Tea at Four - Ep 44: Growing up with Tourettes, Embarrassing School Moments and Strange Fetish Confessions

Episode Date: December 8, 2023

Lauren talks to Nicole, a 16 year old who has Tourettes, and her mum, Jodie, about how they cope with their unique experience. They discuss what it’s like going through school and college with Toure...ttes, as well as how it affects dating. They also spill the tea on some of their more memorable moments, before we take to the internet to discuss your wild confessions.

Transcript
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Starting point is 00:00:00 they're not things you're thinking you don't think what you're saying like well i hope you don't because you used to call me a fat hi guys welcome back to seat four i'm lauren and this is the podcast where we talk all things that should have stayed in the group chat this week i'm super excited to be joined by some special guests today we have jodie and nicole who are going to be sharing with us what it's like to live with threats just before we kick off if you're new here please be sure to give us a like rating follow hit that notification bell
Starting point is 00:00:31 and share this podcast with all your friends if you have any feedback or funny stories for us please also send them to us at tf4 at jungle creations.com we'll see you there So Jodie Nicole would you mind introducing yourself for us? Hi my name is Jodie I post awareness and lots of videos about my journey of mumhood and my daughter having Tourette's. Yeah I'm just Nicole. I'm just me. So Nicole how old are you? What are you doing in life? What's your story? I'm 16. I have Tourettete's syndrome currently doing college but yeah that's about it it's funny my friend love it living for it so I've got to ask Tourette's syndrome was this something like you developed from a young age is it something that's come up recently and like how did it manifest i wouldn't would you say recently no it's near it's nearly four years um nicole woke up literally the week of her 13th birthday um ticking i didn't know what it was um
Starting point is 00:01:36 and it just continued on we obviously saw advice medical advice etc i don't want to rehash the story too much for those that already know it. But essentially, she had vocal and motor tics. You have to have a combination of both of those for at least 12 months to be classed as having Tourette's. So in the January or the February, wasn't it, you got diagnosed officially with having Tourette's. It is a neurological condition and it is genetic so it's something that was potentially always just there just sort of dormant and something at the age of 13 triggered it so oh my god what was that like for you did you even like settled into the idea it could be
Starting point is 00:02:17 Tourette's or was it like I have it well I don't know because I obviously I was 13 like I honestly didn't actually know what was going on my nan was staying with us at the time and she was like you've you've got a thing called tics like it's just you just tick and I was like I don't know what that is like and I'd never looked up I didn't really like do anything like that because it wasn't like something you know that I really thought about like it was just I just thought I had a tick or something but I was confused and then obviously the longer it stayed the more confused I was and it just didn't make any sense to me on what was going on would you say the ticks that you have are like purely observational or are they things that are like maybe down in your subconscious like the verbal ticks is this something you thought about or is it purely like completely out of your control there's lots of things like there's things
Starting point is 00:03:09 i've said like in like conversations to people that i've like ticked out or like i said something about katniss everdeen i've never seen the movie i've never i don't know who she is she's never watched hand games and she's got the tick I don't know who she is really I don't know who she is I don't know her you had the it tick oh yeah I had an it tick I've never watched
Starting point is 00:03:29 I hate them I can't even watch Smile I can't no oh do you want to move Georgie she had that as a tick
Starting point is 00:03:35 and she would come out doobit and it's so bang on when she ticks her ticks are like literally my god like with the voice
Starting point is 00:03:44 and everything yeah yeah she's done french tics she's ticked in french i can't like what have you just said i can't even speak french bilingual that's amazing i can't speak french i can barely say hello wow but i do it does i do think that it is stuff that is so deep in the subconscious that she doesn't even know that you know like if you see something like she had some ticks for a while you were watching like loads of war stuff weren't you with nanny ivy and then about four weeks later she started doing this whistling tick and then an explosion at the end like a bomb and i was like where have you got that
Starting point is 00:04:21 tick from like yeah what is that about and then we we were thinking about things and i was like oh my god you remember you're watching all that war stuff with nanny ivy wow like so i feel like sometimes things come out when she's not thinking about it because they're not things you're thinking you don't think what you're saying like well i hope you don't because you used to call me a fat c**t so like you know what i mean i mean so so like some of the stuff she says is savage so obviously these kind of tics you've created obviously a safe space at home as a mum how do you even like learn to a completely adapt to a whole nother thing of motherhood looking after someone that's life is kind of i don't want to say stunted but it's probably made you less independent would you say massively would you say you're i'm it's really difficult trying to find a balance really difficult and every stage i feel like we were getting somewhere with with a stage
Starting point is 00:05:15 of nicole's life and learning about school and how i was coping with school and now now she's at college and she's getting older it's really hard now readjusting and rebalancing myself because essentially I'm on call 24 7 for Nicole Nicole lives in a little bubble of life's breezy and brilliant whereas I'm on like anxiety levels up here constantly for when she calls me or texts me that she needs me because she started ticking yeah so I kind of take all of that on myself so that she can live her life and be like, breeze easy. Well, I guess that's a good thing. Nicole, do you feel like your life is pretty ordinary? Yeah.
