so I, in that really intense 24-7 chemical torture, unrelenting, withdrawing,
all. I was in that state for about four months, like constantly.
Staying alive during that time really was my only goal because the suffering was relentless,
just like stay alive. And my doctor kept telling my parents, this was my mental illness,
not withdrawal. Did you guys think to go get a second opinion at that point or not yet?
Not yet. I was just so impaired. I couldn't even leave the house.
Yeah. And you're how old at this point? I was 23.
still. And I lost 20 pounds. I couldn't eat. I couldn't shower. I couldn't take care of myself. I was
a vegetable. Completely disabled. Yeah, completely disabled. No school, no work, nothing. Absolutely nothing.
I became, yeah, I became completely bedridden, unable to care for myself. It's hard, it really is hard to
capture with words what this felt like because it is so indescribable. But every second of the day was
unbearable. So I did, eventually at the end of the four months, I was in and out of emergency
room. So I was like, I need to figure out what to do. But I would tell them what happened to me.
I'm in withdrawal. Like, basically looking for help. Like, please someone help me. Because my
doctor wasn't helping me. I was dismissed. They basically said the same thing. The doctor tried to
say that I was bipolar, that I had developed bipolar disorder and wanted to put me on more
medication. I knew that wasn't true. And I just, I just was trying to survive something that no one
seemed to understand around me. So eventually, I guess, long story short, I eventually reinstate it.
And I really had no choice. My only option was to reinstate because the withdrawal was just so
severe in life-altering. I haven't told my full story yet, but I actually have been through withdrawal
twice. And I actually, so I actually about a year later, I knew I still needed to come off because
the medication itself made me feel so awful. But I also felt trapped because my first withdrawal
experience had been so traumatic. But I knew I had to go more slowly. The problem was,
which I quickly realized, is no doctor knew how to help me do that. Doctors are trained to
prescribe these drugs. They leave. They receive no education on how to safely help patients come
off of them. So I literally went from doctor after doctor, desperately hoping someone could help me
taper safely, but no one knew how to taper. And, you know, they only knew how to take me off over the
relatively large dose reductions over a few weeks, which was what originally had injured me.
What medication is it that you really struggle with the most getting off? So at that point,
And I think that's actually an important thing to mention is so the polypharmacy, that was in like my early adolescence childhood.
But as I got into like high school, I remained only on like antidepressants and on and off benzos.
So but antidepressants are the one drug that I took continuously throughout my entire life.
Okay. And which one?
Fluoxetine.
So it started with Prozac.
And then in college, I switched over to fluvox because I actually wasn't feeling good.
So it's interesting. No one's asked me that, so I haven't gotten into that yet. But so yeah, in college, I had been on Prozac my whole life. And then in college, it was sophomore year. I switched over to fluvoxamine, which is like an older generation antidepressant. And actually when he switched me over, he had me like, he had me take them both at the same time for like a couple days and then just take the flu box. And I actually had a very severe, I'm remembering. Now, I had a very
severe reaction when we did that and when I switched over. And I think I was experiencing like acetya
then because I remember like calling my mom crying and just being like I feel like I don't, I couldn't
explain what's happening. Like I felt crazy and anxious and just it really was hard to put into words.
But of course, my doctor didn't understand. And he was like, you're fine, you're fine.
Like that's just you just need to be on a higher dose. That's literally all he would say. So when I
eventually did come off. I was just on an antidepressant and it was fluvoxamine that I was on and I was on
150 milligrams. Oh my word. Okay. So you're going through the crazy withdrawal stuff. I'm assuming
then you're like, I got to get back on. Like, because you're doctor shopping. You're trying to find
somebody to help you. Do you or do you eventually find somebody that does know what they're doing?
I think the last straw was I went to a psychiatrist and he said my desire for a slow taper was itself a
symptom of my OCD. I can't. I can't. I know.
These people are ruining lives.
Yes, they are.
They're completely destroying people's lives.
I just, I have like, I mean, you probably feel this anyway, but I'm like, throw these people in prison.
Yes.
That's how I feel.
Absolutely. It's a complete, it's so unregulated.
I don't understand how they can, it's just like the Wild West, how they can just take people off like this.
And I mean, one doctor actually at one point said I could just come off cold turkey and it would feel like I had the flu for a couple weeks.
Oh, my word.
