The Highwire with Del Bigtree - The HighWire Studio plays host to the award-winning documentary, SPELLERS

Episode Date: May 6, 2023

The HighWire Studio plays host to the award-winning documentary, SPELLERS, with a Q&A before a LIVE studio audience immediately following the film. “What if everything you thought you knew about... autism was wrong?” SPELLERS answers that question, in convincing fashion, through the stories of eight nonspeakers—Aydan, Evan, Sid, Maddie, Jamie, Vince, Cade, and Elizabeth—who all found their voice through the miraculous process of using a letterboard to communicate their thoughts and feelings. As Jamie explains, “we think, feel, and learn just like everyone else.” SPELLERS challenges conventional wisdom regarding a group relegated to society’s margins: nonspeakers with autism, who most “experts” believe are cognitively disabled. The film blends beautiful cinematography with heart-wrenching stories of these eight spellers and a strong message for every parent of a nonspeaker: your child can do this, too.Become a supporter of this podcast: https://www.spreaker.com/podcast/the-highwire-with-del-bigtree--3620606/support.

Transcript
Discussion (0)
Starting point is 00:00:08 There's never any doubt in my mind when someone walks into my room that they can and will spell for me that they can and do want to learn. I'm going to teach you how to do something new, totally new, which may feel a little bit weird at first. Autism can take you as a parent to a really dark place. The future is really, really scary. We had no real reliable form of communication. We had to just basically guess for 20 years. I lost hope that I would ever be enough for them.
Starting point is 00:00:46 Are all the parents fools? Are we trying to live visual thinking? No. I mean, what's anybody going to gain by this? There should be research, academic literature, focused strictly, specifically on this area to help promote it. We should have all been presuming competence in our kids, and we should have been encouraging them,
Starting point is 00:01:02 telling them we knew that they were in there. It's time to shift that whole paradigm. There are 31 million non-speakers with autism in the world, who are locked in a silent cage, my life will be dedicated to relieving them from suffering in silence and to giving them voices to choose their own way. Should schools choose to really work with a student's strong suit, autistics will become tomorrow's innovators and leaders. The average autistic child can read into math by age four, but can't show it?
Starting point is 00:01:30 Imagine the difference we can make in the world of taught how we learn. Hello everybody out there in our studio audience in front of me right now and all around the world. This is the Highwire's live broadcast of the documentary Spellers. I want to say that there are very few opportunities we have in life to witness a miracle. And what you are about to see is a documentary that comes, you know, as close to a miracle as anything we can imagine. For so many millions of families around the world that have dealt with different, you know, levels of this spectrum that we hear about autism. Some non-speakers wondering, these families, wondering, you know, is my child in there? How much do they know? How much can they hear? What are
Starting point is 00:02:34 they capable of? I want you to imagine spending 20 years maybe with that question. And then probably at the point of giving up on any, ever really knowing that answer. And then along comes something that changes your life to ever, forever, and that is that you get to communicate with your child for the first time. And not only are they able to communicate, they begin educating and realizing that they have all of the capabilities of all the neurotypical children you may have or friends you may have known, and suddenly the world opens up. This is a true story of awakening, and it is absolutely phenomenal. And so while you're watching this film out there, if you're watching on the highwire.com right now, we will be taking questions. We have many of the cast members and the
Starting point is 00:03:27 filmmaker here to answer your questions about what this is all about. Maybe you have a child that you feel might be, you know, the right type of child to get involved with spelling to communicate, or maybe you know somebody. But comments, just write the question that you have, and after we will address those questions and bring them to the Spellers themselves. This is a phenomenal moment. We are so excited to be presenting this incredible documentary that's already doing great things around the world. This is going to be one of those steps.
Starting point is 00:04:01 So sit back, brace yourselves. I hope you have a tissue box nearby. Here comes Spellers. What if they've been wrong about every single one of them? what if they're all walking around without the ability to speak, but brilliant or at least cognitively normal? How many people are we talking about now? And how are they living their lives?
Starting point is 00:04:57 And how have we missed this? And how long is it going to take us to admit we've missed this so we can help as many of them as possible? I think now I said, okay, we're on another adventure because we've been on adventures before where we've tried different therapies and different treatments. And the two of us will kind of leave the rest of the family and go off and try these new adventures, I say, to him. So far, we haven't seen a lot of results, but I'm always helpful.
Starting point is 00:05:54 I don't lose hope on that. And there is a time where it's like, okay, is any of this really going to help? Maybe I should just accept things the way that they are. But then I don't know. I just don't see it that way. I've always thought that Aiden was going to find a way that there's going to be something that he's going to do. It might not be the way in which I had hoped for
Starting point is 00:06:18 or what I had originally expected. But I think he's going to find a way. What you really feel and what you like, what you think, What are your philosophies? What's your favorite music? Yeah, it's like you guys, even on C, because you guys are on the precipice. Something really big, I think. Like a new frontier.
Starting point is 00:07:28 What do you think of these new letter boards? G. G. G. Q. Keep coming, Dore. R and keep coming. Move your eyes. I see you moving. E and eyes have to move around. G.R. E. What makes sense? What makes sense? G.R.E. Keep your eyes.
Starting point is 00:08:23 Ready? Leave me. Go. G-R-E. G-R-E. Great, great. It makes sense. Look for it, look for it, look for it, look for it. F-N.
Starting point is 00:08:50 Great life, great life, what? I-N. Look for it, look for it, look for it, I-O. Doesn't make too much. Let's get going. Hold on, great life. Started I. Started I. Started I.
Starting point is 00:09:08 I. Is. Great life is. All right. G, G, started G. G and keep going. Make it make sense. G. J doesn't make sense. So G. Great life is what? Trust yourself. I love that. Great life is. Look at me for a second. Can you put your eyes up here? Thank you. Great life is. Now look at the board. Go. Oh, A. Keep going. A and each end. Keep going. B and move your eyes, get the A, and move your eyes, move your eyes, D, great life is ahead. That was my question. No, I'm okay.
Starting point is 00:10:31 He always looks at like, uh, he always gets conserved. So I'm just trying out. All right, Aiden, so we got some new letterboards, huh? I believe you. I thought he was looking at the words and spelling them to you. You can't see you at all. I'm already astonished. What we do is.
Starting point is 00:11:23 we take the movement out of the fine motor of the digits and put it in the gross motor of the arm because that's so much easier to control. And he took to it like a champ. I mean, he rarely, you know, if he missed a letter, it was generally a one-off or he was at the opposite end. And that's just kind of a starting at the wrong end. Plus, there's a really strong draw to go to that left side of the board because he's been taught all his life. I start left, go right. Speech is 100% motor. Language is 100% cognitive.
