We Can Do Hard Things with Glennon Doyle - How to Live So We Can Die Peacefully with Death Doula Alua Arthur

Episode Date: May 24, 2022

1. What Alua has learned about living well from the many people she’s helped walk home as a death doula.  2. The “deathbed test” that guides her toward what is important and helps her stay pres...ent. 3. Alua eases Abby’s immense fear of death by sharing her glitter-wave vision. 4. The most surprising thing she wants us to know about death. 5. Concrete steps we can take now to help prepare ourselves–and our loved ones–for the inevitable. About Alua: Alua Arthur is a death doula, recovering attorney, and the founder of Going with Grace, a death doula training and end-of-life planning organization that exists to support people as they answer the question, “What must I do to be at peace with myself so that I may live presently and die gracefully?” Going with Grace works to improve and redefine the end-of-life experience for people rooted in every community using the individual lived experience as the foundation. Alua was a keynote speaker at EndWell 2019, and has been featured in the LA Times, Vogue, Refinery29, The Doctors, and InStyle. She is inspired by the gift of LIFE itself and is always on the quest for the best donuts and fried plantains! TW: @goinggracefully IG: @going_with_grace To learn more about listener data and our privacy practices visit: https://www.audacyinc.com/privacy-policy Learn more about your ad choices. Visit https://podcastchoices.com/adchoices

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Starting point is 00:00:00 Whether you're doing a dance to your favorite artist in the office parking lot, or being guided into Warrior I in the break room before your shift, whether you're running on your Peloton tread at your mom's house while she watches the baby, or counting your breaths on the subway. Peloton is for all of us, wherever we are whenever we need it, download the free Peloton app today. Peloton app available through free tier, or pay subscription starting at 12.99 per month. We'll finally find our way back home. Hi everybody! Welcome to We Can Do Hard Things. I am happy today today because we are finally talking about death. Oh boy. Yeah so since we started
Starting point is 00:00:52 this podcast my sister her big topic that she was most excited to talk about was menopause. And my topic that I was most excited to talk about was death. my topic that I was most excited to talk about was death. So I feel like it's a mystery wise sister and I don't get invited to more parties. And I know that this is a scary topic for a lot of people, but we're going to do it unscarily and beautifully. we are so excited to introduce our guest today, the joyful hilarious effervescent brilliant and deeply wise, Alua Arthur, as Alua Arthur says, talking about sex won't make us pregnant, talking about death won't make us dead. Alua Arthur is a death doula recovering attorney and the founder of Going with Grace, a death doula training and end of life planning organization
Starting point is 00:01:49 that exists to support people as they answer this question that I love so much, what must I do to be at peace with myself so that I may live presently and die gracefully? Going with Grace works to improve and redefine the end of life experience for people rooted in every community using the individual lived experience as the foundation. Aelua is inspired by the gift of life itself and is always on the quest for the best donuts and fried plantains. Aloo, welcome. Thank you so much.
Starting point is 00:02:26 I'm so happy to be here with you all today. Oh, same with us. We've been counting down to this day and I wanted to tell you when we found out that you had agreed to be on, we can do hard things. My quest to understand everything about you began. Uh-oh. I may not know everything, but I know a lot.
Starting point is 00:02:45 I feel like I could write your biography if you need one. I need help. Okay. Great. And I just wanted to tell you that because of your work, I just a couple of weeks ago started talking to my kids about what I would like for end-of-life plans. And actually, we're on vacation and I sat down at dinner and thought,
Starting point is 00:03:07 said, this is gonna be so fun. Let's talk about this. Do you remember that? Oh, yeah. Can you tell us, Elua, what do you envision for your death plan? So as I'm dying, I'd love to be on a deck someplace, looking out on the mountains. I'd love to see trees everywhere.
Starting point is 00:03:26 I would love if it was like dusk or sunset. The sky is starting to change. Oranges, paints, blues, some yellow still. But day is certainly dying. And tonight, as I'm dying as well, I'd love to smell a nonchampa incense, because it's one of my favorites, the amber scent. I want my loved ones around
Starting point is 00:03:45 But I don't want anybody like fussing over me necessarily. I want them mining their business I mean, I want them to keep an eye on me for sure. I want everybody to care that I am dying But I want them to also mine their business I don't want any hospital. I don't want any machines. I don't want any beeping I just want to be like soft. I want my feet to be warm I want to be in total surrender about this ride I'm about to take that none of us have any idea what actually entails Mm-hmm. And then as soon as I die
Starting point is 00:04:12 Or once they notice that I've died. I want them to clap. I want them to be like joyous that I've done this hard thing Hopefully with a lot of grace and surrender and joy. And I want them to be proud of the life that I lived to do. That my death. Yeah, I'd love it if they clap. I mean, it might be hard. I'd like that they would like slow claps. Slow clap. Good job. Good job. Good job. I mean, Glennon, can you tell, Ilua, what you told us that night? Well, I mean, a lot of things. I had all kinds. You can imagine all the details I had in my church you told us that night. Well, I mean, a lot of things. I had all kinds. You can imagine all the details I had in my
Starting point is 00:04:48 trueest, most beautiful death plan. But the one thing we talked about a lot is that I want my family to do something that is similar to sitting Shiva, because pre or post post when I die after it. Like, I want my family to be forced to all sit together in a house for many days because I feel like in our culture we just rush through. I know I'm always trying to get everybody to hang out
Starting point is 00:05:15 with me like, but I feel like we rush through grief or losing someone and then we just go back to our lives and then all of that unprocessed grief comes out in a million different ways. We try to help our kids plan for hard things, their whole life, that's all we're doing. And then we don't help them plan for the hardest thing which is losing us.
Starting point is 00:05:38 So I just wanted them to have some sort of processing time. You should have seen our daughters. They were dumbfounded that we were having this conversation. One of them was like, can we please stop talking about this? Because it's, you know, it's intense. It's an intense conversation. Yeah, but I love it. I love the idea. It was hard for them. Well, one of them was into it. One of them was interested and curious and asking a lot of questions. And then the other one was getting a upset stomach and didn't wanna talk about it anymore. Yeah.
