You're Wrong About - Terri Schiavo

Episode Date: March 5, 2019

Mike tells Sarah how the media, the president and the Pope turned a simple medical story into a complicated legal one. Digressions include canine loyalty, unionized space-workers and polyamory logisti...cs. Both co-hosts recorded in tiny rooms, but with very different acoustics. Continue reading →Support us:Subscribe on PatreonDonate on PaypalBuy cute merchWhere to find us: Sarah's other show, Why Are Dads Mike's other show, Maintenance PhaseSupport the show

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Starting point is 00:00:00 Michael, will you be my guardian? Can this just be my living well? I don't want to start another Google Doc. Welcome to You're Wrong About, the show where we learned that a story that we thought was about a woman was actually about everything but the actual woman. Ooh, that's very on theme for today.
Starting point is 00:00:25 Well, it's a big theme in our Ann and Nicole Smith episodes, so I feel like we're kind of carrying that over to this. I am Michael Hobbs. I'm a reporter for The Huffington Post. I'm Sarah Marshall, and I'm a writer working on a book about the Satanic Panic. Ooh, you can get that out. I don't know why I did that.
Starting point is 00:00:41 I'm imagining your book like one of those singing greeting cards that when you open up, it just makes that sound. Well, now that you've said that, we can certainly try and arrange it. And today, we're talking about Terry Shiveau. Yeah, which I was reminiscing about last night with a friend who I went to high school with because I went to Episcopalian school.
Starting point is 00:00:58 And there had been this sense of a national vigil as people waited for her to die. And I remember sitting in chapel in one of our teachers announcing that Terry Shiveau had died and this little gasp rising up. And I remember feeling that it was this very sad thing, but also that it was a weird thing for people outside of this woman's family to be following so intensely
Starting point is 00:01:23 and feeling attached to and not knowing what to do with that. So I'm very curious about what really was going on. And I have sensed from your text messages that there is a lot to the tale. Yes. And I think my central finding in all the research I've been doing about this over the last two weeks is that I remember it too as a debate about medicine,
Starting point is 00:01:46 a debate about bioethics. Right to die. And what I found out is that it's really not about medicine. It's much more about law because the medical issues were actually much less complicated than most of the media made them out to be. And it's really much more a case about the 30, I'm not exaggerating, 30 trials that went on. What?
Starting point is 00:02:07 Yes. So the main thing, the hardest thing in the research about this was just finding a chronological tale of what actually happened. So I'm going to try really hard to just do this chronologically and start from the beginning and end at the ending. All right. So where do we begin our story?
Starting point is 00:02:25 So yes. So I want to start with Terry Shiveau, who is somebody that kind of disappeared in the middle of all of this. So she's born Teresa Marie Schindler. Her parents are the Schindlers. Her parents are conservative Catholics, which obviously becomes important later.
Starting point is 00:02:43 Her dad sells industrial supplies. Her mom is a housewife. One of the best descriptions of what we know about Terry Shiveau's upbringing is one of the opening paragraphs of this Joan Diddy and essay. So she says, we have only snapshots of Terry Shiveau's life before the series of events that interrupted
Starting point is 00:03:00 and eventually ended it. There had been the four bedroom colonial on the leafy street called Red Wing Lane. There had been the day the yellow laboratory retriever, Bucky, collapsed of old age in the driveway and Terry tried in vain to resuscitate him. There had been the many occasions on which her two gerbils, named after the television characters,
Starting point is 00:03:17 Starsky and Hutch, got loose and into the air conditioning unit in the basement. One thing that's really interesting is a lot of the accounts about Terry Shiveau's upbringing right around what I think is sort of the most defining feature of her life, that she was 250 pounds. Really? Yes, she spent all of her life as an outcast.
