Tony Mantor: Why Not Me ? - Belqui Ortez Millili: An Autism Mom's Strength and Journey to Advocacy
Episode Date: April 6, 2026Belqui Ortiz Millili on Parenting a Nonverbal Autistic Teen, Advocacy, and Building Support Host Tony Mantor welcomes Belqui Ortiz Millili to Why Not Me: Embracing Autism and Mental Health Worldwide. ...She shares that she is the mother of a nearly 17-year-old nonverbal autistic son with high support needs, born extremely premature at six months gestation, and describes early concerns when milestones lagged compared to her older child. She recounts pushing for answers despite being told delays were due to prematurity or gender, and discusses common public misunderstandings about autism, including lack of awareness of the spectrum and confusion over changing diagnostic labels and levels. She explains how her son’s diagnosis led her into advocacy, including earning a life coaching certification to support newly diagnosed families, initially offering help for free after seeing the financial burden of therapies not fully covered by insurance. She talks about burnout, the impact autism-related stress can have on marriage, and how she and her husband navigate different parenting approaches while prioritizing their son’s happiness. The conversation covers isolation experienced by families of nonverbal autistic children, shifting support networks as children age, and her current challenges planning for adulthood, conservatorship, and lifelong caregiving responsibilities. She emphasizes the need for broader education and inclusion starting in early school years, more opportunities and job pathways for autistic people, and practical guidance for parents on accessing state and insurance services—citing Arizona’s DDD supports, long-term care, therapy coverage, and respite/habilitation hours. Belqui closes by encouraging parents to build a village, protect their relationships, and reclaim parts of their own lives beyond autism while continuing to support their child. Welcome to ‘Why Not Me’ — Autism & Mental Health Stories That Connect Us Meet Host Tony Mantor + Today’s Guest: Blquuii Ortiz Millili Belqui’s Autism Journey Begins: Her Nonverbal Son & High Support Needs Early Signs, Premature Birth, and Fighting to Be Heard by Doctors What People Get Wrong About Autism: The Spectrum, Stereotypes, and ‘Levels’ From Parenting to Advocacy: Becoming an Autism Support Coach Burnout Is Real: Resilience, Support Systems, and Surviving the Hard Days Marriage Under Pressure: Different Parenting Styles & Keeping the Family Together Identity and Strength: How Autism Changed How She Sees Herself Nonverbal Autism Realities: Communication, Safety, and Feeling ‘Trapped’ at Home The Hardest Season: Teen Years, Adulthood Planning, and Conservatorship Support, Community, and Friendships: What Helps (and What Falls Away) Over Time The Next 5–10 Years: Awareness in Schools and Real Opportunities for Autistic Adults Newly Diagnosed? First Steps, State Services, and How to Avoid Overwhelm Taking Care of Yourself Too: Building a Village and Reclaiming Your Life Final Thanks + How to Share the Show and Get Involved INTRO/OUTRO: T. Wild Mantor Music BMI The content on Why Not Me: Embracing Autism amd Mental Health Worldwide, including discussions on mental health, autism, and related topics, is provided for informational and entertainment purposes only. The views and opinions expressed by guests are their own and do not reflect those of the podcast, its hosts, or affiliates.Why Not Me is not a medical or mental health professional and does not endorse or verify the accuracy, efficacy, safety of any treatments, programs, or advice discussed.Listeners should consult qualified healthcare professionals, such as licensed therapists, psychologists, or physicians, before making decisions about mental health or autism- related care.Reliance on this podcast's contents is at the listener's own risk. Why Not Me is not liable for any outcomes, financial or otherwise, resulting from actions taken based on the information provided. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
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Welcome to Why Not Me, embracing autism and mental health worldwide, hosted by Tony Mantor.
Broadcasting from the heart of Music City, USA, Nashville, Tennessee.
Join us as our guests share their raw, howful stories.
Some will spark laughter, others will move you to tears.
