We Can Do Hard Things with Glennon Doyle - How to Love Your Body Now with Carson Tueller
Episode Date: July 28, 20221. The question Carson’s sister asked that made him radically reimagine his life.  2. Why Carson is having the best sex of his life. 3. How Carson received sign-off from his Mormon Bishop for his... first queer date.  4. The accident that left Carson paralyzed from the chest down at 23. 5. How ableism hurts us all.  About Carson: Carson Tueller is a coach, speaker and activist whose work provides people with the tools they need to live authentic, fulfilling, and powerful lives. He identifies as queer and disabled. Carson grew up as a Mormon in a military family moving around a lot before settling in Utah. His own journey into powerful living began in 2013 when, in the same year, he came out, and was then injured in an accident that paralyzed him from the chest down. Since then, Carson has brought his work to international nonprofits and presidential campaigns – and when he isn’t coaching or speaking, Carson can be found at the gym, reading non-fiction, or playing Pokemon with his niece and nephews. TW: @carson_tueller IG: @carson_tueller #disabilitypride #disabilitypridemonth To learn more about listener data and our privacy practices visit: https://www.audacyinc.com/privacy-policy Learn more about your ad choices. Visit https://podcastchoices.com/adchoices
Transcript
Discussion (0)
Whether you're doing a dance to your favorite artist in the office parking lot,
or being guided into Warrior I in the break room before your shift,
whether you're running on your Peloton tread at your mom's house while she watches the baby,
or counting your breaths on the subway.
Peloton is for all of us, wherever we are whenever we need it, download the free Peloton app today.
Peloton app available through free tier, or pay subscription starting at 12.99 per month.
To be loved, we need to be known.
Well, hello, welcome to We Can Do Hard Things.
Okay, listen. Here's the thing that's important to us about this pod, that you may have picked up. I'm sure you did.
So we didn't introduce you to a loak several episodes ago so that you could learn to be an ally to trans or non-binary folks.
We introduced you to a loak because since a loak has done the work to free themselves from the gender binary, a loke can teach us how to free ourselves from the cage of the gender
binary that every single one of us is in.
In that vein, what does in that vein mean?
Who knows?
In that vein, we are introducing you to Carson Toulier today.
We are not introducing Carson, so we can learn how to be
allies to disabled and or queer people. Not just for that, okay. We are introducing Carson to the
pod squad because since Carson has done the work to know in his soul that his body is complete and
whole exactly the way it is, he is able to share that good news of
body freedom with all of us, with every last one of us, who are caged by the
lie that our bodies are not good enough. As Carson says, talking about
disability is talking about the nature of human bodies. So it includes everyone.
Yay!
Yay!
Yay!
OK, Carson Tuller is a coach, speaker, and activist,
whose work provides people with the tools
they need to live authentic, fulfilling,
and powerful lives.
He identifies as queer and disabled.
Carson grew up as a Mormon in a military family
moving around a lot before settling in Utah.
His own journey into powerful living
began in 2013, when in the same year, he came out
and then was injured in an accident
that paralyzed him from the chest down.
Since then, Carson has brought his work
to international nonprofits and presidential
campaigns. When he isn't coaching or speaking Carson can be found at the gym reading nonfiction
or playing Pokemon with his niece and nephews. First of all, it's July happy disability pride
month. Yes. Thank you. Isn't that so exciting that that's a thing?
Yeah, it's, yeah,
you're terribly exciting.
It's terribly exciting and important.
Can I just preface by saying how grateful I am to be here,
A, and two, also I need to clear that like,
maybe I'm gonna just be emotional a lot through this.
I was like prepping and I was already just like,
oh, just like moved by what Glenn
instead of the top, right?
This is about freedom.
Mm-hmm.
Yeah.
It's freedom.
It's like freedom to be with one's actual self.
And so when I was like prepping,
you know, I go back to places in my past where
that wasn't available and how much suffering was there.
And so I'm just like really in the presence of that
and I just wanna say that before I start.
So thanks for letting me just be me with you.
Carson, what is that like for you
when you said that it made me think of having to go back
all the time?
Like I feel like I'm in this good place
and I'm finally free in many ways,
and I'm happy, and then I go back.
And it's very like going back into a haunted house
over and over again.
Like, do you feel as free when you come out
of the backward trauma to prepare for things
as you did before you went in?
It's a really good question.
I, okay, so the truth is that I am in and out of
the haunted house of my, of body stuff, really frequently. I think that's kind of why I
feel rock coming into this is because like I was in the haunted house for two weeks, two
weeks ago. Mm. Mm.
Okay.
I had some health disruptions and that always brings up the whole, like, what if this
would have happened, what if I never would have been paralyzed, what if I didn't have chronic
pain, what if I could just drive to my friend's house and go inside for a hangout?
All these little things where there's like grief and anger.
So I think I just have tried to develop the freedom to just be like,
I'm going to go to the haunted house and then I'm going to be in like the pretty castle of
whole, whole and completeness or whatever it is.
I just kind of go in and out of that actually.
That is so freeing to me to hear that.
