She's On The Money - Broken Brains: Nobody Prepares You for This Financial Emergency
Episode Date: May 20, 2025You’ve planned your budget, built your emergency fund, and followed all the financial advice... but what happens when life throws something so big, so chaotic, that none of it is enough? In this... ep we're joined by special guests, and the writers of new book Broken Brains, Jamila Rizvi and Rosie Waterland. Two women whose lives were turned upside down by illness, trauma, and the brutal reality of trying to keep your head above water when your brain and body won’t cooperate, and the bills keep coming anyway. We talk about the invisible costs of being unwell, the gap between public support and real-life needs, and the quiet shame that follows financial instability and even lasagna inequality (yes, really). It’s raw, it’s funny, it’s deeply human, and it might be exactly what you need to hear right now. Content Warning: This episode contains discussions of serious mental illness, trauma, childhood abuse, psychiatric care, and financial distress. Please listen with care, and know that support is available. If you or someone you know is struggling, contact Lifeline at 13 11 14 or visit Beyond Blue. Broken Brains by Jamila Rizvi and Rosie Waterland – Grab your copy here!Follow Rosie Waterland on Instagram and follow Jamila Rizvi on Instagram Acknowledgement of Country By Natarsha Bamblett aka Queen Acknowledgements. The advice shared on She's On The Money is general in nature and does not consider your individual circumstances. She's On The Money exists purely for educational purposes and should not be relied upon to make an investment or financial decision. If you do choose to buy a financial product, read the PDS, TMD and obtain appropriate financial advice tailored towards your needs. Victoria Devine and She's On The Money are authorised representatives of Money Sherpa PTY LTD ABN - 321649 27708, AFSL - 451289.See omnystudio.com/listener for privacy information.
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Hello, my name is Natasha Nabanunga-Bamblett. I'm a proud Yorta Yorta, Kernai, Wolperi and
Awadjeri woman. And before we get started on She's on the Money podcast, I would like
to acknowledge the traditional custodians of the land of which this podcast is recorded
on Awadjeri country, acknowledging the elders, the ancestors and the next generation coming
through. As this podcast is about connecting, empowering, knowledge sharing and the storytelling
of you to make a difference for today and lasting impact for tomorrow. Let's get into it.
She's on the money.
She's on the money.
hello and welcome to she's on the money the podcast that helps you feel good about money
even when life is falling apart a little bit or a lot i'm victoria divine and today we are
talking about something that doesn't come with a budget template or a five-step financial plan.
We're talking about what it really costs to survive when your brain, your body, and your
entire world stop cooperating. Because sometimes the hardest thing isn't managing your money.
It's managing to stay afloat at all. And yet, rent is still due. Groceries still cost money.
Life doesn't pause just because you are struggling. And that's the reality for my two guests today
who know this a lot better than most. Jamila Rizvi is a best-selling author and advocate who
at 31 was diagnosed with a rare and aggressive brain tumour. Rosie Waterland is a writer and
comedian whose childhood was shaped by poverty, addiction and survival and whose adult life has
been shaped by complex trauma. Together they've written Broken Brains, a raw, funny and painfully
honest look at what happens when your health, your finances and your sense of self all come
under pressure. Jamila and Rosie, we are genuinely so excited to have you on the show. Welcome.
Thank you. Thanks, we're excited to be here. Yeah, we're psyched. I am very excited. You have just
published your book Broken Brains and it is all about your personal experiences, your illnesses
and shame and the system that then made it even harder for you guys to thrive. Talk to me about
what your broken brain journey has looked like in real life. Well, why don't I go first and then
Rosie can tell you a bit about her because you guys are so different but then when you come
together in the book it just makes sense we're also so the same yes like it just it was amazing
I was kind of like before obviously having a look at it being like okay all right read it and I'm
like this makes so much sense yeah yeah so I was diagnosed with a brain tumor called a cranio
pharyngeoma when I was 31 quite an unusual kind of brain tumor so it affects every one in one
million to one and a half million people. So I'm very special. I love being rare, but not like that.
Yeah, no, it's not the kind of rare you want to be. Actually, when you're sick, you want to be
as pedestrian as possible. 100% give me the most basic kind of illness. 100%. So when I was
diagnosed, it was obviously a massive shock. And what followed that was a series of brain surgeries
as the tumor kept growing back when they would remove it. And then ultimately radiation treatment.
I had 36 rounds of radiation. 36? Yeah. So six days a week for six weeks, which by the end of
that, I felt like they'd burned out my insides. It was pretty hectic. And then probably took about
two years for the full extent of the brain injuries that I'd acquired to kind of make
themselves known. And I still live with those now, live with a whole bunch of medications
and treatments that continue, but I'm five years, no tumor growth. I love that. That makes me so
were happy. You literally burnt it out. It's gone. Yeah, it's gone. And Rosie, tell me your journey.