These real-life journeys inspire, connect, and remind you that your
never alone. We're igniting a global movement to empower everyone to make a lasting difference
by fostering deep awareness, unwavering acceptance, and profound understanding of autism and
mental health. Tune in, be inspired, and join us in transforming the world one story at a time.
Hi, I'm Tony Mantor. Welcome to Why Not Me, embracing autism and mental health worldwide.
If these conversations resonate with you, I invite you to tap Balo.
It helps us to reach more people who may need to hear them.
Thanks for being here.
Joining us today is Belke-Ortiz Malilli.
She is a voice of strength, resilience, and hope for families navigating their journey of autism.
She has dedicated her life to empowering others through education, compassion, and real conversation.
Through her work, she helps families move from isolation,
to understanding and from overwhelmed to purpose.
She has a great story.
So before we dive into our episode,
we'll be right back with an uninterrupted show
right after a word from our sponsors.
Thanks for coming on.
No, thank you for having me.
Oh, it's my pleasure.
If you would, could you tell us
what first connected you to autism?
Well, I am an autism mom.
So I have almost 17-year-old.
He'll be 17 now in March.
A son who is non-verbal autistic.
He obviously has very high needs.
I mean, we haven't had him, you know, tested again.
But last we tested him, he was like maybe 12 or so.
And he was more like a three to four year olds maybe when it came to his abilities.
You know, what we could, I would say, test and see.
So we haven't done that again.
I think he is all over the place.
I don't think it's just one age range that he's in.
I think there are certain things.
I think he processes at an older level.
So that's why I'm like.
No more of those.
Sure.
Can you take us back to the moment you first realized something wasn't quite right with your son?
Can you take us to that moment when it became clear that you had to take action?
Well, I have another son who is a year and three months older than him.
It's a very long story, the way that everything went down with us and our kids.
But my son who is on the spectrum and nonverbal, he was one of multiple babies that I was carrying.
So he and one of the big.
babies that were born, were born at six months gestation. So they came super, super early. And my daughter,
unfortunately, didn't, you know, make it past five days. And then he did. They both got a very
interesting thing, but they both got brainbleeds in the NICU on the same exact day, right around
the same time, even though they were in different isolates. Very, very strange, but they did. And then
she ended up passing from hers, and he, I think she had a grade four, and he had a grade two.
So we already knew that we would probably encounter some issues, you know, with him.
But when he was, he was developing quite well. He was in the NICU for over three months.
But then once he came home, you know, we had just the issues with digestion and tummy aches.
And so we had a lot of those issues that we had to deal with with him.
But he seemed to be progressing around the birth, not the birth age, but what his birth should have been when he was about six months or so.
But then when he was reaching, like, let's say, he was like nine months.
And I remember my other son was reaching milestones about six months that he hadn't reached
at nine.
So then I immediately was like, okay, well, Evan was doing this.
Connor's not doing this.
I just started really, just really holding into the things that was noticing were not happening
at the time, the when it should be done.
And I'm one of those people who I like to research everything.
So before I even became a mom, because I had.
I had to do IVF and all those things to become a mom.
I was very educated and I bought books about all sorts of things that you could possibly
imagine.
And one of them was about autism and learning the signs of autism and other, what would you say
developmental issues that your children can have.
So that actually helped me also because I didn't see those with my first.
I started to see those with my second.
So then right away, I started asking questions to the pediatrician and say, I don't see this.
I don't see that happening.
And of course, they're saying, oh, well, he was premature.
Oh, he's a boy.
You know, all the same kind of things that you hear a lot of people say.
So, yes.
It was like a little bit of a battle because nutrition's look at you like you're crazy
because you want to give you some sort of diagnoses.
And I'm like, I know that something's not right.
So, yeah, so it took a while for me to get the help I think he needed.
What do you think most people misunderstand about autism?
Your son's going to be, what, seven?
or 18?
He's going to be 17 now.
Okay, 17.
