Nobody Should Believe Me - Case Files 10: The Psychology of Perpetrators with Dr. Cathy Ayoub
Episode Date: December 26, 2024In this last bonus episode before our season 5 premiere next week, we’re airing Andrea’s conversation with Dr. Catherine Ayoub, an associate professor at Harvard Medical School, APSAC member, nurs...e practitioner, and counseling and consulting psychologist. Cathy tells listeners about her background and first encounter with Munchausen by Proxy. She and Andrea chat about the different groupings of perpetrators and the characteristics/background that may signal that an abuser can be rehabilitated. Cathy dives into family dynamics, and her current study on the long-term effects of this abuse. *** Links and Resources: More about Dr. Cathy Ayoub: https://www.childrenshospital.org/directory/catherine-ayoub Preorder Andrea and Mike’s new book The Mother Next Door: Medicine, Deception, and Munchausen by Proxy Click here to view our sponsors. Remember that using our codes helps advertisers know you’re listening and helps us keep making the show! Subscribe on YouTube where we have full episodes and lots of bonus content. Follow Andrea on Instagram for behind-the-scenes photos: @andreadunlop Buy Andrea's books here. To support the show, go to Patreon.com/NobodyShouldBelieveMe or subscribe on Apple Podcasts where you can get all episodes early and ad-free and access exclusive ethical true crime bonus content. For more information and resources on Munchausen by Proxy, please visit MunchausenSupport.com The American Professional Society on the Abuse of Children’s MBP Practice Guidelines can be downloaded here. Learn more about your ad choices. Visit megaphone.fm/adchoices
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True Story Media. of Nobody Should Believe Me. So for listeners on the main feed, we will have it at its regular weekly cadence.
And for the first time ever for subscribers,
we will have the entire season,
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I want to say a huge thank you
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So today I'm talking to Dr. Kathy Ayoub from Harvard. Kathy is a colleague of mine from the
American Professional Society on the Abuse of Children, and we had a really fascinating
conversation about survivors, perpetrators, and just all of the complex psychological dynamics
involved in these cases. I really appreciated Kathy coming on to
share all of her research and her insights. Thank you for being with me this year and for your
support of the show. I hope that you are getting some rest this holiday time and spending lots of
time with those you love and getting a break from it all here at the end of this absolutely bonkers
year. Whatever is coming in 2025, I will be here with you every week
and we'll get through it together. Now on with the show. Well friends, it's 2025. It's here.
This year is going to be, well, one thing it won't be is boring and that's about the only
prediction I'm going to make right now. But one piece of news that I am excited to share is that the wait for my new book, The Mother Next Door, is almost over.
It is coming at you on February 4th from St. Martin's Press. So soon! I co-authored this book
with friend and beloved contributor of this show, Detective Mike Weber, about three of the most impactful cases of his career.
Even if you are one of the OG-est of OG listeners to this show, I promise you are going to learn
so many new and shocking details about the three cases we cover. We just go into so much more
depth on these stories, and you're also going to learn a ton about Mike's story. Now, I know y'all
love Detective Mike because he gets his very own fan
mail here at Nobody Should Believe Me. And if you've ever wondered, how did Mike become the
detective when it came to Munchausen by proxy cases, you are going to learn all about his
origin story in this book. And I know we've got many audiobook listeners out there, so I'm very
excited to share with you the audiobook is read by me, Andrea Dunlop, your humble narrator of this
very show. I really loved getting to read this book and I'm so excited to share this with you.
If you are able to pre-order the book, doing so will really help us out. It will signal to our
publisher that there is excitement about the book and it will also give us a shot at that all
important bestseller list. And of course, if that's simply not in the budget right now, we get it. Books are not cheap. Library sales are also extremely important for books,
so putting in a request at your local library is another way that you can help. So you can pre-order
the book right now in all formats at the link in our show notes, and if you are in Seattle or
Fort Worth, Mike and I are doing live events the week of launch, which you can also find more
information about at the link in our show notes. These events will be free to attend,
but please do RSVP so that we can plan accordingly. See you out there.
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to learn more. Well, hi, Kathy. Hello.
Thank you so much for being with us. So, yeah, if you could just start off by telling us who you are and what you do.
My name is Catherine Ayou, usually called Kathy, and I'm an associate professor at Harvard Medical School.
And I'm a counseling and consulting psychologist and a nurse practitioner.
So I come at all the work that I do from my basic interest and work in working with children
and their families.
Which of those several jobs that you just listed, which of those was your first entry
into this work?
How did you get started in your career? I actually got started as a nurse practitioner, nurse clinical specialist. And I wanted to work
in a hospital with young children and families. I actually wanted to work with children who were
ill. So I wanted to work with chronically ill children. And we moved to Tulsa, Oklahoma for
my husband's job many years ago.
And I convinced the director of nursing that I could be the mental health consultant to
their pediatrics and obstetrical unit.
And while I was there, I not only worked with chronically ill children, but the chief of
pediatrics said to me, hey, there are these new things we've heard about, and they're
called hospital child abuse teams.
How about if you start one along with the other things you're doing? Because I think we probably
see four or five cases a year. And I said, well, okay, let me see what I can find out. And I had
the tremendous luck in working with a couple of great pediatricians who had trained with Dr. Henry Kemp in Colorado. But he was one of the
first people who really talked about child abuse and helped get the child abuse legislation through
in all 50 states for mandated reporting. And he really wrote about child abuse first and foremost.
And so I said, okay, very naively, I'll start this child protection team. And we saw 150
children in the first year and about 200 or more in the second year and realized the other hospitals
in town didn't have teams and worked on building those teams. And so I saw my first case of medical child abuse in Tulsa when I was part of the child abuse team.
And most of that, all of the pediatricians and the nurses were really very willing to have folks on the child abuse team go ahead and, you know, talk to the parents, understand what happened to the child and really try to understand any forms of abuse or neglect we were seeing and
whether we should report to child welfare, for example, except for one case. And the chief
physician who had really helped start the team and actually circulated, rotated through the team,
said, I have a case and I'm not referring it. And there is a mother here and her baby almost died because the baby's bottle
was full of salt. And I'm going to handle this case myself. And I'm going to work with child
protection. I'm going to work with, you know, referring it and she's very sorry. And you're
not going to touch this case. Wow. And I was really curious.
And I think my curiosity led me to then after I moved to Boston and went back to school,
in my clinical work, both as a pre-doctoral and post-doctoral. I was really interested in working through the courts
and with child protection agencies and hospitals around child abuse and neglect. And I was always
curious about this, by then this Munchausen by proxy. So what year roughly was that case? What year did that come up, would you say? It was in the late 1970s, very long ago, really around the time that Roy Meadows actually wrote
the first paper on Munchausen by proxy. And I found the paper and even tried to say,
I wonder if this is what's going on. And it was just, again, our whole team was really shut out
of the process. I'm so curious about that dynamic because yes, my first question, I was sort of
doing some quick math in my head and I was like, I bet that was around the time that even term came
into existence. And I wonder if that doctor who, so it sounds like the doctor in that case was really trying to protect that mother and was very much unwittingly, I'm sure, but sort of colluding with her.