Starting point is 00:03:38 A lot of the feature length descriptions of her life don't really go into detail about how lonely it is for a larger, especially a girl, growing up in 1970s America. We don't have a lot of information about the extent to which she was bullied or what her relationship with her parents was or what her relationship with the other kids was. But we know, according to one of the accounts,
Starting point is 00:04:04 she had more animals than friends. That's something that always stuck out to me. She doesn't appear to have ever dated anybody. Michael Shiveau is actually the first guy she ever dated. There are so many tragedies that begin with a woman marrying the first man who ever took an interest in her. Yes. She just seems like a nice, lonely girl.
Starting point is 00:04:26 As so many of us are. It's also really important for understanding what eventually happened to her that sometime in her late teens or early 20s, she lost 100 pounds. So she started doing, remember, neutra fast, neutra slim? Oh, yeah. That shakes, yes. The meal replacer, because in the 90s,
Starting point is 00:04:44 everyone was convinced that eating three meals a day was cyberetic and wrong. And I really cut that down to the smallest number possible. Yeah. She then meets Michael after that in community college. They get married in 1984 when she's 21 and he's eight months older than her. They have their honeymoon at Disney World.
Starting point is 00:05:03 He and her parents are really close. Her brother lives in the same apartment complex as them. They are a really tight knit unit of Michael Shiveau, Terry Shiveau, and the Schindlers. This is a very happy little family unit. And the gerbils are happy. The gerbils are happy. Michael Shiveau is a restaurant manager.
Starting point is 00:05:22 He manages restaurants mostly on the night shift. And Terry gets a job as an insurance claims clerk, which I don't really know what that means, but she works for Provincial Insurance doing claims paperwork stuff. But it's kind of like when you're, you know, I always think of this around two crime novels where there's like you're setting up the family that the bad thing is
Starting point is 00:05:41 going to happen to. And you're like, and they both had, you know, jobs that maybe you, the reader have no idea what that involves. But like a regular old grown up job. Yes. And also they appear to be in what is quite a healthy marriage. And she's wearing bikinis for the first time in her life. She's gotten down to 110 pounds.
Starting point is 00:05:59 And she's feeling really good about herself. Yeah. And they start trying to get pregnant. And of course, everybody goes over all of this evidence a billion times for the next 14 years. But it appears that because of her trying to keep this weight off, Terry is undertaking more and more extreme methods. So she's drinking between 12 and 15 ice teas per day,
Starting point is 00:06:24 diet ice teas. I think it's because it's an appetite suppressant or something. It's like one of the cultures of femininity America is that you learn ways to just sort of lightly abuse your body. And yeah, it's like caffeine. It's a lot of volume. You feel like you're eating, but you're not. Yeah.
Starting point is 00:06:40 So she's doing this. They're trying to get pregnant, but they can't get pregnant, possibly because her body is in starvation mode. That this is something that happens when you're anorexic or you're not eating enough, that regardless of your weight, your body kind of goes into starvation mode and shuts down all of these other biological systems.
Starting point is 00:06:58 Essentially, her body was not able to get pregnant. But they don't really know this at the time. But it's like she started this war with her body early on. Yeah. Based on the world that she's living in. So it's like we're watching the early stages of what's going to become this massive land war eventually. It's like 1961, Vietnam.
Starting point is 00:07:18 That's Terry Shiveau's body. Yes. And so because she's drinking all these liquids, it's messing with the chemical balance in her body. So one of the things that happens when you drink a ton of liquid is your potassium levels go down. So a normal, apparently, level of potassium in your blood is around 3.5 units of something.
Starting point is 00:07:37 And hers is around 2. Was she bulimic also? We don't know, but that appears to be the case. OK. The only thing that could explain the potassium imbalance is if she's not getting enough nutrition. One of the consequences of having really low potassium is you can get a heart attack.