Starting point is 00:05:49 That's amazing. I'd say that pretty decent, actually. Yeah. So with the tits, say, for example, if they come up at school or like around people you're not that comfortable with, how do you prefer people respond to them? Everyone's very different. different like I have a very vast kind of friend group like everyone's very different in how they react to it some people ignore me she don't really like it mid conversation if I like tick mid conversation
Starting point is 00:06:16 they like almost don't even like react there's like they literally have no expression on their face they just carried on the conversation some people laugh and like think and they're like oh my god that's so funny um obviously when it's actually funny and not like physical yeah um all of you've just punched yourself in the face that's hilarious but like some people don't get it like there's one there's this one boy in my class he's absolutely sweetheart and he turned around and i ticked him and he went what and i went no no that wasn't me and he was like okay and then he turns around and then i whistled at him and he went what and i went i was like no i know i didn't need to talk to you and he was like okay and then
Starting point is 00:06:56 he kept turning around and then i'd whistle him because obviously it's not it's not a different person my director is still me yeah so obviously i know that he's gonna turn around if i whistle at him and he whistled i whistled him and he went and then he whistled back and i went no don't do that and he was like he was like oh okay and then he kind of gets it now bless him but it's very different with everyone like mom thinks everything i say is hilarious the boys i really do my brothers they're kind of like in the middle like sometimes they react to it sometimes they just like won't but you can be
Starting point is 00:07:26 really offensive and they were a lot younger so trying to like get them to learn as well as a family that anything she says right she doesn't mean it
Starting point is 00:07:36 and now I guess we're like nearly four years on and they get it now don't they like I don't know we were Freddie's more emotional though
Starting point is 00:07:44 like Freddie and Jaden they're very different Jaden doesn't even bat an eyelid anymore like i was mid having a ticket at can he comes out says mom can i have a bag of crisps he's on the spectrum okay so he can only see what's going on sure he's very like tunnel vision focused on what he's dealing with so yeah she was having a tick attack and even coming in like can i have a cookie and i'm like mate middle of something right now can we get a cookie in a minute he was like yeah but i wouldn't want now and we're like okay mate off you go and then he goes and he goes he comes back in thanks mom i'm going upstairs yeah he goes upstairs whereas freddie's like oh my god does she need water do i need to get her anything he can't he can't it's
Starting point is 00:08:23 so cute have there been any like memorable moments or any funny funny little oh my god we had workman at home oh it was really bad when you were at school and you came home ticking from school i collected you from when i said oh my god is that the um there was a mackey's thing and then i went callum can't have that he can't run good didn't i say that was that the same time no i have no idea what one you're all about no i was gonna say the one where i hadn't worn these workmen because i never know whether to warn people or not it's really awkward because it depends whether she's ticking bad or not ticking bad um actually there's another one i've
Starting point is 00:08:59 just thought of which is quite funny so this first one we i went to collect her from school she was ticking really badly came home the two guys were outside but if they'd been inside i probably would have gone in and then just said just so you know my daughter's got Tourette's right but it was too late as we come walking down the stairs she's like my mum loves anal and i'm like and they just they burst into hysterics and i was like and she like, she just carried a walking. It wasn't even a, by the way, that was not me.
Starting point is 00:09:28 She didn't even say, I'm ticking or I've got Tourette's. She just kept walking. I went in and had a bagel. I was like, oh my God. Now I'm in the point of like, do I confirm this?
Starting point is 00:09:39 Do I say, no, I don't. Or do I say, yep. Yeah, I do. Like,
Starting point is 00:09:44 what do you say? Like, how do you reply i've got good humor because i know that you would have walked away just like i'm gonna leave them with that yeah she totally does by the way there was another work man you do it yourself it's about you there was yeah literally it's always me although this one do you remember when you you'd cut your finger oh my god and this poor man in our house i was upstairs and i'd cut my finger later that earlier that day yeah and i was in my room and i was really ticky and this guy was downstairs wasn't he doing the windows he was doing something i can't remember and mom was like was offering him teas and stuff was like oh you're right and then mom goes oh you're right nicole i went i'm dying i'm bleeding out help me
Starting point is 00:10:26 and then she's like this guy like turns to mom and it's like are you not gonna go you're gonna go and check her i'm like she's fine she's not bleeding out she's fine it was just so bad paper cut yeah literally but but see nicole will go and like go and sit in her room and listen to music and try and chill and relax. And so I'll just keep shouting to her. Are you good? Do you need me? Like, do you know what I mean? To try and give her that bit of independence so that she's kind of self-managing, if you like.