Starting point is 00:06:13 That sounds about right? I was also getting an upset stomach. Oh. Aloo, when I think about what Yolor's saying about your death plans, it makes me think of birth plans Mm-hmm. At least for me there was a lot of grief and trauma based on my birth of My first born that did not go according to plan and so I had had this kind of very concrete vision
Starting point is 00:06:38 And it wasn't just a plan you know, I did this six months of breathing classes and all the written out stuff And I feel like when it didn't go that way, it felt like I'd lost something. So I'm wondering about that in connection with death plans, because sometimes ironically, the trauma is heightened in the case of birth plans precisely because we had such a clear vision. So I realized the dead person is dead, but it seems like a lot of folks who do everything right are able to give their loved ones a beautiful death. And then a lot of folks who do everything right are maybe holding a double grief because they're holding both the loss of their loved one
Starting point is 00:07:18 and the loss of this kind of passing the way they wanted to give it to them. So do you see that? And how do people process that? I do see it. And I'm so glad that you brought that up. Because what happens often is that we get so fixated on this idea of a good death. You know what I just described to you is my perfect death. Like that would be the way to go.
Starting point is 00:07:38 And who knows? I might be like screaming like, no, I'm not ready. And it's like afternoon and I'm really young. Who knows? Like, it's a way that when we are healthy, and even those that are not, can look forward to find out what their values are.
Starting point is 00:07:52 So we can do as best as we can to align closely with those values. Clearly, my values revolve around being outside, being around people I love, not being fussed over. You know, it's all pretty evident. And so let's say I'm in the hospital and I'm 55 and I don't get to have the type of death that I thought that I would. Perhaps they can inject elements of those that death plan that I told you about into the current to make it as good as it can. We often strive for the most ideal death under the circumstances.
Starting point is 00:08:20 So these are the circumstances we've been given. What is the most ideal for you right now? And how can I? How can we? I'll see if we can bring that forward. There's so much judgment that goes into this idea of like a good death and you write a concept like re-traumatizing folks when they don't have it. I often try to remember like who is the good death for? If it's for the dying person, then they're gone. They're gone. They're gone. If it's for the people that live after them, which I hope that the way that we die can be instructional to our children, to our loved ones, then maybe the best that we can do is be in some type of surrender around the fact that it's happening.
Starting point is 00:08:53 And that would be a great teaching tool to begin with. Does that make sense? Yes, it does. And the taking the themes makes so much sense. So then in my case, if they weren't doing the particular stay in the house for six days, they would be thinking, well, it was important to mom that we process together. So we might do it in a different way, but they take the theme. Bingo. I love that. Take the values. Yeah. I understand the values around it. That's the value of
Starting point is 00:09:19 talking about it to me, is that everybody's kind of on, they understand what you want, they kind of see what you care about, they see what you like, and we try to do that as close as possible, and we release. Death is a lot about surrender. So you got to release. And I think birth, similarly, I've never given birth. I think you also reach a point where you just have to surrender. It reminds me what you just said, it reminds me of Ocean Vong. He was just on the podcast, and he walked his mother through death, and he said, death is the closest thing I've seen to truth. You don't get to say when or how you experience it. So that surrender is surrendering to the truth of what is happening for everyone.
Starting point is 00:09:57 Absolutely. Absolutely. Aloha, your story of how you came to this work is as beautiful and fascinating as your approach to this work. You were a lawyer and you experienced some major depression around that time and you describe yourself during that time as an empty dark house with nothing but a flicker left inside. And then am I right that you met a woman in Cuba? I think that you ended up talking to on a bus for six hours. 14 hours. Okay, tell us about that conversation first of all. Was that when you were in the depression and still in the law firm?
Starting point is 00:10:44 Yeah, yeah. So a little bit of background context, I went on a medical leave of absence from work and I found myself in Cuba through some serendipity. I started meditating to try to see if I could cure myself or at least bring myself back to self. And I started thinking about this kid, Elian Gonzalez, from the 90s who was coming over on a raft with a few members. Yeah, absolutely.
Starting point is 00:11:06 Yeah. For some reason, that kid popped in my head. So I did all this research about him and learned he was Cuban, and learned about the Cuban missile crisis and everything. Later on that day, I went to go return a book at the library, and somebody was holding a bag. That said, Cuba Te Espera, Cuba is waiting.
Starting point is 00:11:22 And I thought, hold on a minute. At that point, I was also deeply searching for any meaning. could find anywhere because I was so depressed. So went to Cuba. Went out one night, met this woman. We danced all night, woke up in the morning, wanted to return something to her, and a car almost hit me along the way. And I, you know, got myself together real quick, got on the bus eventually, and met the souman Jessica. We started chatting about her life. We talked about death. We talked about illness. We talked about men.
Starting point is 00:11:49 We talked about orgasms and uteruses and scars and the backstreet boys. We just went everywhere. We had so much fun. And during that conversation, it got really clear to me that there was no place for this woman who was ill to have conversations about her death. Nobody was willing to talk to her about it. It was so unfair to her, at least it felt unfair to me, that she was grappling with this major thing that every single last one of us are going to go through, and there was nobody
Starting point is 00:12:15 to talk about it with. It broke my heart. My broken heart has been really my nor-star in life because I'm like, there's something to lean into there. So yeah, I think you all probably understand this phenomenon. Quite well. I leaned into the broken heart and I was like, let's do something about this.
Starting point is 00:12:33 It's short version of long stories. We got off the bus after 14 hours together. She was supposed to get off after seven, but she stayed with me. And yeah, turns out she was in that car that had almost hit me in the town before we left. And so it was just really just a crash, crash, of course, with what would eventually become my life's work.
Starting point is 00:12:50 It turned out really beautifully. And then I want to move on to what happened next. But before that, I just want every pod's water to listen to the fact that Alua followed the flicker. There was still flicker. And then she followed the flicker and listened to still a flicker. And then she followed the flicker and listened to the signs even when that was all there was.