That's so dangerous.
I mean, that's, so, you know, so eventually I was forced to learn through online support communities, like surviving antidepressants, which has become a lifeline for the millions of people in withdrawal.
So there is where patients shared tapering strategies on how to safely come off using like little micro doses.
You essentially like, I had to like make, so just to give some background.
So another major barrier is pharmaceutical companies.
don't manufacture doses small enough for the actual gradual tapering many patients need to come off.
So I had to basically open my capsule, count out the beads with little tweezers, and weigh them on a
jewelry scale just to like slowly reduce down. And I tried making very tiny cuts, but even like the
smallest destabilized my nervous system. And I think within days that actually somehow me trying to taper
threw me back into severe withdrawal. It was such a nightmare. And then another doctor, because at this
point, I was kind of still seeking out doctors. I didn't know what to do. Actually, he misinterpreted my
withdrawal symptoms as an underlying mood disorder. And then he actually prescribed me Zyprexa,
which is a very heavy hitting antipsychotic, which I should have never been given. It's so
inappropriate. And I had a very severe adverse reaction. After taking it, I experienced,
literally what felt like a chemical lobotomy. Oh, my word. I couldn't speak. I was getting lost in my own
house at one point. I actually had to relearn basic functions. My entire body went numb. Like I lost all
my senses. Are you an only child? No, I'm the middle child. So there's three of us.
Were your other siblings like medicalized and had all this happened to or only you? No, so they were as
well actually. We were all, my whole family was on psychiatric drugs. We had the family's
psychiatrist that was on call. My sister, my brother was put on stimulants really young.
Did you grow up here in the D.C. area where we're recording? No, I grew up in Pennsylvania and
around the Philly area. I was just curious if that was like a cultural thing around here.
Oh, interesting. So did your siblings also have to go through this entire thing just like you of
the withdrawal or you have it the worst? I had it the worst. I also was the one, I started the youngest.
Like my sister was put on more in high school time.
She was on antidepressants, but she was only on for a short period of time.
So she was able to come off.
I'm just going to put myself in your parent's shoes.
When you start going through all of this, was it difficult to get your parents on board?
Because if I'm a mom or I'm a dad and I'm seeing what my child is going through, I mean, obviously you want to rationalize it in so many different ways so that you're not taking responsibility.
like it's because of my decisions that my child is in this position. So first were they like,
no, like this isn't what it is. I mean, or were they immediately on board? Like, we believe you,
we made a mistake. Like, was it easy to get them on board with you trying to get off?
Absolutely. Yeah. So it was not. They, my parents didn't believe me as well. But also,
I don't blame them for that. I'm not angry at them because I know that they were just listening to
the doctor. They were taught to trust the experts. So what did it take for them?
to finally be like, okay, something horrible has happened.
What I would do is I would pull up YouTube videos of like Dr. Yosev with During and.
He's been on the show, yep.
Yeah, yeah.
He's great.
And just different people within our withdrawal community, different leaders within the space.
I would show her different websites.
I think it was really what like the turning point where they started to believe me is when I would show them the videos of other patients and then doctors like who had the white coat on.
talking about it because then it really legitimized it for them because then it's not just coming from me.
I think that's what really made them believe me. And I would force them to sit down in the living
room like, you need to watch this. I would because I would get really upset that they didn't believe me.
Like that can people in withdrawal, if you're not believed, that can be like enough to make people
suicidal and want to take their lives because it's you feel so isolated. Like you're, you know,
I realized that makes sense. I forgot to add a piece of my story. So when I want to,
it to come off again, I went to a doctor who was like, you can just come off cold turkey. And I
kind of knew that wasn't the right thing to do, but I was already really suffering. I felt like the
medication was poisoning me. So I stopped cold turkey. So that really damaged my nervous system
further. And then I went right back into the withdrawal crisis that I had barely escaped the first
time. And then after that, I spent another couple months housebound, disabled. It was like it had
repeat it itself. And then eventually, that's where the Zyprexa came into play. I went to a doctor,
and I was explaining my withdrawal symptoms, and he thought it was an underlying mood disorder.
So he gave me Zyprexa a very heavy-hitting antipsychotic. That caused a very serious adverse
reaction. Not a lot of people know this, but when you were in withdrawal, adding more psychiatric
drugs on top of it, when your nervous systems already sensitized can actually injure you further.
