Unlocking Us with Brené Brown - Grief, Laughter, and Sisterhood: Losing Our Mom and Holding On to Each Other
Episode Date: October 23, 2024The sisters are back and we're talking about loss, dementia, grief, and how we try to choose laughter and therapy over a fist fight when things get really tough. Learn more about your ad choices. Visi...t podcastchoices.com/adchoices
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Hi everyone, I'm Brene Brown and this is Unlocking Us.
Welcome back to our eight part series that I'm calling On My Heart and Mind.
We started the series with my conversation with Valerie Kor on the power of revolutionary love
and being a sage warrior. I've talked to Dr. Sarah Lewis on her stunning new book,
The Unseen Truth, Roxy and Gay, on her amazing essay on black gun ownership,
to my friend, Dr. Mary Clara Haver, on menopause.
And I just did a two-part special with one of,
I've talked to a lot of historians in this series,
but I love history, so probably always on my heart and mind.
My last two-parter, I guess,
was Dr. Heather Cox Richardson on American democracy.
And today, my sisters.
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We're back.
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Ashley and Barrett and I are going to talk about, it's funny because we teed this up,
we're like, we should do a podcast on like, mom and grief
and love and joy. And then today we were like, shit, I don't want to talk about that to y'all.
We were like, oh, so I think it's going to be about grief and joy and love, but we'll
see where it goes. Welcome to Unlocking Us.
Thanks for having us. We're excited.
Oh, liars.
Where should we jump in?
Like, so for those of you who don't know,
my mom died on Christmas morning this past year,
2023 Christmas morning,
and hard dementia journey.
Ashley and Barrett and I were her primary caregivers,
along with Steve.
I would give a shout out to my husband, Steve, who was really,
when we all had to be like, I can't do it.
I can't do it this week.
I can't do it this week.
And you're like, I can't do it this week either.
Barrett's like, screw y'all, not it.
Then Stevie would be like, I'm in. And a lot of other times too.
So I think we were going to talk about what our experience has been.
So it's been 10 months. Yeah.
It's crazy. Almost to the day.
Oh yeah. Yeah. Where do we, I mean, we're all looking at each other, like don't go there. Oh yeah, yeah.
Where do we, I mean, we're all looking at each other like don't go there.
I think a good place.
Oh God, the therapist is going first.
Go ahead.
Let's just, I'll take a deep breath.
Okay.
I'm already, I'm on my first.
And Brene, why don't you tell the Redbird story?
Cause that's a good place to start.
So there's a TikTok or an Instagram reel
that we love with these two sisters
who are talking about when their mom died and they were, they just start laughing so hard. They're like, we didn't
cancel your insurance. We didn't pay for this. Like we didn't know how it worked. And so
I think we would send that to each other all the time. I guess is it fair to say, we'll
get to the red bird story, but let's back up. Is it fair to say, well, I'll talk about
me first, you know, I'm the number one on the Enneagram. I thought you were just going to say I'm number
one. Well, that too, but. I'm number three. Birth order. We have a brother between us.
But I think for me, there was grief and relief when she died.
Yeah, same.
Yeah, I think that like really ragged, jagged edge grief of losing your mom like a memory at a time
and then watching her body fall apart, that was, that was worse
I think for me.
Yeah, me too.
What do y'all think?
I think it was really, really tough.
I feel like I, I feel like I lost her like four times.
The grieving process was just like, okay, she's sick.
Okay, she has to leave her house.
Okay, we have to pack up her house.
We have to get her house ready.
Okay, this, okay, that.
It just felt like a lot of different steps
and a lot of different processes through it.
So, and towards the end, it was just kind of hard to watch.
Awful. Yeah, and then she got COVID. Yeah, then she got COVID. and it was just kind of hard to watch.
Awful. Yeah, and then she got COVID.
Yeah, then she got COVID.
And had to go to the hospital by herself.
No, I was with her, remember?
I took her to the hospital.
No, we were together and Barrett was there.
We were all there,
but we had to like take turns because of COVID.
Oh yeah, no, I was thinking about
when she got COVID most recently.
And I was there like blowing her nose and helping her shower and stuff.
And then I got COVID.
Yes.
Oh, yeah, that was when she got home from the hospital.
Right.
I also think though, too, it was like,
it was so hard because even just like going to visit,
there would be like moments that
felt so normal, like just for like a minute, like I would tell her something and her immediate
reaction would be the same reaction she had five years before she had to go into memory
care.
And so it was like, maybe it didn't feel the same, but those little beautiful nuggets that just kind of help you move through the journey.
Or like I did really love it.
And I think you started this with her, Brené, like playing all the music from the 50s and
60s and she would just sing and sing.
It was really hard.
And I think those little nuggets of beauty or I don't know what it was. But most of it was hard.
There were a lot of those little small moments though.