Starting point is 00:10:54 Because there's nothing I can physically do for her anyway. So I just kind of have to be around to make sure she's safe. Yeah. So, of course, I was just shouting up to her. You're right. She's like, no, I'm bleeding everywhere. I'm going to die. And then after that I'd go, yeah to her you're right she's like no i'm bleeding everywhere i'm gonna die and then after that i go yeah yeah yeah and then she's normal and then she's like yeah i'm fine and then starts ticking again um i mean like in restaurants we can be in restaurants and she is she shouts stuff like my mum's got syphilis no i think the school ones are better
Starting point is 00:11:20 personally but then what the first time she did that she was about you must have been about 14 when we were in whatever syphilis yeah exactly and then she goes mom what's syphilis and i'm like oh this is so bad then we're sat in a restaurant eating dinner everyone is eating dinner the whole family and i go what is syphilis and she goes I'm like we'll discuss we'll talk about it later okay not the school ones are better though because I went to obviously I went to school yeah yeah getting that education um so I went to school and I had this um head teacher and we had two head teachers in the time that I was there now this one head teacher he was really old like he was going into retirement like you know he was he was going right so he had left and he was lovely like he thought my Tourette's was hilarious and my head of year had been there from the start to when I left and I went round and I started a rumor by
Starting point is 00:12:20 accident because I was ticking and I went the reason why he fucking left was because she was sleeping he was sleeping with miss roberts and he was and then everyone was like really and obviously i ticked and was like yeah the ticks can start literal i'd call her a stripper she had these heels on right and they she had really high heels on she always did it was just something that she had and i'd call her a stripper i'd say the reason why he left was because she was the stripper. And that she was his stripper. Wow. Everyone believed me as well.
Starting point is 00:12:51 Honestly, though, the other problem with her tics, right, which is a big problem, is telling her things, which also does affect your relationships with friends and boyfriends, girlfriends, whatever. It does, doesn't it? Because ultimately, if you tell nicole something it's if she's ticking yeah it's gone you're done you're done like mother's day i know what i'm getting before like she'll tell everybody but last year that you were like i'm allergic to bananas right allergic to bananas and freddy
Starting point is 00:13:24 she was like fred's got you a banana. I was like, that's not fucking funny, is it? Like, what? What for Mother's Day? And she's like, he has. And she was like, ticking all this stuff. And Freddie was like, I haven't. And I was like, what a ridiculous tick.
Starting point is 00:13:35 At least this year you're not actually telling me what people have got. He turns up on Mother's Day with a mug with a banana on it. I was like, so she literally ticked what he had got me, but hadn't quite told me the whole story do you feel like you can't always decipher when it's a tick and when it's it no i always know when you're ticking right bar maybe minimal times yeah and you've gone was that you yeah and i'm like no seriously but nine no most no i do know when she's ticking yeah um but yeah she she will it's difficult when she's ticking when she's like saying something that like that with the banana so she's saying
Starting point is 00:14:13 he's got me a banana which he had yeah but it was a mug like you told me that jayden had got me a tortilla wrap didn't you and i was like what what are you why has he bought me a tortilla wrap like that's ridiculous yeah he'd bought me a massive blanket which was a tortilla blanket right so like she'll tick it yeah they're not actually say what it is but not actually be descriptive it's so interesting it literally is what's in your subconscious right i feel like it's got to be back there yeah it's got to be because it's stuff that like you're not actually thinking and it's not something you would be. Like we all have a filter.
Starting point is 00:14:50 Well, not me particularly, but most of us have a filter before you say something, don't you? And I just feel like there's all this information and all this stuff that you have stored in the back of your head that just can come out that Nicole hasn't even had a chance to filter because secrets are different though like my friend told me at school when she fancied someone and then she fancied someone and we were friends with him and obviously i got to him like i was quite friendly with the boy and she comes
Starting point is 00:15:14 over and she's like you're right like oh like weird and i went did you know she fancies you and he went oh oh so he went what and you i almost i pinched her and i was like do not react you've got to pretend because if you react and you're like no i didn't no i didn't like why are you saying that it looks so bait so you've got to go oh my god that was so funny nicole imagine like you've got to act like really like it doesn't matter yeah and i've said this to all my friends like i've said do not react because if you react it just shows and the thing is the more you react the more my tics will go really well okay and will react more like if you're like oh no nicole shut up i just i will immediately be quiet and i won't talk oh my god
Starting point is 00:15:57 and like it calms down what about that time there's a lady that i'm really not friends with anymore so i can say this it's fine um i'm not friends with her at all. No, you can't say that. I can say what I want, actually. So I'm not friends with her at all. Nicole's tics. We're not saying her name right? Yeah. What?