Yeah.
Okay, so you've gone through 17 years of autism.
Mm-hmm.
What are some of the things that you think people just don't get?
They don't get that there is a spectrum.
Even though you hear about the autism spectrum,
I feel like people don't understand the spectrum.
Like, every time I say I have a stun on the autism spectrum,
they always think he can speak.
They always think he has a gift.
They always think of rain man.
It's just, it's a.
constant, like, I don't understand how people are not more educated about autism. You know, I lived in New Jersey, now we're in Arizona. I'm a New Yorker, but I felt that on the East Coast, there was a little bit more of an education around autism when I would have conversations, especially the last, you know, like maybe when he was like five or six, I felt like people were a little bit more educated. But then I move over to the West Coast and let's say this state. And not that people here are ignorant, but it's
any means, I just feel that there is less of an awareness of what the spectrum is actually about.
And of course, because they continually change how we diagnose what we name these diagnoses from,
you know, oh, Asperger's. Now Asperger's doesn't exist. Blah, blah, blah. Now it's one, two,
three. What level are they? And then people are completely confused about these levels and what they
mean. I feel like, you know, my son is a level one. And my 18 year old is actually a level three,
which is something I don't really speak about because he is higher functioning and he has been
usually very private about this and we've come to a place where he's more open about it.
I don't think they should be anywhere in the, even though I know there's a one and three,
not one to three, I still feel like they shouldn't be in the same categories.
They shouldn't be.
I just feel like there should be some other metrics for someone as high functioning as my other
son who will get married, have kids, drives, all those things.
In your bio, you describe yourself as an autistic mother and advocate.
When did that shift happen?
When did you realize that parenting alone wasn't enough and you had to move into advocacy?
Well, for me, it was, I would say he was about maybe three.
My youngest was about three.
My other son didn't get diagnosed until he was, I think he was in sixth grade or so.
So he was a little older.
But my youngest, I felt that I handled,
And I don't know if it was because I kept fighting so hard to be heard and to be, you know,
listened to about what I was, you know, seeing within him that once I got the diagnosis,
I was lividly excited.
Like I was like so happy, which is not the normal reaction.
I was like, yes, yes.
Now I can get help.
You know, I can get to call people.
Now I can get, you know, help from, let's say, the insurance company and this, you know,
all that.
So I immediately just got to work and kind of didn't process the.
the actual diagnoses 100%. It was more like, I need to get him to help right now and I just kind of went right into it. And I think that, not that we all moms will react the same way, but I felt like I just wanted to help other moms kind of, you know, get this news and say, okay, let me empower them to say, you know, this is not the end of the world. It's still the same child that you walked into this doctor's appointment before they told you 100%. Same child. Same child. Same. Same.
struggles, same virtues, same everything. Now you just know more about them and now you know how to
help them further, better. And a lot of the time, if you catch this early on, you are able to help
your child even more so than if you would have waited years, if you would have just stayed,
you know. So I decided I wanted to not just help other moms, but get a life coaching certification.
So I went and got certified and I did it with like a school that it took me eight months to get
through it so I was not like I wasn't going for a quick easy thing I was like I wanted to make sure I got like
something that was legit and I could really help mom so that I became what we would call an autism support
coach and I realized though once I started that we are spending a lot of money on things that are
not covered for our kids right so we would have speech PT OT like there was so many different
therapies and then a lot of the time insurance wouldn't cover everything so then we would
have to cover part of it or if your state had BDD or something that would help you towards the
cost almost never covered everything. So I was like, okay, these parents can't afford me. So then I was
like, you know what, I'm going to do it at no cost. And then I just started doing it at no cost and
just talking to parents and, you know, and that's what I did for probably a couple of years.
But then I got burnt out. I got totally burnt out. I can totally understand that. That was actually
my next question.
How did you handle that?
Every mother I have spoken with
gets burnt out about autism
in some form or some way.