So that just, I developed like seizure like episodes where I would completely like lose control of my body.
I would become like paralyzed like while vomiting all over myself.
I would have excruciating burning nerve pain.
Like it just completely set my nervous system back.
And then eventually I stopped the xyprexa.
I only took that for nine days.
But I think the take the quick tapers along with the zyprexa exposure really left me with lasting damage.
So essentially I had to reinstate the antidepressant again because I was like, oh my gosh, I'm still in withdrawal. I can't stabilize.
But the problem was after I had reinstated this time, the damage did not go away. So it had triggered the doctor, sorry, the quick tapers had triggered a condition known as severe protracted withdrawal injury, which is essentially a nervous system injury caused by stopping.
antidepressants too quickly. And that left me with debilitating neurological and physical symptoms that I've been
struggling with every single day for the past seven years. And so essentially after a lifetime on
antidepressants, my body had become physiologically dependent upon them. And so I'm now 30 years old and I am still
trapped on the same antidepressant I was given as a child. I literally cannot come off.
safely trying to come off has been one of the hardest things I've ever done.
I really want to come off.
I know I don't need it, but the withdrawal is so terrible that even like little
microscopic reductions of less than 1% can put me into a wave where I'm really debilitated
again.
So you've been trying to get off antidepressants now for seven years after being on them your
entire life, even as a child.
and you started at 150 milligrams.
And after seven years of slowly trying to taper off, what are you at now?
Yeah, so I'm actually at 56.4.
I know that's kind of an odd number.
But that's where I am now.
I've been going very, very slow.
Like, I literally go less than 1%.
And you do that for how long?
Oh, yeah.
So I hold for about a couple months.
I usually need a couple months in between because that's all my nervous
system can really tolerate anything faster than that, I can get really, really sick and I'm, I still
want to have some quality of life. My baseline, you know, not to complain, but I don't have a great
baseline and quality of life, but I know that it also can be much worse. I mean, so many people
in withdrawal in our community take their lives because it's just years and years of unrelenting
symptoms that don't go away. So you're at the age where you should be. You should be. You should
be, you know, ideally in a relationship, moving towards marriage, having children.
How has this impacted your ability to just have a normal romantic life?
It's really impacted it because I don't like feel that drive to like connect with other people
romantically anymore if that makes sense. I used to have that intact, a thousand percent.
that was really taken away with the withdrawal injury.
I can't, I don't really, it's just that thing inside you that makes you feel like physically attracted to someone.
Like, it's very, it's like blunted.
It's not there.
So if you were going to like, I don't know, just society would describe, would say you're asexual.
Right.
So here's, this is a hot take.
Right.
You can disagree or agree.
I had on somebody recently about SSRI's and I said this.
So my hot take is, I think everybody who thinks they're.
are asexual is on SSRIs.
I think it's a drug symptom.
Yes.
I don't think that's a real thing.
Right.
And you could disagree.
I don't know.
But like what you're describing, I think people will be like, you're just asexual, but like
really is drug withdrawal.
And it's just a symptom and it's a side effect making you feel like you're not
attracted to anybody.
I just would love to pull the amount of people who claim like definitively, no, no, no,
I know I'm asexual.
I'm not attracted to either sex.
I would just be very curious to see a massive study.
done to see how many of them are on antidepressants.
Absolutely.
It's just like a hot take for me.
No, it's true.
I believe that.
There's a lot of women, too, who are our age, because I'm 33.
And they've been on SSRIs for years, and they are married and they're wanting to have a baby.
And their doctors are saying, well, SSRIs are completely safe.
It's okay for you to get pregnant and then just be on them because it's just going to be too hard to get off right now while you have a baby.
My other hot take is that if you are somebody listening,
and you are on SSRIs, you should not get pregnant until you are fully off of this drug.
We know, and I've interviewed doctors on this, we know that there are severe impacts on babies
in utero who are developing while their mother is on SSRIs.
So sometimes I think as adults, we are required to do hard things for children.
Children should never be required to do hard things for adults.
And so I know that some people say, I really want to have a baby.