Starting point is 00:07:55 So this is what happens on February 25th of 1990. They have been married for five years at this point. Michael Shiveau gets home late from his restaurant job, sometime around midnight, one, whatever. He gets up at 4.30 in the morning, just sort of wakes up for no reason. He sees that she's not next to him in the bed. And then as he sort of looks around,
Starting point is 00:08:17 he hears a thump from the bathroom. And he's like, that's weird. He walks out to the bathroom. And Terry is face down with her feet in the bathroom and her torso in the hall. And she's unconscious. He, of course, doesn't know that she's had a heart attack. He doesn't know what's going on.
Starting point is 00:08:33 He just knows that his wife is passed out. And you never suspect that about your 26-year-old wife, who you see as a healthy person. You don't think heart attack. Michael immediately calls the paramedics. He also calls Bobby Schindler, her brother, who lives in the building with her. Bobby runs over.
Starting point is 00:08:47 The paramedics get there. Six, seven minutes later, they administer CPR. She was without oxygen. Her brain was without oxygen for some period of time. We don't know. But enough that it puts her into what is known as a persistent vegetative state that persists for the rest of her life.
Starting point is 00:09:06 And is it a common thing to beat a pride of oxygen because of a cardiac episode and then end up in a vegetative state because of that? That's a very good question. And this is what's so important about this case and why it became such a big deal is that the really weird thing about a persistent vegetative state is the brain is gone.
Starting point is 00:09:25 So every measurement method we have of understanding consciousness appears to show that there is no thought going on. All five of the senses are down. You can't see, you can't hear, you can't feel. There is no electricity in the brain. So when you do PET scans and MRIs, there's no activity in the brain.
Starting point is 00:09:48 However, your brainstem, which is all of your reflexive stuff, everything your body does automatically, that is unharmed. So the weird thing about a persistent vegetative state is that you have normal sleep and wake cycles. Really? So you go to sleep at night and you wake up during the day. Your eyes are open.
Starting point is 00:10:05 Like often you make sounds. Sometimes they laugh. Wow. It's one of these things, and this is what's so heartbreaking about it, is you're basically dead, but your body is still alive. But we're getting way into the existential crevasse already. I mean, this is from a New England Journal of Medicine
Starting point is 00:10:22 article about this persistent vegetative state when they were first discovering it. Patients in a vegetative state are usually not immobile. They may move the trunk or limbs in meaningless ways. They may occasionally smile and a few may even shed tears. Some utter grunts or on rare occasions moan or scream. Such activities are inconsistent, non-purposeful and coordinated only when they are expressed
Starting point is 00:10:44 as part of a subcortical, instinctively patterned, reflexive response to external stimulation. So it's not something where, if you shine a light in their eyes, they will turn toward the light. Or if you give them a voice command, they will respond to a voice command. Their pupils don't dilate.
Starting point is 00:11:00 They're essentially giving out these reflexive responses at random. However, I can also imagine that the danger in that is that just as if you have an idea of the volcano guide and if I do this, the volcano will explode and really you're just creating superstitions around random events. That like if you have someone who you love
Starting point is 00:11:23 and who's this person that you know and who you see as that person and sometimes randomly they will behave in ways that you recognize as human behavior and like their old behavior, then you will I think be vulnerable to storytelling just on a subconscious level about like, okay, like if I do this, she does this.
Starting point is 00:11:43 Like when she seems happy on this day, she seems sad on this day, like there is something. And like, of course, if you want there to be something there, then you have evidence that allows you to construe that. And this is something they mentioned in the medical literature too, that family members often have huge problems
Starting point is 00:12:01 accepting this diagnosis. Because they're like, no, she's in there. She can hear me. So one of the things they mentioned in this article is these motor activities may misleadingly suggest purposeful movements, yet these responses have been observed in patients in whom careful study has disclosed no evidence
Starting point is 00:12:16 of psychological awareness or the capacity to engage in learned behavior. So there's no consciousness, but if you sit there for a couple hours with somebody, with one of your loved ones, who's giving out all of these responses, it does feel to you like they can sense your presence. It does feel to you like they notice
Starting point is 00:12:36 when you walk into a room. That's what makes this so much harder than if it was this inert sleeping beauty type of figure. We're not rational beings. And the problem is that we just really want to see ourselves that way. And of course, then law and medicine are both based very much on this idea
Starting point is 00:12:52 of humans can make reasonable choices altogether at once and like, kind of. So one thing that sort of gets lost later on once the rest of the country finds out about this case is that Michael and the Schindlers together spend the next three years doing everything. They do fundraisers for her. They fly her out to California
Starting point is 00:13:15 to get this thing implanted in her brain that will give her electric sort of electric shocks in her brain to try to kind of wake it up like a defibrillator. God, like all the terrible like snake oil salesmen preying on people with loved ones with in persistent vegetative states. I can only imagine the breadth of that industry.