Because sometimes we can feel like when we go back into the haunted house,
that that's failure or backward motion
But what you're saying is life is just this eternity loop
Back and forth from the haunted house to the castle
I know and I so badly want to tell everybody in all the listeners. No, no, you can leave
The haunted house forever
That's just not my experience and so if someone has like that trick
me a DM We wouldn't have them a DM, we wouldn't have them on
Carson because we wouldn't believe them. So I have like, I just have like multiple residents,
I guess, in that space. But there is a freedom about just knowing that when I'm in that space,
I know how to leave. And sometimes it takes time and sometimes I just have to let my
I know how to leave. And sometimes it takes time
and sometimes I just have to let my physiology chill out,
cool down,
because I get spooked.
And then just I'll use my way back into it.
So I have a strategy for doing that,
talking to people and writing and all the things.
Do you think that the fact that you so freely
and often go back into the haunted house
or go back to that feeling of not feeling good enough or not or magical thinking what if not this what if not this.
That's why people love you so much because so many people only show us the after and then they talk to us about their old self who struggled. The struggling self is never present, so we can't relate. We can't feel less alone.
But your struggling self allows itself to be seen sometimes and that makes us all feel connected to you.
So thank you.
That means so much to me.
So I had a friend when I became injured, when I broke my neck, spoiler.
That was doing all the updates for my family. spoiler
Was doing all the updates for my family. So my family wasn't bombarded with
Keeping people up to date. So we started a blog, but there came a point where I was like well
I have something to say about this. I'd like to share something and
There's this pivotal moment of me going like am I gonna really say all of it in this hospital about to like bring in everybody into what it feels like to not know who I am anymore,
to wonder if I can do this the most human raw things.
There was a moment of like, yes, and here we go.
And once I do this, there's no going back.
This is going to be my thing that I give to the world is to say,
this is what's up.
I have such an aversion to hearing like that.
I beat it story.
That's why I think when anyone calls me a motivational speaker,
I'm like, hmm, I'm not.
I'm just going to like tell you the truth.
And for me, that means learning how
to live a powerful self-express life
Inside of a lot of suffering and then set of a lot of joy
But that I get to choose who to be whether I'm in the castle or the haunted house. I get to kind of choose how to show up
That's really what I care about because I think that's real life
It's beautiful.
Okay, we're going back.
We're starting when you're a little queer Mormon kid.
Cause that's a super easy place to be, I imagine,
being a queer Mormon kid.
Oh,
oh, oh, oh, oh, oh, oh,
oh,
oh, oh, oh, oh,
oh, oh,
oh, oh, oh, oh, oh, oh,
oh, oh, oh,
oh,
oh, oh, oh, oh, oh, oh,
oh, oh,
oh, oh, oh, oh, oh, oh, oh, oh, oh, oh, oh, oh, oh, oh, oh, oh, oh, oh, oh, oh, I'm not sure what that is, but you come out to your sweet parents who I'm sure were then put in an equally easy place.
What you're talking about at the castle in the haunted house reminds me of the story where you were trying so desperately to figure out you're in the place in the Mormon faith where you had to choose either. Okay, so be a gay man. And if you do that, you will be disconnected
from your entire family and community,
not only in this life, but in for all eternity.
So you had to decide that was your decision to make it.
So you were grappling with that.
And tell us about that time, that period,
where you were going to church, kind of doing your inventories
and trying to like smell the devil out
because that reminds me of the castle and the house
where you were navigating all of that.
I kind of told my parents in high school
sat them down and was like,
I'm watching all the other boys love girls
and that's just not my experience.
I don't know what's happening.
I don't know if I'm a late bloomer.
At that point, I wasn't like,
and I'm attracted to men.
So I just like left it there, put it on the table.
And then they're like, okay,
we'll see how things go after your mission.
I went to Chile for two years,
served a mission that was great
because I was still in this like suspended reality
where my sexuality actually didn't matter so much
until it was time to get married because that's the
path.
Come home from the mission, you get married in the temple and that's like the next step.
So that's when I couldn't be me and stay on the path.
It started by just actually saying, I think this is a part of who I, these are my words
that I think this is like a for real part of who I am and not some face or some feeling or tendency or whatever we wanted to call
it back then. I think this is actually a like kind of written
into who I am. So that's when it started. But then the twist
was I was like, I'm gay, but I'm not going to be gay.
You know, like I'm going to be like. You know what I'm gonna be? Turn it up like a lot.
Great switch.
Great news.
I'm actually not gonna be gay.
I'm just gonna feel gay.
Right.
So good.
So good.
This was my way of being authentic, but also getting to be with my family in the next life,
which is like always the big thing. It's kind of like this really special part of being Mormon is
like this idea of an eternal family. That happens under very specific conditions. And so we like
sing songs about eternal families and living together forever, and which is complicated for
several reasons, including like if you don't like your family.
Yeah, that could be hell.
Is the Kevin or Hell person. Exactly.
The castle or the haunted house.
Right. What is this really? So sat them down was like, okay, I'm gay and my plan,
but I said homosexual at the time. I'm homosexual. I'm homosexual, whatever.
homosexual at the time. I'm homosexual, homosexual, whatever. And I'm going to stay a member of the church. And I think I'm gonna try to marry a woman because I think I could probably
pull that off. What happened was you said I'm smell out the devil, I think is the phrase
used like this, such a great way to describe that because I was like,
okay, I'm gonna do this thing.
I'm obeying God's commandments.
You should know contextually that I was like
a really good Mormon.
I was not a Mormon 4.5.
I was like in it to win.