So how did you navigate
through that burnout?
So you could not only be in support of your son,
but also support yourself
and all the others that you were trying to help.
I honestly can't tell you.
I think we are all,
I think our own biological makeup
sometimes makes us a little bit more resilient
than other people. So I feel because I was a daughter of immigrants, I was someone who had to work from when I was very, very young. I knew what it was like to not be able to go away to college, to have to work through high school, have to work through college, you know, in the city, in New York, you know, pounding that pavement. You know, I feel like I was just used to very hard work and very difficult life situations, right? So this was just one more life situation that was going to be difficult. So I just handled it.
the best that I could. I feel that I had a good network of support around me. My husband had a good job. So I was
able to stay home and do whatever I needed to do for my son. So I think that was obviously very,
very helpful. But there was a lot of things that were really hard to handle, like, you know, smearing,
like, you know, coop smearing, things like that when he was like little and, you know, they get out of
their clothes and you have to find ways to put them in these outfits, but then they find ways out of that.
So there was a lot of different things. But for some reason,
I would cry and then I would just be like, okay, you cried, you got it out of your sister-in-law,
let's go do what you got to do. And it was cleaning up, whatever I had to do. I just got it done.
And that was that. I don't know if that's even the greatest answer, but that's really how I dealt with it.
You know, I just didn't, I wasn't so all me the whole time.
Sure, that makes sense. Now, I'm glad you brought up your husband.
Within autistic families, there's about an 80 to 90% divorce rate because of
the struggles they go through? Did it affect your family? And if it did, how did you get through it?
A lot. A lot. And until this day, it does. We have completely different ideas of how to correct
certain behaviors. I'm a lot more easygoing, a lot more, oh, oh, you know, I don't know if it's because
I'm a mom, but I'm just that way. And then my husband is a lot more like, you know, oh, he eats
chocolate chip cookies and throws half a little chocolate chips on the floor. Now let's get this little
trash can and he has to put the in the trash stick and things like that where I'm more like,
okay, I'll just take a broom and sweep it because I'm like, you know, I guess I'm dealing with a lot
more things so I'm more tired and I don't want to deal with a lot of other things. So he's more willing
to deal with those as I am just more like, I got to pick my battles. And that's how we kind of work
as a marriage. And also I think it's a lot of talking, you know, it's a lot of talking and
understanding each other and why we feel the way that we feel. And in my case, it's like my thinking
is these are the best years of his life. This is it. I am going to pass away. My husband's going to
pass away. Hopefully our other son can help out with him. But these are the best years. And this is
when I can make sure he is that happiest he can ever be. And that is what I focus on every single day.
It's his happiness. That's really good. That's a great way to look at it. What strengths do you see in
your family, where you have to deal with autism and everything that entails, what do you see for
strengths in your family that other people just may not understand? Well, what we have in strength is that we
honestly are in the way that we, I guess in the way we communicate, I think we have to be more
open about things because like we are not open and communicate about everything than we have nothing.
Basically is what it is. What I can tell you is that a lot of
of our friends who have kids that are typical, they don't always see the blessing that they have.
They don't always see how they have all of these options that we don't have. And that's what
drives me a little bit crazy sometimes because I'm like, God, like you don't be. Like, you can
actually sit your child down in like a rational conversation with them and you choose not to
sometimes or you tell me and then, you know, so that's what I see. I actually see more of how other
people don't appreciate what they have, honestly. Now we talk about autistic parents. We talk about
autistic kids, their identities they have. How has this changed the way you look at yourself as an
autistic mother who is doing what she needs for her autistic son? Well, I see myself as way stronger
than I ever thought I was. I think that's actually the one thing that I have gained from being an autism mom
is if you would have told me all my life I was gone ho that I was not having children like that was my thing.
No kids. I'm never having kids. Like I'm going to like travel the world and that's going to be my life.
And you know, maybe I wouldn't even ever get married. But I'm definitely not having kids. Like that's who I was.