Starting point is 00:13:09 And that's how she ended up in Cuba. Unfraaking, amazing. Okay. Unamazing. Unamazing. I love it. So then, Lua, you have this idea in your mind about writing this wrong that this woman had nowhere
Starting point is 00:13:27 to discuss this unbelievably important thing for her. And then your brother-in-law gets sick. Yeah, it was so cruel. So cruel. My older sister, Bosnian St. John's, has been Peter got sick. And Peter was my homey. You know, I don't have an older brother and this tall white guy comes into my life and starts trying to tell me what to do. And we became very, very fast friends. I mean, we clashed all the time,
Starting point is 00:13:54 but it was a, I think what brother sister relationships are like, I only have sisters. So when Peter got sick, it, you rocked me. I wasn't ready. He was 43. He was for all intents and purposes. Healthy, at least it assumed. I wasn't ready. He was 43. He was for all intents and purposes, healthy, at least it assumed I assumed he was. And he got buckets in Pharma.
Starting point is 00:14:10 And four months later, they weren't going to be able to treat him anymore. And I was on a trip with my boyfriend at the time, but packed up a small bag, thinking I'd just go for the weekend to see how everybody was doing. And I stayed for two months.
Starting point is 00:14:25 And Peter died. Yeah. So, what made you feel like you could be one to help walk him all the way home? Because that's what blows my mind with so many things about your story. Most people make a casserole or just decide they can't handle it or whatever it is. What was it that made you say, I am here and I am staying
Starting point is 00:14:51 and I'm gonna walk my brother home? My heart was broken. My heart was broken. I didn't know what else to do. I feel emotional talking about it again. Peter died eight, almost nine years ago and I still have tears when I think about him in that time. This person I loved so dearly was dying, and they needed help. There were things that needed to be done.
Starting point is 00:15:11 And if I left, that meant that my sister would have had to leave the hospital to go pick my niece up. I mean, she had people, and I'm sure somebody would have stepped in, but it was like, well, I can be with layout, I can be with my niece, you know. So I'll do that. I'll spend time with her. I'll run the errands. I'll pick people up from the airport. I'll research medications. I'll see if there's like generic option that's cheaper. I'll find out what about his will.
Starting point is 00:15:33 I'll help him pick out an urn. I'll go to home depot and buy the boxes. Like, I can do it. If I do it, then she can just spend time with him. His parents can just spend time with him. And so that's what I did. I stayed and I did all the things that they needed So that they could be present with their beloved who was dying. I mean, he was mine too
Starting point is 00:15:51 but The help was necessary and so I did it and I learned how to do that through Peter Greatfully, greatfully. Yeah And you told Bo's the truth too Yeah. And you told Bo's the truth, too. I read that there was a moment where she was leaving Peter's room and no one was saying what was happening. Everyone was talking around it, even the doctors, nobody was saying it.
Starting point is 00:16:16 And she said, well, what do you think is going on with Peter? And you told her that he was dying. How did you know that first of all, what was that moment to look at your sister and say the hardest thing, that's the hardest thing? It was the hardest thing. Up until recently, when we talked through it, because she didn't have any memory of that.
Starting point is 00:16:36 And up until very, very recently, when we talked about it again, she said it was the right thing to do. Because I've had a lot of, cared a lot of guilt about whether or not I should have done that because I said it and she collapsed. We were in the elevator bank, she collapsed. She's on the dirty ground. And so I got down with her and I was like, shit, I made the wrong call. I should have lied or not spoken my truth at the time because maybe it's not the truth,
Starting point is 00:17:01 you know. But Peter is sick. It has a terminal illness that they cannot cure. They say they can't cure him anymore. He looks the way that he does. He was so thin, he was frail, he was dying. It was obvious. The light was starting to fade in his eyes.
Starting point is 00:17:15 It was obvious to me. And why nobody was saying it outright and saying it consistently. Like maybe they said it once or twice and somebody missed it, that would have been it. But it wasn't like a regular thing. We weren't behaving like he was dying. And it shocked me and it made me really sad for all of us. It made me sad for her. Peter knew. Peter knew. Yeah, Peter knew in his quiet moments and our quiet moments, we talked very frankly about it. I think
Starting point is 00:17:42 that also gave me that that knowing that he was dying because he knew he was dying. Yeah. Yeah, it was our thing. What do you think that rubs from people when they don't have that information, when no one is willing to say the thing that is happening? It robs them of presence. It robs some of presence because they don't have an opportunity just to be with what's happening and be with the person that they love who's dying because once you know somebody's dying, then you know every time they touch them gets more interesting. You look in their eyes, because you don't ever wanna forget, it's gonna be gone.
Starting point is 00:18:26 Everything feels so fleeting and that much more precious as a result. It wraps them, I think also of the joy. It wraps them up a goodbye. It wraps them up the opportunity to be with this tremendous gift that it is to love somebody and to sit deeply in the loving even though they're leaving. I'm Jonathan M. Hevar. I'm a podcast producer and someone who likes fancy things.
Starting point is 00:19:01 But I grew up working class. My parents were immigrants with factory jobs. But I grew up working class. My parents were immigrants with factory jobs. And because of that, I think about class a lot. And I want to talk about it. That's what we're doing on my new podcast, Classy. And what did you all eat? You know, trailer food. I was like, girl, we're not doing that anymore.
Starting point is 00:19:23 You'll hear from people who told me awkward, embarrassing, and strangely intimate things about what class means to them. She said, you know, for the house cleaner, I hide the tag on the $6 bread. And I just thought, don't you think she knows that you're wealthy? You're hiding the tags from yourself. Classy. A new podcast from Pineapple Street Studios. Available now, wherever you get your podcasts.
Starting point is 00:20:03 about this hope a lot on this pod and how, I sometimes I guess it's a good thing, but lots of times it's a spiritual bypass of what's actually happening. All right, let me quote, hope is a fucked up thing. Oh, yes, yes, perfect. Can you tell it? It is, isn't it? And Lua talks about hope being a fucked up thing, please.