Yeah. So mine seems a little different on the surface, like you said. So I had a pretty
difficult childhood. Both my parents were alcoholics, drug addicts. They were mentally
ill. My sisters and I were in and out of the foster system. There was a lot of neglect and
abuse. And I guess the best way I would describe it is people often think that trauma is the event,
but trauma is what I deal with now. So if you look at my childhood as the car crash,
the trauma I live with as an adult is the brain injury caused by that car crash. So
I started showing really significant symptoms when I was about 17, so about 20 years ago,
and I've been in treatment on and off when I could afford it ever since. I do take a lot
of medications as well. I have symptoms that I'll be dealing with for the rest of my life.
Yeah. And I think it was not long after Jamila's first surgery that she was looking for someone,
anyone to talk to who she felt like might understand what it's like to feel sort of out
of control of your, to not have control of your body and brain. And she came to me and we, like
you said, didn't think we would have a lot in common, but realized very quickly we have a lot
in common actually. Yeah, absolutely. Your book is really about surviving the things that aren't
as obvious or that people never see, right? So like illness, trauma, shame, and the system that
genuinely makes it so much harder. What made you both go, all right, we want to write a book. We
want to tell this story because it's one thing to, you know, find each other and have that level of
support? Why did you want to take it to that next level and share it with us? Well, I had sought
some support from Rosie, as she said, and I went to Rosie and asked her for some help with dealing
with the mental health side of what I was going through. You know, when you're experiencing the
stress and the trauma of being told you're really seriously ill and the fallout of surgery and
treatment, it takes a real toll on your mental wellbeing. And I wanted advice, I suppose,
because I knew Rosie had been there before and I think I almost wanted to say how do I stop this
how do I stop my brain being so scared and when I went to visit Rosie she was actually in psychiatric
care at the time and we we went and had lunch across the road and when we were chatting one
of the things that came out really quickly was that we actually have the same our conditions
have the same mortality rate so we actually had the same chance of not being alive in in five
years or 10 years. Wow. And yet, yeah, the world doesn't respond to Rosie with the same sort of
urgency it does to me. You know, when, when my friends and my family learned that I had this
brain tumour that, that had to be cut out of my head, I was incredibly lucky. I had this
overwhelming outpouring of support. And I joked to Rosie at the time that I had 11 lasagnas in
my freezer. I was about to say, because you had so many lasagnas and Rosie didn't have any lasagnas.
And I was like, yeah, oh, I've never, I've never got one. I don't know. I've never had a lasagna
delivered. Exactly. I think because we're both storytellers, it was genuinely at that moment
that we were like, there's a book in this. We should write about this. Yeah. That very
conversation by the end, we decided to write a book. Yeah. Rosie, your story is deeply rooted
in instability. How did that shape the way that you've come to think about money and then your
place in the world? How do you even begin to unlearn a lot of this as an adult? It's very
difficult. You know, I did not get to a, what I felt like was a secure place financially until
very, very recently. And I'm 38 years old. Congrats though. That's so exciting. You feel
stable. Well, more stable than I've ever felt. I mean, I'm still getting there. You know what I
mean but I yeah I grew up like you said with there was a lot of poverty the interesting thing about
my parents though was I say they they were both like the black sheep of each of their respective
families so my mum came from quite a wealthy family she went to private school on the north
shore in Sydney which is a very snooty area my dad came from like a pretty well-off family too
but they sort of then went their own rogue directions and found each other so I grew up
with predominantly my mum because my dad died when I was quite young with not a lot I mean you know
there were years when we would need the Smith family to deliver like a Christmas hamper to us
because we wouldn't have food at Christmas that kind of thing there was often homelessness in
the sense of you know I think a lot of people think homelessness means living on the street
but I mean like there were often times we didn't have anywhere to live we'd be couch hopping with
our mum living different places. But then we also would, you know, say on like Easter or someone's
birthday, go to my grandparents' house or my uncle's house, my mum's brother, and they were
all very wealthy. So it was a very odd experience knowing that there was something else. I grew up
in a lot of poverty and instability, but I also had this sort of link to... You had a window.
I had a window into something very different, like what possibility, I guess.
And that was a really odd thing to deal with.
I remember I tell this story.