Starting point is 00:16:13 That's in the tic. So she used to be part of the charity. I run a charity, right? I rescue every home dog. So she used to be part of this charity that I work with. And she's not a very nice person. She doesn volunteer for us anymore don't like her anyway so of course nicole is in the conversations of me saying i don't like this person she's not a nice person not really a fan i'm doing a video nicole starts ticking we hate suzanne oh we hate suzanne and i'm
Starting point is 00:16:41 like we also saw her as well we were collecting collecting dogs and i started i was like we hate suzanne and she was like nicole shut up and i was like oh she's literally outside the car nicole's like sound of the police we hate suzanne i was like what the i don't even make any sense like what are you doing when the police turned up at the door and i was like the sound of bullies yeah she did yeah she did no context to that story just the police turned up at the door yeah what was that i can't remember what did you do did they find out about who did you did they find out what did you do oh yeah yeah what's that dripping from the same i remember what that was now oh yeah i remember when we got broken into and you were really scared
Starting point is 00:17:28 yeah that was really funny actually yeah i was sound asleep jokes yeah lol are there any like so so an occasion like that say if you hate someone you've said something out loud or maybe said the wrong thing have you ever like blamed your tics and it's just really like no i generally think that i but the thing is i don't even need to say it like if i don't like you i'll probably go i fucking hate you but then i'll go oh uh that's interesting isn't it like and you're like and everyone's like wait do you hurt me and i'm like no no like but you can tell when i'm like being sincere about it i'm like no no that wasn't genuinely right but if i don't like someone i just will not associate myself with them
Starting point is 00:18:11 yeah you just don't hang around with people no that's my thing like just people said it though people have been like people have been like have you ever blamed your tics on like something you've said i'm like no no if i've said something i will admit that i've said nice but i don't need to say if not if i don't say it my tics will say it for me so either way yeah love it i was wonder so on the podcast we talk a lot about like dating have you thought about like how that might affect you in that sense or i've been in relationships yeah while having Tourette's obviously um i wouldn't even consider being with someone that had a problem with it sure um but i've had a few relationships and obviously everyone is very different in how they deal with it some people are some like but it depends also in my comfortability with them as well um
Starting point is 00:19:05 but I've never had a problem with relationships with my Tourette's friendships as well like I've never had a problem and if they have too much of a problem and it has something to do with my Tourette's I wouldn't even consider being with them or even being friends with them if they had that kind of issue like yes sometimes I feel a bit like oh my god like I'm so weird because I have Tourette's but then I have enough like I'm more confident in that sense that I'm like I'm not gonna be with someone that's gonna be like picking on me because of my Tourette's like you just don't work I feel like you're extremely confident like I feel like I used to be such an overthinker but you seem very like self-assured i'm glad that the mask is really well right like really well she's doing well because
Starting point is 00:19:51 she's she is probably she is very i like to think that she's getting more confident and i think that things like this and being able to speak out about it is helping her confidence and i think actually sharing everything we do online is helping her confidence and i think actually sharing everything we do online is helping her confidence yeah um but still if we're out and about you literally will cling on to either me or yeah i'm really like our safe space because you know she could be walking past someone and tick something at them and then you've got to deal with if that person turns around and says what did you say because then you then it's a whole nother. It's great when I'm with my dad though.
Starting point is 00:20:27 Because he's like a proper stocky bloke. Right. Come at my dad then. Come on then. But you are getting more confident. But yeah, you proper acted like you were like. Yeah. Yeah, I'm sound.
Starting point is 00:20:41 Yeah, no, she's not. Yeah. In public, that's different. Dating, that's very different as well. Yeah yeah because that's inside and that's doing like yeah yeah on that yeah i get what you're saying on the same page yeah i mean you said like you got the medical advice but how easy is that to get a diagnosis really difficult yeah really really difficult um so so Nicole started ticking in the March the first week of March but that was literally um a month before the first ever lockdown oh my god so just as I was seeking medical advice and everything started to shut down and everybody was like
Starting point is 00:21:17 on the whole pandemic saga and so trying to get any sort of doctors, hospitals, anything was an absolute disaster. So it was emails to and fro with me having to send them video footage of Nicole, which is why my journey started with filming her was because I had to have the video footage in order to share it with the doctors and the professionals to let them see what was going on. Because obviously you couldn't go and visit a doctor. You weren't allowed to do face to face. And yeah, it just you just got worse didn't you you were physical tics to start with which was like hands neck face um head and then it it started with vocal tics and then you were saying things that you couldn't help say weren't you right so i was gonna say i feel like the Tourette's we know or the tics we know a lot of them are like offensive language and the swearing stuff did you find that was the case with you or did it come up in other forms i didn't have it i didn't have any kind of swearing until i had a seven hour tic
Starting point is 00:22:15 attack and then that's when all the swearing came out and it was like i was calling the ambulance like pricks and knobheads and like it was paramedics absolutely yeah didn't that yeah she um yeah that was when it was about six months after she'd started ticking and then um she had a really bad what we now know they're called tick attacks when essentially she Nicole ticks every single day don't you um some days are worse than others. And tick episodes can then continue on for a long period of time and be more extreme. And usually Nicole with her tick attacks, they're more violent and they're quite aggressive, aren't they? And she had a tick attack that it got on for about three hours. And I was like, I can't physically keep her safe now. This is like bad. So I ended up calling 111.