Starting point is 00:11:59 And you can tell they're in two different areas of the brain. Speaches up here, language is down here. So just because the motor and the speech is affected does not mean the language is affected. So I'm not, I didn't ask those questions for comprehension. I asked them to give him an opportunity to practice spelling so I could coach the motor of his spelling. There's never any doubt in my mind. when someone walks into my room that they can and will spell for me, that they can and do want to learn. Yes, I, W, A, and I want to, T, E, L, L, M, Y, My, F, U, T, R, my, my future, S-E-E-L-L-M-M-Y, my, F-U-T-R, my future, S-E-L-L-L-F,
Starting point is 00:13:34 T, O-T-O-N-E-V-E-R-G-I-V. Go ahead. E-U-P-O-on-T-H. Go ahead. E-O-T-H-E-R-N-O-N-S. Go ahead. P and then E and then A and then K and then E. I want to tell my future self to never give up on the other non-speakers.
Starting point is 00:14:22 I was really dark, dude. I was, that was a really hard fall in winter, and I was starting to fray at the seams, really, about Jamie's future and just where, where is this all going? And I've been fighting cognitive dissonance ever, as you know, what you're presenting is an incredibly radical thought. It is. It is.
Starting point is 00:14:48 beautiful thoughts. Yeah. And I'm starting to believe you. It's a wonder I'm not on the ground weeping in the field position. I'm just going to like go with the photo right now. It is pretty amazing. And it's and sometimes I say, you know, like why would you believe this one crazy lady is sitting here in front of you versus all the people you've heard? But there's a real logic to it. If you back into it, all tests of cognition, of motor of academics, require, I'll test, sorry, language, cognition, academics, IQ, require motor, every single one. So you either have to speak it or you have to do it, you know, put the thing in the thing, touch this, touch that, give me the this, give me the that. But we never teach the motor. We do
Starting point is 00:15:32 not teach the motor. For some people, you know, it's hard for them to believe that letterboarding is real. What would you say to those people? Yes, Y, O, U. J, U, S, just, N, E, E, need. T, O, go ahead, P, and then E, and then E, and then N, and then Y, and then O, and then U, and then R, and then go ahead, E, Y, and then E, Y, and then E, S. Yes, you just need to open your eyes. early research in autism focused on the cognitive disabilities. And that is mostly due to the researchers being
Starting point is 00:16:35 psychologists or psychiatrists who focus primarily on the cognitive aspect. The assumption that individuals right from the get-go who have autism also have a cognitive disability is completely inaccurate. And the reason is because of what's called apraxia. And apraxia is an inepraxia is an inebriacia is an inability to perform on demand a specific movement,
Starting point is 00:17:03 even though it is fully understood. Traditional assessments, neurological testing, academic testing, all focus on pointing, writing, or speaking, which all are motor skills. When we start to address the motor skills by practicing functional-based movements, purposeful movements by practicing and coaching their body, they're then able through
Starting point is 00:17:29 to build those motor skills in order to be proficient in the things that they want to do. Is it an easy process? Absolutely not. Is it something that they're all of a sudden going to have perfect motor skills? Not necessarily. However, they're now going to be able to, one, communicate to ride a bike when they've never been able to ride a bike before. It takes some longer than others, but with that perseverance that most, if not all of them have, it won't be a problem. If you're looking at autism through the lens of it's a social deficit model or it's a cognitive disability model, then you see what you believe. But if you actually understand it's not those things, it's a sensory motor processing challenge.
Starting point is 00:18:19 Suddenly you're like, oh, maybe what I'm asking right now is for you to do something purposefully with your body. That's the problem, right? That you need me to come up. coach you through that, not that you don't understand what I asked you to do. You hiding from us? You can't hide from us. Is it hard for you sometimes to understand where your hand is using the letterboard? S-E-N-S-O-R. Sensory. S-T-I-M-U-L-I-F-S-S-S-O-A-S-A-U-L-M-S-A-S-A-U-L-M-E-G-G-G-E-G-G-G-E-G-G- You're good, yeah, my, my, which
Starting point is 00:19:33 which one G or B? B. Can we hold the pencil like that? Go ahead. I got the B, keep going. O, D, give your eyes. Y, assault my body. Eyes.
Starting point is 00:19:48 Mm-hmm. C, O, and S. Mm-hmm. T, that makes sense. Go, go, go, go, go, go. A, get it, get it, get it. And T. L constantly.
Starting point is 00:20:06 Okay. Sensory stimuli assault my body constantly. T, H, E, S, E, these, holds your pencil like that. These, B, R, U, S, H, H, H, E, S. These, these brushes, H, and, E, and L and P help M and me go ahead F and E and E and E and L feel M my feel my in a second finish the sentence H finish your sentence A stay here and don't finish wait finish the word I hate it when you leave the word H A N almost done N D Yeah, assault. Sensory stimuli assault my body constantly. These brushes help me feel my hands.
Starting point is 00:21:33 I would say growing up I was the eternal optimist. In fact, I used to say my political party was possibility. I'm like, I can just, whatever, anything's possible, really optimistic. And when Evan was diagnosed with autism, I totally just took it in stride. Like you just said, my kid has red hair and blue eyes. I'm like, okay, okay. Like, so what do I do? What does that mean? That's it.
Starting point is 00:22:00 That's good job. There he is. I swam with dad. I wasn't discouraged by it. I was thrown off. I was thrown off. Like, this isn't what I was planning on doing. I didn't think I was going to raise a kid with special needs,
Starting point is 00:22:15 but I also wanted to always be a special ed teacher. So it was sort of like in alignment with who I was. But when Trey was diagnosed a year later, It blew my mind and I literally sat in the rocking chair in his nursery for two days, like almost catatonic. Trey's playing what? Trey's learning how to play Jenga. Right, wait, this one. This one.
Starting point is 00:22:46 Oh. I just like shut down. And I remember their dad finally coming in after a couple days and he's like, Don Marie. Like, I get it. Like, I totally get it, but we need you. Like, you can't do this. Like, you have to, like, snap out of this and, like, come help me. And what was happening for me at that moment was just massive overwhelm.
Starting point is 00:23:15 And I lost hope that I would ever be enough for them. Like, it was a lot. I'd already spent a year helping Evan and saw how intense the level of intervention was to get just at that time, moments of eye contact or minutes of his gut feeling okay. And I thought, wow, like, I'm working around the clock for this one kiddo, and now I've got two of them, like, how is this gonna happen?
Starting point is 00:23:44 So in that moment, I thought we're screwed, like this isn't gonna go well. Then the universe has started opening up all these paths, and now I'm this practitioner, and now I'm helping all these other families. And I spent three years trying to teach Evan how to spell before I would introduce a letterboard to him because I thought he had to know how to spell
Starting point is 00:24:03 in order to do it. Look, look, stop tripping on a regular and I promise the working a flow better, yeah, this hunger in a game of length died from Jennifer, things stick even if you got your better, yeah, breaking on things that's so broken on the inside
Starting point is 00:24:27 and internalize, every word I never meant right, perception bent right, falling off the cliffside, but I bought the rep, no I've been nice, I'm a wreckless, Gemini, probably die young if this rap biz, Never tried. Somebody come get me.
Starting point is 00:24:41 I brought it out with me. I got an act. It's rolling a old Ricky. Let's hear just for the key. I got the key log. Young sway read the label. Let's straight from the manger. Flexing on them with the sweats.