And so how did he frame what had happened?
You know, like he was cutting out your part of the process, but like he sounds like
he did report it. Like what was his conception of what was happening? His, I believe his conception
was really that this was a very remorseful mother who had made a big mistake and he was very
connected to her. I mean, that was the other thing that really, really got my attention because he was so
connected to her that he really needed to.
He not only kept us out of the situation, but he really worked with the child protective
workers to keep them out in a way, too.
I'm going to see her.
I'm going to see this baby. You know, i'm gonna see her i'm gonna see this baby you know i'm sure
this isn't gonna happen again and he made a lot of assertions um and was incredibly protective
around the whole you know the whole reporting system that's really fascinating so that was
sort of your entry point then sounds like into getting interested in Munchausen by proxy.
Exactly. That was my entry point. And then when I went back and got my doctorate in psychology, I was lucky enough to be both as a pre-doctoral student and then to do a postdoctoral fellowship in child forensics. And I worked at the Boston Juvenile Court Clinic
as part of that experience and also did a lot of work in family court. And I was handed a case
and they said, well, you're a nurse, you should understand these medical things. And you're a
psychologist, so you should understand the mental health issues. Here's this really unusual case at the Boston Juvenile Court
Clinic. This was a court clinic that sits within the juvenile courthouse and judges would refer
to us directly around, you know, any kind of juvenile cases. But in particular, I was really
interested in young children and I was really interested in child abuse and neglect. So they
used to give me those cases. And it was really there at the Boston Juvenile Court Clinic that
I began to be the person who ended up seeing these cases. And we also, at the same time,
I did work in family court and this is through the Law and Psychiatry Service at Massachusetts
General Hospital, which is where I still practice my forensic work, but
ended up seeing those cases once they got to court.
And then at the same time, doing some work with a number of hospitals about how to set
up child protection teams in hospitals.
And these were always what a number of my colleagues called the black holes of child abuse and neglect because there was so much information and it was so complicated.
You mean medical child abuse cases, the Munchausen cases?
Daily Munchausen by proxy cases in particular, yes.
Right, or the black hole of, yeah, I can see that. I mean, this is really fascinating because I think that
sometimes people, and certainly even as I've been digging into this, I think many of us are
surprised at how recent our recognition of child abuse period is, right? Munchausen by proxy is
its own thing, but even sort of this idea of like the battered child syndrome and
the need for protections for children from abuse is very recent.
Absolutely.
And, you know, again, I'm old, so I've had the opportunity to really see this develop.
Again, I remember talking to Dr. Henry Kemp at the University of Colorado,
and he was saying, you know, you're a young thing. You don't remember when there were no
protections for children. And he worked with Walter Mondale when he was in the Senate and
actually got them to pass legislation that provided federal funds for states that would develop child protection laws.
And what year was that?
That was in the 1960s, because by the time we got to the 1970s, all 50 states had passed child protection laws.
And most states had child protection systems that were developed within their states.
However, there were a few states that didn't, and Massachusetts was actually the last state
to integrate into their state system child protection services because those services
had been provided since the late 1880s by the Centers for Prevention of Child Abuse,
the Massachusetts Society for the Prevention of Child Abuse.
So it sounds like previous to this era, there were sort of patchwork,
maybe efforts to protect children, but not this sort of overall understanding that this is
something that needs to be taken really seriously. Exactly. So, you know, we're really in a
very different place now than people were in the 1960s as this was really developing,
and even in the 70s. But we're still struggling with some of the same issues and some of the real backlash to protecting children.
Yeah.
If you can just talk us through, like, I, and I always want to make sure in my work that I don't cast aspersions of any kind or sort of make parents of truly chronically ill children nervous.
And, of course, those parents do have bad experiences with
the medical system plenty of the time, right? I mean, there are those real problems also.
Munchausen by proxy cases are very distinct from those, I think. But I wonder if you can
kind of talk us through, like, what are some of the things that makes either parental behavior,
just the sort of expression of it? Like, what are some of those
things of like, if you take a child that has a genuinely rare medical complexity and put it up
against a Munchausen by proxy case, what are the differences between those things?
There are some very distinct differences, but oftentimes care professionals get so wrapped up with, and I'm going to say mothers, because 97% are moms or are women who are caretakers.
But there are some real distinctions.
Having worked with a lot of families with chronically ill children, it's incredibly anxiety producing.
I mean, there's nothing worse than having your child be ill, particularly chronically ill.
And so parents are anxious. But what you see by and large is that parents want action and then
they're so relieved when the child gets better, or they're very anxious when the child is not
getting better, or when they have a chronic life course that the parent often can't control, particularly if the child's a procedure. Sometimes the parent will often push for a procedure that the doctor
may not think is totally necessary. And the parent comes back and says, yes, but my child is still
ill or my child has another problem. If their GI problem was taken care of, now they have seizures.
If they're also having seizures, then they have an immunological problem. So almost every body system gets tagged, and it just gets worse. The other thing you see is if providers have time to go back and look at the records, you can almost track where different disorders appeared. So you also see doctor shopping, not to try to find a way to have
the child get better, but to have somebody validate that the child is ill. So you have to
really look at all those patterns very carefully. I think I could say almost every parent that I've
interviewed with factitious disorder has convinced me at some point in time.
I get taken in to the point where I often have a colleague when I'm doing these forensic interviews
where I can do six interviews, 10 interviews, you know, I can spend much more time. I may have a
colleague sit behind me to watch me be taken in oftentimes, because these are very, very convincing people.
Now, and some of these women present as victims and really want everybody to feel sorry for them.
Some of them are more assertive and are more intellectual. You know, I know more about this
disease than the doctor. And, you know,
that's also kind of another sign. It doesn't mean that parents of chronically ill kids aren't going
to know a lot about their child's disease, but it almost comes across in a different way. They don't
spend all their waking hours, you know, on the internet looking at rare diseases. So I hope that's given you a few
characteristics that are really different, but you can see that it's not something that you might
know instantaneously and you have to dig. And that's one of the things I think that's always
interested me is that it's very important to really start out thinking this is a chronically
ill child and really peeling back the onion and then watching and spending some time with the
child, really understanding who is this child, what are they doing, you know, how do they appear
when they're, you know, relaxed or will sit and, you know, be with you, play with you, those kinds of things.
Right. I mean, I'm fascinated at the way you describe that because, you know, I've had Bjorker on the show a couple of times and she described the exact same experience of just, oh my God, I get roped in every time.
You'll be in a conversation with them and you'll just be like, oh, we've got it all wrong.