Starting point is 00:23:05 They sent an ambulance. Nicole was ticking for like literally seven hours, seven plus hours. But we couldn't get her from the house into the ambulance because she was just too like motor tics hitting everybody, thrashing around. Like one paramedic had her legs. The other paramedic was on the phone trying to get authorization from the hospital to give her a sedative to get her into the van because we couldn't there was nothing else we could do but she was like smashing her head on the floor punching people in the face punching herself in the face um so i had one arm my partner at the time he had the other arm um and yeah it was it was bad wasn't it but that was then when your coprolalia which is what the swearing
Starting point is 00:23:45 ticks are right started um and then now she swears probably worse than i do and i'm pretty bad so yeah yeah i feel like with a lot of cases with Tourette's people would find it may be disrupted or i don't know affected their life in a big way but it sounds like you guys well like welcome it could you even learn to like love it I think we just embraced it yeah there is no way of getting around it and I'm very much I've been brought up very much in a world of there's always someone worse off than you sure my mum smashed that into me when I was a kid like you know don't be a victim bad things happen blah blah blah so I guess yeah there was times at the very beginning that obviously you know now but at the
Starting point is 00:24:30 time I would take myself off into the bathroom I'd be sobbing into a towel so that my kids couldn't hear me and then compose myself and come back out because I didn't know how to deal with it and I didn't know how to help her and seeing your child suffering when there's nothing you can do is just the most oh my god yeah and in lockdown as well without that support like and you're in the house I can't imagine how much that probably would have exuberated the stresses because surely it's a stress a big thing in like manifesting more tics is that thing or any any emotion yeah right yeah like any kind of emotion heightens it like mine for me when i'm sad i don't necessarily really tick as much as i normally would but i say that when i cry i get
Starting point is 00:25:15 angry so in in the end i end up getting worse anyway so like anger uh it just smacks yourself in the space yeah emotions doesn't it so whatever tick day you're having depending on your mood it's kind of yeah like she's in a happy cheeky annoying mood today so if she starts ticking it will be like it would just be funny banter yeah like ticks wouldn't it yeah yeah that's good i feel like at school is that a different case because i feel like i felt so many emotions when i was at college i can't imagine having that and then having me like violently college actually isn't that bad in fairness with my Tourette's not actually that bad all my chicks i only have like four cheaters so
Starting point is 00:26:01 they are they they don't really mind like cool some of them are like more on it than the others but they they kind of just like they'll look at me and they'll go outside and i'm like yeah okay and then i'll go outside and they're like i'll come back in after like 20 minutes and they're like okay basically so what i've done is i've put it on canvas and whatever and i'm like okay cool right whatever yeah but with people it's because my Tourette's it's so different every single day like i have one this one school friend and i've known him since i started school and then obviously we've come to college together my Tourette's has hated him from day one like never liked him they're savage it's a bit like me they're savage i am certain people she picks on like literally it's so bad like every single
Starting point is 00:26:43 day you've got like everyone when i come in they're like because they know either who's gonna get picked today he bless him like ryan bless ryan he's every single time i see him and i'm ticking he's like because he knows i'm gonna smack him in the face because i'm really bad and he's like cheers mate and obviously he's very he's quite tall actually but like i'm i'm horrible to him but i don't like and i i apologize every single time and he just goes shut up right carry on conversation because he hates it when i say sorry and most people that i've like grown up with okay they hate it when i say sorry because they're like i don't understand why you need to say sorry but then i feel the need to right do you know what i mean yeah definitely i think especially
Starting point is 00:27:23 with your tiktok videos that's been quite good at educating people on like say if you were in a room of strangers and you felt that extreme need to like apologize and stuff maybe normalizing a bit more would mean that you can be yourself and you don't have to worry about like constantly feeling on edge and like you're offending people yeah kind of yeah massively and that's the thing that I've always told you because you used to apologize all the time didn't you and i said you've got to stop apologizing because you can't help this if if i thought you were doing this on purpose 100 you need to apologize because what what is that behavior yeah but you're not doing it on purpose and you can't help what you do so i have drummed into you so you don't apologize really like the
Starting point is 00:28:00 other day when we were in the queue and you oh my god she booted me i've got a big bruise on my leg right she booted me so hard and i was like oh that hurt and she was like i'm so sorry i was like it's fine don't apologize it's fine but inside i'm like oh my god that really hurt yeah yeah you don't you don't tend to apologize now do you not as much no i don't like her too because i don't feel she should you do like you can't apologize for something you can't help 100 and is it that whole thing that you physically can't control it it's like does suppressing it make it come out more i guess suppressing it hurts my chest and it like after like because you can only suppress it for like a short amount of time like maybe like five minutes at the most and obviously it will honestly
Starting point is 00:28:41 i'm in so much pain with my chest and then it after I kind of give up, it's just an explosion. It just goes mental. Oh, my God. Is there any activities where you feel like it's quite dormant or it kind of... Well, I write poetry. Writing that's fine. You used to do a lot of street dance, didn't you? Yeah.