More focused on my career and all those kinds of things. And then when I decided to become a mom, I became a mom at 33.
So a little later, you know, for my age, I'm 51 now. I became a mom later. I think it just like if you would have told me then,
that this would be my life, I would have said, I could never do this. I could never. No freaking
way. But for some reason, you get the strength and you do it. It doesn't make it easy, obviously,
even if you have that mentality. But the mentality that I did go into as a woman in her mid-30s
trying to have children and also being told I cannot have any easily, right, that having to do fertility
treatments was I'm going to accept whatever I'm being given as a mom. And my first born, because I,
you know, I was 33, they were like, oh, you know, you have a high chance of having a child
Down syndrome, all these different things. Then they wanted to do the adenosis and all this stuff. And I'm like,
nope, you know, it was hard enough to get pregnant. It took me three years. I'm like, I am not letting you do an
amniol. And they were like, but you know, if the baby had, and I'm like, nope, I'm not, I'm not doing it.
I'll take whatever comes to me. That's what it is. And I think that.
is a resolve that I know that I had then at that moment of wanting to become a mom.
Sure, sure.
Now, when people, your friends, your family, the ones you help with your advocacy,
10, 15, 20 years from now, when they look back at the work you've done for the autistic community,
what do you hope they say changed because you showed up?
Well, I hope it's more just awareness, just education surrounding what it is like, especially when it comes to nonverbal children.
Because I think that's absolutely the hardest part of autism is when you have an autistic child who is nonverbal and one that cannot take care of themselves.
So it's not just that they're nonverbal because we know that there's many nonverbal individuals that can't type and all these things.
And we're still, we haven't decided he can't type yet.
We're still in that process of where he's learning letters, all this stuff.
Let's go see if he can communicate through a device.
So we're still in a place where we're not saying he can't do this or that.
I'm hoping that what people that meet me walk away with is you just never give up,
but you're also realistic.
And you're also are given a situation and you find the best opportunities within that
situation for yourself and for your child and your family.
I just had a mother of a nonverbal autistic daughter on an episode just a couple of days ago.
She said, imagine putting a piece of tape on your mouth and trying to communicate what it is that you want.
It's very obvious a lot of people do not understand what a mother of a nonverbal autistic child has to go through.
Yeah. And what that does to a lot of us is it becomes like a prison because you're a prisoner in your home,
even though people say, oh, you know, I'll watch him.
You're like, oh, no, no, no, you don't understand.
Like, there's like all these different things.
It's like he can't communicate 100%.
You're going to be confused.
Even if, you know, my son can communicate through his iPad with the Prolocal to Go app.
But he doesn't, because we know him so well.
Like, sometimes he doesn't even have to say anything.
Like we have like almost like a psychic connection to him.
Well, we kind of know what he's looking for or what he wants or by the time.
we kind of know and we are almost always right, you know. So that's what I think a lot of people
don't understand. It's like when you have someone like that, it's not as easy as, oh, just leave them
with me for a couple hours. There's so much that may happen in those couple of hours that you
have to know how to handle and how to deal with. There's a saying that people have different
seasons throughout their lifetime. What has been one of your more difficult seasons in your journey?
then what helped you get through it?
To be honest with you, I think this is the most difficult season.
Even though when you was younger, there was a lot of uncertainty because you don't know what's happening.
They keep saying they can talk by the stage.
They can do this by the stage.
You know, and you have all these hopes and dreams and whatever.
I think now as they get older is when you're becoming more of like a sober, like you're looking at this more in a sober way.
Like this is it.
Like this is kind of it.
So then you know that there's not a whole bunch more that can possibly change.
So I would say this is the most impactful time because this is the time when he's going to be 17 years old.
He's almost an adult.
Now I have to start thinking about conservatanship, all these things.
Like it basically confirms that, okay, now for the rest of your life, this is your responsibility.
You're not going to have, you know, the NGNS syndrome.