And then you sort of like come out of that trance when you look at these other factors, right? When you look
at the evidence. Yes, exactly. And it's what a lot of times we talk about it is as there are lots of
what we call cognitive distortions with the parents. It's that you think you're following a logical train of thought, but it gets distorted. And what you see is that the events that most people would see one way are often described by these mothers in a way that actually moves to make them look like they're more nurturing, more competent, and that they're right about what they're saying. They also will take a piece of truth and distort it.
So even when I have the opportunity to do psychological testing,
which I think is interested in understanding people's personalities,
it certainly doesn't define or identify Munchausen.
But to look at how oftentimes these women will actually start with the detail and build information, like circle that detail to make it something that it isn't, or they'll take an overall statement and add the believe that these women are not all made in the same cloth, that there are at least three or more different, pretty clear groups of women with different ways of being and that their prognosis for really being able to change their behavior has something to do with that as well. FanDuel Casino's exclusive live dealer studio has your chance at the number one feeling, winning.
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BetMGM operates pursuant to an operating agreement with iGaming Ontario. So you were saying that there's several versions of this type of perpetrator.
If we're talking about sort of like almost a profile, right, which has been interesting to me on the show.
You know, I think initially I assumed every perpetrator would be charming, charismatic, very bright, etc.
Because that's what I know.
And then Brittany Phillips, who we covered in the second season was like the opposite type,
right? A bully, no one believed her, but she, you know, mostly got away with it nonetheless.
So what have you seen in terms of like, when you're talking about, yeah, talk to me about
those different sort of groupings of perpetrators and what you said about like which ones may be capable of some kind of
treatment and which ones are just not going to, that's not going to be viable for.
There are a number of different ways of talking about perpetrators. And we actually did what I
think is still the largest prospective study, which is only 45 families
of Munchausen by proxy cases. And they all were verified through one court. In other words,
the judge found that this was true. Several cases with criminal courts, most often it was
juvenile court or family court. And so we tried to understand what the mothers really looked like. I've got lots of different
information. We first, we looked at their IQs and they were all, you know, some were very high
and then there were people whose IQs were not that high. So just want to say, I think, you know, these are, and these were people from
multiple walks of life. So you can look at these moms in a number of different ways.
The person who I think looked at the most carefully, and I think this was so interesting,
is Dr. Southall, who was the pediatrician in the UK, who actually did surreptitious video surveillance of children
who had unexplained breathing episodes, or what we call apparent life-threatening events
where kids stop breathing.
And what he found was that when they analyzed those tapes, all of these individuals were suffocating their
children on videotape. Again, they didn't know they were being videotaped, but he found three
distinct groups. So one of the ways to think about these moms is how do they act with their children?
And what he found was that there was one group of mothers who had no interaction with their children except a pretty normal way, and then they'd reach out
and suffocate them. And then a third group who would pinch their children, one mother even broke
their child's arm. They were really hurting the child in multiple ways. That third group of women, I think, are probably in the acute
situation the most dangerous. Now, these were all women who were suffocating their children,
and that is the most likely form of medical child abuse to be fatal. And in our study, we found of 45 families, we had a 17% mortality rate.
That is so high when you compare to other chronic diseases.
For example, the most common cause of death in children is infectious disease.
In the child 1 to 4, there's a 10% mortality rate. In four to 14,
there's a 5% mortality rate. If you're born with a congenital heart condition, you have a 2%
mortality rate now. It used to be seven in 1990, and now it's gone way down because we know how to
treat these children. So when you think
of children with chronic illnesses or even with acute, the most common illnesses that actually
lead to serious injury or death in children, Munchausen by proxy is way up there. And it's
primarily because of the children who are being suffocated. Although there were also several children in this
study who died of chronic intestinal problems because they were just so debilitated. And I've
also seen, sadly, I've seen young adults, 21, 22 year olds, I get a call from their internist,
what can you do? I think this mother's
making this young woman sick or this young man. And at that point, there are no protections.
Anyway, I haven't gotten off the topic there. No, no, no. All of this is on the topic.
And I mean, that's really fascinating. And I'm sort of, as you're talking, I'm sort of
triangulating the various cases into like
those three groups. So the 45 families that you studied, those were not all suffocation cases,
right? Those were a variety of flangellum by proxy cases. Okay.
They had a variety of different kinds of problems, GI disorders, asthma,
myocondrial disorders, seizures. I mean, I have a list.
I could even read it off for you.
I think we saw a little bit of everything.
Poisoning.
We did have some apnea or suffocation cases. And 10% of the cases were cases in which the illnesses that were being fabricated,
exaggerated, or induced were psychological or psychoeducational.
So it was either they were seen in schools or they were being seen by mental health professionals.
So we were able to identify that as a form of victimization as well.
I think medical child abuse is a helpful terminology for some pieces of
it, but I actually really have come to appreciate sort of just the descriptor of Munchausen by proxy
abuse because of exactly what you said. We see in so many of these cases, even if there are those,
you know, really the life-threatening elements are more the poisoning, the suffocation, that kind of thing, the starvation in some cases,
it also extends to this, you know, emotional abuse and psychological abuse and educational
abuse. And it really like, in some cases, it's really only taking place in those arenas. And
it's still extremely harmful and leaves lifelong wounds, whether they're physical or not.
Exactly. And that's my problem with the term medical child abuse. We tried to craft a term
back in 2002. And I think, you know, it was too complicated, but it was child abuse by
illness falsification. And we really said illness or condition falsification so that it wasn't just
physical abuse. But I think this is still a struggle. And unfortunately, the term medical
child abuse is a great one for pediatricians, but it doesn't differentiate the dyadic nature of Munchausen by proxy,
which, you know, there's a diagnosis for the parent, there's a diagnosis for the child,
and you put them together, and that's Munchausen by proxy. And unfortunately, in our healthcare
system, you can't have a dyadic diagnosis. Right. But what is a dyadic diagnosis? Even I don't know that one.
Anyway, lots of Ds here. We also talk about much as in by proxy as being one of a number of
disorders of deception. And, you know, getting back to these three groups of women and some
other things you can think about, disorders of deception as a more global term are people who
fabricate or exaggerate or change their reality. Or some of them are what we commonly know as
pathological liars. Now with Munchausen by proxy perpetrators, some of them are very focused on their children, on their children's symptoms.
And in a number of cases, I've had some perpetrators say to me, my child has these physical symptoms.
They would never have psychological problems.
Or my child has these psychoeducational problems and they would never have physical symptoms.
And sometimes there are
a combination of both. I think the child's symptomatology also tells you something about
actually how many children in the family are going to be targeted. So that's kind of another
issue we can come back to if you're interested. But then thinking about the perpetrators, they may also be evaluated or be identified
based on whatever is motivating them to keep this secret or to actually make an admission.
I've been involved in long-term treatment of a small number of cases,
but significant cases, and had the privilege of actually working with these families for seven
or eight years, from the time they were identified to the time that the children were completely
reunified. And it was really quite extraordinary. And then I've seen several of the families when the children were adults and their siblings. So that's been very interesting. And in those cases, those mothers each said confession, which was just extraordinary because it just
doesn't happen.