I remember when we were there one time I was there with my daughter and we texted you,
Brené, and we were like, tell us some songs to play.
She wants to listen to music.
And so you had sent over like six or seven songs to play from when you were young and
what her and her mom listened to.
And so I would play them and she would just light up
and she'd be like, I just want to cry right now.
This makes me think of Meemaw, which was her mom.
And that music thing was amazing
how she would just go right back.
And it wasn't all music.
Like if you went to like more recent music,
she didn't have the same reaction
as that old school, old country.
Like what were some of the songs that you sent?
Well, this whole thing reminds me of Oliver Sacks,
the neurologist who said music needs no mediation.
It pierces the heart directly.
I think that, you know, it was songs like,
it was everything from, you know, it was songs like it was everything
from, you know, K. Sara, Sara, lots of 50s, the Big Bopper, Chantilly Lace, but also even
going back further to songs that like she and Mima would listen to songs that were from
like the late 40s and early, early 50s even before that. So I think it was so weird as many of you have experienced dementia in people you love.
It's like she couldn't, she may not even remember my name,
but she could tell you what happened in 1975 in our neighborhood.
Yeah. She told a lot of stories about her grandpa's bike shop.
Yeah.
We had so many, like, her entire apartment
was just covered with pictures from her growing up.
And so she would focus in on one and tell a story about it
over and over.
I am not to the place where I have any good memories
of that period of time.
Like, I even drive down that street.
Her apartment?
Yeah.
That's what we like to call it.
We like to call it her apartment,
but it's the independent through assisted
through memory care place.
I don't have like that.
I don't know.
Like this is how we're very different.
Oh yeah.
We've all done that very differently.
You'll be able to tell when we get to the Red Bird story.
Yeah, no, I don't,
I don't know why.
I think, I mean, I have great, I have obviously good memories of mom, but I just, for me,
that was just a hateful, terrible experience.
It totally was.
But I think for me, I spent some time avoiding that place and like just avoiding wanting
to go. And then in some of my own work, when I did start to go back
to see her, I could find like the little magic in each visit. And it's like, I think we talked
about this, like we'd call and we'd be like, we're going to be there in two hours, you know,
get up and get dressed or whatever. And then we'd get there and she'd be like, oh my gosh,
what are you doing here? Surprise.
I don't know, I mean, there was just still, she was still in there sometimes.
And I think that's what made it worth it for me.
I think it's interesting,
because I think it's like we're thinking about
how, who we are, birth order,
and how all of that intersects with that, right?
Yeah.
Yeah, because I think for me, I felt like, I always felt like not there enough, not doing
enough.
Why can't I fix this?
What specialists can I find?
Like, you know, like I felt immense responsibility every day and probably while I was sleeping,
I just felt like this is my job to make this better and I cannot make this better. And
so that was like, it's just, it pushes up against my overactive sense of agency, but
it's also hard because I'm also in charge of a lot of shit. So it's like, it's a surrounding
prayer. Help me accept the things I can't change, the courage to change the things I hard because I'm also in charge of a lot of shit. So it's like, is this running prayer?
Help me accept the things I can't change, the courage to change the things I can. And I've adlibbed the last line to say, give me the space, grace and wisdom of
discernment and choosing because that's my problem. I can't figure out what I can change
and what I can't. So I think for me, especially, and it was just the reality of it.
We can decide whether we're going to leave this in or not, but the reality that no one
talks about, like when I had Ellen, like no one, people would tell some horror stories
about birth which are not helpful and they would tell me romanticize, but they would
never tell me like, that's messy, that shit's messy.
It's like physically messy.
Like people are going to have on galoshes who deliver this baby.
Like it's like physically messy. Like people are going to have uncle Lash's who deliver this baby.
It's like serious.
No one talks about, you know, where mom's stuck in the bathroom and you've literally
got shit all over you and you're trying to get her up and she's humiliated because she
knows enough to be humiliated and you're crying and she's crying and no one talks about that.
And we can't be the only people it happens with.
No, no way.
No.
And so I think that part was just,
the end was hard.
It was hard.
And the middle was hard and the beginning was hard.
I mean, like, I remember getting ready to do a podcast
and I remember, I think I just deleted that screenshot
where she called 14 times in nine minutes asking,
can you do this?
Can you bring me this?
I think I'm going on a road trip or like the police calling because her husband had left
and was lost and on foot.
And then doing that while I've got kids at home.
Oh my gosh.
No one prepares you for that.
No one prepares you for that.
No.
How do you do both?
And like how lucky are we?
There's three of us plus Steve, that's four.
And we still have resources. Yeah, we have resources.
And we were still really hard on ourselves for not being there and not doing more and
not doing like all being there all the time.
And then the struggle of like taking your kids or not taking your kids or missing a
game to go see mom or not going to see mom because you had a game or you know what I
mean?