It made its way into every single part of my life
as I chose to be alone and started
considering that I would have a life without a family, possibly because after a while,
that whole idea of marrying a woman just didn't seem sustainable or helpful or anything
that I wanted, I was like, okay, I guess I'm going to just kind of self-aluminate from
the dating pool and from any kind of romantic relationships or sexuality like all of this and things started to get really dark
It was confused because I have learned from the scriptures that
When you are on the right path that you reap the benefits like the fruits of the spirit Galatians 5 right?
That's right Galatians 5 yes long suffering
Right, but I'm not I'm not feeling any of this so like some things up Peace. Yes. Long suffering. Right?
But I'm not feeling any of this.
So like, something's up.
And so I started very, very slowly
introducing some new experiences and ideas.
I even went to my bishop and I was like,
look, I'm telling you, I'm gonna go on a date with a dude.
We're not gonna do anything that would disqualify me from any of God's blessings.
And I'm going to feel it out.
So I went on a date and I come back to church.
God bless you.
You got your bishops blessing and permission before your date.
Oh my God.
I kind of told him to be fair.
I was like, what you're going to do about it
because I'm not really breaking any rules.
That's right.
I'm just saying.
I found the Mormon loophole and I am rushing through it.
It's exactly so.
Then I went to church and I sat there and I was like,
this is good.
I feel bigger, like more expanded.
The lights turned back on.
And then I went on another day.
I had my first kiss, right?
Like all of these things.
And then it was just like my life lit up
and expanded in all of those fruits of like goodness.
And all of the things you look for showed up.
Yeah.
And it was in direct contradiction.
People were predicting, I would, you know,
like I'm creeping into the chapel
after having
good with a man. And none of that happened. Like, I was more like Jesus than ever. You're
like Galatians. Galatians.
Yeah.
Yeah.
It was very deliberate. It was very deliberate and just like peace by peace by peace to make
sure, like, yeah, this is right. Beautiful. Beautiful.
And then I told my parents and they were good. I don't ever remember how them like shaming me or, or, you know,
they were just kind of like wanted me to be careful and cautious and thoughtful
about my decisions.
And then they had to grapple with having an actual gaze and not just one in theory.
And, you know, and then they did that.
Did they remain in the Mormon church?
I'm always so interested in that
when you have a situation like that
and your family remains part of an institution
that does not believe in you.
Does that feel like a conditional acceptance of you
or is it like each of you are radically accepting the other?
Let's both. At first it felt like betrayal. I never thought I thought I wouldn't talk to my parents again for a period of time. I was angry like slamming fists on the table fighting,
especially there was a policy that came out. We called it the exclusion policy. It's now been
rescinded, but it specifically targeted queer families inside of the church.
When that came out, it was like when I had some serious huge blobs. Now, this was all very
complicated because I was like mom, dad, and gay, and I actually be gay. And then I broke my neck.
And then my parents were literally keeping me alive
through this entire period of time.
So there was kind of like this forced exposure,
which made things like very complicated.
I'm Jonathan Menevar.
I'm a podcast producer and someone who likes fancy things.
I'm Jonathan M. Hevar. I'm a podcast producer and someone who likes fancy things.
But I grew up working class.
My parents were immigrants with factory jobs.
And because of that, I think about class a lot.
And I want to talk about it.
That's what we're doing on my new podcast, Classy.
And what did you all eat? You know, trailer food.
I was like, girl, we're not doing that anymore.
You'll hear from people who told me awkward, embarrassing,
and strangely intimate things about what class means to them.
She said, you know, for the house cleaner,
I hide the tag on the $6 bread.
And I just thought, don't you think she knows
that you're wealthy?
You're hiding the tags from yourself.
Classy, a new podcast from Pineapple Street Studios.
Available now, wherever you get your podcasts.
podcast. Tell us about that time.
So you've been living out your gay-lation self for six months, feeling like the fruits
were there, and then what happens?
And then I was December 30th. I had just decided that I was going to leave my pre-med studies and just focus specifically
on flute performance because that's why I was studying.
And five days after, Christmas, my family decided to go to a trampoline park because I loved
trampoline parks and I had tumbled all growing up but I'm 65 and so now I like I can't pull the same things on the floor so I love to trampoline.
So we went and got my wristband and like ran straight to the tumble track.
It was just my favorite part of the park and I bounced on it and got my bearings and
went to the end of the pit and bounced in and my plan
was to pull a like a tight triple front tuck because you could just, just, just,
to the pit. And I did, but I like sailed through the pit,
passed the foam and then into the trampoline at the bottom where I hit ground.
And I hit the back of my head and I heard like a little, like a little pop.
It wasn't that painful actually. Um, it felt like a tweak.
That was the most powerful tweak of all time. It was a little tweak and um, and then I tried to
move and just jump out of the pit and it was like nothing. It was just
silence. It was like I'd been unplugged like the vacuum, you know, like you're flipping the
switch and it's just not happening. And I eventually realized I could kind of move an arm. And so I
put one of my arms up because my family had watched me tumble into the pit.
up because my family had watched me tumble into the pit. And so put my arm out. My dad came into the pit and I said, Dad, I think I'm paralyzed. And he said, I know. And then all he said
after that was like my boy, my boy, and I was actually trying to console him. In the eyes like, dad, it's gonna be okay. Mom.
We're gonna see how this goes.