But each of these mothers essentially said, I was waiting for someone to find me out.
Why didn't, for example, there was a woman who was in a hospital here in Boston and her
child was getting ready to, her four-year-old was getting ready to have surgery to have part of his pancreas removed
because he kept having excessive insulin production.
And no one could figure this out in their hometown.
So they came to Boston for evaluation.
And he had these hypoglycemic,
low blood sugar episodes,
which were life-threatening in the hospital
and the doctor would immediately take blood
and this is the chief of endocrinology
and he looked at the findings and he said,
this can't be, the lab is wrong.
Then there was a second episode.
Then there was a third episode
and he finally said, this has gotta be right. And what he was doing is he could identify that this child was being
injected with insulin because the breakdown products for insulin were not present in the
child's blood. If it had been insulin that had been created from the child's pancreas. So there
was in some sense of smoking gun. And he went in and, you know,
faced the mother and said, this is what's going on with you. She came back to me and she said,
I don't know why, you know, he came in and he told me I did this. The syringes were in my purse.
I don't know why he didn't come find them. I don't know why no one looked at me or examined me, you know, or looked for
some evidence that I did this because I really wanted to stop and I couldn't stop. And I really
needed to stop. And as ashamed as she was, and I helped her walk through telling her husband,
which was the hardest thing for her, she was desperate to stop. And the women that I've worked with, at least in treatment,
and maybe this is just random,
but are women who are almost compulsive about doing this.
They've started to do it.
They continue to do it.
And then they can't stop.
And so I think that's one group of mothers.
And those were often the mothers that were
actually able to interact with their children fairly normally in other ways.
I want to tell you about a show I love, Truer Crime from Cilicia Stanton. My favorite true
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will also love You Probably Think This Story's About You for its themes of deception, complex
family intrigue, and its raw, vulnerable storytelling. You can binge the full first
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You know, when you're talking about the sort of three different styles of interacting with the kid, and that's really interesting to think about, this sort of idea that I've always wondered,
and I think one of the things that people are, why people are so disbelieving about this abuse
is because if you have kids, but I think for anybody it's
it's so hard to imagine right it's like kids are here right like harming your child not even
because you're having like you're in a rage or like because you're you know abusing substances
and don't you know have lost your you know sort of faculties or what have you but like
this deliberate planned out orchestrated harming
of your children. It's hard for me to believe that a person who's capable of doing that is
really capable of empathy. And so when you describe someone just sort of going down that road,
but also simultaneously having the empathy sounds like to be able to sort of rebuild and
get to a better place. I mean, I just like, I almost can't like reconcile that idea. So what
do you think makes that difference where someone, that very small, admittedly, percentage of
perpetrators that may be treatable? I think that they really came from different backgrounds and that they had different, you know, genetic predispositions. In each of these cases, what I discovered fairly quickly was that these women had experienced significant and sexually abused within their families. They had been physically ignored and really along with a very strong push to be the caregiver in the family. And then the third piece is that I believe that there is often a trigger for these perpetrators.
Some of them really had triggers in adolescence and, you know, began with some issues in adolescence,
but they're offering often some triggers or some trigger that really pushes them into this.
Now, there are two other groups. And I think the biggest one are the mothers who really
don't do a lot with their children unless they're on stage. And I think that's a different,
because the bond between the child and the parent is really not there from the parent's perspective. And those are the individuals who have recreated
themselves, as my colleague, Herb Schreier, says they are impostering as nurturing parents.
And that takes up their whole time, their whole being. And those are the folks who I think are
very, very difficult. I mean, that's where you're really not, you're not
going to get admissions and treatment isn't effective without some kind of an admission.
Well, without a genuine sustained admission. Yeah. There are many cases, Munchausen by proxy,
many of the cases I've covered. In fact, almost all of them that I can think of off the top of my head, there was no known history of abuse as a child. And I think that makes it
even sort of more perplexing. And again, you know, like Dr. Mark Feldman and the others sort of
described this as a maladaptive coping mechanism. And I think one of the things that I always try
and, you know, remind folks to sort of bring the whole thing down to earth because it does seem so
bizarre is like most of us, I think if we take a moment, can really understand that intrinsic reward that
you get for being sick or having a sick child, right? As you said, with this sort of first
profile that you're talking about, if someone was heavily parentified in an abuse situation
and put in that caretaker role, that that might sort of become this coping mechanism and this
thing that they do and this thing that sort of becomes all twisted up for them.
I mean, what's really fascinating is that it sounds like people who are perpetrating
this abuse because of their own history of abuse are more treatable than the other variety
who is not doing it for those same reasons. And I'm also assuming
with that second group that doesn't have a history of abuse, that's probably where you're more likely
to see that pathological lying that spills into other areas. So the really high rates of excessive
infidelity, lying at work, fraudulent, this, that, and just a million things.
You know, because so many of these cases that I look at, you scratch the surface and you're
like, oh, this was not the only thing that this person was lying about.
So I'm assuming that that's kind of more common in that second group too.
Yes, absolutely.
And you've got it, that those tend to be the people who oftentimes have factitious disorder as well as they're
involved in factitious disorder, you know, imposed on another. They make themselves sick. And those
people, we may often see some of that develop in adolescence. And they start the behavior of, you know, distorting situations. And some of them in the extreme,
I think, then go over into the third group where they tend to really make all kinds of people ill,
their spouses, their friends, you know, they may, if they're upset with a partner, they may fabricate domestic violence
is something that we see.
You know, it's only limited by the perpetrator's imagination, just like the forms of illness
are.
Right.
Just absolute chaos agent on all fronts.
Right.
And it's more than that. What we found in our study was that about
60% of the, and these were all women in our study, 60% of them were also fabricating,
exaggerating, reducing illness in themselves. We did find that a very large number of
the women that we evaluated had mixed character disorders or personality
disorders. In other words, they had long-term dysfunctional ways of being and of acting
that they had really, you know, kind of supported for a number of years. You know, again, on the extreme where we had women that were
really chronically violent with their children in a number of different ways. And then they tended
to be with other people as well, oftentimes in a very indirect or subtle way. But, you know,
I'm going to put Ipecac, which makes you vomit, in your applesauce and you're not going to know what's there kind of thing.
Like we saw this with the Hope Ybarra case that we covered in the first season.
You know, she poisoned a coworker, like that kind of thing.
Yeah.
What else did you learn in this study about and just what have you observed about like the family dynamics surrounding perpetrators?
So both in like the family of origin, as you said,
that's a piece that you look at and also their family as it is. So like their marriages, their
dynamics with their, you know, extended family, that kind of thing.
Let me start with the current information because I'd love to talk about fathers. we evaluated mothers and fathers or partners in both cases. And in terms of thinking about,
again, I always did this from thinking about, so how can the child be safe? How can they be
cared for? And how can they have some permanent placement? There were really two groups of
fathers, were really two family constellations.