Starting point is 00:20:24 It's a fucked up thing. It's a fucked up thing. It's a fucked up thing. So in antiflite context, the particular can be dangerous. Now, I'm not saying that people should not hold out hope for a miracle, but you cannot hope that you're not going to die. You know, you can hope that maybe you live to see your granddaughter graduate from high school. You can hope to make it to next Thursday. You can hope that this particular
Starting point is 00:20:45 medicine doesn't make you feel really ill, but to hope that you won't die, not a reality for most of us. And I think that what happens oftentimes is that we put so much weight on hope that we're going to get out of this illness somehow, that it ends up blindsiting us bypassing from the reality. We don't prepare for what could happen. We can hope both. We can hold hope of smiling again and feeling joyful and being with people we love and preparing for death. They're not at odds with one another. And that's what we do. We pit them against each other. It's like you hope for a cure so you don't think about death. They're trying to worm your way around it. That's not fair. It's painful. Yeah. I don't know if you think this is related to the hope thing.
Starting point is 00:21:26 But as an observer, again, if the battle language of fighting death is galvanizing for people who are experiencing illness and death, that's wonderful. But just as an observer of it, the battle language or specifically around cancer has always been disquieting to me. Like Sarah's battling cancer, she's of it, the battle language or specifically around cancer has always been disquieting to me. Like Sarah's battling cancer, she's going to beat it or Laura lost her battle with cancer. It suggests that that's person's responsibility
Starting point is 00:21:55 to wage that battle and if they tried hard enough, then they could do it. And if they didn't, then they lost. Is that kind of language useful to people, or do you see, is that related to this hope situation where we're just kind of like putting the promise of hope on them that they're gonna fight it and that relieve us of the burden? It might. I feel like we all try to carry hope with the dying person, but when it comes to their battle, it's the private one.
Starting point is 00:22:24 But I would agree with you. I tend to agree with you that this battle language isn't helpful. It makes our bodies battle grounds rather than these vessels that we use to engage with life, rather than bodies that are simply responding to treatment or not responding to treatment. No responsibility on the part of the person who's dying whatsoever. Some people I've learned do find it helpful. It makes them feel like they want to get up and fight. Yet I also see plenty of people who fight, plenty of people that really wanted to live, that die. Peter wanted to live. I wanted Peter to live.
Starting point is 00:22:51 There was nothing that we could do, nothing that we could do. The cells replicated faster than the treatment could keep up with, and he died, and it's what happens. We make winners and losers out of people we love when we say they lost their battle with cancer. No, no, so many people face cancer so valiantly, you know, they smile, they still get up. They try to do their hair. They try to pick up their kids. They are still living with the disease that they know might kill them and they wake up and do it every single day. Those are not losers to me. Even when they die. They're not losers. But some people like it. You know, some people like it. And so for those people,
Starting point is 00:23:33 I'm down. We can hold both. Yeah. I would definitely. Yeah. If ever I get ill, I'm going to be battling. I'm in war. I'm going to fight. You fight. We'll be here with you. You fight. And I will win the fight even if I die. Yes. Yes. I can get behind that. That's good. That's good. What did you witness, Elua, during that time with Peter that you felt like needed to be changed? to be changed? Where would I begin? For starters, I think that we should have had, it would have been really helpful to have somebody who was knowledgeable and kind and compassionate to explain to us all the things that were happening, but to also just be there when I was like, you know, let's fuck that, right? They'd be like, yeah, that's real fucked up. That would have been helpful. Somebody would be like, this is hard, you know, let's fuck that, right? They'd be like, yeah, that's real fucked up. That would have been helpful. Somebody would be like, this is hard.
Starting point is 00:24:25 You know, so this really hard or somebody to have some information. Like, how do I talk to my four-year-old niece? She's asking me these questions, and I don't know how to respond. I talk to my sister about it plenty, but neither of us knew how to have the discussion. It would be great just to have some basic information.
Starting point is 00:24:42 How do we access the DMV after he dies? What kinds of things do we need to be prepared for? What do we do with his computer? What do we do with his car? Like just somebody to answer questions would have been really useful. And that's on the preparedness side. On the medical care side, open honest, frank conversations about death would have been great. Would have been great. Like here's where we're at. This is what's going on with his body. Here's what you can expect in the next few days. We got a referral for hospice, but it was too late. It was on like Friday afternoon, and he died on a Wednesday, I believe.
Starting point is 00:25:17 Like it was too late. It was not enough time anymore. So a little bit more time would have been helpful. A lot more compassion would have been great. Some knowledge, some frank, open, regular conversations about the reality of what we're dealing with would have been queen. And that's what death do let's do. That's what death do let's can do if we choose to use them.
Starting point is 00:25:37 I think most of us have a fear of death. And it seems like it's like in two separate buckets though. There's this fear of the actual dying process. Right? The actual, we don't understand it. We don't want to be in pain. We don't know what to expect of that process. And then there's this whole other bucket
Starting point is 00:25:56 that's kind of this tragic reality that death means that we will no longer have the chance to live. Yeah, there's like, we're going to be dead. We're going gonna be dead. We're gonna be dead. And that's like all the things that we told ourselves, we do one day in the conversations we thought we'd have and done. But on the first bucket,
Starting point is 00:26:18 where we just don't actually understand the process of death, like what you were just saying in a couple of days, this is what it's gonna look like. Having been a part of so many deaths, is there anything you can share with us about that first bucket that kind of demystifies the death process? So we are less afraid because there's some things that you just know will happen or is every death different. Well, a lot of deaths are very different. The body kind of does the same thing when it's shutting down from disease. The order that the system shut down and might be different based on the disease,
Starting point is 00:26:52 but generally people that are dying from disease die similarly unless it's sudden, like a heart attack or stroke or something of that sort. And I want to just be clear that often when I'm talking about our work, I'm talking about people that are dying at the end of a disease process. Now, so system shut down at different rates, but generally people begin to withdraw a lot more. They don't engage so much with the outside world. They spend a lot more time sleeping.
Starting point is 00:27:17 They stop eating. They don't want to drink so much. They might be a little thirsty, but they don't really want to take in any fluids. The extremities get cold. The breathing slows down, and eventually death occurs. There is some level of pain that occurs, but often it's the disease process that's painful. And there's medicine to treat it. One of the biggest fears around dying is that it's going to be painful. And we don't want pain. We try to run away from pain at all costs and we're living.