Starting point is 00:29:04 For a long time you when she would dance because she was focusing she was she was good with that yeah but then gradually over time you started to tick more and more when you were going to like your street dance lessons weren't you and so she ended up stopping that and i do feel like it was a bit of a was it because of the Tourette's and it was kind of starting to ruin it for her i don't know but music is normally your go-to for stuff, isn't it? If we're out and about, because whistling is something that sets her off. Okay.
Starting point is 00:29:30 Which we have shared. I kind of hold back a lot of other things that set you off. Yeah, because people have now used it against us. Yeah. And set her off on purpose. So it's a bit of a double-edged sword because you want to explain to people. Yeah. But also you then get backlash because there are horrible people out there that yeah how do you deal with that
Starting point is 00:29:49 criticism yeah it's difficult it can be really difficult but um it depends on what it is though like if it's just like a random comment i really don't care yeah um but obviously i was 13 14 and i was getting death threats like people messaging me telling me to go off myself and they're like you shouldn't be here like you've got disability like actually just go or like they'd be like oh I hope when you go into a road you get hit by a car yeah have a car crash and go like all sorts of honestly and but we did and we've said this many times that we did at that point sit and have a conversation didn't we about whether or not yeah because it got that bad was like a good place to be at this point and whether or not we were doing the right thing for ourselves by sharing and being so open or whether or not we should just shut it down and leave it to other people to do it but yeah we decided sod everybody else and that's their problem not ours
Starting point is 00:30:43 for sure i think as well do you engage much with it because I I don't know I remember seeing a lot of content around probably that lockdown time when you said you started developing this the kind of tics and I remember there being reports coming out that kids on tiktok were developing Tourette's from watching other people with tics like did you find that was something people were were accusing you of or like how do you do I got accused of it a lot but then you see like the different videos like there I don't know if anyone saw these but like it was videos of like you know like uddies they wore it backwards right and then they would like fake
Starting point is 00:31:21 tic yeah and I think it irritated me so much because I was just like, oh my God, you're like five and you are so pleased. And the thing is though, as much as we laugh and joke and we do share a lot of like the funny side of it, we've only shared very minimal bits of tick attacks and stuff. Because I'm not comfortable with it. Yeah. Which is absolutely fine. So we don't share that.
Starting point is 00:31:39 But if people really understood all the like debilitating side of it and the fact that it really does affect every single day of our lives like coming here in my head we i'm processing the train if she starts ticking yeah people on the train around us i'm processing going through places where all there's all these different noises people whistling we were walking up from the stairs and someone started whistling and i was like no not now no and nicole just sort of straight away was like this and i was like oh no please don't start taking now because we've got to get up the stairs we've got like so the whole time whenever you're doing anything i'm processing right plan a plan b how's this going to work where what do we do like essentially you you can't you kind of have to have always a
Starting point is 00:32:28 fallback plan of anything we we do um you didn't end up we went to winter wonderland the other night and you didn't end up doing one of the rides did you because she was taking too much so like it affects you your everyday stuff even brushing your teeth yeah like it's it's things people don't think about it genuinely affects our every single day life it's just we don't make a big song and dance and be a victim about it we just yeah embrace and share the fun really yeah 100 i think i want to just kind of round this up i know you guys create awareness and you've got a really good reach on tiktok but for people maybe that haven't seen the TikToks, how would you best like someone that maybe isn't acquainted with tics or Tourette's
Starting point is 00:33:12 to kind of act around people that do have it? Like what is the best demeanor? Is it better to, I guess, as I said, acknowledge it or to just kind of normalize it? What would you say? Everyone is very different. If you saw someone in public and you were like oh my god they've got Tourette's just smile just you know be normal that like I think going out to be like are you okay like it makes it would make me uncomfortable if someone came over and kept doing that like that would make me uncomfortable and just smiling as you go past like oh you're right like just like normal how you'd react to everyone else like we're still the same
Starting point is 00:33:48 people that you are just slightly different wired just extra love it yeah but it's everyone handles things differently like I know people with Tourette's that don't like how I like being handled when people are with me um who like don't want it to even be acknowledged but then me I think it's hilarious I love bringing it into conversation I think it's really funny but some people don't it just depends on the person so just saying them you go you're right like you know yeah love it yeah the only other thing I would would want to say is because obviously you don't tick 24 7 and obviously this whole time Nicole's not been ticking um but that like people always then assume that because she's not ticking and she hasn't ticked for an hour
Starting point is 00:34:31 like oh you haven't got ticks yeah you're a liar like so it's just enforcing that just because it's if she can go hours in between ticks can't you like four or five hours before she'll tick again so it's just again enforcing that when you have Tourette's you don't tick 24 7 so just because she's not ticking now doesn't mean that she's doesn't have ticks yeah amen yeah this is stuff like so this is the part of the podcast where you spill the tea and we try not to so of course I'm joined this week for where you spill the tea and we try not to so of course i'm joined this week for don't spill the tea with our special guests uh and just to explain how this game works
Starting point is 00:35:12 it's a strange strange game uh we basically react to the internet's funniest stories with tea in our mouth and try not to laugh okie dokie great interesting Okey-dokey. Interesting. Sound well up for it. Oh my God. Right, are you drinking now? Yes.