I had a very poignant moment actually in that pit
that I think is worth mentioning,
that I don't share often.
And that is that when I realized I couldn't move,
I was like,
this is the thing.
This is the thing you see in movies.
This is that word, like, paralyzed,
the worst thing that can happen to anyone. Like, we've all heard about it, right? What
if that's this? Is this forever? Is that, you know, there's just like this panicky thing.
And then it was like something like intercepted. And I had this like very clear thought that
was, I have people who love me, I have people I love,
and that's all I need.
And then, there was nothing but peace after that,
for a very, very long time.
Until I came home and started reintegrating myself,
but it was a very peaceful situation
because I felt just immediately like, okay,
it's about love and I don't need my legs to laugh.
And so they got me on the helicopter, put me on the stretcher, set me out, and I went and got
two spinal fusions and thus began my journey as a disabled person.
So for a long time, you called that day your death day.
So I imagine the peace that you had, that peace that we, we Bible people call the transcending,
I'll understand that peace that came to you from the GOD, that past, and then things
got very, very hard.
And you actually referred to that as your death day
for a long time and then your sister
said something to you on June 16th, 2018,
that changed things.
What was that that your sister said to you?
We went on like a little brother sister date
to get pretzel bites at the strip mall.
She's 13, right? Your sister's 13 at this time. She's your sister. I strip mall. She's 13, right?
Your sister's 13 at this time. She's 13.
Yeah.
Yes.
Yeah.
And we come home.
And I can't remember why I referred to the day of my accident.
And I called it the day of my death, dark humor jokingly,
to a list of a response.
And she said, what if we call that the day of your rebirth?
I just like, no, we can't call it that,
but as I drove home,
like it stuck with me.
I was like, well, who's to say, am I right?
Is Kate right?
And over the course of like three hours, I literally had this powerful paradigm shift that ended in my realization that the only thing that happened the way it does, the way it doesn't.
No drama, no brokenness there.
That's all that happened.
And I have added all the rest.
And so that left me with the realization that I can create the meaning around all of these events that
I thought had some fixed meaning in them.
And I left the gym that day saying, that's the day of my rebirth.
That's the day of my rebirth.
That's the day that the stars aligned and I became exactly who I was supposed to be.
This is plan A. Is it true? No.
Is it false? No. The day of my death, the day I was devastated, the day that I lost, I veered
from the path I was destined to be on, is as true as this is exactly where I'm supposed to be.
This is my Plan A, but living inside of either of those produces very different results
in a very different way of being.
And like suddenly, when I claimed this as plan A, I had access to whole new ways of being
and acting that were like unprecedented.
I started going on dates.
I started taking risks. I started telling on dates. I started taking risks.
I started telling people to carry me up the stairs.
I started doing all of these things I wasn't doing before
because I was broken.
I was this tragic hero.
And it all changed just by changing the story
or interpretation about the actual event.
And my body.
You had all of those years living inside of a religion that told you that you were
irredeemably broken.
As a as a gay person and having to decide that you were in fact not,
that you were perfect and that was plan A for you.
Yeah, yeah.
Do you think that that process over so many years
prepared you to, even though ableism says you're broken
to get to the point where you were so quick to see
that that was just as much horseshit
as the religion telling you you're a
broken. Yes, it's totally prepared because the principles are the same and if I were to describe
them I'd say coming out is about hearing yourself and then saying, hmm that wasn't me. And I have now realized that wasn't me. This is who I am. And
kind of this reclaiming of the self that requires like listening to your knowing, right? And
so when I became paralyzed and suddenly I felt all of the same like it had the same texture that feeling brokenness
unworthiness. No one will love me. It was a variation on a thing, but it was the same thing,
which is unworthiness. I was now prepared to like you said, call bullshit. I know that myself, these self will never tell me I'm broken. That is always from something outside of me.
And that knowledge alone had me be like, okay, so what is it? Where is it? And then I found it,
and it turned out to be ableism, this idea that there are such things as good bodies and real bodies and that disabilities are broken version of a good body.
But to answer your question, it prepared me because I was ready to like not believe
those feelings because they betrayed me before.
So you go from this heavy understanding, this spiritual, heavy understanding,
but of your wholeness.
But then you have to go into the like,
gladiator world of freaking dating and sex,
which is where you test all your theories of like,
how we're all the haunted house comes up.
We can believe that we're whole and so,
but then we have to go on a date.
And we forget everything we know.
So like how, tell me about that first date,
and then I'm dying to talk about sex with you,
because I just, I feel like the work you're doing
in that area for people is so mind-blowing.
You said of yourself back then,
that you were thinking no one's prince charming
is in a wheelchair.
In my mind, the best I could hope for was
that someone would settle for me.
How did you get out of that mindset and tell us about the beginning of dating for you?
Like your first date after this.
Okay. First, I'm not sure I actually ever got out of that mindset before I started dating. It was kind of like,
that's my fear, but that's not how I want to show up. So I'm going to do this anyway. This is
something that I do a lot in my work as a coach and inside of kind of transformational education and things, is that I get to choose who to be
in the face of my fears and stories and things like that.
So that was really the process,
was the moment where I was like,
no one's gonna love me.
And then I was like, okay,
I'm not gonna take any action inside of that.
I'm gonna take action inside of someone
who'll love and adore me,
even if I don't feel that way.