Starting point is 00:27:44 So while we're dying, nobody wants to be in pain. And what we do then is we treat it with medicine. There's ways around it. You don't have to be in pain when you're dying. And I think this goes back to the surrender bit. If you don't have to be in pain, then you just have to surrender to what's happening. And that is also terrifying. You know, that's also really, really terrifying. You're right, we don't know where we're going afterward. We don't know what death is gonna be. And so that's another big fear. They sit and tan down when talking about death.
Starting point is 00:28:14 The fear of the unknown, the fear of the death itself is something that I find real fascinating because none of us know what it is. Nobody who has lived has gone and come all the way back, has gone all the way there and come all the way back. I mean, they say that there's that one, talking about Jesus Christ, but I went there, so I don't know.
Starting point is 00:28:33 I wasn't there. I'll leave that one alone. I'll leave that one alone. That was rather evil than talking about. There's always one. There's always one. There's always that one. That was like 2000 years ago, not since then.
Starting point is 00:28:44 So that's some pretty good indication that it doesn't happen so often. But in any case, we don't know what it is that it's gonna be. None of us know. We know people ask me all the time, what happens when you die? So I know, like I'm not still sitting here talking out of this mouth and like talking to y'all. And I think what happens is that we feel the unknown
Starting point is 00:29:02 with so much fear, like the worst case scenario, fire and brimstone and howl and you know, she's going to be terrible, terrible, terrible. And it's like, well, what if, what if it was like the best thing you experienced while you're living for all of eternity? What if that was the thing? It doesn't have to be awful. We can fill it with anything we want. Yet we choose the things that don't serve us. We choose the pain. We choose the horror of it all. What if it's actually really joyful to watch a kid's grow up from the other side? I don't know.
Starting point is 00:29:32 What if there is no other side? I don't know. What if you get to be more intimately connected with the people that you love when you're dead? I don't know. I don't know. We know this. We know life.
Starting point is 00:29:43 And so we want to hang on to it because it's known. The unknown is a thing that rocks us. What is the most comforting? Not in their last stages of life. Do you ever hear something that someone says that makes you feel comforted? It's so individualized that what I've noticed consistently is that the people that have come up with something that feels good for them and can rest in it are the most comforted. The people that are still unsure, unclear, being like, well, I don't know. It's the people that have some clarity for themselves. That clarity looks different.
Starting point is 00:30:28 One woman I remember was really excited about the idea of joining a giant eye in the sky. That was not comforting to me at all. I was like, so you mean it's just looking at us? I was like, where? Oh, God, no, please, no. No. But that comforted her.
Starting point is 00:30:44 I was down. Not for me. Not for me. No, please, no, no. But that comforted her, I was down. Not for me, not for me. So whatever feels best for the individual is the thing that once they settle upon it and something part of our work is sometimes to help people talk through their beliefs so that they can get some clarity for themselves. But it's kind of scary.
Starting point is 00:31:03 We all have these beliefs, but beliefs are untested. Yes. They're untested. And then you're about to find out real quick. You get to get to evidence for that thing that you believe real quick. Yeah. And it's terrifying.
Starting point is 00:31:16 Do you have a belief that helps you? I have something I'm playing with just because it's kind of fun at the idea of this glitter wave. So at the moment of my death, I'm playing with just because it's kind of fun. At the idea of this glitter wave, so at the moment of my death, I'm there, they've clapped, and I can feel every feeling I've ever felt in my life before, like all of them, the grief and the sorrow and the pain, but also like the joy, and that one orange I ate that one time,
Starting point is 00:31:38 and the sun on my skin, when I was in Venezuela, and that like one really incredible orgasm, all the things at the same time. And I just explode because I cannot take it anymore. The human in me is just like, we're done. I explode into all this glitter everywhere. And the glitter goes up. This is biodegradable.
Starting point is 00:31:56 I do it. It's good for the earth glitter. Okay. Good for the earth. The glitter goes everywhere. And then it slowly settles down. And I, I think the eye that watches, the observer, the ill or Arthur that is not tied to my experiences
Starting point is 00:32:10 and my human body, is watching it all come down and also feeling really joyful that every little bit of human expression, every little bit of human I let myself lean into is now settled onto this big, huge glitter wave that just coast for all of eternity. Could that not be pretty rad? Just something she's working with y'all just something.
Starting point is 00:32:30 Yeah, just a. Wow. Theory. A theory. Wow. That's really cool. That's so beautiful. It could be cool.
Starting point is 00:32:38 And it joins like all the other human expressions all of her time. That could be rad. Mm-hmm. But we'll see. I'm curious to know how you personally deal because we talk about the lack of compassion maybe in the medical industry. And I do think that a lot of nurses and doctors have to kind of steal themselves to insulate them from that dying or death reality. How do you deal with it? Because I feel like you've seen compassionate
Starting point is 00:33:08 to those that are dying. What is your process? And joyful. Yeah. You're so consistently joyful. So what is it that keeps that for you? I love life. I love life.
Starting point is 00:33:21 I love all the bits and pieces of it. I don't steal myself. You know, I want to feel all the things, but I feel the things. I also let them move through me. I don't hold on to them. It's hard because I fall in love with my clients all the time. I fall in love with, I love humans. Like we're so weird. Like this whole thing is so weird. And I love it. I love it. And it allows me, I think, to be able to get into all of my edges of the sorrow and the pain and the grief, but recognize that it's just another part of the experience. It does not define me. I won't always be sad.
Starting point is 00:33:53 You know, I won't always be grieving. And so you let it come in. I think you let it move through. And then you move on to what's next. Great space for what's new. Yeah, I don't think I'd be effective at my job if I steal myself. Nobody wants that. They want somebody who feels things. I also want to feel things.