Starting point is 00:13:34 But I mean, it's actually quite touching. Like before the story gets really ugly, it's actually really beautiful that he records family members telling stories reading books and he puts them on a Walkman and he puts headphones on Terry and he plays the tapes for her. He gets a degree in nursing.
Starting point is 00:13:51 What? So Michael Shrivo to this day is a nurse. He switches careers. Wow. He goes to school at night. Another weird thing about persistent vegetative state is she's not hooked up to any machines. She's reading on her own.
Starting point is 00:14:03 She doesn't have electrodes attached to her, anything. All she has is a feeding tube in. So Michael during these years will take her in a wheelchair to the mall and get her hair done, her makeup done. She was somebody that cared a lot about the way that she looked. You know, I find it reassuring in a way
Starting point is 00:14:19 to know that if you have someone you love who ends up in a persistent vegetative state, you can take them to get the haircut that they would have wanted, you know, that's nice. It's complicated, but it's something. But it's something that he, you know, he's really trying to honor her. He still has this belief that she can get better.
Starting point is 00:14:35 She can, you know, he can get her back somehow. I mean, this goes on for three years and the Schindlers are telling Michael to move on. They're telling him, you know, she's probably not going to come back. It's okay for you to meet new women. They, at one point he's dating a woman three years after the heart attack
Starting point is 00:14:52 and he brings her home to meet the Schindlers. So this is something that they're working on together and their relationship is still really strong at that point. And when I was in high school, the narrative around Michael Shiva was just that he was a no good Nick. Like that's the only thing I remember hearing about him. So for all of the debates around this case,
Starting point is 00:15:11 one of the things that really isn't upper debate is that Michael treated her extremely well and really advocated for her care. He was so diligent with the nurses that they filed a restraining order against him so that he couldn't visit as much as he was. Oh, Michael. So one of the nurses that they eventually interviewed later
Starting point is 00:15:30 for one of the court trials says he may be a bastard, but if I was sick like that, I wish he was my husband. Oh, that's such a great quote. That's his vibe. Nothing is more important to me than my wife and I'm kind of a dick to get my wife better care. And so like if anything, he's like annoyingly over attentive
Starting point is 00:15:48 and like overly aggressive about taking care of Terry, yeah. So what happens in 1992, he sues the hospital that was giving them fertility treatments for malpractice because one of the weirdest things about this is that during their year long attempt to get pregnant, no one took her blood. And if they had, they would have seen this potassium. Oh.