Starting point is 00:25:27 Get comfortable. Don't flinch. Just testing new faded at the park and I'm gone. Mr. Baybrook. Mr. Big Shop, you can get rocked. You can get popped. Mr. Tick-Tick-Tac. Finn' a blow, yeah.
Starting point is 00:25:38 Yeah, I'm pissed off. Out this new tron blast off. I've been assessing a nurse. Never lovish in one my size. Never eating and never pleasing a humble pie. Starvation and motivation a different lie. Maybe hungry and never settle for nothing lie. Look, if it ain't.
Starting point is 00:25:54 What do you're out of all again? Yeah, yeah. I, C, A, N, G. I can't. I know this board's a little different. The stencils can't. W. You can't be good.
Starting point is 00:26:09 G, A. I. I can't wait. Keep looking on the board. T and O and C and... Put your hand back. O and... T and and...
Starting point is 00:26:23 I'll find a buddy. B and... A and C and... I can't wait to come back. So I'm wondering if you have any thoughts on that quote and if you could make a comment about the brain-body disconnect in advocacy for yourself or other non-speakers, what would that be? I might start from the top. You got this.
Starting point is 00:26:49 Let's start from the top. Ready? Go. I and, L and, V and, get it. E and. I lived. Mm-hmm.
Starting point is 00:27:03 In, S and. L and, E and, C, and. I lived in silence for, I lived in silence for, A, I lived in silence for. for all my eyes on the board, whichever one you want. L and, I, and, F, and, life, N, and, T, and, I, and, until A and, S, and, T, last, M, and, O, E, and, H, until last month. I lived in silence for all my life until last month. reality F and O and for M-Y-S-E-L-F for myself A-N-D-N-D- and O-T-H-H-E-E-R-S and O-T-H-E-R-S and others All right, let me read it. For myself and others.
Starting point is 00:29:08 So I lived in silence for all my life until last month. Other than a finite number of my family members, most people thought I was dumb. I hated being talked to like I was a baby. Now I'm going to change the reality for myself and others. Well done. Well done. I heard you say that. That was so good, too.
Starting point is 00:29:34 Communication is everything. And without any real, means for can tell me anything. If he's hitting himself, why is hitting himself? Is he hungry? Does he have a headache? Does he feel terrible? You know, is he constipated? Why are you doing that? Why are you upset? And unable to tell me anything, what does he want to eat? Do you like what we're doing? What do you want to do? I mean, his only real ability to communicate with me would be either to make noises, which are you happy about that or upset about that? Because sometimes it's hard to figure out if it's a happy or upset. So yeah, we had no real reliable form of communication. And I had to, or we had to
Starting point is 00:30:14 just basically guess for 20 years. Kade, you've gone from the laminate? Yeah, laminate. Laminate? Well, it will actually press the stencil. The stencil. Stensel. It's a laminate. To the keyboard. That's, he did. He went from all those. What do we need to do to help? Non-speakers. Treating us with respect helps. That's right. Why did it take my good friend from Portland to call me and say, hey, listen to this breakthrough miracle for our son.
Starting point is 00:31:52 Why is it that this parents around the world are having to get to each other and tell each other? Why isn't science? Why? Why aren't they looking for how to really help our kids? You know, that's the thing that's the most upsetting. He should have been, he could have done this years ago. He's told me that. All I want is research to happen.
Starting point is 00:32:48 It's not discredit. As a special educator, everything I do should be evidence-based. And that's not, it's not an evidence-based procedure. For an evidence-based procedure that we can do, you have to have 16 studies by, like, a peer-reviewed program, and they don't have that.
Starting point is 00:33:13 Well, I think they need to be interested in anything that's why we're innovative. And so we'll follow the research, see if it comes out. If it does, it's a game changer for kids. Where are we going today? All right. Hey, Madison, where are we going today? Madison, what are you doing? She wants to swing.
Starting point is 00:33:51 Hey, Madison, what do you got there? Hey, hey, Madison. Madison. Madison. Hey, what's you doing? Hey, let's say the camera. Did we go to the car wash today? Here, look at Daddy.
Starting point is 00:34:10 Look at Daddy, come on. Hi. Hi. You're really gross in those toe stools. Do you go to a public school, or did you go to a public school? There's a couple people that were going to interview where their schools wouldn't let them use a letterboarding. They didn't believe in letterboarding.
Starting point is 00:34:38 Ready? A. Crying. You, be around A, G, E, age, two, to around age 22. I and N-N-N-I-N-I-N-S-N-H-H-E-D. I finished. P You got it G
Starting point is 00:35:28 B L I finished public S Get your eyes there C and H and
Starting point is 00:35:40 O I finished public school I M and S S E
Starting point is 00:35:51 D I missed O U T I missed out O on
Starting point is 00:36:12 And oh good real good C and C and C and Around age 22 I finished public school and missed out on real good content I'm gonna guess some of your emotions right now are because of that experience too But you can tell me if that's true or not I could be projecting There we go Madison look on me your first day of school There's a kindergarten There it is. Hey Madison, you going to school today?
Starting point is 00:37:18 Say yes. You're gonna have fun, huh? Say hi. This is your class and you had snack here. You can say Miss Marner? No. Miss Marner. I can say hi, I'm Madison.
Starting point is 00:37:51 So how does that make you feel as a person? What does that make you feel as a parent to realize that all these years she was in school? And, you know, she was truly sudden. Yeah, you know, you know, there's a famous quote, Charles Dickman's best of times, worst of times. And it was actually in the book, underestimated, which I, the parallels our experiences 100% as parents. It was wonderful. We're excited. The first time you see it, first time you understand it.
Starting point is 00:38:26 But then you start thinking about, oh my gosh, this poor, my child had to go. through these experiences, teachers who didn't understand, that thought she didn't have any abilities whatsoever, probably went through situations where maybe other young people teased her, were mean to her, and she had no way to be protected. Also, all the things that we did that were probably wrong or we should have been doing things to encourage her. So that's the downside.
Starting point is 00:38:55 She recognizes it was there and she recognizes, and she understands that people didn't understand. Most people just don't understand. So, Maddie, thanks for being here once again. Why do you want to do the interview over? I, W, S, I was, E, M, B, K-G-A, R, good. S, S, S, E, D, embarrassed,
Starting point is 00:39:37 B, B, by, By M, my, S-N, C-N, R-N, I-N, P-N, T-N, I-N, G, by my scripting. Do you have like a goal in life, a mission in life? What is your dream? I, I'd, L, O, V Move your eyes L-O-V Here, pull back
Starting point is 00:40:21 L-O-V I'd love T-2 A D V C T
Starting point is 00:40:43 to advocate F O 4 S I know what you want S 2
Starting point is 00:40:58 S2C, I, N, S-C, H-O-O-O-L-S. I'd love to advocate for S-2-C in schools. And what needs to change? T, get it. E, C, H, E, R. Teachers, teachers, N. E, E, need, T, to, S, T, O. Stop, stop, stop, D, E, D, E, under, S, T, I, T, I, T, I,
Starting point is 00:42:11 underestim, A, U, U, T-I-S-T-I-C-S. Teachers need to stop underestimating autistics. What about specifically, boom, boom. Yeah, and what about, like, for unreliable speakers, right? You've talked about how your speech is not reliable, how would you suggest teachers not underestimate students like you? T, H, E, they, E, T, O, 2, S, T, A, start, P, R, E, S, U, S, U, I, presuming, up, a, P, R, K, G, U, S, U, I, P, P, P, G, G,
Starting point is 00:43:35 Go ahead. A. I again. A. N. Keep going. D and. A.