Like just to sandwich stuff. Yeah... It's a sandwich stuff.
Yeah.
It's a shit sandwich is what kind of sandwich it is.
100% shit sandwich. Yeah. And that's when my daughter was like packing up and heading
to college and I was like, no, it's too much. I'm just going to go ahead and take a break.
Now I think it was hard and I think, I don't know, you just do the best you can, right? I never forced my kids to go.
Because I remember with Memaw, especially at the very end, the last couple of days,
I remember that it took me five years.
And Memaw was my person.
Her name was Ellen.
I named my daughter Ellen.
Like she was my person.
I loved her so much. It took me five years to get that image of her out of my head, of that glassy-eyed looking
through you, like, kind of how mom was when she died.
And when the kids were like, should we go?
I was like, you don't have to.
Yeah.
I think y'all told your kids the same thing, right?
Mm-hmm.
My kids didn't go the last day.
I don't think mine did either.
Mine did.
Yeah.
Yeah.
And I said, you know, Oma loved you like crazy and you loved her and however you can remember
it.
Totally.
Yeah.
Oh, we just saw Barrett grab a tissue.
And we're like, oh no.
Here we go.
She got a ready nose though.
It's just because it's like 67 in here, that's all.
That's because on top of raising our kids, taking care of our mother, and working 60
hours a week, we're all on fucking menopause.
What?
It's a joke.
Because welcome to midlife.
It's a cruel joke.
Yeah, no, it was, it's, yeah, that's how you grab that, it was like, cut, exit.
I know, I know, this all got so that. I was like, cut, exit.
I know, I know, this all got so quiet.
I was like, my nose is ready.
Okay, if you're gonna start crying, yeah.
And I think we're all very different, right?
Would you say?
Yes.
Yeah, totally.
We've handled it from the first day, very different, all of us.
Yeah, I mean, I forgot about the house and all that stuff.
And so my mom went into the hospital in November of 2019
with a blocked intestine that was not supposed
to be a big deal to fix.
And then it was like a 12-hour surgery.
They brought in trauma surgeons.
She was really never the same after that.
And I think she had been hiding some of her dementia
up until that point.
And so she never went home again after that.
No, she didn't.
Yeah, she stayed in the hospital for like nine weeks.
Really long time.
Yeah, and she had to go to tear for rehab
to learn how to walk again and stuff.
And I remember someone there saying something like, it's for every week that you're in the
hospital when you're over 70, it's a month of recovery or something.
But she never recovered.
She went from there to assisted living and she was married.
We'll leave it there.
Yeah, she was married and that was married. We'll leave it there. Yeah, she was married and that was hard. And do you
remember the like the first week we moved her into that apartment, we pull all of our
pictures up and then we remember that giant post-it note that we had. Like it was like
a big poster size. It said number one, this is where you live. Number two, you don't owe
anyone any money. Number three, all of your money is safe because number four, you don't owe anyone any money. Number three, all of your money is safe because number
four, you don't have any. But those are the questions she'd ask every day. Where's my
checkbook? Who's got my checkbook? Who's got my credit card? How am I going to pay for
this? I don't have any money to pay for this. Why am I living in this apartment? And we
just tried to do that big poster and then we'd add things to it. Number five, to her
husband, you cannot leave on foot and take her with you.
She can't do that.
And she's going to get scared and fall.
And then we had to sell the house and I was like, we're selling the house.
We'll have it cleaned out in a week.
And y'all are like, I need more time with it.
I was like, Jesus, that was hard. That was really hard. I think you needed more
time with it, right? I mean, I didn't know what I needed. Yeah. But I know I needed you
to stop telling me what to do. No space, no space or grace.
No we got shit to do.
Yeah.
Well, you got shit to do.
No.
We know because like I'm thinking to myself the liability of having that empty house there,
you know, and then.
I'm still laughing at y'all.
Yeah, what were you doing?
You were somewhere in the middle, I think. You know, and then... I'm still laughing at y'all.
Yeah, what were you doing?
You were somewhere in the middle, I think.
Yeah.
I was like, take it.
We could take more time.
We could do it now.
Just let me know.
What are we going to do?
What are we going to do?
I don't know if I needed more time or what I needed, but I think every layer that was
happening was just very hard.
So it was like, we think we're going to walk in and clean out this house and it's going every layer that was happening was just very hard.
So it was like, we think we're gonna walk in
and clean out this house and it's gonna be hard.
And I think we're ready for it to be hard.
But then I think you forget about
all of the different pieces of who mom is
and in each room, I was finding those different pieces
and I was just like overcome sometimes with, it was a lot.
Yeah.
I think we all had our own moment in that house
at some point during those few weeks.
Yeah.
Oh yeah, I had a total breakdown.
I was just laying on the floor screaming, crying.
I didn't even pack a thing.
Steve just put me back in the car and drove me home.