Starting point is 00:35:29 Okay, how much are you not fitting in? I'm going to watch you two sit here and then I'll do it. So I don't want to be the only one with puffed cheeks. Nope, you can puff your cheeks up. Okay, ready? I was at an NFL game and something I had ate earlier just wrecked my stomach and left me with horrible gas. Like the kind which clears a room it's so bad. So I was walking up the stairs to my seat mid-game and I really had to let one rip. Right then the crowd cheered and I thought this is the moment.
Starting point is 00:35:57 What I didn't realize is that my ass was at the same level as a woman sitting in her seat on the aisle and I literally farted in her ear i looked back at her as she looked at me with shock and disgust i quickly turned away and climbed the stairs as fast as i could and blended into the crowd i still think about our time to time how horrible that truly must have been for her you're not full enough. Oh my God. I couldn't not laugh at you. You're like, you're like,
Starting point is 00:36:32 it's dripping. Oh my gosh. So thoughts on that story? What? That is like a PTSD for that woman. Horrible. That is horrible. Yeah.
Starting point is 00:36:45 You pay a lot of money to get to them games. Yeah, you if she went home and she got pink eye or something oh my god sorry oh my days okay i was set up on a blind date we were texting for a bit before the date but this was before camera phones so we weren't able to swap photos he told me he was six foot two so i was expecting a giant since i'm five foot the man rocked up looking like he just finished a hard night making toys for santa not only was he short but i was towering over him he then accused me of lying about my height saying i was obviously way taller than i had disclosed it was the most surreal conversation I've ever had the short kings let it go girls let it go be free oh my god no catfishing on on like that's bad I went on a date with a guy years ago and he did not
Starting point is 00:37:46 look anything like his picture and height wise no he totally wasn't the height he said he was I don't like going like with guys
Starting point is 00:37:53 that are shorter than me or my height because I like to wear my heels when I go out right and nothing about being sizist by the way people
Starting point is 00:37:59 someone's gonna be like she is sizist she won't date anyone younger like smaller than her I definitely date younger yeah I know you do
Starting point is 00:38:07 I'm marrying a guy who's 12 years younger than me he's 12 I thought you were gonna say he's 12 period that would be a whole
Starting point is 00:38:15 nother problem oh my god so that's why the police turned up yeah the truth comes out now Jodie Nicole I'm so sorry that you're on to be fair i'm just kind of flipping oh so he turns up he's really
Starting point is 00:38:30 short he's also wearing a cardigan which like i'm sorry again people that wear cardigans wearing cardigans it's fine but it was like an a massive, his nan. No, it wasn't. His nan. No, it wasn't. It wasn't okay. His nan. No, it wasn't okay. It wasn't. No. Any cardigarian wearing men out there?
Starting point is 00:38:54 Yeah, sorry. Keep them at home. Yeah, it's an ick. It's an ick. Right, okay. Wow. Real, getting a real good sip in there. Okay.
Starting point is 00:39:03 I'm getting married soon and i've been sending out my party invites i had a whole debate with my friends about whether to invite my ex and his partner because we're still part of the same friendship group but i don't speak to him as much anymore after i sat thinking about it over the invites i was writing i decided it would be fine and i sent them out a week or so went past and I received a text from my ex, who sent me a photo of the invite I'd sent him with the text saying,
Starting point is 00:39:31 is this supposed to be funny? My stomach dropped when I realised I'd written, please join Alex and Richard on their happy day. Richard is my ex's name. I don't know what just went on there I think I zoned out wait what was the story she'd sent an invite to her ex
Starting point is 00:39:51 to her wedding but written her and her ex's name for the wedding that's like a whole Ross and Rachel situation she has no idea what that means but that's a whole friends Ross and Rachel situation isn't has no idea what that means, but that's a whole friends, Ross and Rachel situation,
Starting point is 00:40:06 isn't it? Yeah. Oh no, that's not good. Oh, is it not good then? I'll be honest. I've been engaged before.