I think it's funny, but a lot of people find it very sad that my dad used to play us this
VHS tape of his brother had kids who were about 10 years older than us and they had
gone to Disneyland and they had filmed like all this stuff while they were at Disneyland.
and my dad used to play this VHS tape of his brother's kids at Disneyland to us and it was
like our favorite movie to watch the kids at Disneyland to us that was as as close as we were
gonna get and so it was there was a window there which seemed sad but I think to me it provided
like a sense of I know there's something better than what I have here like I know there is
stability somewhere like we may move all the time like I lived over in over 100 houses as a kid I
went to like at least 20 schools we moved a lot we had instability but I saw that it was possible
to feel secure and safe and live in one place through people in my extended family so there
was a jealousy but there was also a hope and a motivation I guess yeah I was about to ask you
know when you're young you don't actually comprehend a lot of the times why those things
are happening like you don't understand what financial security means or you know whether
your parents are working really hard or not you can just see that one kid has something that you
don't were you quite envious of that because I can imagine myself I feel like I would be quite
envious seeing the kids at Disneyland yeah I mean it was more the Disneyland thing was more like I
was envious of them having a lovely family experience I will say that with my mum she
struggled being traditionally maternal she left when I was about three weeks old and I didn't
start living permanently with her until I was almost four and then on and off after that for
until I got taken away permanently became a ward of the state and her way of showing love was
buying things. So we didn't often, I'll talk to people who grew up much wealthier than me. I'd
say I would talk to Jam about all the toys and cool stuff I had as a kid. And I probably had
a lot more cool stuff than you did because that's how my mum knew how to show love. I remember
being very, very little and she worked as a sex worker when I was little to sort of pay her way.
and so on the visits we would have with her the exciting thing was that she would bring you
something bring you like a Polly Pocket or you know a doll or you know a Barbie or something
like she showed that through gifts and spending and I think that definitely gave me some warped
ideas about what money is and how to manage it because she was never great with it there was
never a sense in our existence with her that it was something that you were responsible with. If
you had it, you spent it. Yeah, absolutely. Jam, before your diagnosis, I feel like your life was
picture perfect. Like you had this young family, you were financially stable, you had a banging
career. Like you, I would look at you and be like, oh, I want to be Jam when I grow up. She's my
grown up friend, my most accomplished grown up friend. A hundred percent, right? Like I know
she's laughing, but I literally was like, when I grow up one day, I'm going to be just like
Jamila Rishi. Oh, she's three months older than me and I say the same. Yeah, exactly. When I grow
up, when I grow up. So from the outside, it seems like you had your stuff together, like your goals,
babe. But what did that look like? Because you got your diagnosis and then everything shifts,
your priorities shift, your financial stability shifts. And I imagine you go from being, okay,
I've built my life. And while, you know, you're not agreeing with us that, you know, it's all,
it's picture perfect. Like you would have felt financially stable. You would have been like,
I have a great partner. I'm so excited. I have, you know, this great kid. What happens when you
get sent into a spin? You know what? Money was not on my mind. Like when you get given a diagnosis
like that, money is the last thing you think about and it should be the last thing you think about.
But the reality is that it's going to start playing a role pretty quickly. Right? So for us,
we were renting at the time we were house hunting. We were looking to buy our first home. We'd been
looking at lots of houses and trying to find the right thing. I remember one of the conversations
we had was, okay, well, that's just, we're not doing that anytime soon. Cause we can't deal
with that. We've got, we've got too much other stress. And then I had private health insurance,
which was fortunate. And it meant that that gave me the ability to choose my surgeon, which,
you know, if I'd been in the public system, I might've ended up with the same surgeon anyway.
it's possible he worked in the public and the private system, but I got to choose him. And I
remember him saying to me, the other advantage was that he then got to choose his team because it was
the private system. He could then say, I want that nurse and I want that assistant surgeon. I want
that person. And there's huge benefit to that. I remember saying, is there any other benefit? Like
what else do I kind of get for my money? Yeah. I've been paying this extraordinary amount on
health insurance. He said to me, well, there are rumors that the food is better. I don't think it
I don't think it is. I don't think it is. Look, if it was better, it wasn't much better.
And I had these sort of quite naive assumptions, I think. I thought Medicare took care of you when
you were sick and so you didn't have to pay anything. And I thought if you had private
health insurance, then anything extra, you won't pay much at all, which I look back on that and I
had no idea, right? I had no idea. Well, you don't know and you just don't expect these things to
happen to you. Especially not when you're young, right? Not when you're 31. Like the idea that
this happen to you when you were 31 and I'm sitting here at 33 I just go what like this to
me is so foreign and I'm so grateful it's foreign but I also just go life is so fragile yeah and it
can happen fast it happens really fast and the other bit I think you don't think about so much
is that you can't work right did you have insurance I have to ask the ex-financial
absolutely did not have insurance that I don't think I'd even crossed my mind
at that age. And so, you know, I had eight weeks off work for recovery. And even then I wasn't
really ready to go back to work after brain surgery, after eight weeks, I went back to work
a bit, but I certainly wasn't on my game and I would have struggled to work full time.