I was probably throwing shit at you.
I think it's different.
I think, yeah, I just think we just different personalities
and also I think, yeah, I mean, I think you did a better job
than I did feeling your way through it, probably Ashley.
I think, you know.
I'm still feeling it.
Yeah, and I think in all fairness to me,
I'm responsible for a lot more.
I totally agree.
And I am grateful that you put some timelines in place
and thought about those things,
which gave me the freedom to probably feel more.
Yeah, and I think being in charge of the timelines
and those things let me feel less.
That's good too.
And it's not that I don't feel, it's just
that I, it was a very hard time because if you put this whole thing into perspective,
if you step back, she gets sick in November of 2019. She did, she was an amazing mom, right? Yeah. Yep. Like terrible in the beginning
and then did her own work and turned the whole tanker that is our family and introduced her
whole family to the concepts of addiction and recovery. Harriet Lerner. Harriet Lerner,
dance of anger, therapy. She was the first person to go to therapy. So she did all that
work and she did not take care of her money.
So there was a lot of financial hard stuff going on.
It was 2019.
We put her in assisted living.
And many of y'all know this, like you're going to usually write in that check every month.
There's not an insurance answer there.
And then she doesn't have that kind of money.
And then two months later,
we do an event at NASA. Two of our employees get deathly sick. It turns out they have COVID.
And then three weeks later, we lose 75% of the revenue for our organization projected
for 12 months because every event canceled and it was kind of not a book year, it was an event year. And so it was, there was a lot going on. Oh, then, then COVID happened and
they were worried about everybody. They were worried about everybody in the assisted living
thing. And we snuck her out like AMA of the assisted living. And then she goes to Austin
and lives in the house with all of y'all and
Steve and all the kids are homeschooling.
We're like fighting for internet.
And then I'm here doing a podcast out of Charlie's closet on top of dirty under armor.
It was hard.
It was hard.
Yeah.
What was your take on everything, Barrett? No, I think it was really hard. It was hard. Yeah. What was your take on everything, Barrett?
No, I think it was really hard. I think, you know, looking back
I'm so grateful for the time that we were
quarantining together.
Also, there was like a big freeze in Houston and we had to go get her from her apartment and she came and stayed at my house and my daughter and my dog were like in her lap for two days straight and
I had a big note next to the bed that's like, you're at Barrett's house, you're safe, just
ring the bell and I'll come, you know? So I'm able to find some moments but I think when
we look back at it like retrospectively, it's like, shit, that was a lot. That was a lot. Mm-hmm, yeah.
And like, I think when you say like, Memo was your person,
I would say like that, mom, I think for Ashley and I,
like, I would talk to mom every day on my drive
and out of work.
And so it was kind of like also just losing that person,
you know, because when you work with your sisters,
you need someone outside of your sisters
to complain about your sisters too.
And she was like a judge free, so.
She was like, I'll take it to the grave.
Yeah.
And so.
She'll call me and be like, hey, you need to back off.
I know, she did.
So yeah, I mean, hard.
It was really hard.
It was really hard.
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There is a weekend, like we would take weekends,
take turns going home and someone staying with mom
at the lake and so there was a weekend
that it was just my daughter and me and mom.
And so Friday night we watched Singing in the Rain
and mom just jumped right back into it, it was so cute. And then Saturday night we watched the Blue October documentary
that had just come out. And she was crying because it's about addiction and stuff. And
when it was over, she's like, that is just the most amazing movie I've ever seen in my life.
And I was like, well, that was a documentary. But like, it was just so, it was sweet. So while it was really hard, I'm with Barrett.
There were some really sweet moments too.
Yeah, no, I got nothing on this one.
I mean, I think there were,
you were like close to like renting a bus.
Do you remember this?
You were gonna rent a bus or RV maybe.
Yeah, an RV.
And you were gonna take her to San Antonio
and drive her through
all the old parts of San Antonio so she could see him and you're getting an RV so that y'all wouldn't
have to stop for her to go to the bathroom. So she. Oh yeah, we actually rented the RV, but it just
didn't happen because I think something happened with her health. But no, I think, I don't know.
I think it's weird for me to phrase. I think it's because I'm eight years older than Ashlyn Barrett for y'all.
I think it was I hold a history with mom that y'all don't hold.
Right?
That's true.
Yeah.
So if y'all are like, what songs did she listen to?
I know that.
So I think for me, I was, of course, I had great moments with her, like laughter moments or I'd take her
to eat somewhere. But I think for me, we've had this debate, here comes. Do you know what
I'm going to say?
No. Oh yeah, I do.
What do you think I'm going to say?
If you're, what's the word?
I'm not a sentimental person.
Yeah, that's the one.
Yeah, bullshit. What do you think I'm gonna say? If you're, what's the word? I'm not a sentimental person.
That's the one.