Starting point is 00:40:14 Right. And my, um, my nan, God rest her. She's dead now. Uh, she really isn't like, she had favorites,
Starting point is 00:40:22 favorite grandchildren, favorite children. My brother was her favorite grandchild, not me. I got engaged. She sent me a card to say, you know, happy engagement to, I was marrying, I was at that time, marrying a guy called Lee at this point to Jodie and Jeff. I was like, who the fuck's Jeff? Oh, it wasn't even an ex.
Starting point is 00:40:43 No. Fucking hell. No, there was never a Jeff. It's like that whole, my name's Jeff oh it wasn't even an ex no fucking hell no there was never a Jeff it's like that whole name's Jeff you know what that means like what the fuck
Starting point is 00:40:51 I just love when old people make names up it's so fun I bet that was a fun conversation between you and me who's Jeff then
Starting point is 00:40:57 I don't know what the fuck is this yeah that's what they're all saying my ex did this last time I knew this was gonna happen I thought you were different and you're gonna well hold on there is no storyline now it's good i'm good with that yeah nice oh dear okay
Starting point is 00:41:13 a guy once told me how he loved the feeling of wearing casts so he put casts on himself for days or weeks on end even if it meant he couldn't drive and would be stuck at home for the entire time, he'd use vacation time just to wear full leg and arm casts. What? Oh, my God. So weird. So weird. I gave up my gun
Starting point is 00:41:46 shhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh Oh my god I saw that on obsessions someone and like to put he's like i love the feeling of cast it feels like i'm getting a hug and i'm like mate that is so bad that has really come out my nose do i need to move this because i feel i keep moving no it's fine it's fine don't worry oh my god that was so weird really that was a real thing you saw yes so that might be in the so that must have been the story that must have been the story that you've seen but he wasn't dated
Starting point is 00:42:27 he wasn't dating anyone well clearly he is now and I don't know how long that's gonna last not gonna last that is so weird strange
Starting point is 00:42:36 there was that lady who eats her husband's ashes yes she was like I can't eat dip dabs anymore it makes me think of them because she literally
Starting point is 00:42:43 sucks her finger sticks her finger in the ashes and then puts it backabs anymore it makes me think of them because she literally sucks her finger sticks her finger in the ashes and then puts it back in it just makes me think of dip dabs and I'm like oh my god it's so bad how long does that last I love a good dip dab what do you do when she gets to the end of his ashes
Starting point is 00:42:58 oh my god she's literally ate her husband his fingers, his bum literally why do you go to bums She's literally ate her husband. His fingers, his bum. Literally. Why do you go to bums? I didn't actually. I went toes. Toes. Fingers.
Starting point is 00:43:14 Yeah. She was stuck on toes. Can you imagine toes? Which is the contrary. I don't like eating ashes or casts no me neither well eating casts
Starting point is 00:43:28 I just don't wear casts I don't know alright I've got one more okay make it a good one ready so a few years ago
Starting point is 00:43:42 I was going out on a ton of dates from Hinge anyway I set up a dinner date with a guy i got there first and decided to just go ahead and get a table a couple minutes after being seated i look up and i see my date coming toward me i get up and i say hello and give him a big hug i sit down ask him how his weekends go in he just stands there and he's like yeah good with a smile on his face then ask me how i'm doing i answer but in my head i'm like why isn't this guy sitting down we chit chat about something
Starting point is 00:44:09 else for a minute and then i realize he's not sitting down because he's the waiter what what brother that is so gross. Go on, get out your name. What's this for? Ow! Like to the star. Is she going to sit down then?
Starting point is 00:44:33 No, I've actually got a full-time job. That would be so awkward. That's funny. So awkward. How did she not look? She only had an outfit on. Thanks. Oh, dear. how does she not look should he have an outfit on maybe the outfit of like the um you know surely he was in like a waiter outfit like maybe that was his style oh my god you know bow tie with a apron
Starting point is 00:44:58 like a man in uniform at least he wasn't wearing a cardigan. You know what I mean? True. It's a pro and con sort of situation. Oh dear. Thanks so much for joining us on T at Four. How did you find it? It's been really good fun. I'm quite happy.
Starting point is 00:45:17 Had a really good time. A little bit damp. Yeah. Yeah, fine. It was very good. If people want to find you on socials to see more of your content around Tourette's general content where can they find you uh instagram and tiktok both the same username it's jodie underscore lynn official and then mine is for my tiktok is nicole.lyn
Starting point is 00:45:36 official i can't remember my instagram but it should be linked on there we'll link it below yeah that's fine love it perfect well thanks so much guys and for you guys listening or watching if you have any funny stories please send them to us at t at four at jungle creations because we want to hear and we want to react to them and we'll see you for our next episode bye Bye. Bye.

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