So that's what I did. It was terrifying,
you know, because at some point I'm gonna have to pee and I have catheters in my backpack and I'm
gonna have to hope the restaurant is accessible or we might hit a space where I need to push and
I'm meeting this person for the first time and have to immediately engage in this intimate act
of literal physical support, right?
And I just didn't know what to expect.
I didn't know how people were going to respond to me.
So it was really terrifying.
And I had really come into dating with all of this, having watched in the media
and heard all of these stories about like when people get paralyzed, then people leave them
or they want to die.
Or, you know, it's just always worst case scenario.
And so I think that's why I came into it being like,
people are just gonna have to settle for this version of me.
The first date itself was actually someone who knew
it was my first date.
And I hadn't dated like in a year.
So he knew and he was like, I'm not asking you out.
You know, because he knew I needed to like,
so I asked him out.
Oh, excellent.
Yeah, so he said it up and then I was like,
will you go on a date with me?
And he was like, yes.
And so he had like rented some like suburban thing
and like helped me transfer into the front seat.
We went to this Mexican restaurant and had a good time,
but he made it particularly easy to just kind of have
that first experience and love it.
It was very sweet.
Yeah.
And so now can we please talk about sex?
Because I love talking about sex.
Well, you have reading everything that you write and teach about sex. Okay. Just confirms
that what I feel like about why how sex got ruined for me, which is, well, what we say on this
pod over and over again, that the thing that screws us up most is the picture in our head of how it's supposed to be.
So here you come to sex.
There was no way for you to get sex ed.
Well, by the way, there's no way for any of us to get sex ed, but for you in particular,
you had to figure it all out yourself.
Nobody was talking about disabled queer sex.
You had no models, no representation.
So that sounds like bad news.
But was that the best news ever
because you weren't mimicking something
that someone else was telling you
to recreate in the bedroom, right?
Is that sexual freedom you say?
Disabled sex is so much better than able sex.
Tell us why, Carson.
Can I give you just a little couple of things of context?
You can do whatever you want forever.
Okay, so another important piece of information is I did, I have, have never had sex as an
able to person.
I didn't have sex before.
So I didn't have ever like a, this is how sex is supposed to feel, look, never did it
because I was again such a good Mormon, and I have mixed feelings
about that, because sometimes I'm like, but maybe it would have been nice to feel this
particular thing.
So bishops, what am I saying it?
Just gonna.
Just gonna.
So good.
So good.
The other piece is that because I was such a good Mormon,
also, I did not consume any pornography.
Wow.
I thought you were a science experiment.
Yes.
I isolated all these variables,
via mostly trauma.
That's right.
Sorry.
Yeah.
It was trauma the other way too.
That's right.
Too much sex, too young, also traumatic.
Exactly.
I just didn't come in with any ideas of sex.
So that I'm here in this body.
I don't know what it does.
I have heard it can be very pleasurable,
mostly from straight people who are like,
oh yeah, I could do these things with my nipples
but I've changed these erogenous zones.
And so it's like, okay, I've heard
that there are some possibilities here
and I gotta figure this out.
And so I would just kind of set up situations
with people that I trusted, where we could just kind of start
trying things out.
And it was just like this slow experimentation
of starting very small, and with like kissing,
and with touching, and like a lot of foreplay-esque kind of things.
I started to have moments of like, oh, whoa, that felt very special.
That was a treat. Let's just like, let's like go there. And slowly, I found like all of these really
incredible ways to experience pleasure and orgasm in ways that
weren't available to me before. I did masturbate before my injury, like a handful of times.
Again, good morning. This was different. The orgasm was like, I could repeat it. It could be so
powerful that I almost couldn't stand it and I'd have to stop things. And my sexual partners would often say this is basically like the,
okay, like this the best thing I've ever had.
Just say it, just say it.
But it was.
I've been shouting it from the roof top.
Okay, so let's just tell everyone.
Repeat what Carson just said is my sexual partners would always say this is theby. I've never had. I've never had. Okay, so let's just tell everyone. Repeat what Carson just said is,
my sexual partners would always say,
this is the best sex I've ever had.
So just go ahead, I just want to make sure everyone got that.
And my hypothesis is it's because there were no rules,
no expectations.
It was truly just like, explore, discover.
There wasn't like a, you're gonna come, am I gonna come? Or are we gonna like do it? Yeah, there wasn't like a you're gonna come, am I gonna come, are we gonna
like do it? Yeah, it wasn't that. It was just like, yeah, uh-uh. I think that's why it was like
fulfilling and it also required a lot of communication because no one's gonna come into the bedroom with
me and unless they've done like extensive homework and and be like, I know what to do to have Carson
have a great experience here.
Also, it's not always predictable now for me.
The trick that worked last time
might not work this time.
I don't know why that is,
but it requires this new level of communication.
It just makes sense, right?
Like when I'm telling you what feels good and doesn't,
I'm just going to get a better result. And vice versa. Instead of like being like, oh yeah, this is how I'm going to go and you're going to make the sound when I do that and we're going to
like perform together. I mean, Carson, okay, I'm going to say this. At one point when we were trying
to unlearn everything that we've learned and like acting and all the shit that you're saying that you
It's almost like you race. It's coming to sex with beginners mind like the biggest I beginners mind, right?
But at one point sweet Abby was like, um honey. What are what are all those noises you're making?