Starting point is 00:43:44 G. Keep going. A. G. Keep going. A. I. N.
Starting point is 00:43:52 They need to start presuming up again and again. It's hard to put into words that the feelings that we have as a result of this small, seemingly small thing happening. And we're amazed that it's. hasn't happened before what took it so long I mean it's not I don't understand really in a way because it's fairly simple straightforward why we haven't had this solution before and why no one's figured it out but now that we have it it should be fully embraced by the school systems by therapists everywhere it should be there should be research academic literature focused strictly
Starting point is 00:44:31 specifically on this area to help promote it because I can guarantee you parents when they see this and they watch their When they watch their children for the first time speak and articulate their thoughts and feelings and emotions, it's, well, it's something else. I would like to request one thing of you. Can you take a few seconds to take a quick intellectual snapshot mentally of this child? And you can raise your hands and feel free to be honest if you observe any one of these things. For example, do you see a child with a low IQ, a child with cognitive challenges, a child with learning disabilities,
Starting point is 00:45:24 or even a child who should focus on learning functional life skills as opposed to academics? Any of these? No judgment, you can raise your hands? Some of you. Maybe some of you are shy and suspect that this is a trick question. Well, Sid does happen. to be my son, so yeah, sort of. I remember the day that I walked into my son, who was then
Starting point is 00:45:50 all of six, into his classroom, and I saw him passively strapped to a chair for no reason, just cause. How many of you think that this treatment has at least in part to do with an intrinsic lack of respect for the child? Assumption of intelligence brings respect, whether that intelligence is on display or not. I'm going to say that second phrase again, whether that intelligence is on display or not. Assumption of intelligence brings respect and respect brings dignity. Go ahead and refer back to that snapshot you just took mentally. Reassess. Absence of evidence is not evidence of absence, right? Just the absence of science doesn't mean that it's not true. So, you know, we might have to wait until the science comes out. When a child is communicating, you don't need the science.
Starting point is 00:47:05 So you said, you know, this is one of the cases where everybody keeps saying science. Science is stupid to wait for. I don't want the science. I want Sid to talk. I don't care. I'm a scientist. I don't care about the science. I know that Sid is talking.
Starting point is 00:47:17 And like, Sid says, if you don't believe it, go get a life. Can you control your thoughts? Okay. That's interesting. I'd like to know as well. I, A. I am. Keep going.
Starting point is 00:47:41 A. I am A. I think that was an M but double check. Not an M. R. I'm a R. Go, fix it. Okay, are you?
Starting point is 00:47:54 Are you? Are you? Are you I? Keep moving? Are you D? Okay. D? Sit, look and go.
Starting point is 00:48:05 Are you D-D-E? R. Rudder. And then what? L. E, S, S. Yes, okay. I may rather less S, H, I, ship, I, T, H, H, in the, S, E, in the C, O-N, and, look, look, please, O-F in the C of T, T,
Starting point is 00:48:49 H, keep moving, O-V, T-H, keep moving, O-V, T-H, keep moving, O-U, G-N, H, C of thought, done. I'm a rudderless ship in the sea of thought. I think we're paying too much attention to validate something that is working for thousands of kids. These are not three outliers that are trying to prove. trying to prove this to the world that,
Starting point is 00:49:29 oh, autistic kids that are non-speaking can communicate, this is magic. Thousands of kids are communicating. Are all the parents' fools? Are we trying to live visual thinking? No. So we're not in some mass hoax to deceive the whole... I mean, what's anybody going to gain by this?
Starting point is 00:50:14 Vincent definitely puts extra pressure on himself to prove to people that these are his words. When he works in front of anyone, he becomes a perfectionist, that he has to do it without any mistakes, which we keep trying to teach him to relax. You know, everybody has a typo when they type. You know, everybody flubs up their words. Like I stumble on my words all the time.
Starting point is 00:50:39 It's the same thing. He's such a free bird now because he keeps saying he was like in a cage and he's really, truly dedicated to helping other non-speakers see, you can do this, I can do this, we can do this, and we need to come together and show the world that we have a voice. What is the best message that we can put out there for non-speakers? Why is hope important? Tunnels are illuminate.
Starting point is 00:52:34 So this is your message to the people that don't believe that you're typing your own words. What would your message be to those that have disbelieved? I think judgments are my fuel to persevere. You can't unsee what you've seen with these spellers, And I believe that, you know, presuming competence is critical right off the bat. Five years old, we should have all been presuming competence in our kids, and we should have been encouraging them, telling them we knew that if they were in there, it's time to shift that whole paradigm.
Starting point is 00:53:40 Like, we need to make a shift to say, start talking to your kids the way you would any other kid, right off the bat. So when I started to see the growth that Vincent was having with spelling to communicate and the depth of these conversations. I knew I needed to start sharing it with some of my friends who had kids that were similar to Vincent. And sometimes I get a little thought and I can't get it out of my head. And J.B. kept coming into my head. I just really had this drive to get his son, Jamie, to try what Vincent was doing.
Starting point is 00:54:18 So I sent him a text and I'm like, hey, how are you? What are you doing? It was confusing because she basically said, Vince has learned how to communicate, check this out, and then all of a sudden there's just these screenshots of this insanely complex language that purportedly her son is the one making these words. And so I'm literally in a state of confusion. What is it going on? And I literally sort of text back to her like, WTF question mark. Like, what the hell is going on?
Starting point is 00:54:51 What are you talking about? about. And she starts sending me more screenshots of the things Vince has said. And this is like complex language that somebody in college or beyond would kind of make, right? I was like, yep, that's Vincent. And I'm pretty sure Jamie can do the same. And I started to tell him about spelling to communicate. And he said, can I call you? I walk into a private room. I hit my phone and I call her. And I'm just like, what are you talking about. She says there's this communication method. It's called spelling to communicate. And Vince started doing it about four months ago. And we used to think that his most advanced
Starting point is 00:55:33 word words were, I want juice. And now you're seeing what he's writing. And then we had a conversation. He went home. And then he gave me a video of his son to say, honey, this is Jamie. He's not going to be able to communicate like that. And he sent me the video and I knew right then. I'm like, yep, he's going to do it. Autism can take you as a parent to a really dark place. The future is really, really, really scary. And everything is different when your child can communicate. Everything is different. And I just, I sometimes shudder to imagine where we would be as a family, where I would be as a person, where Jamie would be if we hadn't had the luck of having another parent reach out to us and encourage us to give this a try.