Starting point is 00:16:10 He's arguing that this was extremely obvious. Even a cursory blood test. Anybody would have been like, oh shit, we need to get her some potassium. So he wins the malpractice suit. He gets $300,000 in compensation for himself, pain and suffering. And importantly, he gets $700,000 for a trust fund
Starting point is 00:16:33 for her medical care. And this is essentially what funds her enormous medical bills for the rest of her life. I love that in 1993 money, you could win only a million dollars in a lawsuit. Like you could take care of your wife for the rest of her medically complicated life. I mean, now it costs like $24 million
Starting point is 00:16:53 to buy a vial of insulin. Oh, I know, I mean, one of the things I found was that in one of the 1990 articles about fundraisers they were having for her, they're like, oh, we need your help. Her care costs $3,000 a month. And I'm like, damn, that's good. Yeah, we're in like such mad max times by now
Starting point is 00:17:10 that we're like, wow, the horrible medical odysseys of the 90s, what a great time at once. So this ends up covering her care. He hires someone to look after her whose full-time job is looking after Terry. One of the lessons of this episode and of this show generally, I think, is that it doesn't matter if you equate yourself
Starting point is 00:17:31 incredibly well and are like a great, caring, thoughtful person or husband or wife or whatever for like your, you know, a huge proportion of your life because the minute you suddenly get thrust into the spotlight, it doesn't matter what the last 20 years were like, it matters what things seem like at this very minute. And so like, that's kind of liberating as well, I guess.
Starting point is 00:17:53 But so the reason why his relationship with the Schindler's breaks down is over this settlement. So it's difficult to find out what exactly went on because these tales of what actually happened come out 10 years after the fact. So we really don't know. According to Michael Shivo, he gets this big settlement, $1.1 million
Starting point is 00:18:11 and the Schindlers come to him and say, well, what's our cut? What do we get out of this? And he says, well, it's for Terry's care. So I'm not giving you any of the money. According to the Schindlers, Michael just wanted to be done with it and wanted to shut down Terry's care and they wanted to keep her alive.
Starting point is 00:18:32 So according to them, Michael was only interested in the money and now he wanted to abandon Terry entirely. And so the Rashomon begins with two people claiming diametrically opposed things. Yes, but what we do know is there was some sort of fist fight. What?
Starting point is 00:18:48 Yeah, there's some fight between Michael Shivo and Terry's father. So they come to physical blows over whatever, wow. Whatever this conflict was and they don't, neither one of them dispute that. There was some sort of scuffle. And then Michael Shivo and the Schindlers never speak again. Wow.
Starting point is 00:19:06 This case goes on for another 12 years. They to this day have never spoken to each other. They held separate funerals for Terry Shivo. Yeah. When you get into separate funerals territory, you just are like, all right, call all the lawyers. It's gonna be a bonanza. You can make a lot of money representing people
Starting point is 00:19:23 who refuse to speak to each other. The last thing you said is essentially what explains the next 12 years of this case. That like no one will just talk to each other. So everything has to be a protracted legal battle. Yeah. This then leads to Michael's first acceptance that she's not gonna get better.
Starting point is 00:19:42 It's slowly dawning on him and doctors are telling him over and over again that people do not exit persistent vegetative states. People are not there. And maybe that's like, he's grieved now, you know? He's had his grief, he's had three years, you know? And he's sort of separating from the family unit that he was part of and like, it's healthy.
Starting point is 00:20:02 Like you can't, this is why I hate those stories about the dog whose owner died and then they sat at the train station every day for 12 years and isn't it a great testament to dog's love. And it's like, no, that's about how we as people are self obsessed and mean. And we would rather have someone be devoted to us forever than like find another human and be happy with them.
Starting point is 00:20:22 Like it's very telling that we like those stories so much and it's all about how humans are not the greatest, I think. So just like the idea that like he would have been virtuous or we would have been trustworthy when this became national news, if he'd like stayed at her bedside forever, like that's a terrible thing to try and impose on someone to guess that they never move on.
Starting point is 00:20:42 That would be awful. And also he never really left her bedside. I mean, another thing, even during this period, he's visiting her constantly, he talks all the time about how she was in bed for 13 years and she never had a bed soar. Like he made sure that she was really well taken care of. So what happens in 1994 after the breakup with the Schindlers
Starting point is 00:21:01 is Terry gets a urinary tract infection and one of the doctors at the hospital tells Michael, look, she's probably not gonna get better. Very few people in a persistent vegetative state even live longer than three or four years. The longest anyone has ever lived is like 10 years. Like do you have like a really compromised immune system within that or is it because your body
Starting point is 00:21:22 is just not performing in most of its functions or what's that? Yeah, just the body basically keeps deteriorating the longer it's in this state that the muscle's atrophy, the brain actually continues to shrink. And so at a certain point, even the reflective functions break down. And what usually happens is something else happens.