Like this is this is this.
So now you have to make sure that every other plan involves this individual always and forever.
Yeah, that's a very hard reality.
But it is one that we all have to look at.
Exactly.
So looking back, what kind of support you wish you had early in your journey to help guide you, get more information
so that you knew exactly or close to what you might be looking for in the future?
So I happened to be one of those people, like I told you earlier, that I researched everything before.
So I honestly had a lot more of a doom and gloom vision of everything at the very beginning.
And I was someone who asked for a lot of advice.
I did mom's groups.
I did it all.
I was involved in autism awareness campaigns.
I volunteered for autism research.
I worked with the organization of autism.
and research just to just to be part of a community raising funds for research.
Like I was really in the nitty gritty of everything while he was also going through the nitty
gritty of growing up and learning to go to the bathroom and all those things.
So I honestly feel that I surrounded myself with a lot of people that had kids in all
parts of the spectrum.
So that was very, very helpful for me.
What I have noticed is that as they get older, those groups kind of fall apart.
And that's what I have noticed because the kids kind of end, not end, but they get to a certain
point where there's not that much developing.
They kind of have their personality now.
So I think parents rely less on other parents of kids on the spectrum.
So now I find it to be like if I have my friends that I still have, our kids are older.
So now it's a lot less about autism.
It's more about what we're doing for ourselves.
You mentioned friends.
This kind of popped in my mind.
So many people that I've spoken with over the last couple of years, they've had friends they would do things with.
They all had kids.
One had an autistic kid.
That changed everything.
There was a disconnect.
The neurotypical family did not fully understand the neurodivergent family.
Did that happen to you?
Yes.
And the reasoning behind that is because you can't just go on a play date.
You know, your child can't sit and play with them.
like they can play beside them, right, side by side, but they can't play with them.
So that obviously makes that other parent feel like, well, I need to hang out with parents
that have kids that can play with my kids.
And then we can talk and hang out with each other.
So you tend to hang out.
I didn't do even many play dates with the parents and the kids that had autism because the
kids were never playing together.
They were just in the same room and we were all together chatting.
But the kids were out doing their old thing.
Wherever we were, they were kind of just doing their own thing.
And some of them would have.
have a little bit of an interaction here and there.
But we realized that it was better for us to meet separately on our own.
The kids with our husbands, the kids were getting their time at school.
You know, Connor started obviously with even before three years old.
He started like at a daycare for special needs children that he would go in for several hours.
And then I would have his therapy's take place there and then also at home.
But he would be able to be around other kids there and then come home, do more therapy at home.
And then at three, he went into like a more of a typical school that had an autism program
until we moved into an autism school.
So in reality, having the parents that we had, the typical kids, like that kind of fell off.
And then it became more about parents that you could understand each other and that you were of
support to each other.
Where do you feel the conversation needs to go about autism over the next five to 10 years?
I feel that's a tough question because I feel that the conversation,
needs to be a lot more awareness when it comes starting literally at the level of kindergarten.
And that's one of the reasons why I love the organization for autism research is because they have
booklets. They have invested a lot in educating not just children in schools. And they have age
ranges for each one of their educational packets. They also do siblings. They also help with
work, helping the adult population find work. I think that is what
we need more complete awareness what kind of jobs can our kids do even if they're non-verbal
maybe they like to stuff envelopes who the heck no there's so many things that they can do it's really
starting from the very bottom so that when your child let's say you want to have a kid that's in an all-inclusive
environment right that maybe the kids who are typical don't look at them in a weird way because maybe my son can't
speak but my son can absolutely take in the energy of other people so when your kids are looking at them or treating
them a certain way or whatever, like they have to feel that energy. So I feel like it's really
all still about awareness and then as they get older opportunities to be able to do things
outside of school that help them learn some skills, not just in school, but outside of school
that prepare them for a little later in life. Even if it's menial tasks, even if it's a small
thing, it makes them so happy if it's something they enjoy. For first time listeners that are just
starting to find out about autism? What do you think is one of the more important things they learn?