Starting point is 00:34:12 I'm human. I'm human. I think what I'm doing here is I'm feeling it. I'm doing the right. I was reading everything I could about you and listening to everything I could about you in your work last week when I was on vacation with my family. And I was in the hotel working and they were at the beach and I came across a talk you gave about your deathbed test. Yeah. And I listened to it. And then I listened to it again. And then I
Starting point is 00:34:49 closed my computer and I walked to the beach and I spent the rest of the day splashing around with my family. And I want to thank you for that. And I am wondering if you would be willing to share that deathbed test with our listeners, because it meant a lot to me that day, for sure. Yeah, sure. So often when making decisions, I try to put myself on my deathbed and consider whether or not I be happy I did it,
Starting point is 00:35:22 sad I didn't or will it even matter? Is this thing that I'm doing? How important is it to me on my deathbed? Future cast way to the end. It helps for a lot of things. Like a breakup, for example. On my deathbed, will I be happy when you broke up? Will I be sad I didn't do it?
Starting point is 00:35:41 Or will it even matter? If it doesn't matter, go ahead and break up, girl. Go ahead and break up. Break up. If it will I didn't do it. Or will it even matter? If it doesn't matter, go ahead and break up, girl. Go ahead and break up. Break up. If it will matter, probably do it sooner, you know? And if it won't, you know what I mean? It's just a stark way.
Starting point is 00:35:54 There's various versions of it that people use in psychology. They use future cast, maybe five days, five months, five years or something. I, as always, like to push it all the way to the extreme and go straight to death. Yeah. Why not? Oh, this matter on always, like to push it all the way to the extreme and go straight to death. Why not? Oh, this matter on my, why not?
Starting point is 00:36:08 Why not? Well, this matter on my death that, will this day matter? Will I remember these little things? If it won't matter, then why not enjoy it for what it is right now? Or shut it up and move on. Do something else. Love it. Let's go back to the main, one of the main reasons that people are afraid to die, which your work has had the three of us talking about this ceaselessly, which is just something
Starting point is 00:36:46 that sounds obvious, but is at the crux of everything, which is, oh, once I die, my chance to live is over. Yeah. The regret of all the things you didn't do, you said, being around death has made me more honest. I see that what we don't say chokes us as we die. So fear of death is kind of like about fear of future regret. It's like the moment times up and the chance is over to ever have done things differently. Which is why the core question of your work is so
Starting point is 00:37:25 which is why the core question of your work is so amazing. It's why all of your death work is really about life. It's what must I do to be at peace with myself? So I may live presently and die gracefully. So can you just tell us real quick, what must we do? Real quick. What? Real quick. Just what's the thing that we must do?
Starting point is 00:37:46 Yeah. So what's the theme at least for you that you find? Well, I want to start off by saying that the question is mandatory. It's what must I do. Not what are things that be really nice to do. Yeah, really like to go to Machu Picchu, but like what must I do so that I may live presently? One of the fears of death, as you were saying, I really liked to go to Machu Picchu, but like what must I do so that I may live presently?
Starting point is 00:38:06 One of the fears of death, as you were saying, is a fear of a life not fully lived. All the things that we didn't get to do, all the things that we wanted to, and maybe we're too afraid or too shy, or not worthy enough, or we thought we were too sad or too tall, or whatever, all the lies that we tell ourselves.
Starting point is 00:38:22 So stepping outside of those things, if I knew similar to a deathbed test that tomorrow would be my last day, what choice would I make? Who would I be? And it would certainly make me more honest. I would tell somebody how I felt about them. I would make choices out of my pure self-enticity.
Starting point is 00:38:41 I'd eat a lot more cake, probably, you know, who cares? One of the things about doing death work is I'm heavier as a result. I mean, a heavier body. Like I was so concerned with my weight before. And now I'm like, who cares? Like let all this extra thigh to love. And also the worms are gonna have a field day
Starting point is 00:38:57 when I die with him be so happy. I ate that cake. They were gonna have that cake. More glitter, glitter. More glitter. tsunami wave more glitter. What a glitter. So not me wave of glitter. Because of these five, because of that kick. It makes me more honest consistently.
Starting point is 00:39:13 So when we think about what must I do, what must I do, what is your must, like what must you do so that you may live presently and also digressfully. I right now I'm working on a book. I must get this book finished. I must. I must. It's my biggest must right now. And it's something that I'm like,
Starting point is 00:39:31 you know, so close to enriching for and it still tickles at me because I'm like, if this were at the book, it's downless, we're going to book. Let's work on the book. It tickles on me. It's so good. What is tickling on you even when you're doing other things?
Starting point is 00:39:49 You're putting all of this wisdom that has been in every interview and that you learned through your work into a book right now. I did not know that. That's amazing. I'm doing my best. That's for sure. But it's hard. It's hard. You read a few of them. Yeah. Yeah. And every time I write when I keep a little note on my desk, it's a quote from Cheryl Stray that says, what writing a book feels like is that you definitely can't write a book. That's what it feels like. Thank you. The whole way through.
Starting point is 00:40:12 Okay. Like it's a new. Never gonna happen ever. And it's a hundred percent for sure, not gonna work. That's the whole way. Thank you. Yeah, that's why I am today. That's why I am today.
Starting point is 00:40:23 Yeah, thank you. That's why I am today. So what do you am today. Yeah, yeah, thank you. That's why I am today. So what do you feel like people would be surprised to know about death? That it could be beautiful. That you could watch the life leave somebody that you love and feel not joy that they're dead, but feel joyful that they have completed this element that you could feel joy that
Starting point is 00:40:50 they are at peace. I think you feel joyful at the way that they did it about the time that you got with them about the intimacy that you shared. And what are some practical things that people should do because part of your job as a death doula is to help people envision and also plant, do the actual things that people need to do to be ready and not make things extremely confusing for their families. So what are, what, what do people need to do that are simple things that are details that wouldn't help people be prepared? So many of them. One of the most
Starting point is 00:41:32 important things is to remember that at some point you might not be capable of making your decisions for yourself anymore and so designate somebody who can and communicate with them about what it is that you want. Tell them your ideal if you can. If you can humble yourself enough to say this is how I want to die. Tell them what you envision. Pick somebody who is trustworthy, who's going to make decisions the way that you would, who is going to be censored and grounded enough to be able to carry it out when the time comes. And it doesn't necessarily have to be somebody that you grounded enough to be able to carry it out when the time comes. And it doesn't necessarily have to be somebody that you're related to.