Yeah.
Bullshit.
Yeah, no, but I actually don't think it's bullshit.
I think that, and that hurts my feelings a little bit.
I'm sorry.
Because you should look sorry on that.
No, I'm just not a sentimental person.
I'm a very thoughtful person, right?
But I'm not a sentimental person. And so for me, I think for me, it was like a slow
erasing of the only other person alive who held a set of memories and meaning making
about the world. Like that just was slowly like that whole part of my life was being erased.
Like y'all were too young to remember Joe and Lorena and early Mima and Curly and sister
and old neighbors and things like that because y'all were young. It was just this four year slow erasing of many, many lines that tethered me to this
world.
And so I think I did a lot of the grieving during that process.
I don't think I ever left there like, oh my God, that was a joyful, I'm really grateful that joyful.
I think I left there crying every time thinking,
I'm watching someone erase my memory
of how I make sense of the world
because she's the only other person
in the world that held those.
Do you know what I mean?
Yeah.
Yeah, so I think it's okay that I'm not a sentimental person.
Like y'all have a hard time with it.
Cause I think y'all think of me as a thoughtful person.
Well, I just want to like ask what I want.
I would like to know what the difference is
between sentimental and thoughtful.
Okay, so example, like, so mom died on Christmas day
and then on January 6th was her birthday.
And yeah, and then I think somewhere I got a text that said, what did it say?
We're all going to put on mom's jewelry and go eat at Barnaby's.
And I was like, that'll fucking never happen. Like, there is zero chance that I'm going to put on
Like, there is zero chance that I'm going to put on mom's jewelry and go eat at her favorite restaurant on her birthday.
That's something I wish I could erase from my memory.
That text.
Yeah.
This FYI didn't happen.
Okay.
But just the thought of it was like, sometimes I really hate y'all.
That's so fair.
Yeah, so I think that's sentimental.
Like where...
What?
Is it sentimental?
Well, it's stupid.
Whatever y'all want to call it.
But I thought it was just really fun.
Mom's got to call it.
I thought it was just really fun.
Mom's got some good jewelry.
I know, but no, not going to do that.
Yeah, I'm not sentimental like that.
I just can't imagine anything worse, really.
Okay, but there are so many moments that you do things that I'm just like,
oh my God, that's the most amazing thing that you just did ever.
And it's so sentimental and meaningful.
Don't call it that.
Well, that's why I'm asking you to help me understand.
Give me an example of something that you think I did that was the S word.
Just from my point of view, it's like a tennis match, back and forth, back and forth.
So when mom was going to the hospital and we didn't know she was going to make it, what
did you do?
You got some stuff to put in her hand.
Oh yeah, for me, ma.
Yeah.
Would you consider that to be thoughtful?
Yeah. Would you consider that to be thoughtful? Yeah, it's just not... I'm not mushy.
Maybe I could see you're not mushy.
I think I'm a fairly serious person. Right. And so when she was dying, I needed to make sure she had had direct connection with Mima. Like, so she had some of Mima's stuff with her.
I don't want it to be in any touchy-feely group projects with anybody.
Me neither.
I'd like to leave it.
I don't want to be in it.
Raise your hand if you think Ashley wants to be in a group,
sentimental, membership project.
So, Baird and I are raising our hands.
So, you are that.
Okay, I love it. That's true.
I actually would be.
I want to do that.
Okay.
Yeah.
Good.
I don't want to do like naked yoga, but I do think it would be cool.
Right.
Like, I'm not doing that.
What about you, Barrett?
I like to think of mom's memory.
Like my daughter had the best explanation.
She came home from school one day and she was like, oh my, they called her Oma.
Oma was with me today and I was like, oh why?
She's like, because all the people I hated, they kept falling in front of me and I know
she was tripping.
And that's the relationship she had with your daughter.
Yeah, no, I think that's good.
I will tell you that I was so unprepared.
Ellen and I did a mother-daughter trip to San Miguel Yende.
Our mom had a Mexican import store in the 80s.
Station wagon.
Yeah, very, very early.
So much so that everyone thought she was a devil worshiper because
she had a lot of Day of the Dead, like Isabella Yende art and things like-
The Katrinas.
Katrinas everywhere. So, it was not prepared. And so, I was on the street taking a picture
and Ellen walked into the first store we went to after we left the hotel. And she came out
and she was just white as a ghost. And she's like, I hope all the stores aren't like this is like an OMA store. So I just
want you to be prepared when you walk in. I mean, every store was wall to wall Katrina's
wall to wall day to day.
But I was just like, Oh, okay, that's cool. And then I realized that she went there a
lot. Dad told me some stories about they used to go there a lot all the time. So I mean,
she used to make an altar every year for me, Ma, which was so fun because it would have Burt Reynolds, Kentucky Fried Chicken Gravy, Benson and Hedges, Sweet and Low, Whipped
and Iced Tea, Honey Buns.