I want to have a family. I'm in this window. And my thing is, I think you've got to do the hard thing, which is to try as long as it takes to taper off of these drugs before getting pregnant, even though I know how awful that is to have to wait to have a family when you want to have a family. But I think that's what's required of us as adults. What are your thoughts? I a thousand percent agree. And I've actually contemplated this myself. I'm like, I would love one day to have children and start a family. But how am I going to be able to be able to.
to do that if I'm literally trapped on antidepressants. Because I would never want to get pregnant
while on that. I would not put my child, I guess, at risk for that because I've seen that it can,
like you said, like affect the child and cause really severe effects. And I have my one friend,
she was pregnant when she was on antidepressants. And when she gave birth, the baby was in withdrawal
from antidepressants.
Yeah.
And it was shaking and just, it's really scary.
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And so explain the reality here when it comes to government guidance on these drugs,
pharmaceutical guidance on these drugs.
They're saying things to pregnant women.
It's completely safe to take while pregnant.
They're saying things to people like you, like you can just stop cold turkey.
Or these are just symptoms of your disease coming back.
You're just super mentally ill.
It's not withdrawal.
Withdraw is a few days.
It shouldn't take years.
These are experts, quote unquote, that are,
given this terrible advice, I guess where are we out with the FDA accurately warning people of
side effects of antidepressants? At this point, the FDA, there is absolutely no warning whatsoever
that people can know they can be irreversibly injured by antidepressants. I'm fighting to get
black box warnings on antidepressants for PSSD and protracted withdrawal injury. And PSSD is
post-SRI sexual dysfunction. What does that mean?
PSSD post-SSSI sexual dysfunction is a devastating neurological injury that can occur after taking an SSRI.
So most people have heard that SSRIs can cause sexual dysfunction while you're taking them.
But no one is warned that for some people, these side effects never go away.
So even after the drug has been discontinued and has completely left your body, the dysfunction remains, meaning people are left with permanent genital numbness and total loss of internal sensation and the,
inability to ever orgasm ever again through essentially nervous system damage. And there's also
like emotional blunting. Like you don't feel passion or joy or happy or even sad. You're just
void of emotion. Exactly. And I think that actually is the worst of it. So it can completely erase
sexual desire and romantic attraction, leaving people unable to experience like intimacy or
feel love. But many people describe becoming effectively, effectively chemically,
sexual like we were talking about and, you know, almost like their sexuality has been irreversibly
and chemically like permanently switched off and kind of leaving them as though they have been
chemically castrated and robbed of an essential part of their humanity. But of course,
this injury reaches far beyond the sexual dysfunction because people are, you know, people are not
warned that antidepressants have the capacity to permanently neurologically sever the fundamental
human capacities that allow us to feel love, fall in love, connect and bond with others, experience
empathy, joy, excitement. It strips away and disconnects us from emotional experiences that make
life worth living in a way that feels like an actual chemical lobotomy. And I think this doesn't
get talked about a lot with PSSD. A lot of people really don't know this is that some people also
experience severe cognitive impairment with PSSST. So they get like a complete.
like blank mind and like a loss of their inner dialogue.
Do you have that?
I do.
I do believe that I have that to an extent.
Wait, so when you are not talking, can you talk inside your head?
Not really.
It's like it's blocked for me.
And that's, that is, was really scary when it first happened.
Like it literally felt like something was severed from me.
So when you're reading a book, you don't hear like your own voice in your head reading.
And you know what's funny?
I even have trouble reading books because it's hard for me to like process what I'm
reading and like comprehend it. So I've actually really struggled with that because what do you do
audiobooks? I can do that or like watch TikTok videos. Also I've never been much of a reader.
But it's so I don't think people realize how disabling that can be because inside your internal
world is like your imagination, your creativity, your like your ability to access your own thoughts.
Like that's so it essentially like it feels it feels like being completely dead on the inside.
while you're kind of merely just existing and you're kind of trapped as a prisoner in your own body,
basically forced to watch your life pass by not being able to truly experience or connect or participate
with your own existence and life in the way that you once could.
Another thing is what's so scary is PSSD can occur even after a brief exposure and has been documented even after one single dose.
And we don't know who's going to get it.
We just don't know.
And it's difficult to put into words how traumatizing that is for the people who have it because these are not minor side effects.
These are like invisible disabilities that people can't even imagine how devastating and deep it goes.
These are like fundamental neurological systems tied to the very essence of who you are.
There's no warnings about PSSDS on SSRIs currently.
No, not at all. So is the FDA looking into it?
Yes.