Starting point is 00:56:25 I asked Jamie about Honey the other day, and he said, Honey, saved my life. He understands the gravity of what gift her selflessness gave him. And I would say, Honey didn't just save Jamie's life. Honey saved our family. Honey saved our family, really. You walk into the room to begin your first spelling to communicate session. The thing that really blew my mind was when Elizabeth Vossler turned to Jamie and she said, I know you can do this.
Starting point is 00:58:07 I know how smart you are. Yeah, and I already know you're smart. You don't have anything to prove to me, okay? And I'm going to teach you how to do something new, totally new, which may feel a little bit weird at first. Okay, so... I know. I really think about that. I've even watched the videotape back.
Starting point is 00:58:31 I don't think anybody has ever said that to Jamie before. So on the first day, I'm texting Lisa going, holy shit, he's spelling words. My mind is already blown. We get into the second day, and they're doing a lesson on plants. She asks him to spell carnivore. No problem.
Starting point is 00:58:54 spells carnivore. Then she says, Jamie, spell the opposite of carnivore. And I'm like, wait a minute, wait a, whoa, whoa, whoa, whoa, whoa, whoa, in my head. She didn't say that word in the lesson, that word that is the opposite of carnivore. She didn't say that word. He spells herbivore perfectly. And I literally, it's on video, I go, excuse me, was that word in the lesson? And she's like, no, no, no, that's what we call prior knowledge.
Starting point is 00:59:25 I think that was where I went from wanting to believe to going, okay, okay, we're really on to something here. When the text started to trickle in that like this is happening, like this is true for Jamie, it's happening, it's real. You know, you let out a little bit more hope, a little bit more hope. And then pretty soon, you know, I don't know what, I think was probably that first week with Don Marie like then it was. We just let the floodgates go. It was such a magical time. It's so emotional. But I wouldn't trade it.
Starting point is 01:00:04 I'd go back there even right now. Because it was the very beginning. I'm believing that his whole life is going to change. You know, he's going to be okay. It's all going to be okay. He's going to be fine. The first time I saw Jamie using the letterboard was in a video sent to me at the start of my lacrosse season in 2020.
Starting point is 01:00:44 It was right before like we had played a scrimmage. Usually I try to get serious and get a little angry before and I broke down in my locker room. I think it's the best thing that's ever happened to this family. Up, pump, pump, boom, good, hell. How have you seen the relationship change for Jamie's brother and sister now? It's obviously a whole dynamic that has changed. There's so many. But one of them is just knowing that, yeah, your brother loves you and has loved you all this time.
Starting point is 01:01:41 And it may not have felt like that. And I know that you did feel like that at times. You know, when he would get agitated or mad. It's scary sometimes to be around, especially for a younger sibling. And for our daughter, it was, you know. And I think she doubted if he loved her. even what he might have known about her. And Jamie is so loving.
Starting point is 01:02:03 And so for her to get that feedback, like, you care about me. You know me has just, I mean, opened up everything. Yes, I, N, go ahead. A, M-E, I named M-Y-S-E-L. I name myself N-O-T-O-R-I-O-U-S-L-Y-S-T-R-N. I named myself notoriously strong B, E, C, A, U, S because
Starting point is 01:02:46 I, H, A, V, have, uh-huh, A, L, W, go ahead, A, Y, always, B, and then E, and then E, and then N, and then A, and then F, and then I, and then G, and then H, and then H, and then T, and then E and then R. I've always been a fighter. E, V, E, even.
Starting point is 01:03:16 I. If, N, O, O, N, E. Go ahead. K and then N, and then E, and then W. Yes, I name myself notoriously, notoriously strong because I have always been a fighter, even if no one knew.
Starting point is 01:03:35 I just want you to read this. The letter that Jamie wrote. You bastard. Dear Beebe, happy birthday. I love you. No words can make you understand how much I appreciate you. You have always believed in me and have never given up on me. You are a special grandpa, and I'm lucky to have you in my life.
Starting point is 01:04:19 You've always been the one not to let my disability get in the way of loving me. You are a great person. You must know how much I love you. I hope you have a great birthday. Love Jamie. That's a kid. That's him. So when you got that letter, how was that?
Starting point is 01:04:42 Weepy. Weepy. I mean, I just, you know. I spent a lot of time with Jamie when we lived in Oregon. I drove him to school, two, three times a week, pick him up. Spent a lot of time just, you know, I tried to. But to... To realize that all that time, all that effort was appreciated was just, you know, I mean, I just weeped.
Starting point is 01:05:14 How exciting is it now that you can communicate with your grandpa? Yes, I, A, I-M-G-L-A, I'm glad, T-H-A, that, H-H-H-H-H-H-E, K-N-O-W-W-W. knows W-H-H- Who I-A-M-B-E-F-O-R-B-D-I-S. I am before he does. The East Coast West Coast hip-hop rivalry was essentially a feud between Bad Boy Records and Death Row Records. Oakland-based rapper Tupac Shakur then kicked off the rivalry with Biggie by alleging that he and Puff Daddy were behind Tupac being robbed and shot five times in the lobby of a New York recording studio. Biggie's track, Who Shot You, was released soon after Tupac's attempted murder.
Starting point is 01:06:35 Although Bad Boy Records denied involvement and claimed the song was reported months prior to the incident. Still, the hip-hop community interpreted as a taunt at Tupac. Mm-hmm. What do you think? Check it out over here. Do you see that picture of Puff Daddy up there? Kevin, you too. a picture of Puff Daddy, what adjective comes to mind? What do you think of when you look at that?
Starting point is 01:06:58 Good, good. Ready? Go. Go ahead. G-A-N. G-A-N. Get it, get it, get it, get it. Get it, get it. Come on. G. R. G-R. Find it, get it. Find it. Enter. Gross. Gross. What do you think of when you look at that picture of Puff Daddy? Here, come up. here, so I can spell. Come on. What do you think of that? Keep G. R.
Starting point is 01:07:43 G. Gross. P. The gross part is, keep going. R. His smirk. Stay here. His smirk.
Starting point is 01:08:07 W. And while planning, you're doing great. Tupac's. What? I or D. E. The gross part. is his smirk while planning Tupac's demise.
Starting point is 01:08:45 Good. My brother, Evan, is feeling anxious. Yeah. How's that making you feel? Yes. You get it. And keep going, buddy. You're so sweet, Jamie.
Starting point is 01:09:22 Like the worst friend because I can't help him. Yeah. It's not, you don't have to. He's getting better just by you being here. Yeah. Look at, he's pacing off the extra energy. Yes. You there.
Starting point is 01:09:40 You are amazing of it. Bye and... You are, James. So guys, I'm going to read this to you. The American Speech Language Hearing Association, Asha, has reviewed the evidence for RPM and spelling to communicate and warrant against their use. They conclude there is no evidence. Clients are actually doing the communication. Would you care to comment on that statement?
Starting point is 01:10:34 They have to learn. That's one of my favorite words. Do you care to comment? A, G. To diagnose. Diagnose. I gave going. I and T.