Then Campbell.
I did ask my daughter a couple of weeks ago, she wanted to make an altar this year.
She said, no, no, it's okay.
Yeah, I think we just all handled it.
Like we just have different roles, I think, and different experiences.
We do.
Yeah, I totally agree.
The Redbird story was like, this was just so classic.
So how did it even start?
Okay. like this was just so classic. So how did it even start? Okay, so our office is two stories. And so I walked in to the front door and Barrett
happened to be walking across the balcony and she's like, Hey, what's up? How are you?
I was like, having a really hard day. I miss mom and both and I just kept going on and
she's like, Yeah, it's been really hard. But there's like this red bird that's in my backyard. And it just makes me so happy because I get to see it every day.
And I'm like, I just need the red bird to come visit me. And I need the red bird to
come visit me today.
And then somehow, did you tell me like, I told you, you're like, here's the difference.
I would have called natural wildlife and been like, okay, we got to get this bird capture to get it over to Ashley's house for a few hours
so everybody's okay and then we'll take the red bird back to Merritt. Yeah, I was like,
why are y'all telling me this? Like, I don't know how I'm going to get the red bird over
there. And they're like, we're not asking you to do anything. We're just telling you
the story. And I'm like, why are you sharing it with me? Because I don't know where to
get a red bird. I can't order a red bird.
Can I get a fake one?
I mean, can order from Amazon.
I'm like, why do I need to know this?
I just try to go about my business walking
from one office to the next.
Ashley and I can't continue the podcast
because we've rolled our eyes so hard at Barrett now
that they're stuck in the back of our head.
Wait, is that not true?
No.
No.
That I was walking across and you were like,
I need to remember walking across.
Maybe that day, but like, no.
But you're not like the, oh, I'm just watching the tennis match.
No, you're in the match.
No, I do.
That specific time I was watching the match,
I do like to be in the match.
What do you think your role in the match is?
Peacemaker?
No.
You think so? She has a middle child energy on us.
Yeah, I think Ashley and I might have been switched.
At birth?
I'm pretty sure I'm middle child.
I'll totally be youngest.
Yeah.
Ashley was six months earlier than Barrett, theoretically.
Yeah.
That would fit.
Barrett's got a lot of mom in her around the peacemaker stuff.
Yes.
I've done a lot of work not to do that.
A lot of my own work not to do that.
I'm a pimp.
She looks incensed.
That's a good question.
What do y'all think your best trait is
that you got from mom?
Oh, that's a good one.
Okay, one thing that I think we all got from mom
that I love and I'm so proud of is like
that we respect the people that come in and water the plants the same way we respect the
CEOs that come in here to meet with Brene or whatever we're doing.
Like just respect for everyone all the time.
I love that trait.
Yeah, I think that's true.
It's totally true.
Hey, mom came from really, really hard shit.
She did.
Poverty, addiction, abuse, like hard, hard, hard, hard.
She clawed her way out of it and got help.
Yeah, I mean, I think that lesson of never look away from someone's pain, that when people
are in pain, look them in the eye.
Yeah.
Jesus Christ, we were the first people at every funeral where someone died.
Four hours later, we're there with casseroles.
We're like, oh my God, Mama, I'm not going to know what to say.
Even awful deaths, which just seems to be a propensity of in our neighborhood growing
up.
But we were just always there.
She's like, you just don't look away.
You don't look away from people in pain.
You look them directly in the eye.
You share their pain.
And then when you're in pain, you look for the brave people that can look at you in the
eye.
So I think that's probably the big lesson from mom for me.
Yeah.
I mean, I feel like that lesson, like peel it back one at a time because I feel like
one of the things that I love that I took from mom was just like this really big heart
in helping others who don't have resources.
Oh, I can remember her like watching the news and calling me and being like, what is this
school district doing? What about all the people that are going to be impacted by this?
So like this advocacy of people that needed resources and that needed help and support. Like I do a lot of clinical work with a group of people
that have experienced being unhoused
and she loves that work so much.
Every time I talked about it, she would just like light up
because she was doing similar work to that.
She wasn't a therapist,
but she was volunteering all over the place.
Because she comes from that. Yeah. I mean, she just comes from that. She wasn't a therapist, but she was volunteering all over the place. Because she comes from that.
Yeah.
I mean, she just comes from hard.
She comes from poverty.
She comes from hard.
And so, yeah, she was brave.
She was way before her time.
I do think she turned the tinker for us.
I mean, 100% you said it earlier,
but I think about that a lot.
I feel like she gave me a Harriet Learner book when I was like 16 and said, I think
it's time you go to therapy.
Yeah, same.
And that's when I started group therapy, and I'm pretty sure I was the co-facilitator.
At 16?
Yeah, yeah, yeah, yeah.