So people are blindsided by this harm from antidepressants because doctors have absolutely no idea this risks even exist.
It's not on the FDA drug label.
You know, there's no way for patients to know that the genital numbness, emotional blunting, and cognitive dysfunction can in some cases be irreversible.
You may never return to your baseline.
That is nowhere on the label.
There's no mention of PSSD.
There's no mention of permanent effects that you may never be the same.
same. So this isn't just something patients have been saying for long, but leading scientists and
physicians who have been studying and documenting PSSD for years actually filed a formal
citizen's petition urging the FDA to warn patients that SSRIs can, in some cases, lead to permanent
sexual dysfunction after the medication is stopped. They told the FDA, you need to update your
warning labels, like, so patients can properly be warned. So under federal law, the FDA was required to
respond to this petition within 180 days. Instead, the petition went unanswered for more than
six years. Oh, my gosh. Eventually, actually, one of the leading scientists had to sue the FDA to
compel a response from them. And what is so unfair is the case was dismissed on procedural grounds
and not because of any scientific concerns or evidence that PSSD was disproven. Because we have so much
evidence, it's that it's real. So if there isn't a warning on the label, doctors can't counsel the
patient. They, patients have no way of understanding the full scope of the risk before they take a
medic to, before they take antidepressants. So how do we get them to do this? It's a really,
it's a really great question. Is it literally just making noise like doing podcasts and protests and
protests and things like that? Yeah. Exactly. And I think that's what it's going to take is just
raising awareness on social media, continuing people who have been injured by this, like,
continuing to share their story. Like anyone who's going through this, it's just important.
It's hard because the people who are suffering from this are so sick that they, some of them just
can't leave their house. Like, they're just fighting to survive. And it's also, it can be a bit
embarrassing. It's hard to talk about. But there's so there's, it's happening to hundreds of
thousands of people more than we probably even know. Yeah, I don't know what it's going to take.
But I, I know it's going to happen. It will happen. Your generation probably. I mean,
would be the first that has been medicalized potentially from childhood through adulthood.
Right. And then what does that look like? Yeah. So now like all the people who are my age who are trying
to come off the antidepressants are being tapered like so rapidly and it's inducing brain
damage and hundreds of thousands of people. Despite antidepressants being prescribed to millions of
people long term, there's zero evidence-based guidelines to guide doctors and how to taper patients off
safely. The tapering guidance doctors rely on came from studies of people who had taken antidepressants
for only 8 to 12 weeks. And based on those limited studies, withdrawal was believed to be mild and
short-lived. But you can put kids like yourself on them as young as 6 or 7 years old.
Right. Exactly. I mean, exactly. So the good news is that this is finally beginning to change.
Like, thanks to Secretary Kennedy's leadership, HHS and SAMHSA actually are convening a technical
expert panel of clinicians, researchers, and patients to help develop evidence-based guidelines for
clinicians to help patients safely taper off antidepressants. I was actually part of that panel,
and I was very honored to be there. And, you know, as someone whose life was profoundly shaped by the
lack of evidence-based guidelines, the fact that I could have a seat at the table to help inform
the guidelines, I wish had existed when I came off these medications is incredible. And
And, you know, it's really going to save so many lives because SSRIs, they're not benign.
They are powerful brain-altering, psychoactive substances.
When taken every single day for months or years, the brain and nervous system change and
adapt to their continuous presence.
And over time, the nervous system becomes physically dependent on them, just as you can
with benzodiazepines.
That means coming off can be incredibly difficult and even dangerous.
especially for people who have been on long term like I was.
So it needs to be reduced gradually, but way more slower than doctors and patients even realize.
But the problem is patients are still being told by their doctors to taper their antidepressant over just two to four weeks using the same one size fits all tapering schedule regardless of whether you've been on the medication for one month or for 10 years.
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Being an adult is basically just finding out that everything important requires follow-up.
You think that you've handled something once and then five years later someone's like,
no, that expired, that change, that was never processed, good luck.
That's voter registration.
People assume that they're fine because they registered once in college or because they voted a few years ago
or because they have this touching faith in administrative competence.
Meanwhile, all it takes is moving homes, even within the same state, changing your name,
not voting in a while, or some random outdated info, and suddenly you've got a problem.
Here's what's wild.
Tens of millions of eligible Americans either aren't registered or aren't even sure if they are.