And then for me, the tumor grew back within a few months after that. And then I needed 16 weeks off
for that recovery. And once you get to that point and your partner's also taking heaps of time off
to look after you. And then you've also got to think about childcare and all the other bits and
pieces. Suddenly life starts to look, by that second surgery, we were a bit like, oh wow,
okay, this is not. That house deposit doesn't look like a house deposit anymore. And we used
the emergency, like we were people who had an emergency bank account, right? But we used it
all up and then we had to go again so soon after. Yeah, because you probably just thought, and like
most people do, and I don't want to scare people when it comes to the finances, but the reality is
when we create our emergency fund, we're thinking, okay, like what's like three months of our
expenses? What does that look like? We're not talking about the car parking at hospital. We're
not talking about the late night Uber Eats and all of the takeaway food that we need because we're
staying at hospital. Like it goes so quickly. And like, this is my reminder to everybody out there
that if you haven't thought about getting your personal insurances together, please do. Please
do ASAP. Like that is one thing that I am wildly passionate about because sadly, as an ex financially
advisor. I've seen it too many times and it's always the people that say, I never thought this
would happen to me. And also once you're on the other side, like me, you can't get it. Oh no,
no one's insuring me now, right? Yeah. No, you're banned. I'm so sorry. My husband's very well
insured, but you know, that's not an option for me anymore. No, no. Both of you describe these
quite dramatic moments where your health completely collapsed, but it wasn't ever just
physical. I think people just assume when you say my health collapsed, you just assume it's
some dramatic flop to the floor. But what did it cost to keep functioning professionally and
financially when your worlds are literally falling apart? I mean, I know it has at times cost me
almost everything, really. I was never really great with money because I wasn't, you know,
wasn't raised or taught how to be. I remember when we used to work together. Oh my God. I know
what you're i know what story you're about i remember explaining to rosie how banks work
yeah because she didn't understand we all need that friend honestly you need that person it
blew my mind when jamila explained to me that there is not a physical dollar for every dollar
that there is yeah like i thought you could it was all there we can all you thought the bank had
a shoebox with your money yes and then i had this like existential crisis where i was like so money
is just a concept. What? Like I couldn't, it blew my mind. So that is literally where I was coming
from. Not even understanding that. But you know how many people don't, like, I don't want you to
go, Oh, I didn't even get that. What do you mean? Who was going to teach you that Rosie? Oh my gosh.
I had no idea. Yeah. Jam did. I mean, when I got my first book advance, which was like quite a
decent chunk of money, I ended up getting into a huge amount of tax problems because I didn't
realize I had to pay tax on that. I just was like, hooray, I have money. And, and I didn't
buy anything extravagant. I just remember feeling like it's nice to not have to worry. I remember
my fridge broke and I felt so amazing. It was like quite a profound day in my life when my fridge
broke and I could just buy a fridge and I didn't have to think about it. It was, um, I wasn't buying
anything crazy but I just yeah I didn't understand tax and I so I for like the first decade of
working as a professional writer had a lot of financial issues and it was probably 2022 where
I did have a chat like quite a bit of money saved like I was doing okay work-wise but mentally I had
a really bad relapse and I worked a little on and off but I mostly didn't work from I'd say for
about 18 months over 2022 and 2023 I completely ran out of money like I got to like ground zero
I had to move apartments once in that time and Jamila lent me money to pay my bond for my
apartment because I just I literally had nothing saved and I got really unwell and I couldn't work
it was a really scary time because when you are struggling with your health
and then the money stuff is added to it like it really does make you feel like you know what if
I wasn't already getting swallowed up this is going to be the thing that ticks me over yeah
exactly I'm being kicked while I'm down how do I do this like I the one thing I've always made sure
I pay and sometimes over my rent I have paid for my private health insurance because in my early
20s I needed to be hospitalized for my PTSD and I didn't have insurance so I went to a public
hospital. And unfortunately, inpatient care in public psychiatric care is pretty grim.
And I, after that, started paying a very high premium health insurance because health insurance
that covers inpatient private psychiatric care is like the expensive kind of private insurance.
You need gold, that's not on bronze.
Yeah, I have paid for that ever since. That's been my one negotiable thing that I pay for
because I never wanted to have to go to a public place again. And I have used it. Like there's been
about four times that I've needed private psychiatric care since I started paying for that.
But yeah, across 2022, 23, when I wasn't working and literally ran out of money,
the one thing I sort of made sure I paid for was my private health insurance and everything else was
day by day. And you know what? I totally get that. Yeah. Because that is in line with your values
and what you're like, I can't go back there because I'm assuming that would have impacted
you even more than going to inpatient care privately. Like, I just can't imagine. All right,
let's go to a really quick break because on the flip side, I want to talk more about the lasagnas
that we mentioned. I also want to talk about inequality and why Australia's support system
so often fail the people who need it the most.
Plus, how do you actually prepare
for the kind of life crisis no one sees coming?
That's all after the break.
All right, we are back.