There was the two-parent family.
And in those situations, almost always,
the father was enabling the perpetrator.
And there often times were additional
maternal family members in particular
that were also supporting mom. In some cases, there were
other maternal family members who were really, really trying to get into the system, grandparents,
you know, aunts and uncles, and they couldn't kind of break this couple because dad really supported mom. That was really quite typical. Those fathers
totally stayed out of the healthcare for their kids. That's mom's job. I don't know anything
about it, but I totally support her way of thinking. And I think of the one case I was involved in a number of years ago where mother was tried criminally and was convicted.
Dad was in the courtroom and he walked out and he said to the press, they've just convicted an angel.
So he was firmly connected to her.
There's another very fairly significant group of fathers that are estranged
from their partners, either were never married or oftentimes were quickly married and divorced,
and they're fighting for their children. And those situations show up most often in family court.
And I think there are a couple of us who've probably done more work
in family court than a lot of other folks. And it's almost the hardest to manage those cases
in family court, because in family court, when you come in for a divorce, the assumption is that
both parents are fit. And so it's often very hard to really demonstrate that this is going on. And I always think of the case I can
talk about, which was a criminal case in Dallas back in 2019 with a, trying to remember the little
boy's name was, I probably even have it here, Christopher Bowen. Oh, yeah. We spoke to Ryan Crawford on the show. Yeah.
Yes. And I actually testified in the sentencing portion of that criminal trial just about what
Munchausen is, what the prognosis is, what the likelihood is that she would continue to do this. And, but that was such an interesting case. And I did, I did talk to Ryan afterwards,
and, you know, heard more of his story and how he really, you know, how he was really found in
contempt of court and family court, trying to present this information. And not surprising. Yeah. And I mean, for those fathers who find themselves in
that situation, who, I mean, on the one hand, I can understand where this gets complicated in the
arena of divorce, because something that people ask me about constantly, and we can address this
a bit, it's like, well, what about all these false accusations of munchausen by proxy? Now,
there aren't, there's not really any data that there are yeah i know we're having the same reaction um there isn't any data to support
that there are a large number of false accusations of munchausen by proxy happening but i think where
you might see one is that a dad could throw that out in the context of a contentious divorce but
there wouldn't be any evidence to back it up, right? So I can see
where it feels like a thing someone might throw out as a way to sort of get custody of kids. But
number one, I don't know that that happens often. And obviously, if you discovered that your spouse
was doing this and did not want to go along with them, did not want to enable them,
this almost certainly would end in divorce, right? Because you're not going to maintain
your marriage with that person and watch them torture your children. So for dads who
discover this abuse, I mean, is there any way, like, is it about reporting it sooner so that
that's on record while you're still married?
Or, I mean, is there any sort of practical advice?
Because we hear from a lot of people on the show.
I know.
It's really so painful and so tragic.
There are lots of fathers.
And what I always say is, you know, have you filed for divorce?
If that's something you're going to do, you need to make sure that you get a guardian
ad litem or an expert on Munchausen appointed by the judge to do an assessment.
A guardian ad litem is really looking at the best interest of the child.
It's the best way in family court to get someone to evaluate both parties, but it has to be somebody who knows
something about Munchausen if that's what they're suspecting. And I've done probably almost 100
cases in family court, maybe more. And some of them have turned out not to be Munchausen.
It's interesting that most of them have, because I think by the time they get there,
there's enough information, but judges need to be convinced.
And, um, unfortunately, I think it's going to take someone to put all the pieces together.
And what they shouldn't do is have someone do one piece and another person do a second
piece and another person do a third piece and try to put the information together because that's what these perpetrators want. They want
to divide and conquer. So the kinds of assessments that often happen in family court, well, we'll go
have you do a psychological evaluation of both parents. Well, that's not that helpful.
It is really hard when fathers haven't left, and it's really hard to know what
to say to them except to describe what the kids look like and what the perpetrators look like and
have them make their own decisions. I do think that some of the groups that Be Yorker is running are absolutely critical. These partners feel so lost and so alone. And the other thing
that tends to happen, particularly in those divorce situations, is these mothers never give
up. And that's something I want to make sure I get to say is that in thinking about the long term,
they do not give up. They do not give up when the children turn 18, if they have been,
if their rights have been terminated, they're on the doorstep on that child's birthday.
I've seen it over and over and over again. So when I'm talking to fathers, I'll say, you know, when your child gets ready to turn 18, if they're willing, get a restraining order for your ex-wife.
Because there's no protection.
And these women are just relentless.
And they may come back into the situation when rights haven't been terminated five, six, seven years later and say, oh, here I am. I love my child. I want to do something. And if there aren't any legal
protection for these children, adolescents, and even young adults,
they get pulled right back into the same kinds of behavior patterns.
I know in addition to studying perpetrators, and I know you don't necessarily have data to publish
yet, but you are doing a long-term study on adult survivors. And I wonder if you can just share with
us, you know, even anecdotally sort of what you've noticed about how this affects, you know, sort of maybe even starting with like how does this affect children when they're children and being victimized?
And then what are those long-term effects on adult survivors?
We're really hoping to reach out to more adult survivors.
This study started 20 years ago when we had to wait.
We published some current
information on it, but not about the follow-up. And so I think this is really important. First
of all, when we look at what the children are like, you know, when they're in this situation,
one of the things that's really critical is they are very unlikely to acknowledge their
abuse until they're separated and safe.
And Judy LeBeau did a study 20 years ago. She talked to adult survivors. She literally put an
ad in the paper and said, you know, do you think this might've happened to you? And she talked to
folks. And what she found was that half of them said they were unsure that they were being abused until they really
heard about this as an adult. And some perpetrators are very overt and others are much
more subtle. And so that's one thing about victims is that they're very confused because
they're being told that they're feeling things, or particularly when illness is being induced,
that they're feeling things that aren't really there. So, you know, we know, for example, that
sexual abuse victims have a lot of difficulty. They often will not disclose. Munchausen by proxy
victims are even more likely to not disclose. I had one case.
The little girl was seven and her mother was convicted five years after she was removed.
She could not even think or say anything about her mother until she actually heard on the news that her mother was convicted.
And then she finally could begin
to say, you know, my mother did that to me. My mother did hurt me. So once these children are
in a safe place, and you know, part of this depends on their ages, but they often then begin
to show some signs of behavioral difficulties. So the other problem is, particularly in a divorce
situation, this child, custody changes from mother to father, and all of a sudden, three or four or
five months later, father has a child who's got some attachment difficulties, is maybe some
oppositionality, maybe is lying, maybe having some other issues. I do have one young man in who I've followed.