Did you hear those somewhere?
Is that what Harry met Sally?
Did you just memorize that shit? I can do it. Is that when Harry met Sally?
Did you just memorize that shit?
I was like, I don't know.
I just feel like this is what I'm supposed to be doing.
Like, I'm supposed to be making these noises.
Yeah.
Oh my God, it's just so beautiful that you talk about it.
If everybody could approach it that way with their partners,
the way you talk about it, it's how every single one of us
could have true sexual experiences.
And that's why I say able people could could have so much better sex if they just like adopt this
idea. But they had to drop some things, right? You have to drop like the, like the, the role,
right? That might be comfortable for you because sex can be vulnerable when you're like,
this feels good and this doesn't.
So it requires a whole new level.
So you don't get to hide behind your dumb top mask.
You've got to like, actually show up and be like,
so this is actually what I want.
And then it's like whole new levels of connection,
pleasure, and all of it's there.
Carson, it's so freaking beautiful.
Alright, I want to read part of the DM that you sent me.
You said I became paralyzed at 23,
and I found that most of my suffering and sense of unworthiness
was a product of ableism, not paralysis.
I have become deeply committed to spreading the good anti-ablest word
since it's so rarely discussed
even in the most progressive spaces.
I believe that it is the link to freeing
human beings in their bodies, whether it's liberating people from the stigma of depression and
anxiety, or from the narrow definition we have of, quote, the good body. Carson, talk to us about
what ableism is and how it causes suffering for all of us.
Yeah.
I am just so grateful to be with you too.
I'm just going to say that one more time.
Same.
There was a point where I was starting to get better at living in a wheelchair
and was still dealing with like really intense brokenness
and I told my mom, I said,
I can survive being paralyzed.
I can't survive feeling unlovable.
And I think that captures my experience,
which is like being paralyzed, I'll speak for myself, and by the way, it's
so important for everyone to know people listening everywhere.
Disability is a huge range of experiences.
There are a lot of disabled people who don't experience grief in their bodies, who don't
experience pain as a part of disability who really feel totally at home and in love with their bodies as they are.
And then some people experience a great amount of pain, some people who acquire disability experience a lot of loss and grief.
And so this is only my experience.
And the experience is that
The experience is that I was dealing with the grief and the loss, but that started to kind of wane over time as grief and loss deal. You miss something, you long for something,
but then, you know, two years later, it doesn't have the same frequency or the same intensity.
And so I could deal with that pain. And slowly it became more natural for me to use my wheelchair and to push and do that first
transfer in the morning.
And I realized that all like the majority of my suffering, especially once I had kind
of recovered after those two years, was all socially constructed.
It was all about feeling like something was wrong with me.
It didn't have to do with the fact that it was hard to transfer or that I have constant
burning nerve pain.
Like that kind of just became part of life.
But the brokenness piece, the ableism piece is what caused this unnecessary suffering because
I just had the experience of not belonging, not being worthy of sex or intimacy or romance.
So while I still experience pain
that specifically due to disability, and that is true,
most of it still comes from some form of,
I'm not good enough, something's wrong with me.
I don't belong in this world.
And additionally, the world has not created space for me. I don't belong in this world. And additionally, the world has not created space for me. I lived in
New York for two years, and I literally left because actually, because I was reading untamed.
And I realized that everything inside of me was like, New York has not earned disabled people.
And I have to acknowledge the privilege that I have of being able to leave and having
a family who could take me in for a short period of time and all of that.
But New York is under like so many lawsuits about discrimination against disabled people
because the subway system is only 20% accessible.
It's the only way to get around.
At the time, my boyfriend, Ryan,
we would just go to restaurant to restaurant
and bounce around and go in and they'd be like,
sorry, we don't have room for you.
And then I just go to another one.
Sorry, we would sometimes just be there
like at midnight sitting there feeling so rejected
and out of place, right?
All of that is ableism.
That's right.
Yes.
Because we could have chosen to create a world
that had space for all bodies on the spectrum,
including the fact that even able-bodied people become old.
If you have the privilege of aging,
you will likely get a disability. And we could create a world that is prepared
for that whole journey, but we've decided to create it around the peak of ability.
But it's arbitrary. It's arbitrary. It's arbitrary. It's all, it's all ableism.
It's not the disability that causes the suffering, it's the ableism.
It's not the queerness that causes the suffering, it's the homophobia.
It's not the blackness, the brownness, it's the racism.
I love what you said that New York hasn't earned.
That's how we felt about Florida.
Florida has not earned our queerness.
You're lucky enough to get the hell out of here so we're getting out.
It's like a boundary. Yes, sorry. It's like a boundary. that earned our queerness. You're lucky enough to get the hell out of here so we're getting out.
It's like a boundary, yes, sorry.
It's like a boundary.
That was so profound to me when you said
I was 10 times more paralyzed in New York City
than in Utah.
It just shows that it's the decisions that that place has made
that tell you what you can do and can't do.
It isn't your body that is setting up those parameters.
It's the structural, systemic decisions
that have been made in priorities and non-priorities
that have been established that make you 10 times more
disabled in New York City than in Utah.
Yeah, so perfectly said.
What you just described is,
is the difference between the medical model of disability
and the social model.
The medical model says disability lives in your body
and lack of access lives in your body.
And the social model says disability only exists
in relationship to its environment.