And I want to talk about something
that actually stuck with me out of the book
and you guys have already mentioned it
and that's lasagna.
Like, I just feel like that is-
It's a big thing.
It's a big thing.
Do you know what?
I love a good lasagna.
And with so many in your freezer,
you could have done a whole taste testing, Jen.
Oh, she did.
My husband had like tallies and rankings.
Yeah, like rank them, like, oh, yep, Sue's won.
That's pretty good.
Yeah, he had scores for like cheesiness and, you know,
the depth of tomato in the sauce.
Yeah, see, I think that's important.
Yeah.
But, Jam, at the end of the day, for those of you who haven't read the book,
you had a plethora of lasagnas and, Rosie,
you wrote about never having one lasagna in your fridge.
what do you think that says about visible versus invisible illnesses you know I think it's no secret
that there is a lot of prejudice in society when it comes to how we view mental health versus
physical health I think I even have even people with mental health issues hold those prejudices
I mean there have been times that I've even said to myself like come on Rosie again like pull
yourself out of this this this time just get it together which I don't think Jamila would ever
have said to her brain tube like come on jam just just shrink that just just get rid you know get
rid of that take care of it like I so even I have it I understand but we tend to not take this stuff
as seriously and I think at the end of the day the bottom line is it's because a lot of people
think it is a choice maybe not on the surface maybe they don't say that out loud but deep down
I think a lot of people do think that mental health stuff is a choice because if it's to do
with, you know, your emotions, your mental health, the way you think, all of that kind of thing.
If it's not something physical, then surely you should just be able to fix it. I think that's why.
I mean, really, it's kind of, I've been asked this question a few times and I've been thinking,
oh, should I be giving a more complex answer than that? But no, I just, I think that's it.
I think that's the answer. I have seen that time and time again,
like my background is in psychology. So like I fully comprehend this, but even I who have been
through you know diagnosis I just look at it and I go the one thing that helped me really understand
it was like it was chemical I was like okay like yours might be physical but mine was chemical and
it's not an emotional thing you can just get over like I literally don't have enough of a chemical
and I can't xyz and so I feel like for me that helped and there's nothing that's going to help
everybody but it just it frustrates me beyond belief that people don't take mental health
seriously like it impacts everything it impacts your financial well-being your emotional
wellbeing. It impacts your relationships. It impacts your ability to create the career you
want to create, whether you have children or not. Like it is one of the most impactful things that
you can go through, but people still don't put a lasagna in your freezer. But what's that about?
I mean, all those things that you just said, I put off having kids my whole like adult life
because I remembered what it was like growing up with my mother. I remember what it was like
growing up with someone who had kids before she was able to or should have mentally, financially
in all those ways. My older sister, Rhiannon, then had her first kid when she was 17. And I saw how
much that affected her life. So I always said, like, I won't, I remember saying as a little kid,
like, I'm not going to have kids until I'm at least 35. Like for me, that was this age
in my brain that I had for it. It's a grown up age. Yeah. Yeah. You're paying proper taxes.
35. Yeah, right. Like I thought I would be, but like probably wasn't working that much then. But
like I, yeah, there was a lot of things that I put off because I knew I 95, 96%, 97% of my energy is
going to just trying to keep this mental health stuff in check. I didn't have the time, the
resources, the energy to do a lot of the things I wanted to do. I mean, essentially you live of
a life of surviving and not thriving yeah that's where you land yeah jam you've experienced both
sides of this first in being an advocate but then also navigating the australian healthcare system
as a patient when it comes to australia as a country why do you think we are still getting
it so wrong yeah so australia has i think unquestionably one of the best healthcare
systems in the world in terms of our commitment to universal healthcare the fact that if you
show up at a hospital as you know prime minister is always telling us you show them your medicare
card before anyone asks for your credit card and i don't want to take away from that that is
remarkable 100 but australia built a health care system and a hospital system to treat people with
physical ill health and then when we kind of figured out mental illness was a thing we just
sort of shoved it in it's in the back corner yeah we sort of tacked this thing on but we built it in
the same model as the first one and we just tacked it on the side but we're dealing with a completely
different set of challenges, a completely different set of treatments. And so it doesn't
work that way. You can't treat schizophrenia the way you treat cancer, right? You're dealing with
things in a complete- Why not? I've got a Medicare card.
Who knows? It doesn't make sense. And so what we've done is we've sort of built two systems
at the same time and they're very much unequal. And don't get me wrong, there are inequalities
that exist within the sort of physical healthcare system as well, but the way they work is very
unequal. And so what we do is we tend to interact with people who have mental health challenges at
two levels. The first is, and it's great that this exists, that you can get the Medicare rebate for a
series of consultations with a psychologist once you've seen your GP and been approved for a mental
health plan. That's great. If you're someone who needs more than that, and that's a lot of people.