Starting point is 00:42:07 So important to at least have that conversation with somebody. Then beyond that, what do you want done with your body? What do you want done with your body? What do you want done with your body? It's yours after all. Think about your burial options, cremation options, aquamation, natural organic reduction, also known as recompose. There's so many options now, so look into them.
Starting point is 00:42:29 Think about what you want done with your service if you want one at all. And then there's a whole bunch of options, do you want an autopsy, do you want a viewing, do you want a visitation, what do you want to wear, do you want people to look at you like all that stuff? Also consider what you want done with your possessions. People know that you should get a will of some sort, but what about your sentimental things?
Starting point is 00:42:48 I don't have much monetary value, you know, the things that I wear these bracelets every day, like they're not worth five dollars, but like, what are we going to do with them? You said you're going to lay them all out, right? And people get to hang them. They're all my jewelry. All my jewelry is decorating my funeral and people need to wear and take it away because I don't know what they're pounds and mountains of jewelry. So people can wear and walk away with it. So what do you want done with your possessions? How was somebody going to interact with them when you're gone? And also, what's the story behind some of these possessions? I found a crystal and Peter's backpack and I kept it. And when I die, it's just going to look like a rock to somebody. But to me, it's Peter's crystal. I don't know Peter's story behind it where he picks it
Starting point is 00:43:29 up from, but it'd be great if that continuity was present. People also need to think about their dependence and their pets, like who's going to care for your children? Are there future hopes and wishes that you have for them? Is there nicknames that you should know about, things like that? How do you want the people that you care for to be cared for after your death? And also gather all of your important biographical information, or your details, but your documents in a place. Let somebody know, come unicate, all you're in this. But most importantly, most importantly, get really real with yourself about what you are doing
Starting point is 00:44:05 with yourself here. I don't mean a big life purpose or meaning, but I'm talking about the little things I bring you joy. Like popping the little seeds and the lemon poppy muffin. You feel like when you just crunch it, you're like, yeah, I got it. Yeah. That's good enough for me.
Starting point is 00:44:21 That's good enough for me. When you're first. Yes. You're puffs. you're like, yes. Yeah, it doesn't have to be a big meaning. It doesn't have to be a purpose. It could just be that, you know. And Lua that just made me think of my grandmother
Starting point is 00:44:36 who loved herself a tomato sandwich. Okay. She would, like a big, thick slice of home grown tomato on white bread with a lot of mayo and salt and pepper. And that was her jam. And then in the weeks leading up to her death, all seven of her children surrounding her, they're there to give her anything comfort. Does she want to share confidence is anything. And she wasn't talking much or eating much at all. And then one day she sat up and she said, I wanted tomato sandwich. And that I think that's the first time that I was like, oh, I get what death is.
Starting point is 00:45:21 It's going to be a time where you can no longer have and taste a tomato sandwich. There are a finite number of tomato sandwiches in this round. And that maybe it's those things that we can taste and touch and see and feel that are going to be the things that we're coveting most at the end. Bingo. Yeah. Yep. Yep. The experiences of being human, being in these bodies, using
Starting point is 00:45:55 the senses, being able to use the senses, all that goes away when we die, you know, smell, touch, taste, sight, even are the feeling of our bodies in space all those things go with when we die And so while we're here why not as much of it as possible the things that feed us that feel good That's what we're doing like I can touch things I can hear my knees laugh I can make out I can dance I can squat I can drop it low Well, not so much anymore. I need to do not support aging is not easy.
Starting point is 00:46:26 Jump it low, and some help back up. But if we can use these bodies, enjoy the experience of being human as best as possible. I think that's what makes us feel like we've lived a life that we can die from. Lived a life we can die from. I have a question. Because I have, I think, probably an unrealistic level of anxiety around death, I grew up in the
Starting point is 00:46:54 Catholic church. What would you say to somebody in my shoes that is just really scared about what could come next? You see a lot of people in their final moments. Should I be scared? I just need you to tell me. I just... Well, if you just need to be telling you something, I'm gonna tell you no. And, but more than anything, I'm gonna try to figure out what it is that you're afraid of.
Starting point is 00:47:19 I think because there's so much of that fear of hell, I don't even know what I believe in. And probably that's the bigger situation. Like the, I don't have an idea of what is next. And to be fair to you, you were told that you were going down. Right. As a gay person in the catapult.
Starting point is 00:47:40 Like literally. Right. I'm trying to reframe that. And so maybe that's the work I need to do is to try to reframe what the next is in my mind. First, and maybe engineer it that way, I'm just scared of nothingness. I've done a lot of things.
Starting point is 00:47:59 I don't think that I'm gonna feel regret at the end. I just don't know what's next. And she's the most fomo person on earth. So she gets annoyed if someone's talking about something in the kitchen and she's not there. So death is kind of like to her the ultimate fomo. It just always gives me like, I think of it once or twice a day.
Starting point is 00:48:20 And every single time I think of it, I get a pit in my stomach. And I'm like, nope, can't touch it. No, uh-uh. So what do you say to folks like this one? Well, I was smiling as you were talking because you worked yourself into it. It's so important for us to think about, hey, what we do believe, but be what we were given. So many of these fears of death aren't our own.
Starting point is 00:48:42 They're things that somebody told us about what we should fear. And so if we can get to the root of what we were told, who told it to us and why they told us? What was that they were trying to control or give when they told us that thing? And some it's totally honest. Parents give it to you because I think it's gonna help or what they're doing in fact,
Starting point is 00:48:58 it's giving us this incredible fear. Or the church gives it for a whole bunch of other reasons. I told you, I'm not touching that one. But think about who gave it to you and why, like what was underneath it, so that when we are able to uproot it, then we can implant something else that works better, something that serves. So, FOMO doesn't serve necessarily,
Starting point is 00:49:18 missing out on something that doesn't serve. Nothingness also doesn't serve. What would serve? What would feel good? What would you like? What could be a fun way to spend all of eternity if there is one at all? What are the little elements of being alive
Starting point is 00:49:36 that you're like, yeah, I really rock with this that you can forward into what death might be like? I know this is gonna sound pretty wild, but I love pranking and scaring people. And so I think that if I were a ghost, oh my God. That would make me really happy. And like I'd flicker the lights on you.