So if we have a fully accessible society,
people are not functionally disabled.
Well, because Carson doesn't that,
isn't that inherent in the world, in the word disabled?
Like, I am not able to do.
I am only not able to do what the structure has set up
for me to be able to do or not.
Right.
Right.
And again, there's this caveat here because, you know,
chronically ill people, or people with mental illness would probably also, and it's so important to acknowledge, there's some inherent suffering in certain pieces of like the stigma around mental health and the
stigma around, it just compounds it all.
And I just believe if we didn't stigmatize it and people could just exist as they are
in their minds and their bodies, that they could flow in and out of that space with so much
more ease.
Yes.
Yes. Yes.
Because you can talk about it.
Carson, do you just love it when people call you an inspiration?
Do you just love being a target of inspiration porn?
Let's talk it through.
Yeah.
Yeah.
It's an important PSA for the world.
It is.
It's so important.
Yes, I have such strong feelings about inspiration porn.
Mostly because it's so insidious and it presents itself in such a feel-good way
that it like constantly slides under the radar.
But it carries with it the most ableist messages.
Stella Young coined the term.
She was an Australian disabled activist. Inspiration porn is when disabled people's
stories or bodies or activities are used by able to create a sense of inspiration or
sometimes pity or the sense of wow that is so hard if they can do it, I can do it, right? If their life sucks so
bad, then like, I can deal with my moderately sucky life, you know. It's so cringy, I can't
do it. Sometimes people literally come up to me and say that in the flesh, they'll be like,
I can't imagine, if I were you, I'd never get off the couch, my problems They'll be like, I can't imagine.
If I were you, I'd never get off the couch.
My problems are half as bad I can do anything.
If you can get out of the house.
Right.
And I'm like, thank you so much.
Thank you, and thank you.
Thank you.
Thank you.
But also sometimes I want to be like,
bitch, my life is better than yours.
It's of course you do.
I have a beautiful life.
This is sometimes what I have called the miscategorization of disabled suffering,
because people want to kind of categorize what they see as difficult or hard
always to my body.
Instead of categorizing it as ableism or an ableist structure. So if I'm struggling
at the gym, it's probably not because like my body is because like the piece of equipment
that I have, there's like nothing at the gym that's made for me. But then people look
at me and they go, his life is so hard and he's such an inspiration. So it's just, it's
always diminishing and it paints disabled lives as, as tragedies.
Um, you'll see this just everywhere. You'll see again in really progressive spaces, sometimes someone will post a meme and it's like a person in a wheelchair doing pull-ups and
like it says, what's your excuse, right? Or that kind of vibe, that's all inspiration porn.
And the reason it's so insidious again is because it makes people feel like
they're complimenting the strength of disabled people.
But the truth is that in order to actually know what a disabled person is dealing with,
you have to know that disabled person.
You can't come up and assume that this is what's hard for me or this is what's painful for me,
and I think able people, because I did it too, when I was able to, I would look at someone and
think like, oh, if I were in that situation, this is how I would feel. But that's just not
accurate. You'd have to ask to really know. And it most likely wouldn't be appropriate
to ask. Right. Exactly. So don't do that, exactly. What do well-meaning people get wrong?
I heard you say that you do not appreciate
when people first meet you, the first thing,
dude, what happened to you?
Where is the line?
Because I think there's probably also the reverse
where people are like, I'm not gonna acknowledge
this part of your personhood
because I don't see any of that. I don't see color. I don't see. I'm color
blind. I am real blind. I don't. What do people do? Well, meaning that you're just
like, please, y'all stop. Stop doing. Or start doing this. I think people want to connect over,
they see that disability as a,
like a little bridge sometimes for connection
or to be like, oh, I've also been through something very hard.
Again, not knowing if like,
this is actually hard for me.
So many yesterday in the gym, a young guy,
it's like, hey, I see you have like a scar, like a fusion. What happened? Were you born? Which is how's all the questions?
And then later, he disclosed that he has dropped foot from an accident. And so sometimes
people want to connect over that. And disabled people, I'll be honest, have different responses
to this. Some people actually don't mind it. And some people do.
But anytime you are treating a disability as like a hard thing or a tragedy, it's a moment
to stop and just say, what is this person presenting to me?
I would just defer to the disabled person.
Like if this person wants to talk about their injury, then let's talk about it or their
disability. But if it's not a relevant
part of the conversation, I wouldn't ask either of you like, hey, so like, tell me the most
intense piece of your medical history. I got it, the blue. At the gym. At the gym. It's just not
relevant. You're like, so I'm here to work out. In my name's X. Yeah. Right, and that's usually what I do. It's I just go, I'm here to work out.
I'm Carson.
How's your work out going?
Mm-hmm.
Interesting.
It's well-intentioned, but it still treats me like,
I am a story.
I am a thing that happened.
Yeah.
Yeah. All of this work you're doing to free so many people, how does, if it does, internalized
homophobia and ableism still live in you. In lots of ways that I am currently really working on.
I'm just gonna say this feels vulnerable to talk about.
So one of the things that I deal with,
and when I was preparing for our conversation,
one of the things I was thinking about a lot
was my struggle with masculinity as a disabled man.
And feeling just all sorts of things about it
because I still have this pull to want to fit
the role of a man.
I think because I've just assimilated those values
because sometimes I do stop and I'm like,
wait, what is a man anyway?