As you know, when they first find out their child is autistic, it is overwhelming. They don't know what to do.
So many people telling them what they need to do. What do you think is the most important thing they find
out so they can take that path, learn what they need to do to make their journey a little easier
to move forward in helping their child.
So that is actually a lot of what I did when I did my coaching was literally coach moms whose kids were just diagnosed,
how to navigate the journey of I just got this diagnosis for my son.
What do I do?
I am completely overwhelmed.
So then what I would do is tell them, okay, the first step is they're going to tell you,
they're going to give you the whole diagnoses and obviously the report they're going to tell you what therapies they need.
Now, let's see what are the availability of services in your state that start there.
Because even though you think I have insurance, there are states that can actually pay 100% of your
child.
You know, we're in Arizona right now, which I did not know because we were living on the East
Coast when he got diagnosed.
For example, here in Arizona, the DDD, once you go into the DDD and you apply, once you get
the diagnoses, you apply, you have your diagnoses, then they accept you in.
then you go in and you fill out for long-term care, especially if they're non-verbal still.
And long-term care is part of the DDD. So there they'll give you the services for speech, for PTO,
all of those things, right? Everything. And then once they approve those, you get all of those services at no cost to you.
They give you a certain amount of hours, all of that. Not only do they do that, but they also give you a certain amount of hours,
depending on your child's diagnosis level of respite and habilitation hours.
So you get monthly, you get yearly respite hours.
You get weekly half hours.
So that is somebody coming into your house, helping you, like let's say 15 hours a week,
helping you with teaching them how to use the bathroom,
how to wipe, how to rest your teeth, how to comb their hair,
all of these different things.
But a lot of people don't know that these services are available to them.
So it's basically look into what's available for you.
I have never had to touch insurance.
We have insurance through DDD here in Arizona.
So he doesn't have an insurance like my husband and I and my other son have.
It's DDD, 100% covered like every single thing.
So that's the first step.
Find out what your state can offer you.
Then if you can't get everything covered, then go to your insurance, see what's covered,
what's not covered, what can afford.
It's a long list of things.
But if you have someone helping you navigate that list, you know, saying,
okay, let's tackle this list in the next two days.
Like everything, take your time and don't overwhelm yourself.
You can't do it all in a week.
It's going to take time.
Appointments are going to take time.
Don't think that this is just happening to you.
It's happening to everybody.
Sometimes appointments take months to be able to get with a specialist after the appointment
and the diagnoses.
So it's more about patients and just educating yourself while you're waiting.
Yeah, good information.
What do you think is important for listeners to hear about where you are in your life right
and what do you want them to understand?
What I'm doing right now at this stage in my life is I'm past the time where it was all about my son.
I'm in a stage of my life now that I am also taking care of myself and my family and all those things that I want to do.
So work towards the point where you feel comfortable enough to pick up all the things that you love to do
that maybe you weren't doing it all the way because you are concentrating on the needs of your child.
build yourself a village of people who will be there for you so that you can go travel and they can
help you with your child or that you can go to dinner with your husband to keep that relationship
strong. So it's really all about to get to the point to where you have a light that is satisfying
to you and it's not all about autism and that your life doesn't have to be about that when you're
out with people, you're not just talking about autism and then people are like, oh my God,
you know, Belke only talks about autism when we're together. You have to know when and where is the right
time and work towards that, that you are independent of that as a human being as a soul. Well, this
has been great. Great conversation. Great information. Thanks for taking the time to join us today.
Thank you so much. I'm hoping I got a lot of points that are useful for people. Absolutely. It's been
great. Thanks again. Thanks for taking time out of your busy schedule to listen to our show today.
We hope you enjoyed it as much as we enjoyed bringing it to you. If you know,
someone who has a story to share, tell them to contact us at why not me.world.
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