He was severely abused. I saw him at seven. I saw him at 12 and actually did some testing. He
went to live with a paternal aunt and uncle, and he was very wary, was superficially happy, but you couldn't get
under the surface. And when I tested him, he had some psychotic process going on
that was traumatically related. And by the time he was 16 or 17, his paternal uncle and family had, it was a failed adoption. Now, I don't know
what kind of issues this young man would have had otherwise, but a great deal. And he had a very
sadistic mom. So one of the things that we've actually recommended is that these children have
some follow-up before they're 12 or 13,
and that someone really work with them during early adolescence to help them understand what
happened to them. Because this not understanding what happened to you leave you with all of these
struggles about what's real, what's not real, what do I need to do to get attention?
Oftentimes, these children are really seeking a lot of attention.
They got attention for the wrong things from their biological parents, but they think that's the way they need to be.
And so oftentimes, if they go to live with a relative or even go into foster care, they really struggle with building relationships.
And we see this through adulthood too, that a number of the survivors are just,
they're very cautious about building long-term relationships. We saw a lot of kids with PTSD
and a lot of kids with identity problems. the children who really were subjected to this form of abuse for a long time also did sometimes end up fabricating, exaggerating, and inducing their own illness.
And then those are the kids that we saw as adults that are crippled and die in their 20s. So, yeah, and then there are people who have really struggled
and been able to lead good lives and develop strong relationships.
But I think it's something that you always overcome
to think that you had a parent that really saw you as who you weren't.
There are basic issues around identification
and also having some control.
I've had a number of young adult Dixon say to me,
I had to learn to take control of my own life
because someone controlled everything that I did for so long.
I have no identity
because it was just what someone else put on me.
Yeah, I mean, it really seems to me that one of the,
you know, even if someone,
even if a parent isn't engaging in things
that are as physically dangerous or as life-threatening
or surgeries and that kind of thing,
that just this like, you're really robbing a child
of their opportunity to come of age, right?
Because they're not having normal childhood experiences.
They're not learning to take care of themselves, which is what you're not having normal childhood experiences. They're not learning
to take care of themselves, which is what you're, you know, it's like your whole job as a parent is
to prepare someone to go and live in the world. And then they're just like really in the deepest,
most persistent way, not getting the opportunity to do those things.
Exactly. Yeah.
I'm hoping you can give us a little bit of hope or some direction in this arena that, you know, given that, I mean, unfortunately, as we both know, the likelihood of a victim being separated from their perpetrator in any meaningful way is low.
It's low, even if they are in the best case scenario where they have a father who is protective, right? Even then, it's a huge challenge
as we know from cases like Ryan Crawford's and George Honeycutt's and, you know, many of the
other dads we've talked to on the show. So given the fact that many survivors of this abuse are
going to end up only confronting it in adulthood, in their 20s, in their 30s, whenever it is that they sort of are able to have that revelation. What are some things that survivors can look to and what can
we all do to make this better, make this world better for survivors, essentially? I mean,
what are some of the keys here to fixing this? One of the things, at least that I've heard from survivors, is the first thing is they
need to understand what happened to them. So oftentimes, survivors take a journey. They go
back and they talk to the doctor that saw them. I think of Mary Burke, who was one of the first
survivors who came forward. And she tells a beautiful story
about how she went back to the doctor who treated her and said, you know, I want to see my medical
records. You know, I need to tell you, doctor, what happened to me. You know, my mother actually
pulled a hammer out of her bedside table at the same time every day and pounded on my joints.
And that's why they were the way they were. So in whatever way, that's certainly not the only way,
but there are a number of ways. Some people like Julie Gregory write a beautiful book.
Some people really decide they need to tell their stories in other ways and they need to work with other adults who were victimized.
I think there are probably many, many ways of doing this. and understanding what really happened. Because that really breaks through the whole traumatic
consequence around building relationships and around really being able to set your life on a
pattern where you really firm your own identity. This is what happened to me. This is what occurred
to me. And here's how I'm going to work through it and beyond it. So at least we
believe fairly strongly that this needed to happen and that if children are out of an abusive
situation, that this is something that they really might want to be offered the opportunity to do
in adolescence, to really, here's what happened. Do you want to see your medical records? One of the things that
I've really advocated for is if victims want to see their own records, I'll say, I'd be glad to
sit down and go through them with you. Let's figure out what they say. Some people may not
want to do that. And then the second step is really understanding who is safe and who isn't safe.
And it's very, very hard for adult victims. Their mothers are often very persistent about
seeing them, connecting with them, being with them. And that is a lot of energy.
And again, they have to decide what they want to do, how much contact
they want to have. Many of the victims, again, I go back to Judy Lebow's study 20 years ago,
where she asked victims, well, what happens when you go see your mother? And most of them said,
well, when I go there, she still tries to make me sick. So when we say this is a persistent
disorder of the perpetrators, it is. So to also help victims understand and come to some
peace with the notion that this is who this important parent is. I mean, we usually only have one mother, and this is really problematic.
The other thing that's really helpful for victims is to have people on their side,
other family, other friends, but family is absolutely critical. We saw about 43% of the children in this study go into foster
care. And their long-term outcomes, about 24% of them went to grandparents, and I believe something
like 17% of them went to fathers. I hope there are more
children going to fathers, but it's very hard because these women assault the families in which
these children are living, even as they move on to be adults. And we've had some fathers who have
essentially given the children, I have two, who gave the child back to mom. She said, I just can't
deal with this anymore. She is after me every day. She's
destroying my relationships at work. She's trying to get me fired. She's wanting this child. She's
accusing me. She's filing child abuse reports, et cetera. So whoever the caregiver is of the child
after they're out of the situation needs support and so does the child.
The adult victims that have struggled the most have been those without family. And we had 43%
of the children that we saw in this study that remained in temporary placements. So not having
a permanent placement with people who care and love you is critical.
And they were in long-term limbo.
And I think that just did irreparable damage.
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This ad was provided pro bono. Such a strong sort of splitting that the perpetrators do that, like, if you are that person who has, quote, taken their child, I think something that i've come to understand about perpetrators
of this abuse is listen if someone will do this to their child there are not limits on this person's
behavior and they are going to you know take everyone down with them like they will keep
fighting i mean i just you see this all the time, right? They will bankrupt whatever family members are supporting them in court. They will,
I mean, they will just sort of, I remember when I was talking to one of the dads who presented
with us at the APSAC conference and he made a great, Brian is his name and he made a great,
I wish I could remember it word for word, but he made a great analogy where he's sort of like,
you know, what people don't understand about dealing with someone like this is you're like, it's not like there's someone in your house and you need them to leave.
It's like there's someone in your house and they're threatening to burn it down with you in it and then blame you when the police get there. It's just this sort of scorched earth thing that is very pervasive in
these cases. Yes, absolutely. And it's really so destructive. So again, I think that for these
children as they grow, they need protection from that. And it's very hard to deliver that if you're the adult caregiver for them and you're having to, you know, to try to protect them from all these assaults, so to speak.
The more protection they can get, I think, you know, and really being able to be seen as well, you know, identified if they do have an illness you know for the real extent of
that illness and then but but again mostly it's it's having family and i think families need to
be supported by the system what i mean by that is in the situations where we saw successful reunification. And I have to say, I was very skeptical.