Starting point is 01:10:55 Which is ironic because SLPs are the ones to diagnose it. It's all in there. Yeah. You said it all. Yeah. Come on, Evan. Why have non-speakers been forgotten by the world? We have no voice.
Starting point is 01:12:17 I see how non-speakers suffer needlessly in silence. Communication is a basic human right. The world needs to change the way it sees non-speaking autism. It is a neuromotor disorder, not a cognitive one. I know something about shared achievements, because I am affected by a form of autism that doesn't allow me to speak. My neuromotor issues also prevent me from tying my shoes or buttoning a shirt without assistance. I have typed this speech with one finger with a communication partner.
Starting point is 01:13:02 holding a keyboard. I am one of the lucky few non-speaking autistics who have been taught to type. That one critical intervention unlocked my mind from its silent cage, enabling me to communicate and to be educated, like my hero Helen Keller. I have struggled my whole life with not being heard or accepted. A story on the front page of our local newspaper reported how the principal at my high school told a staff member, The retard can't be valedictorian. Yet today, here I stand.
Starting point is 01:13:34 Each day, I choose to celebrate small victories, and today, I am celebrating a big victory with all of you. The freedom to choose our own way is our fundamental human right, and it is a right worth defending, not just for us, but for every human being. For me, I have a dream. Yes, just like Martin Luther King Jr., I have a dream. Communication, for all. There are 31 million non-speakers with autism in the world who are locked in a silent cage.
Starting point is 01:14:06 My life will be dedicated to relieving them from suffering in silence, and to giving them voices to choose their own way. God gave you a voice. Use it. And no, the irony of a non-speaking autistic encouraging you to use your voice is not lost on me. Because if you can see the worth in me, then you can see the worth in everyone you meet. My fellow classmates, I leave you today with a quote from Alan Turing, who broke the Nazi encryption code to help win World War II.
Starting point is 01:14:38 Sometimes, it is the people no one imagines anything of, who do the things no one can imagine. Be those people. Be the light. Fiat Lux. Thank you. The blessings of liberty have been limited or even denied, and the Civil Rights Act at 64 took a bold step towards writing that wrong, but the stark fact remained that people with disabilities were still victims of segregation and discrimination.
Starting point is 01:15:27 And today's legislation brings us closer to that day when no Americans will ever again be deprived of their basic guarantee of life, liberty, and the pursuit of happiness. We must have our rights of effective communication as guaranteed in the Americans with Disabilities Act. We need all typers to join us in the battle for communication rights. The provisions in Title II of the ADA say that people with communication disorders have the right to equal communication of their choosing in schools. So when a school says, oh, I'm sorry, we can't do that.
Starting point is 01:17:10 It's just not true. It's the law. And so Elizabeth says, no more. It's got to stop. The most important thing that I did was to find Elizabeth a teacher who could teach her how to type. Because without being taught, non-speakers have a problem with initiation. That is the contribution I made.
Starting point is 01:17:38 And now I've gotten out of the way because Elizabeth is taking the lead and teaching me what needs to happen in the mission so that every non-speaker can have a voice. How do you feel about society trying to model autistics to look and act quote unquote normal? Yeah. The core issue that is wrong in ABA is exactly that in really supportive worlds a person is celebrated for their unique traits not punished. Go. Keep going. Should schools choose to really work with a student's strong suit, autistics will become tomorrow's innovators and leaders. The average autistic child can read into math by age four, but can show it.
Starting point is 01:19:47 Imagine the difference we can make in the world if taught how we learn. Good. Excellent answer. That's it. Autism parents are going to push every boundary to help their child. They're not going to let whether something is emerging or not fully tested get in the way. The only people that autism parents really trust are other autism parents. So if something comes along,
Starting point is 01:20:14 No matter what it is, if it's helping children, the word is going to get out. You think about how we got into this. I got a phone call from an autism parent. And I don't really care what anybody else has to say. I had an autism parent telling me that her son was now fluent on a letterboard and able to communicate with his family and that their whole life had been changed and that every day was a joy. I think what's happening with Jamie on a letterboard is proof to me that we did get the whole thing wrong.
Starting point is 01:20:42 It's proof to me that we've gotten the whole thing wrong. thing wrong, that we believe that this was a cognitive impairment in most of these kids, when in fact it's been a motor planning impairment the whole time. And that's actually really important because if you know motor planning is the real issue, now you can really target your science. How do we rectify that? Is that something we do in the brain? Is that something we do with therapy? Is that something we do with nutrition? I don't know the answer to that, but by having a better idea of what the disability actually is is so important. And that's why what's been discovered with these non-speakers is so critical
Starting point is 01:21:21 that people start to take this seriously, that they realize that maybe millions of children have been misunderstood and underestimated, and we start rectifying that as quickly as we can. Let the revolution begin. Let's go, y'all. Spell this. Check. I can place and they can never mirror.
Starting point is 01:23:35 Expression through these letterboards can make it any clearer. No longer underestimated souls of this era. Look at these souls glistening. Ready to prove fact from all that they thought was fiction. Life changing missions. And making sure teachers see the difference. Talking about some evidence swim. All you got to watch and listen might have felt dimension.
Starting point is 01:23:55 The day are really close the distance. Take a dip in. Now they y'all been swimming. Just didn't care you missed it. Now this the revolution. Paracal past the movement They challenge and you prove them Sigma and things you build them
Starting point is 01:24:07 Mountains to mountains you move to them Don't work and only tuning Tell them open up their eyes Hello how you're with the pressure applying it full core No you gonna live it chill leaps and bounce to miles Rounds spelling to create this sand But they go hear you now and loud
Starting point is 01:24:25 Look no they go hear you now They're down they're seen is no longer fair No you gonna live it child leaps and bounce to miles Round spelling to create this sand but they're go hear you now and laugh. Yeah, no, they go hear you now. The doubts they're seen is no longer fam. Up on your feet, standing strong, they cannot test.
Starting point is 01:24:47 Came by the jungle amiques, swaners the peak, but least not a stretch. What do you seek, talk is cheap, the world's neglect. Formed, I feel the ones preach, settle the ties and make it connect. I know the pain, rare. I'm gonna tell you that I hear you. Say, for your closest ones, that right now they're near. And how you've turned around and made passion at the tribulations. Things that were over-draining, but it's a right you speak this in your patience.
Starting point is 01:25:10 Because so long that you've been waiting to release this greatness, hell there, you're pacing, for the chance you chasing. No, you're going to live it, child, leaps and bounce to miles round, spelling to create this sound, but they go hear you now and laugh. As they've seen, there's no longer fair. No, you're going to live it, child, leaps and bounce to miles round. Spelling to create this sound, but they're going to hear you now and laugh. We'll hear you now.
Starting point is 01:25:55 The doubts they seen, there's no longer fair. This one goes out to cave. Evan, Trey, Madison, Aiden, Elizabeth, Vince, my boy Jamie, and other non-speakers worldwide that's been waiting to be heard. The movie is nothing, it's just incredibly amazing, and the story is amazing, and all of you that were sharing your stories, I want to thank you for letting us be a part of this incredible time in your lives. So it's truly amazing, isn't it, everyone? For those of you out there in the audience, many of you have written in questions. We're going to take some questions in studio here.