So let's not do the thing where we find out too late and then act shocked.
Let's just be adults for 30 seconds.
Go to real Alexclerc.com slash vote.
I made it really simple.
You can check your registration status.
That's all it does.
Just tells you if you're registered to vote or not.
And if you're not, register you to vote.
even telling you who to vote for. Real Alexclerc.com slash vote. Right now in America, one in how many people are
on antidepressants? I believe it's one in six Americans, but I would have to check up on that.
Yeah, it's a very, I mean, it's a lot. A lot of people. It's a lot of people. Yeah. So essentially,
it's very likely that you're listening to this and you're on an SSRI or somebody that you love or
know is, or even just, you know, that follow you on social media. It is imperative, which is what
Danielle is saying like our activism on how to fix this problem and warn people. We're not saying
to ban SSRIs. We're not saying nobody should be allowed to take them. If you hear all this and you
think I want to be on this drug, I mean, we have the freedom to do that, right? Yes, absolutely. I feel the
same way about vaccines. If you hear about all the different risks with vaccines and you say, I want to
take all 90 of them, be my guest. It is your right to do that. As long as you have informed consent,
which is what you and your parents were not given when you were seven years.
old. And so what we have is people who are like Danielle entrapped in this prison and need
a need to have a way off. So the best thing that you could do listening to this show is share
this episode on your stories, on your Facebook, on X, on TikTok, text it in your group chat
and just say, dude, you've just got to listen to this girl's story who's been on SSRI since
she was a kid because without people hearing this, I mean, I think this is the most effective thing
that you could be doing is like clips of this, you know, going on TikTok to help the next generation
understand the risks. And then they can decide if they want to take it. Exactly. And I feel like
that's where everyone kind of learns their information from is through social media. So yeah, I think
that is the most powerful way. It's just keep sharing and bringing awareness on social media. And
eventually everyone is going to know about this. I mean, that's my goal.
goal. And I really liked what you said about informed consent because that's what it's all about. This isn't
about no one's banning medications. No one's saying you can't take this medication. It's not about
taking them away. It's the fact we want to give you the true risks that there is because it's
unethical to withhold them from people. Yeah. And once you hear all those risks, it's your choice,
whether you want to take it or not. But you need to be given all the information so you can make an informed
decision. But without that, people are blinded by life-altering risks they were never warned about,
and that's not fair. Do you believe that someday in the future your brain will be healed?
Yes, I do. I do believe in healing. And I think with these nervous system injuries, it can just
be really, really slow. Yes, I do believe one day I will heal and get myself back.
What questions should parents ask their doctor before giving their kid any type of
medication. That's a really good question because right now we're lied to about how these drugs even
work, right? So we're told they correct like a chemical imbalance in the brain, which is not true.
It's completely unscientific. So I think people need to know about the truth about what these drugs do and what
these drugs don't do. Yeah. And I'll just add, I think if you're a parent who's, you know,
thinking about even something like Ritalin for your kid. Because your kid's teachers saying that they
should be on it. My first question would be, okay, do you understand the risks and side effect profile
of this drug? And then also, what is your training on how to successfully taper my child off?
What is your off-ramp plan? Yes. How long do you anticipate my child needs to be on this drug?
You know, if they have no answer, they're like, well, I don't know, whenever they want to get off.
Nope, nope, you have no idea what you're doing. And I think, you know, some, you might have some doctors
that you love, but you mentioned Dr. Yosef. Yes. What is it?
Whittoring.
Whittoring.
And there's a lot of great.
So there's only a few of them.
Roger McPhillan.
Roger McPhillan.
Actually, the doctor, I work with the doctor now, Dr. Jennifer, Dr. Jennifer Gio-Gordano, and she is a
psychiatrist that only helps people taper off psychiatric medication.
So she's withdrawal-informed and she understands how to do it safely.
What are the support groups online that you like and recommend?
Yeah.
So surviving antidepressants is great.
There's so many.
Reddit.
Reddit.
Reddit, yeah.
Honestly, that's where you can get a lot of real information that's, like, not censored.
Another thing we're fighting for besides updating the labels is we really need the NIH to do studies on the underlying mechanism behind these injuries, these antidepressant injuries.
Because we have reason to believe that PSSD could possibly be get better.
People get better.
There could be therapies for them.