And I think that's the reason that the court kept me involved
to provide oversight in these few cases for eight years,
because it was like, these kids can't go home
unless this is a safe place and a healthy place. But in those situations,
I really, the whole system came together to support this family. There were paternal
grandparents who took the children. There was a father in each of the cases, these were two
parent families, but the fathers kind of were like, oh my gosh,
I can't stay with you unless you get treatment. And I do need to protect my children. Although
that was hard for them. A lot of the fathers have what I call, they have on blinders.
You know, the Mack truck is coming down the road and they're standing in the middle of it and they
don't see it. So helping the father see what's going on is also a critical part of treatment.
Because they then have the tools to be able to then protect the child.
But extended family is also critical.
And oftentimes extended family is split, which is another real problem.
And then having good caregivers. I think
these cases need to stay in the courts. That's the only way we had successful treatment. And I've had
other cases that I've asked to stay in the juvenile court system because the mothers were so dangerous.
So when you say stay in the court... I mean, have an open court case.
Okay.
I mean, the young man that I mentioned at 17, who actually was in residential treatment because of his psychiatric problems, he had a guardian ad litem appointed by the court.
And the juvenile court judge kept the case open so that he could make sure that this young man was fine 10 years after he was abused and removed from his mother.
Wow.
And that guardian ad litem worked with him for 10 years.
And he is now living outside of a psychiatric institution.
He's doing fairly well.
He has a good job.
And he still sees his guardian ad litem.
He's now 27 or 28.
But he literally, at 18, his mother was on the, and I'm talking very literally, was on the doorstep.
I'm here to see you. I love you.
And thank goodness there was a restraining order. And he agreed to continue to have his guardian
ad litem actually appointed to help him with guardianship through 21. Wow. So, I mean,
that may be an extreme, but we have to, as a society, come and provide these supports for, and in other cases, it's been critical in divorce court for these fathers to have the ability to go back to court and say, she's doing it again.
You know, I need some help.
I think there's a real strong theme.
There's a really strong theme in
what you're saying here. And I've wrestled with not in terms of family members so much, but in
terms of survivors, especially is sort of like the importance of before you can do anything to help
anyone, you have to see the truth. You have to really acknowledge what has happened here because
there's so much
denial in these cases. And I mean, I think certainly in like splitting the families,
it's like, you can't, you know, you can't protect a child if you're not acknowledging the fact that
they're being abused in the first place. Like that is then you are enabling the abuse and that is
what you're doing. I think with survivors, it's an interesting question for me because like one, one I've thought
of in particular, just as specific, just as a specific example, we covered in season three,
the Kowalski case, which I'm continuing to follow up on. And you know, that survivor, and I, I feel
very strongly that she is a survivor of Munchausen by proxy abuse, so that she does not currently
acknowledge that probably for a lot of obvious reasons there's a pending case against the hospital etc but i i've wondered just personally
for my for my own self with with you know regards to maya kowalski or someone who's in that situation
where um you know she is 18 now her mother um you know died sadly by suicide in 2017. So her mom has been gone for a long time. And one of the reasons
I felt a little bit conflicted, not enough to not cover it, because this is an extremely important
case to many other people and for sort of outcomes overall for child abuse, I think. But
is that I sort of wonder, like with someone like Maya Kowalski, is it better for her to live the rest of her life and
just believe that her mom was who she believed her to be and believe that her mom didn't do this
and believe that her mom was a loving mom? Or will she not be able to sort of move forward with her
life if she doesn't know the truth? And I don't have an answer to that. But I mean, I think it's
a really interesting question, because of course, this is a horrible truth to have to that. But I mean, I think it's a really interesting question because of course, this is a horrible truth to have to confront. Exactly. And I think that's a really good
question. You know, I think, I believe because of what I understand about trauma and what I've
studied about trauma is that when you hold less than truths, it's very difficult to then take a look at the kind of dysfunctional
ways you have adapted to everyday life. You have to really acknowledge this is who I am.
This is why I feel this way. And my guess is that there are critical periods in our lives. And they
vary for a lot of us, but some
of them aren't, you know, when we decide to build a relationship with another adult, you know, when
we have children, there are some critical periods where you really see people fall apart. They're
coming in a new situation, they're transitioning, and all that old stuff just comes forward. It doesn't go away. And so, again, at least it's my understanding
that it's really going to be hard to lead a full life and to, in particular, to build
full relationships that are lasting if there's not some understanding of what you've been through. I mean, for each of us around our own childhoods,
you know, traumatic or not. Right. That, I mean, that, that so resonates with me and sort of
understanding why you react to things that you do. And certainly in a much, you know, I'm not,
I'm not a childhood trauma survivor. But I, you know, the impetus for me getting into this work
was having my first child because as you
said that tends to shake a lot of stuff loose and for me that was I yeah I you know I I suddenly
found myself um just overcome with sort of processing it in this new way what had happened
in my family and and really confronting some
of the ways that that had burrowed itself in me that I did not previously recognize and sort of
thought like, you know what, I'm doing pretty great. I'm doing all right, you know, and then
it just kind of takes you down. And so I assume and imagine, especially if that's childhood trauma,
which obviously sort of implants itself even deeper, and then you can have all those levels
of dissociation with it,
that that could just sort of be this monster under the bed for your whole life, unless you
sort of drag it out into the light. And for some people, they can't bring it out into the light,
it stays under the bed. And it really changes, you know, some of the ways that they probably could, you know, build. In particular,
it's about building long-term relationships and attachments. And then, you know, then you think
of having your own children, you know, some of the most important people out there for us to be
attached to and care for and support to be adults. And so I would have trouble thinking that she's going to have a
very good life. I mean, my concern is that the same way with some of, again, the other
victims, about 10% of the children in our study, and the number was so low because these were all
cases involved in the court already,
the children went back to their mothers without any oversight or treatment. And those are the
children who did the worst. Yeah, that's almost extraordinary. Well, not to me, but I think,
you know, you sort of think like, oh, how could someone have ended up back with their mother if
it went all the way through the courts? And like you said, this study was very specific to families
and what I've come to understand
is the least likely outcome, right?
Where there is like actually a court decision
against the mother.
I mean, certainly from looking at the cases
I've looked at talking to adult survivors,
most of them have more of this pattern of like,
yeah, my mom was getting,
but you know, she's getting reported all the time.
CPS was there all the time
or like this, that, and the other thing happened or this family
member suspected and they got cut out.
But it's like most of them were raised by their abuser, right?
Like most, most of the time, I think that's most survivors we're going to talk to are
not going to be placed elsewhere permanently.
And then, as you said, when there is another placement, there's all kinds of other things
that can come up there.