Starting point is 00:49:59 Yeah, it's health for me. So you once again want to recreate heaven for you and hell for me on earth. Yeah. As it is in heaven. I just think that- Have you ever heard this in all of your years? for me. So you once again want to recreate heaven for you and help for me on earth. As it isn't happened. I just think that you have ever heard this in all of your years, in all of your ghosts, so many deaths. I just want to stick around and just kind of, because I believe that there, I believe in that. I believe that there is different dimensions of space and time and people and ghosts and energies and spirits live amongst us all. I think nothingness is like probably the greater fear, but in the end, sticking around and just messing with our kids for the rest of their life and their kids.
Starting point is 00:50:41 That sounds like love. Sounds like fun. Yeah, you go for it. Let's go. Go for it. I'm so down. I mean, leave me alone. I'm so down for everybody else. You leave me out of it, okay? Yeah.
Starting point is 00:50:55 But I'm down. Yeah. If that serves, if it feels like exciting, right? Is that a possibility? Could that be what I do? Yeah. I like goes. What if ghosts is what I did?
Starting point is 00:51:04 Then stick with that one. It doesn't have to be nothingness. It doesn't have to be hell. No. We've none of us know. Right. And since none of us know, then everything is equally possible. Possibly.
Starting point is 00:51:19 That's everything. Nothing is off the table. Even things that are outside the confines of these bodies as we understand them. Because we're going to be outside the confines of these bodies as we understand them, because we're going to be outside the confines of this body, anything is possible. Even the things that sound wild. Sure. Yeah.
Starting point is 00:51:32 Yeah, unicorns flying through the sky for all of eternity. Whenever feels good. Or just, I think of it as back to the ocean. If we were born, we were scooped up with cups. Like little cup our bodies, like how we scooped up, we're having this experience. And then when we die, we just get out back out of the cup, toss back into the ocean.
Starting point is 00:51:49 So we're still us, but with us, like you said before, Elo, the you that is you inside the observer that is observing this experience, you're having in your body and your emotions in your mind, not that one, the one behind it. Right. Yeah. The big guy. Not the big guy in the sky, but the one that is aware of all of these things that's going on, the one that continues to exist even when I go to sleep, and I, a little Arthur, don't have a conscious recollection of, but it is still always present.
Starting point is 00:52:18 Yeah. Yeah. So good. Maybe that thing does some cool things after we die. I have no idea. We're about to find out. Yeah. Not too. So good. So good. So good. So good. So good.
Starting point is 00:52:26 So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good. So good.�. �. �. �.�. �.�.�.
Starting point is 00:52:30 �.�.�. �.�.�. �.�.�.�.�. First of all, everyone should follow Alua on Instagram. I feel that your work helps me live more alive, whatever that is a terrible sentence. It wakes me up. It's about death, but it's more about life to me. And I just think that you're just really, really special teacher.
Starting point is 00:53:01 So do that. And then I just wanted to read this one. You said, being around death has made me more honest. I see that what we don't say chokes us as we die. People always think they have more time. And when they realize that they don't, they have regrets about things they haven't done. I try to do what I feel like doing right now. And if that means eating white cheddar cheetos for breakfast, I will. Which is what I did this morning. I won't always be able to taste delicious things. So let me do it now. Oh, yes. So our next right thing today is to just eat your tomato sandwich.
Starting point is 00:53:40 Yes. Or white cheddar cheetos. your or kiss your little poppy seeds. Yeah. Do it today. Let me do it now. Let the soft animal of your body love what it loves. Touch what it touches. I love it. I love it. I also love your exercise of looking in the mirror, Aelua, and just looking at your face, you said, and saying, I'm going to die. I'm going to die. I'm going to die. Putting it right front and center makes it less fearful. It's just a, it's beautiful.
Starting point is 00:54:19 That scares me. Be confronting. Yeah, it can be very confronting. And also, I think sometimes I help people get in touch with the observer because when you look in your eye deep into your eye, then you can see that thing, that is outside of that thing, that is outside of my experiences. And when I say, I'm going to die, which I am I referring to. Yes. Yeah. Yes. No.
Starting point is 00:54:43 Shit. OK. Alrighty, Louis. Is that in the sky? No, Louis. That's not me. No, no. I have private time in my bed.
Starting point is 00:54:54 I do not want that thing watching me. I have private time in my bed. Also do that now and today, all right? Yeah, yeah, yeah. My life's tired. don't forget this week. We can do other things. We love pleasure. Bye.
Starting point is 00:55:10 Thank you so much. We'll see you next time, everyone. I give you Tish Melton and Brandy Carlisle. I walked through a fire I came out the other side I chased, desire, I made sure I got one's money And I continue to believe That I'm the one for me And because I'm mine, I walk the line Cause we're adventurous and hard-wrapped
Starting point is 00:56:05 So man, a final destination You're glad we stopped asking directions Some places they've never been And to be loved we need to be known We'll finally find our way back home Through the joy and pain That our life's spring We can do a heartache You are me
Starting point is 00:56:51 I hit rock bottom, it felt like a brand new star I'm not the problem sometimes things fall apart And I continue to believe the best people are free And it took some time, but I'm finally fine Cause we're adventurous and heartbreak So man, a final destination with that We stopped asking directions Some places they've never been And to be loved we need to be known
Starting point is 00:57:55 But finally find a way back home And through the joy and pain That our lives bring, we can do a hard thing. This is a great place to be. This is a great place to be. This is a great place to be. This is a great place to be. This is a great place to be. This is a great place to be. This is a great place to be. Stopped asking directions
Starting point is 00:58:45 Some places may have never been And to be loved we need to be loved We'll finally find our way back home And through the joy and pain That our lives bring, we can do hard things. Yeah, we can do hard things. Yeah, we can do hard things, is produced in partnership with Cadence 13 Studios. Be sure to rate, review, and follow the show on Apple Podcasts, Odyssey, or wherever
Starting point is 00:59:36 you get your podcasts, especially be sure to rate and review the podcast if you really liked it. If you didn't, don't worry about it. It's fine.

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