Starting point is 01:27:00 I just want to say, you know, we're going to get to speak to the Spellers, but to watch this story for me as a parent, I just want to say, for all the parents that are involved here, your patience and what you've been through and this journey with your families for so long, and just to see love on a level and a compassion. And it's just truly the best of what we should all be as parents. I just wanted to say that that really struck me in the film. Let's just introduce this panel. I've got over here, Evan, and then there's Cade,
Starting point is 01:27:39 Maddie, Vincent, Elizabeth, and Aiden. Did I get everyone that's up there, and then they're joined by their parents. But truly, your star is not just in this film, but representing millions of people out there that I think need this information. So it's just an incredible moment. And sitting next to me, Dana, you have been,
Starting point is 01:28:05 you have Spellers, Tampa, but you are also one of the producers on the film. So really, just a beautiful film, very powerful and an amazing job. All right. So let me just, we have a microphone for anyone that wants to ask a question in the audience. So there's a question back in the corner. So why we start with a question from the audience, in studio audience?
Starting point is 01:28:33 Thank you. Hi. Thank you for letting me be here. This is amazing. My daughter and I have been following this story from the beginning. We both read the book, Underestimated, and we just feel really blessed to be a part of this. be here with you now. I actually have a friend in Florida who has a son who's nonverbal and he's seven years old. His name is Carter and her name is Susan May and I asked her to send me any questions
Starting point is 01:28:57 she might have. So I'm actually asking on behalf of my friend. She says, please ask them the spellers what advice they have for parents slash families of younger children just starting out on this journey of spelling. How much should we push our kids when they are learning? How do we know when his body just isn't cooperating and when he truly wants a break. Okay, so yeah, why do we sort of whoever's ready? I think practice every day and watch for his eyes getting fatigued. So watch for his eyes getting fatigue. Practice every day, but watch for his eyes getting fatigue.
Starting point is 01:31:12 Yeah, and if whoever's talking, just, you know, the, yeah, go ahead. Day for short sessions, he will surprise you. Can we play that one more time? I think we're just getting the microphone working. Okay. I think is it working now? That's better. Yeah, let's try that again.
Starting point is 01:31:34 Each day for short sessions, he will surprise you. Okay. So soak up, your son is soaking up the information in short sentences, but just he will surprise you. So she said, your son is strong. You should expect him to soak up information and spell each day for short sessions. He will surprise you. Okay. Great.
Starting point is 01:32:03 Thank you. Evan spelled, every time you spell with him, you should treat it like life-saving medicine. Oh, wow. Yeah, go ahead. You repeat it too, just so we get it on all versions. He said, go as long as you can and build endurance based on his energy. Okay. They should always read to them, no matter if it seems as if they are not listening.
Starting point is 01:32:41 Listening looks different on autistic. Okay. And Aiden, we got Aidan down here. Here. Aiden said, yes, sensory system is kicking autistics, but be patient. All right. Sensory system is kicking autistics but, but be patient. Okay.
Starting point is 01:33:05 From online, one of the questions is, what do you want to say to special education teachers that are watching this that are just hearing about S2C for the first time? Aiden, ready? Okay. To use it, please. Okay, to the special educators that are watching this for the first time, use it, please. And Elizabeth? Elizabeth typed, please have an open mind.
Starting point is 01:34:38 We need different tools for each student. This works for non-speakers. Great. Yes, Cade. Presume competence always and know that our bodies don't always listen to us. All right. Okay, presume competence. and know our bodies are not always listening to us.
Starting point is 01:35:38 Try a board, please. Okay. Vincent? Competence always. Okay, that seems to be the running theme, is to believe in the competence. Evan? Been wrong.
Starting point is 01:36:07 Don't be stubborn, admit you've been wrong from Evan. All right. This is another question online, and then if there's someone in the audience, let's make sure. get a microphone oh Maddie I'm sorry go ahead yes teachers can begin teachers can begin by assuming competence and talk to the students at their age level don't be afraid to teach hard things at their peers level wow okay all right I thought
Starting point is 01:36:40 this was an interesting question what was what was the one thing you wanted to say or was there one thing that you wanted to say the most when you you were going to communicate for the first time. So I know there's a lot of work, but was there a thought or an idea that you were really looking forward to expressing? Okay, Cade. Ewee.
Starting point is 01:38:21 I wanted to tell my mom how much I loved it and how I knew how difficult it was. All right, did we hear that? I think maybe pick up the microphone and read it. Yeah. I wanted to tell. Yeah, I think, there you go. I wanted to tell my mom how much I loved her and how I knew how difficult it was.
Starting point is 01:38:50 Wow. I wanted to tell my mom how much I loved her and I knew how difficult it was. Okay, who else is Elizabeth? Agony. I was five years old. Life without communication was agony. One of our first words was agony. Okay?
Starting point is 01:39:14 Yeah. That our brains and bodies don't cooperate and we are intelligent. That's the first thing you wanted to get across was your brains and bodies. Say that one more time. Don't cooperate. You're intelligent. Vincent, I really wanted to tell my family how much they meant to me. That's incredible.
Starting point is 01:40:24 By the way, I can't imagine typing or spelling myself with cameras and people watching. I sit with my own tweets like, oh, I'm not sure that I'm spelling that right. Yeah, Aiden. mom to know I love her and I see how hard she works. I want to know. Tell my mom I loved her and how hard she works. Yes. Yeah.
Starting point is 01:40:53 I'm sure that's a huge part of it. Let me, Dan, let me ask you a question because obviously making this movie, I think, is very important and getting the word out. And the part of this film and this story that is so shocking is as we're sitting here, watching this happened right before our eyes, there's a real pushback, a real push to try and just squash this from working, squash it from being believed. And so as you made the film, you know, how much was that a part of the reasoning and what is your hope that this film can do?
Starting point is 01:41:37 take this. I think that the mission of the movie is to be able to get this spelling and as a form of communication to all non-speakers everywhere. And so I think that for, and I'm not going to speak for any of these spellers, but that they were driven by that. And I think it's important, like we talked about schools and having access to communication in schools. And so I think that that was a driving force because all of them know they have peers that do have the cognitive ability, but don't have a way to demonstrate that. So I think that for Spellers as a film, that is what we want, is the awareness to get out, that even though their bodies are doing something, it's not representative of what their brains are able to do. So is this, oh there we go. Do we have any question from the audience? Thanks.
Starting point is 01:42:54 As a practitioner, I know some of my patients who have become spellers will tell me that they taught themselves how to read and write, well, not right, but how to read at an early age. And I guess in retrospect, I want to know from all of you, at what age should I as a practitioner be sort of pushing this as, as a therapy. I mean, is six too young, is eight too young? At what age in retrospect do you think you could have mastered all these skills? Elizabeth. Elizabeth typed, I started at five and could have done it earlier. Wow. For Vincent? Can start by age four. Start by age four. Wow. For Maddie? Evan said my story is riddled with GI issues. So I started after that was healed, which I could tell you was 12. 12.