You know, and I pause and kind of go there.
But the first experience, like the first wave is like,
I'm not a real man.
I remember very clearly within the first year of my injury, I was sitting in the passenger
seat of my mom's van. She was going into Walmart to pick up something and I said I didn't want to come
just, I just didn't want to, at this point I didn't have an accessible vehicle so she would have
to bring out the wheelchair and I just just got. And as she walked across the parking lot, I had an image, like, you know, those thoughts and fears
of like, what if something happened to my loved one?
Like, I was like, what if my mom,
I was like, I hope she's safe.
It was dark.
She's walking across the parking lot.
And that is when I realized like,
if something happened to my mom right now,
I would have to sit and watch.
I could do nothing. And this is right on the heels of having, this isn't, I mean, and this isn't just like a man thing, right?
Because like all of us have this impulse and sure to like go and rescue someone or intervene
or something. I could like yell or call someone and watch. And that was the moment where I was like,
what does it mean for me to be a man?
If I can't help the ones that I love who are closest to me
or like, you can't see, but there's not a cover
on this light bulb here because I can't reach it.
Just taking care of things, being strong,
being capable, so much of masculinity
is about what your body can do
and I can't do a whole lot. And so I struggle with that. I struggle with that and I struggle with
that in the context of dating queer men. Also, there's such a, and I don't want to speak in two broad
terms with my experience, is that sexual prowess is important,
like what we were talking about earlier, like, can you play the role?
And we have names for the roles.
Yes, we do.
And we ask each other what those roles are.
It depends on what space is you're in, but it happens pretty quickly.
And if you asked any, like, gay man, most of them will be able to tell you this role.
So that's also a place where I've got this like internalized ableism in homophobia where like I want
to be man enough. And I feel shame-freeven wanting that. And I just have to pause and be like,
Carson, you pick this up. That's right. From someone else. And then this is where I get to choose who to be,
how to describe manhood
or masculinity or we're also not because I'm also really being like, what does that
even mean?
And so often I don't want to experience that or like I'll use he-him pronouns and I'm
like, is that right?
I feel like, is that am I am I?
I hear him. Am I, am I a he? He. He's saying the same.
Yeah.
What is that?
What is it?
Yeah, I don't know.
I don't either.
I'm just watching it.
Yeah.
Yes.
Same.
That was so beautiful.
Thank you for sharing that felt every word.
Can you, Carson, give us a next right thing for our pod squad?
That is something that they could do to free themselves in the way that you have.
And we're not saying you live in the castle because you're an honest human being, but you
are fricking.
You're pretty Cassley. What do we do to get a little fear from our our body
shit Carson?
I would start by saying consider that you, your capital S self, will never tell you that you're broken. It will never
tell you something that's wrong with your body, whether that's its shape or size or color or anything about it function. That is never coming from the stuff.
So the next right thing that I could offer would be to
listen for that voice that is the self.
And I think that there are a lot of ways to do that.
I think therapy can be really helpful. I think coaching can be really helpful. I think journaling, writing.
But I want to convince everybody listening that there is a you that is present and and always speaking.
And there's like no greater task or more important task in this life than to know how to find that and hear it. And then live consistently with it.
And like I said, I think there are lots of ways to do that, but that has proven to be the most, absolutely the most important thing
I've ever done with my life.
I mean, I love you, Carson.
I am gonna put my phone number right here in the chat
and the next time you're in the haunted house,
would you please just text me and tell me you're there.
And I'll remind you of the outside and then vice versa.
Yeah.
Oh, gosh.
Yeah.
For all of you listening, I just hope
that this conversation was as freeing for you
as it was for me and comforting and all the things
just feel like what a guide, what a teacher,
thank you for being you, Carson.
Thank you so much for being you, both of you.
And also for trusting me with your people,
your loved ones, it means more to me than I can say.
I'm just so grateful, I'm just so grateful.
We are grateful to the rest of you. So, Sissy, did you want to say
something? I'm sorry. I just wanted to say that I'm still,
I'm still back in the sex part of the conversation.
And I've been listening to everything, all right?
It's all been really good since then.
But your capital S self is just very, very strong and courageous.
Yes.
Because when you talk about just saying like,
this is what I
want and this is what feels good and more of that and less of that with no expectations,
like you're just in there saying the stuff. I mean, I'm going to be thinking about that
for a while. I mean, honestly, that's a little bit of inspiration, porn. Come on, Carson.
I didn't go out of your spawn in a way that wasn't like, put that on an upworthy meme, all right?
Yeah, yeah.
Yeah, I'm ready.
I'm ready.
Oh, gosh.
My brain can even understand how to operationalize that.
And I think it's so amazing and you're absolutely right.
Like if every any kind of body that is listening
could even do that one thing. This is what I
have the courage to identify and say and like my God how much life would change. It's amazing.
We will meet you back here next week or tomorrow or whenever the next week and do hard things
is.
Okay, we love you so much.
Thank you, Pod Squad.
Talk soon.
Bye.
Bye.
We can do hard things, is produced in partnership with Cadence 13 Studios.
Be sure to rate, review, and follow the show on Apple Podcasts,
Odyssey, or wherever you get your podcasts,
especially be sure to rate and review the podcast
if you really liked it.
If you didn't, don't worry about it.
It's fine.
you