Oh my gosh.
Yeah, she was made of honor at my wedding.
Oh, I love that so much.
Yeah, it's cool.
Yeah.
But we had a more serious relationship. Oh my gosh. Yeah, she was made of honor at my wedding. Oh, I love that so much.
That's cool.
Yeah.
But we had a more serious relationship.
We would die laughing sometimes, but I'm wondering if I'm a serious person.
I always see myself as like Meg Ryan in French Kiss, but I'm not.
I always see myself as like slapstick funny and I think I'm funny, have a good sense of
humor, but I think I'm a serious person.
You had a different relationship with mom.
I mean, I think it was just a different time. It was like, you know, I think we were 13 when our parents got divorced and you were
already in college.
Like, you had a very different upbringing than we did.
And different relationship with both parents.
Yeah.
I think that's true.
I mean, I was 21.
Yeah.
And you were the first one to like set boundaries and to circle back to shit growing up.
Like we got to benefit the work that you did. Thank you. You're welcome. Yeah, that's true. Yeah.
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I will say though, before we leave, that one thing that I think it'd be so important just to talk about for a second is
How things change so dramatically with mom once we got her in hospice? Oh, we should talk about that for any of you that are on
This long ass walk with someone you love who has a dementia diagnosis
That it's not just hospice, but it's also
Palliative care and there's a difference about whether you qualify for palliative not just hospice, but it's also palliative care. And there's a difference about whether you qualify
for palliative care or hospice.
And I think it's basically like how long you have to live.
But during her last hospitalization with COVID,
the palliative care team at Methodist here was amazing.
And they came and said,
what is the palliative care plan here?
And then they sat down and they explained palliative care with dementia.
They, you know, and they said so few people access the resources available through your
mom's Medicare and all of those things.
So few people access palliative care with dementia patients, much less hospice.
And it really changed everything for us.
I mean, it was amazing.
I mean, social worker every week or every other week,
they're allowed to supply oxygen,
which her apartment wasn't able to do.
Yeah, so like every time there was an oxygen issue,
an ambulance would have to come get her.
And any traumatic event like that for a dementia patient,
no matter where you are in that journey
of cognitive decline, every traumatic event is such a huge, unrecoverable setback.
And so the ability to have oxygen in the room because of hospice and palliative care, just
we didn't know.
We had no idea.
Yeah.
They brought a bed that sat up so she could eat.
And bed sores because she got to the point
where she couldn't get out of bed.
I mean, you hear hospice and you just think,
oh, death is around the corner, but it could be around
the corner or it could be months away.
So just check in and see what resources are available
and what you can get because it was a game changer.
And God bless the people that work in palliative care
and hospice.
Oh my gosh, yes.
Those are our heroes for sure.
And they were our heroes before our up close personal
experience with mom.
But it was just, and they just have all these trained people
in dementia care.
Like I just.
And a nurse that was there what, twice a week?
Or at least once a week a nurse would be by to check on her,
which was really helpful.
I think the continuity of care too that a hospice nurse can provide was helpful.
Yeah, it was awesome.
Yeah. So if you're on that journey.
Hards out.
Yeah, it's nothing but a collection of hard choices over and over and over again. And
I think the one thing that we did is, and I think this is where our Venn diagram of likeness comes in, like I had a really hard confrontation with mom that y'all were there for.
And it was like she was super cruel and terrible.
And it was shocking, I think to y'all and shocking to me.
And then I couldn't see her for like a month.
Yeah.
I mean, I came home screaming, crying
on the phone with my therapist, like what is happening?
And I think it was, if I look back on it,
there's a really terrible moment in the dementia journey
where you're losing control of your body.
And I mean, you're having accidents in your pants.
Those things are happening,
but you know enough to be humiliated and feel shame. And so I was an easy target, you know,
which is kind of part of the family story a little bit, because I'm the oldest. And
so I remember my telling my therapist, like, I just don't think I can go back. And she's
like, you don't need to go back. And I said, I may never be able to go back.
And she's like, you don't ever have to go back.
And I remember calling y'all on a three-way call,
which we did a lot then, and said,
I can't go back right now.
And they're like, don't go back, we'll go back.
You know, like, we, I think every one of us tapped out.
Do you think?
Oh, yes, for sure.
Like, month-long tap-outs.
Yep.
During this thing where I just can't do it right now.
Yep.
And so, again, we're so lucky because we have each other.
Yes, we do.
And we also, I think, because we all study shame and we work in that area, and we know
that like, shame around caregiving, people really struggle with the idea that one day
they're like, it's a privilege to take care of you. It's a privilege to get you undressed and put you in the shower and
shower you and do this thing. And the next day you're like, I hate your guts and I wish
you would die tomorrow because I can't keep doing this. I'm going to lose my job. My marriage
is falling apart. My kids are sick. And I think we were very shame resilient around
that. We knew all that was normal.