We see that so often in our community. We're like, great, it's 10 or it's 12 now.
Now what? What happens if you need 50? What happens if you need more than 50?
And then at the other end of the spectrum, we're talking about people who reach the point of
showing up at emergency at a public hospital because their mental ill health has become so
serious and they are in crisis and we will intervene there usually for a very brief period
you know 24 hours 48 hours often where it's like right have we got you to a point where we think
you're not a danger to yourself okay thank you very much you can go home so there are sort of
two points of intervention in the public system and that there's just so much space in between
not to mention the fact that at that acute crisis end that's not sufficient. No and that's what's
heartbreaking when it comes to I guess the financial side of that people in crisis can't
think about finances at the same time as trying to manage their crisis. How do we better support
people going through these things financially? You know as part of Broken Brains we've both
shared our stories but we've also talked to heaps of different experts and other people with lived
expertise. And we spoke to Professor Kate Drummond, who is the head of neurosurgery at Royal Melbourne
Hospital, bizarrely spoke to her many years ago, and she's now my neurosurgeon, which is just weird.
But at the time, I'd never met her before. And she said so many things that stuck with me about how
our health system operates. But I asked her if she had a magic wand, what's the one thing she'd
change? She said she would pick up all the money that we spend on interventions in the final couple
of weeks of someone's life to prolong life at the very, very end. And she would pick that up
and she'd give it to people in their late teens and twenties to intervene on mental ill health.
Because she said, if your aim is to have people live longer, healthier lives, you would have so
much more impact than you would prolonging the life of someone who's in their nineties by another
month. Probably prolonging that life in a way that wouldn't be very comfortable or enjoyable.
Now that is really confronting, right?
Like I can think about that at a policy level and I feel okay with it,
but then you say, okay, well, what about your grandma?
And I'd be like, well, hold on a second.
Hold on.
We're not talking about her.
We're talking about policy, Jam.
Yeah.
And so that's hard to wrap our heads around, I think,
but our purpose should not be in a health system for people to live forever.
That's not going to work.
We have not yet pulled that off, right?
So it should be to support people to have a wonderful life
and where possible to extend that life.
but there does become a point where it's like what are we doing and what are we spending and
what are we putting someone through for one more week or two more weeks when we could put that
money as a country into making sure that we get quality of life and quantity of life for people
who are in their 20s and 30s that mean that they get to be that 80 or 90 year old. Yeah absolutely
now I'm obviously so excited for my community to pick up this episode and learn more about
broken brains. But I'm also just so excited that the possibility that people who are currently ill
and struggling financially see this episode and go, oh my goodness, like I didn't know something
like this was happening. I didn't realize conversations were, you know, happening in
this space. And I'm hoping that, you know, if you haven't met us before, welcome. But what would
your one piece of advice to people who are currently going through illness and also struggling
financially, what would your one piece of advice from both of you be? I'm happy to go first on that
one. I, if you are like me and you're going through a physical health challenge, your mental
health is as non-negotiable as Rosie's is. You know, when Rosie was through going through some
of the toughest times in her life, she still put the money into mental health care. It took me two
years before one of my doctors said to me, are you getting any support? Now I was because my husband
marched me off to a psychologist the morning after I was diagnosed. So I was getting great
support, but the impact on your health and your wellbeing and your ability to go back to work
and become someone who can earn money again, it will be the mental as much as the physical that
pushes you. The second thing I would say is that go into the system knowing that even within the
physical health system, we treat diseases. There is a hierarchy of how we support different
conditions and diseases. And a lot of that actually has to do with the charitable sector as well.
because some, always had to talk about this one, some diseases are more attractive than others,
right? We have raised more money in this country to support people who are going through breast
cancer treatment and to ensure that treatment is not only quality and we have reduced mortality
rates and we have improved how we support people psychologically through that process.