Have you ever reached out to Dr. J. Batacharya?
at the NIH and say, can I just have a meeting while you're here in D.C.?
I've seen him at like the Maha NEDs events, but no, I haven't.
He is the kindest best guy.
He seems so kind.
He is amazing.
He's a Christian.
I think if you sent an email and just said, I would just really, really love, could I please have a half hour of your time?
I really think that he would make it happen.
Really?
And I, yeah, I would take the chance and do it.
That's really good advice.
Thank you.
because, you know, I never thought to even do that because that is something, I mean, that's really
simple.
They work for us.
People forget.
They work for us.
Right.
So like when we need something like that, it's like we just got to, you know, bang on their door
or shout from the rooftops via social media to tag them and get their attention.
I can't even tell you doing that with other issues that I really have been passionate about
and tagging people in Congress, whatever, that gets their attention quick.
Really?
And they get very embarrassed.
and they do not like being called out
and that it pains them to look bad.
And so they're like, what can we do?
What does this person want?
It does make a difference to just go meet with your representatives
and say, can I have a meeting with you?
Right.
Let me talk to you about what's happened to me.
You could do that even just email the office
of your representatives where you live
and say, hey, I'm in D.C., asking their office,
when does this person have time for me to pop in for 15 minutes
to tell them my story?
That could have another huge effect on getting this message out.
Absolutely.
Because I think, actually here's another example of my brain injury.
I was going to say something and I completely lost it.
But that happens a lot.
And it's kind of the reality of these injuries.
And I say that to you because I want to help you.
But also for everybody listening, everybody has some story.
Everybody has something going on in their community that they want to see changed.
And so no matter what that is, we do have incredible power as a people to reach out and get these.
get these issues talked about and looked into.
And that's what they're there for.
They literally sit here on Capitol Hill and they're like, who do I have a meeting with today?
And if nobody calls and nobody emails and nobody shows up, then like, well, I guess I can just do the status quo.
I can just keep doing what I've been doing.
So it's important.
So you should do it.
And I think these stories when you share your personal story can really cut through and make people get it and want to help you.
Because I think when people hear about PSSD, they are so shocked to hear that this is happening.
to people. My friend Lauren Friedman, her video on Twitter went viral from the Maha Institute
over medicalization summit where she shared her story about having PSSD, not being able to feel
love for her mother, how her genitals are numb, like the back of her elbow. And, you know, I think when
people see that, I think first so many people see that. I'm like, wait, I think I have this too.
Like people don't realize they have PSSD. A lot of people put the pieces together. But when people
see these stories, I think they can just be so powerful and make waves and bring awareness.
And I'm just, I really, that's, I've made it my life's mission to push these issues forward to get to bring
national awareness to these issues, but also the reforms necessary to protect the harm that happened to me
and so many others to prevent it from happening to others. You're doing an excellent job. I'm so
proud of you. Everyone in this audience is proud of you. What is your social media? Where can people
follow along your story and help out. Yeah, so I'm on Instagram under Danielle Ganski. And I'm also on
Twitter at Daniel Ganski and TikTok, same thing. I ask every guest this to end every episode. If you could
offer one remedy to heal a sick culture, it could be physical, emotional, or spiritual. What would that
remedy be? Trying the keto diet, eating clean, that's something that I've noticed has really helped me
in healing my cognition. I think that's, I believe food is medicine.
and can really affect your brain and your body and how you feel.
I think that something people don't always put together is that the food you eat literally
affects everything about you.
So that's been pretty life-changing for me, actually, in healing.
That's a great one.
That's a great one.
Do you follow Dr. Chris Palmer's work on food in the brain?
Oh, he is so phenomenal.
I want to get him on the show really badly.
Danielle, you're a superstar.
Thank you.
You're a hero to so many.
and we're excited to follow along your journey
and we're really rooting for you.
Thank you for coming on Culture Apothecary.
Thank you so much for having me.
This has been incredible.
Whether you agreed with everything that you heard today or not,
one thing is hard to ignore.
Inform consent only works if people are actually informed.
Medicine evolves because people are willing to question
what everybody else accepts.
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This content is for informational purposes only and is not intended to be taken as medical advice.
Always consult with a qualified health care professional regarding any questions or decisions related to your health or medical care.
I'm Alex Clark and this is Culture Apothecary.