Starting point is 01:45:02 But I was looking into it at seven. He was just too ill to do it that young. Interesting. Aidan said I could read when I was three. Three. Can I ask, I mean, I know we're waiting on Cade to, along with that question, and Cade, you'll be there in a moment. But how?
Starting point is 01:45:38 How did, I mean, I just want to know how you learn to read. Is it watching television? Was it newspapers or how? Yeah, Kate. You learned to read it four. Cade's computer is not capable of handling the massive genius who tried to get across. That's got stopped hurting that I was in too much pain,
Starting point is 01:46:05 so it depends on health. Then he said I could read it for. So same thing is when his gut stopped hurting, but he could read it four. But how? So what did Elizabeth say? Elizabeth typed the CNN ticker. Wow.
Starting point is 01:46:24 So News has some value or what we call news. One of her first questions to me was, who is Hamas? Oh, wow. Wow. Okay, Cade, decoded it by watching Fox News. Well, we are finding some value then. in Legacy News. Maddie?
Starting point is 01:47:12 Okay, she said, I learned to read when each of my teachers taught me, but they kept teaching the same thing. Oh, so they didn't get that you learned it. Elizabeth just also typed. Also, mom read to me constantly. Okay, yeah.
Starting point is 01:47:56 Vincent? Everything I saw. Oh, wow. That's amazing. So Vincent had a photographic memory, caught everything he saw. Evan's going to keep his secret. He's not going to tell us. All right.
Starting point is 01:48:22 Very good. Madison wanted me to tell you that she said, tell them I'm tired. Okay. Yes, this is getting long. Understood. Okay, Aidan. Aidan said, to read was incidental through listening. My mind picked up on it.
Starting point is 01:49:23 Okay. Very interesting. I'd like to know, you know, what was the biggest change in your mind once you're able to communicate in your family, with your siblings, with your parents? What was the biggest difference? All right, Cade. Love to everyone, including my grandparents. So Cade could tell much of his love to everybody, including his grandparents. So being able to express your love.
Starting point is 01:51:29 Elizabeth typed, I could participate in family decisions, like where we went on vacation, and what I hope for my future. Wow. That's amazing if you think about it, because my children have been trying to demand, you know, that there'd be a part of the conversation since there were three. So I can imagine it's very frustrating to not be a part of that conversation. Aidan. He says, to tell people I love them. Vincent? So it was the first part I heard the big decision on life? My opinion mattered. And now I could make my own decisions.
Starting point is 01:52:19 Your opinion mattered. And now I can make decisions. And Maddie? I became more involved with doing things with my sisters. Like sometimes we play games together, sometimes we go to concerts and travel. Wow, that's great. Do we have a question in the audience? I was really moved and I just wanted to ask you all. you're very deep as well as so intellectual what are your feelings or do you have any hunches as to what's causing the autism epidemic just for the television audience out there I wanted to share that we are having some we planned everything except all these laptops are sending out a lot of Wi-Fi signal which is why these
Starting point is 01:54:10 microphones are kind of in and out so we hadn't prepared for that Elizabeth. Elizabeth typed, we are the canaries in the coal mine. Our immune systems are more sensitive to toxins. And Cade. For me, I had a seizure after my 15-month vaccines, not sure all our vaccine injured, but he had a seizure after his 15-month vaccines, but he's not sure all our vaccine injuries. Is that essentially it?
Starting point is 01:55:14 Maddie? I'm really not sure. I'm really not sure, but we need to help them all learn to communicate. Everyone can do it. That's great. Yeah. Aidan said, I think it's the environment. Okay.
Starting point is 01:55:41 Aidan says he thinks it's the environment. Vincent. So for me it was vaccines. So environmental, basically saying that environment is a huge factor. Toxins seems to be the theme. and for some that would be vaccines or for you, Vincent. Okay. And Maddie?
Starting point is 01:56:17 I thought this is kind of important. As you've seen her kind of get dysregulated, she just typed for me, you are talking to me. You are helping me stay regulated. So that regulation part is super important. Right. It's a huge part of this. I want to ask a question.
Starting point is 01:56:34 And I want to, you're all being so amazing. And, you know, I think we could sit here and ask a lot of questions for a very long time. because trying to understand, I think the one thing that we all imagine when we watch Spellers is trying to imagine feeling trapped inside of a body with a complete capability to communicate and not being understood, having people around us talking to us as though, you know, we were small children when we have a fully adult mind and ability. I can't even imagine how terrifying it must have been to think that no one would ever discover this or get to you or get you out of this prison. And so when you think about all of those that are in that position around the world, all of these children and adults that don't know about S2C or have a school that isn't even allowing.
Starting point is 01:57:40 that to get to the school, what is it you feel for them? And what do you know, what message if you could get to them, what would that message be? All right, Elizabeth. Elizabeth typed, help is on the way. Communication for all will be a reality. The blind have braille and the deaf sign language. All non-speakers will spell.
Starting point is 01:59:57 and type. All right. I feel the same way. Optimism is, we are going to get there, and certainly the work here at the high wire will make sure we get this far and wide across the world. Cade. Try not to give up on your advocates. They believe in you and will find a method that will work for you even if it takes longer than you want it to take. All right. Your advocates aren't going to give up on you. Vincent? I would tell them to hold on to hope they will. will break free. All right. Maddie? That friends tell friends about spellers so everyone can learn it.
Starting point is 02:01:20 We need some help to move forward with an incredible opportunity for all non-speakers. Wow. Eden. Aidan said, you're in my prayers. I want you to have hope. Okay. Did everyone get to answer that wanted to answer? I want to, let's give a round of applause to our spellers. And I just, and I just, Dana, for all the filmmakers that stand with you and are out there and made this happen, please send our regards. What an incredible film. It's so important, and it's truly, it's a revolution. Yeah. Everyone go to Spellers.com if you want to share the film and share with families out there. you know, we live in this crazy world where you would imagine a story like this should be on CNN,
Starting point is 02:02:28 on MSNBC, on Fox, the exploration of it, the idea that communication is possible. We watch movies like Awakening's as though it's this sort of mythical event that happens to a couple of people, yet a moment where a revolution should be spreading like wildfire. It's being stopped by moneyed interests and people that are. afraid of losing you know a grasp on what they understood and of course I think for many parents out there it's scary to allow yourself to to believe one more time and try something one more time but for everyone that's witnessed this on this show and and watch this today please share this with everyone you
Starting point is 02:03:10 know and with the rates of autism where we are now seeing that they are at with the CDC saying one in 36 you do know a family that needs this information And I also want to say this will be on our website on the high wire so you can share this event along with this Q&A afterwards for all the way until Monday. We'll keep it up so that you can share it with everyone you know. But when the media has let us down, when censorship and money and interest are controlling our world, we the people are the network for the future. And these spellers are trying to speak to millions of spellers. around the world, let's help them do that.
Starting point is 02:03:53 Thank you for being a part of this incredible event. Thank you one more time to Spellers. Yeah.

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