And I do not begrudge assent of that. It is extraordinary what this country has done. And
a lot of that is because of the McGrath Foundation and others. But it's really interesting,
the McGrath Foundation just this year announced that they are now moving their targets to support
people with other kinds of cancers too. Because there are the sexy cancers and the ones that we
get excited about and the ones that we feel good about and we want to talk about. We don't talk
about prostate cancer. We don't talk about anal cancer. We don't talk about stuff that makes
people go, oh God, I don't know about that one, right? No poo colored ribbons. There's no poo
colored ribbons is what one of the marketers we speak to in our book says. And she was a woman
who had colorectal cancer. She's like, there's no poo colored ribbon, right? That's not something
we go and party about so going in with your eyes wide open around what support is available to you
or not I'm someone who lives with rare diseases where it will hit is when you get to the medicine
part because our medicines aren't on the PBS or if they exist and we can use someone else's
medicines we don't get it on the PBS because we're not using it for the set purpose right
so you do have to prepare and you do have to save accordingly I think I'm sorry I'm giving so much
advice instead of one. My other one is one that I am struggling to take myself, but I'm really
trying to, which is that my partner said really early on spending money on your health is
non-negotiable. And that meant not just the drugs that keep me alive, but the drugs that keep me
well. And I have medicines that there have been times they're off the PBS that are costing us
three, $4,000 a month, right? Like there's big money. And the number of times they don't
technically keep me alive. They keep me well, and they're a big part of my quality of life,
but I don't need, I'm not going to die tomorrow without them. And the number of times I've gone,
oh, we don't, maybe just not this month. Or like, we really need to be doing this. And I look at my
son and I look at my husband and he has been adamant. Like this is not negotiable. If this
makes you feel better, we buy it. Right. I felt so much guilt about that. And we are in a very
fortunate position where we're able to make that choice rather than having no choice. And I know
people with the same tumor as me who cut tablets in half and take them every second day and do
all sorts of stuff because they can't afford to do it properly. But I am just learning to let go
of some of that guilt around what my family doesn't have because of my disease and the impacts
of my disabilities. But I think I'm finally getting there and sort of forgiving myself
and recognising that it's better for them to have me.
It's better to have a wife and a mum that...
And a well wife and a well mum.
Are doing well and can be the best person you can be.
Yeah.
No, I think that that's so important.
And it honestly makes me feel like when you said,
and I still carry so much guilt, I was like,
oh, like that breaks me because it's just your son has who he needs
and you were able to afford that.
And like, yeah, you might not have as much stuff,
but stuff doesn't go with you.
Like that's not the stuff that matters.
Yeah. Rosie, what would your advice be? You know, that question is trickier for me to answer than I
think it is for Jamila. I write in the book about the fact that I've been seeing a child psychiatrist
who specializes in trauma since I was 17. I've been seeing the same one. So I'm probably his
oldest patient by this point, but I started seeing him because at the time my uncle had
taken custody of me and he was paying for it. When my uncle stopped paying for it,
this particular psychiatrist bulk billed me without any gap. So it was essentially free
for me to see him. And he has been very generous with me at times over the last 20 years, I pay
when I can afford it. And other times, like, you know, back in 2022, when I was really struggling,
he went back to bulk billing me. That is, that's a unicorn psychiatrist. Like I understand how
lucky I am that he has been able to do that for me because I look at my sisters who've not had
access to that kind of trauma treatment who have just only when the 10 sessions a year became
available which hasn't been throughout since we've been unwell they haven't had that and I can see
how much further in my mental health I am than them because of that so I know how lucky I am
And at the same time, I think how unfair that I had to be lucky to get treatment that I
needed.
So when people come to me for advice about what to do when you're unwell, particularly
financially in the mental health sphere, I don't quite know what to say.
I say, take advantage of what is offered to you, get the 10 sessions, get more if you
can and also try and have someone advocate for you because when you are mentally in that really
dark place like you said it's hard to you know bills all that kind of stuff you can barely
function like there are times you can't make a phone call let alone handle life admin there have
been times since Jamila and I've been friends for over 10 years now and twice in that 10 years I've
had a mental health relapse that's been pretty bad and she has stepped in to advocate for me
just as someone who makes phone calls helps like organize like calling around hospitals to see if
there's a place open or whatever like it really helps to have someone step in and advocate for
you and look for programs because there are resources out there particularly for trauma
I know that I've done you know this essentially psychotherapy with my therapist since I've been
with him but there are we now know in the last few years you know the very famous book by Bessel
van der Kolk that the body keeps the score. We're understanding more and more, particularly over the
last decade, that so much of it is to do with the body and not just the brain. That has been
something that financially I've not really been able to explore until the last couple of years,
treatment for that kind of thing. Someone at a book event for us the other night came up to me
and said, I work in the trauma space, particularly childhood trauma, and you should be telling your
readers and listeners and everything that EMDR is now available for free for people to access
through certain programs if they're dealing with childhood trauma. So I think it's just
essentially like the snowball effect of, it's like when Jamila started interviewing people
for the book and she would talk to someone who would recommend someone who would recommend
someone. And before you knew it, you'd interviewed over 200 people. I think it's the same with this
kind of thing. Like your psychiatrist may recommend talking to someone who may know of a program and
they may know of something else. And it's just taking whatever support you can get because
financially, it's really hard in this country to treat mental health. You're not going to just
walk into a doctor's office or a hospital and get what you need easily. So really take the help
from anyone who is offering it to you and listen to people's advice. And that's sort of the best
advice I can offer. It's hard on this side of things. I feel like the one thing that hasn't
been mentioned is just giving yourself a lot more kindness as well I think that a lot of the time
people in similar situations they'll say I'm so bad at this or I suck at that or like you really
just compare yourself to other people in similar situations you might go oh but she's handling it
so much better but you don't see these things you don't get to see under the covers of people's
financial circumstances and like you know Jam was talking about her beautiful husband and the
support that she had and knowing that he was probably working throughout that and you had
your house deposit and some emergency savings we didn't know that until she shared that we could
have assumed that she'd come from a really wealthy family or something along those lines or we could
have on the flip side been like not aware of the astronomical amount of debt she needed to go into
so everybody's journey is so different and I think that because of this beautiful community we have
inches on the money people are so open with their journeys especially when they're unwell
and when they're going through a financial crisis
that you just don't know what you don't know.