Starting point is 00:21:41 You know, you get a cold or you get pneumonia or something and then you end up dying of that. And so in 1994, when she gets this infection, a doctor at the hospital says, it's probably best to just not treat this infection and let it take its course. It's awful, but that might just be the best for everybody. And Michael agrees.
Starting point is 00:22:00 He's, you know, I've tried for three years. I've tried everything I need to move on and to mourn and get on with my life. And so he allows this to happen. And so is he at this point, like the doctors, if they are making it a station or like, okay, she has this UTI, we need your approval to let it,
Starting point is 00:22:19 you know, to just let it run its course and not treat it. Like, is he the person that they're going to before anyone else? And like, he has the saying that and her parents don't. Yeah, so one of the things that's really important in this is that he, because as her spouse, he is her guardian. So when you are incapacitated, somebody is appointed guardian for you.
Starting point is 00:22:37 And if you don't have a spouse, it's typically your parents, but it could be your kids. It could be a best friend. It could be whatever. This is why people make living wills too, of not only what their end of life care should be, but who should make those decisions, right?
Starting point is 00:22:47 If they're incapable. You've got another thing for me to worry about, fine. I know. So yeah, so he is in charge of making this decision as her guardian. And so the Schindlers, of course, are not happy about this because they feel totally powerless. And legally speaking, they are.
Starting point is 00:23:01 This is how it works. Right. So the Schindlers contact the hospital, the hospital then lobbies to give her antibiotics and treat the infection. Michael is like, let's treat the infection, fine. But then because he's not speaking to the Schindlers and because everything gets into this much more legal frame
Starting point is 00:23:17 from now on, the Schindlers then sue to get Michael removed as the guardian. So this ends up getting tied up in the courts for two years. Eventually, the action is dismissed with prejudice, basically meaning it never should have been filed. They have no standing under the law to do this because the entire law is set up that the surrogacy of the person
Starting point is 00:23:40 switches from the parents to the spouse when they get married. This is the entire basis of law. Right. They're like, you can't invalidate heteronormativity. I'm sorry. Yeah. And so essentially they're arguing
Starting point is 00:23:53 that they have some sort of right to supersede her spouse. There is no legal basis for that whatsoever. So this is why it's dismissed. How many suits that are filed are like essentially a very elaborate legal equivalent of expecting someone else to Google something for you? So after all of that mess is over with, in 1997, he then tries to remove her feeding tube
Starting point is 00:24:17 and allow her to die basically. Then the Schindlers sue again to try to argue that the feeding tube should not be removed because it's not what she would have wanted. So one of the things that's really interesting about the law on end of life care is that people remove their own feeding tubes all the time. In every state, you are allowed to refuse
Starting point is 00:24:42 any medical treatment that you want if a doctor says you need any replacement, you're allowed to say I don't want any replacement. Under the US legal system, food and water are considered medical care. So if you have terminal cancer or you are in a lot of pain or for whatever reason, you don't want to get food and water from a hospital
Starting point is 00:25:01 and you want to allow yourself to die, you can die. That's non-controversial. Okay, good. That's good to have in my pocket. But then it gets tricky when there's a surrogacy issue. So if you are in a coma and you cannot declare your wishes, this job falls to somebody else.
Starting point is 00:25:17 And the legal standard is that your husband, it's not what he wants for you, he has to show this is what you would have wanted. So it's essentially like prosecuting white collar crime where you have to demonstrate frame of mind. Yes, exactly. Which is always impossible. Yes.