And we checked in with each other if we were making up that kind of a story.
Yeah.
Yeah.
Yeah.
The normalizing of it was so helpful.
Yeah.
Am I the asshole if?
Yeah.
Yeah.
For real.
Yeah.
And we're like, no, Dementia's the asshole here.
Yes.
For sure.
Yeah.
And so I think that was really, and if you're by yourself doing this, but just think of
us maybe if
it's helpful.
Like, yeah, and I still, we still haven't written thank you notes.
There's a lot we haven't done with mom stuff that we haven't, I haven't been in, I haven't
been wanting, like I got all this stuff out and I put it on the ping pong table in our
house and it's been there for like six months.
If Steve leaves something on the kitchen counter
for more than two hours, I'm like, this does not live here. And you know, and he just walks
by, I mean, there's boxes of shit everywhere. And he just walks by and smiles and, you know,
pats me on the butt. One day it's all going to be gone and not this can be better. But
like, I think it's hard.
Yeah. And like, I've been thinking about Christmas because she has so many Christmas ornaments
that have a lot of memories wrapped around them.
Where are those?
At your house.
Storage somewhere.
I got the air quote storage.
No, they are at your house.
Yeah, I mean, this is the bad part of us. My mom would say, wait, where's this?
We'd go storage.
Storage.
Yeah.
Air control storage.
She'd be like, I had this ring that had like a pink something on it, like storage.
My father had it, storage.
We inherited her like pathological, obsessive compulsive collection of office supplies.
Let me tell you, clean out her house.
That'll cure you that shit in the heartbeat.
I got one packet of pens at a time.
That's it.
I got one.
I got Post-it notes in one color.
Yeah, that's it.
Like you saw that and you're thinking, wow, not only does she collect a lot of stuff,
she had a label maker and she named that stuff.
Oh my God.
Container store, she probably could have opened up her own.
Yeah, yeah.
That's a good part of her though, I think.
Yeah.
I was looking on anthropology to get a new bedspread,
comforter, whatever.
And I was like, every one of them was like,
oh, this looks just like mom, like big wild colors.
And when I was going to the box, her laminator was in there.
I mean, I can't tell you how many times I borrowed it.
I'm sure he's a school teacher.
Yeah.
But my worst laminator story with mom
was when I was in graduate school,
she gave me part-time job in drywall. We should just stop there.
We've all worked for the drywall companies.
She was in the controller for a commercial drywall company.
She would give me part-time work.
I would do the progressive billing.
For those of you that know anything about construction billing before there was a computer
program, it was so hairy and terrible.
But I would do it.
And that's how I like paid for my MSW and part of my PhD.
Like I would have this part-time job.
And one day I was having to laminate a lot of shit for her
and I got really bored.
And I was like, oh my God, oh my God.
And Molly came running in and she was,
okay, what's wrong? And I was like, oh my God. And Molly came running in, and she was,
hey, what's wrong? And I was like, oh my God, just leave.
And she goes, what is wrong?
Are you okay?
And I was like, no, you gotta leave.
She said, I'm not leaving.
I'm not leaving.
And she said, what did you do?
What are you hiding?
And I said, I wanted to see what would happen
if I laminated my gum.
I took it out of my mouth like a big ass piece of hum-a-bubba.
Oh my god.
And it came out of the sides and it just broke the whole laminator.
Oh my god.
I was like 27.
You were working in her closet, weren't you?
Yeah, I was working in her closet in her office.
She was like, I'm going to go to work.
I'm going to go to work.
I'm going to go to work.
I'm going to go to work.
I'm going to go to work. I'm going to go to work. I'm going to go to work. I'm going to go to work. I'm going to go to work. 27. You're working in her closet.
She was like, we're not going to tell anybody about this.
They're like, you know who you are. If you had to buy a new laminator.
Right.
Yeah.
And then she ran out and said, Bernay laminator.
Yeah.
It was like construction awful.
Like why wouldn't it work?
What happened?
All right, y'all.
This is Unlocking Us.
We're Sophisticated Conversations.
You can learn more about this episode, like how to eliminate your gum, on brenadbrown.com.
How to capture a wild red bird.
Yeah, how to capture a wild red bird, place it in a natural habitat.
Y'all can't see me without flipping her off.
She is giving me the double bird.
Anyway, we'll have transcripts.
I'll do it mom style, without any bird, without any wings. Mom's flip-off was the worst.
There's something vulgar about a bird without wings.
I think it's just so ugly.
I think the wings soften it a little bit.
Anyway, that's us.
Can't wait for the next time.
Stay awkward, brave, and kind. Unlocking Us is produced by Brene Brown Education and Research Group.
The music is by Kerry Rodriguez and Gina Chavez.
Get new episodes as soon as they're published by following Unlocking Us on your favorite
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