And I think you are so harsh on yourselves.
You're like, oh, well, I can't afford that
or I shouldn't do this or I shouldn't do,
like, I think you just need to wipe
all of the expectation off and just go,
I'm doing the best that I can.
I'm really glad you just said that
because yeah, that's really important to point out.
I know that I have been filled
with an enormous amount of shame
getting to this age where I'm nearly 40,
like I turned 39 this year, I'm an 86 baby. And when I was little, like I said, I had these
wealthier family members that I would look to. And I would always say like, I'm going to be like
them. Like, I'm not going to be like my crazy parents. Like when I grew up, I remember I used
to say, I'm going to be a doctor, like my uncle, because my mom told me once he made $5,000 a week.
And I was like that I'm going to be a doctor because of that. Like I would, I really thought
I would be in a very different position by now. And I often feel an enormous amount of shame
and disappointment that, you know, I thought I would be married by now. I thought I would have
kids. I thought I'd own a house. I thought I would have built the life for myself that I always
wanted by this stage, by much earlier than this. And there are times that really, really makes me
feel just to put it bluntly, pretty shit about myself. It really does. And what has helped a lot
is like you said, learning to have some compassion for myself over it, learning to try and be a bit
gentler with myself and more forgiving and say like, you know, Rosie, you were barely keeping
your head above water. Like all I was able to focus on was just getting through the day,
saving for a house, marriage, kids, building a stable life. It really sucks that it's not
really starting for me until the last couple of years, but it's not my fault. Like I did the best
I could. And so I have to be gentler with myself about it. It is hard though. It's really hard.
You're filled with a lot of shame about this kind of thing, but yeah, I'm really glad you pointed
that out because having self-compassion is hugely important. It's helped me a lot, even though it's
not easy to do. No, I'm glad that you resonate with that because I just, I feel like I want to
scoop our community up sometimes and be like, you are doing so well. Like look at the cards that
were dealt to you and what could have happened, the place you could have been in and look how
hard you fought to be here. You're on a podcast advocating for those people who can't speak up
for themselves. There are people who are going to listen to this and be like, holy moly, like
that's exactly what I needed to hear at the moment. And you're being that person that baby
you needed and I just go that's the ultimate outcome right like I know that your stereotypical
family and your house and your savings account didn't tick the box but like you've become the
woman that baby you needed and that is incredible like that is the coolest thing in the entire world
I wrote the book I guess that's really nice so unfortunately we don't have a lot of time left
guys you have been so generous and so kind for sharing this story with me with my community I'm
just I'm beyond grateful for this this conversation has been really thoughtful really generous really
open and I just I hope that we can start seeing mental and physical illness on the same page I
hope that there's more conversation in the next four years about getting us on the same page and
I just think that this has been a long time coming and it won't be the last time we talk about this
So, guys, if you have loved talking to Jam and to Rosie,
they have a beautiful book called Broken Brains.
It is real.
It is raw.
It is honest.
It is everything you need to have a conversation around grief,
around resilience and humour.
Like, it is funny.
We keep trying to tell people it's not all grim.
It's not all heavy.
I feel like I've made it sound heavy at the start.
But, like, you're really funny too.
Like, I'll give you that.
And it's all at once.
And it is beautiful.
And if you're listening and you haven't grabbed a copy yet, I definitely recommend it, but
I'm going to pop all of the information for that in the show notes so that you can pick
up a copy and pour over in the same way that I absolutely did.
And I guess one of the things I took from that was like, I need to make a whole lot
more lasagnas.
Like I've got a lot of lasagnas to make.
Yeah.
Jam has enough.
Yes.
Yeah, exactly.
We're making rosy lasagnas.
And to my beautiful She's On The Money community, I know that sometimes life can throw things
at you that no budget or plan could ever prepare for and if you are in that space right now just
know that it's okay to focus on just getting through not getting ahead I want you to take
your health your safety and your stability first it always is going to come first because the rest
can wait and you are not behind for doing what you need to do to survive if you have loved this
episode please share it with somebody who needs to hear it especially if they're going through
something tough right now and make sure that you're following She's On The Money so that you
never miss another chat like this one. Guys, thanks for sharing today with us. Thank you.
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