So it's a difficult situation. Exactly. This is, I think, so important that I just did,
actually it was several months ago, a piece at Boston Children's Hospital where I now work
with the child protection team because they kind of wanted to say, what do we do when we
get past the diagnosis? And I wanted to talk about setting up visitation and, you know, and access
immediately because if the child's in the hospital, that all gets negotiated with child protection
where the child's in the hospital and it's really important. You know, So part of the question for me, even with those children when they're
diagnosed, is how much access are they going to continue to have and how is this going to be
managed? And having worked in the child abuse field for a long time, I never thought I would
hear myself say parental rights need to be terminated. I mean, I saw lots
of battered child syndrome cases, both juvenile and sometimes in criminal court. And, you know,
there clearly are times when parents should not be parenting their children. But in these cases, I don't know what the other alternative is if these perpetrators are not able to modify their behavior. And even those who were the most willing to be in treatment needed to have the court fence surround them.
Safeguards. In order to follow through, particularly initially,
even though they made confessions, you know, they never were full confessions at first. It took
some time to hear more. Well, and presumably, I mean, from what I understand, I mean, this is such
a deeply compulsive behavior that even if someone really,
even if in those cases where a parent
is trying their best and fighting the good fight,
they're still going to be fighting those compulsions.
So they need a lot of help and support
to be their best as a parent.
I mean, I think we could say that probably across the board
that all parents need help and support
to be their best parents,
but especially if you're-
Right.
Yeah, especially if you really are struggling
with your own sort of maladaptive tendencies. So Kathy, I honestly
could talk to you all day. I hope maybe you will come back on and talk about some of these cases
with us, like the Jennifer Bush, or I don't know if you're able to talk about the Justina Pelletier
case that has happened in your backyard. But I want to be mindful of your time. So just one
kind of final question, because this came up in a couple
of your papers that I was reading. Do you think that Munchausen by proxy is extremely rare?
No, no, I don't.
I saw that you had referred to, and it's so funny because I feel like this is one of these
sort of Franken pieces of data that has made its way into people who are wishing to cast this as rare.
And I think, you know, as we see this, some of these narratives playing out in, you know,
my kicks and bogs work in sort of take care of Maya film and some of the press around that,
you know, there's this argument that's made in court, in the media or what have you, where Munchausen by proxy is so extraordinarily rare
that if a child abuse pediatrician has had more than one case of it, then in their lifetime,
then that is proof that that child abuse pediatrician is overzealous and they're making
it up and they're looking for cases, et cetera. Or if that some, you know, a place like Tarrant
County that has this higher rate of conviction, oh, there must be, you know, that must be because they are seeing something that's not there because we have this
piece of data that it is so rare. And what it is, I finally realized, and Dr. Feldman had made a
reference to this and I sort of was like, oh my gosh, this is the smoking gun of the bad piece
of data, which is this British study that was on 600 cases of suffocation and non-accidental
pointing only. Yes. And that there was, yeah. Suffocation. Right. And so that is this tiny
percentage. And so that then has been applied to like, oh, this is the instance of Munchausen
by proxy overall. So you looked at this very small,
at this point, pretty old study
that was just about these two specific,
most severe, most life-threatening
and sort of expanded into this,
oh, it's this point,
I see this statistic floating around
of this 2.8 out of a thousand or what have you.
And so can we just like debunk that statistic
that people use kind of once and for all here?
Yeah. Although I'll tell you, I've used that statistic to say, look, in our study,
I believe it was something like 10%, less than that, 10% of the cases were suffocation cases and 5% were poisoning. So if those are the
numbers you just got from suffocation and poisoning, you're only explaining 15% of Munchausen
by proxy, if you want to think about it by disorder. And so we know we must have a lot more
out there. Right. Because this only accounts, I mean, it's misinterpretation of that study that I think we actually could use to further the cause.
Thank you.
Yeah.
So it's not that it's a bad study that needs to be debunked necessarily.
It is that it is being used.
It is being, I think, deliberately misinterpreted.
I think it's been misused.
Yeah.
Misused.
Yeah.
Exactly.
It's been, and we really don't know.
Yeah, I mean, that's the other thing.
Even in our study, it's a small sample.
So maybe I've got an over-representation of kids with GI problems or kids with apnea.
We did, by the way, do a study just on life-threatening events that I'd love to come back and talk about
because it was really sobering. I would love you to come back and talk about that as well. I'm
making my little list to myself of things to have Kathy back on the talk. You mentioned GI issues,
and I mean, those are so common in these cases. And there was that study at Seattle Children's that
a couple of our colleagues were involved with that looked at cases within that. And I mean,
the prevalence pointed to much higher than what most people, I think, would think. So I think
there's all kinds of reasons, both data and anecdotal, to think this is way more common
than most people believe. I'm just absolutely convinced. And again, one of the other things that I'm trying to put this under this umbrella of disorders of deception.
And when you kind of step back for women, we see them, you know, impostering as nurturers.
And for men, they often are either really con artists who are impostering, you know,
really to meet their own needs to get material goods and services. There's another group of
people who are really, and they tend to be men rather than women, who imposter as doctors or lawyers or, you know, judges. And those,
I've evaluated a couple of those folks. It's very interesting. Again, when you kind of look
at the larger group of people who imposter, you kind of think about, and then you have the con
artists, you know, who really are antisocial, which is what there's a subgroup of these women who are really, really don't have conscience.
I mean, they're really out for themselves in a really powerful way.
And then there are people in between.
Well, I would really love to have you back on because I think, you know, what you're saying about sort of like the the con artist thing it's like I look at um
some of the spouses actually like your Lou Pelletier's and your Jack Kowalski's that like
when you dig into their history I'm like oh then you get both you get one of them each and you get
yes all right well if you'll permit we would love to have you back on because these are all things
I would really like to dive into.
One of my commitments is really to do whatever I can at this point in time to help people understand and to share what I know, what I don't know, you know, kind of what I think and use it as you will. But thank you for asking me, Andrea. Oh my goodness. Well, thank you. Thank you for, thank you for doing it with me. I really
appreciate it. I think I just, I learned a whole bunch of new things. I now I have a million more
questions for you, which is why this whole thing has turned into a podcast because there's so many
layers to it. You can never believe. Yeah. I'm just so glad you're doing it I can't tell you it's it's
really just it's so critical and I don't know how you you know you can make a half an hour video I
mean and that's that's really important too but I think this is something ongoing where you continue
to tell the story it's just it's so. Well, thank you so much, Kathy. I appreciate
that. Nobody Should Believe Me Case Files is produced and hosted by me, Andrea Dunlop. Our
editor is Greta Stromquist, and our senior producer is Mariah Gossett. Administrative support from Nola Karmouche. If you've been listening to this show for a while, you know that I have very strong
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And I could not be more thrilled to announce our very first creator
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deception that upended her life
and traced the roots of her own complicated personal history that led her there.
Brittany is back in 2025 with brand new episodes,
this time helping others tell their own stories of betrayal, heartache, and resilience.
If you love Nobody Should Believe Me, I think you will also love
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