Starting point is 00:25:34 And so so much of the legal battle that happens over the next 10 years is about what did Terry want? And by definition, as a 26-year-old, you haven't thought terribly hard about this issue. As a 26-year-old, she wanted to not end up in a persistent vegetative state. And I'm sure it's not something that people really tend to think through before it happens.
Starting point is 00:25:58 So all we have of Terry Shrivo's wishes is random comments that she made where she'll be like, oh, my aunt had cancer and I would never want to be hooked up to tubes or there's something where Michael Shrivo's brother was watching a TV movie with her about someone with terminal illness and she was like, no tubes for me.
Starting point is 00:26:16 Right, but that's like if you and I are watching Alien and I'm like, you know, I would just never become a space worker if I weren't unionized. But if I actually get a non-unionized space job in 10 years, like I'm not gonna remember saying that. Like I love this quote from the Joan Diddyan essay, imagine it, you are in your early 20s,
Starting point is 00:26:32 you are watching a movie, say on Lifetime, which someone has a feeding tube, you pick up the empty chip bowl, no tubes for me, you say as you get up to fill it. What are the chances you have given this even a passing thought? And I don't know what a better system would be, right? You're taking these little scraps of evidence,
Starting point is 00:26:49 but fundamentally, it's fundamentally unknowable what she would have wanted. And also, I mean, what's important about this trial is that the Schindlers have not much evidence that she would have wanted to stay alive in this state. So they are on record and are still on record as they think that she should be kept alive no matter what.
Starting point is 00:27:09 So they say at one point during the trial that even if she had diabetes and all of her limbs were amputated, they would want to keep her alive. And that isn't necessarily based on her own wishes because she wasn't as conservative a Catholic as they were. That's based on their own wishes. So the judge basically says,
Starting point is 00:27:26 look, the evidence that she wanted to end her life is shitty, but it's evidence. There's no evidence that she would have wanted to continue her life in this state. And then it's also getting into this fairly personal thing of what do you assume a 26-year-old woman who went into a persistent vegetative state would want? If you don't have any real information about the person
Starting point is 00:27:51 you're claiming to talk about, you're essentially talking about yourself. And also, they've also now got this animosity toward Michael because they haven't spoken in five years. And so they are now casting him as much more of a monster. They're stubborn people. Michael Shrivo is a stubborn person. And both of them are really entrenched
Starting point is 00:28:10 in their positions at this point too and totally incapable of talking about it. And also, isn't it so much better to feel that you are pitting yourself against a clear enemy than to be in a story where no one's gonna win, no one's gonna lose, it just sucks for everyone? That's the thing, I mean, it's so hard to have an enemy staring you down from the other side of a battle line
Starting point is 00:28:30 and say, their motives are pretty understandable. It's really hard to do that. And so you come up with these stories of like, well, they just want the money. And I think that explains a lot of their relationship with each other over the next 10 years, where it's like the way they talk about each other, the Schindlers and Michael Shrivo, fuck.
Starting point is 00:28:46 Yeah, but you're just like, you know what? These are like three basically nice people who just stopped being able to see each other based on the conflict they were in. And so a judge rules that he is allowed to remove or feeding to. This is the way that the system works. So all of this is maintenance of the status quo?
Starting point is 00:29:05 Yeah, exactly, yes. And then that ruling comes down, they then file an emergency injunction, which, I mean, you know, this is sort of the patterns that as soon as there's a trial, they appeal it and then appeal it. And then they try to get the judge removed. They try to get extra medical,
Starting point is 00:29:20 I mean, they're just kind of running out the clock. If only the Schindlers could have taken all this energy and legal go-getterism that they developed and put it toward death penalty appeals. Seriously. A lot of those people don't have parents. Another thing that happens at this time, and because we're doing this chronologically,
Starting point is 00:29:33 this is a slight detour, but we need to cover it now, Michael meets another woman. Michael has decided to move on. He meets this woman named Jody in 1993, but they don't start dating until 1995. I think the order of information of when you find things out is very important for what you think about them. So most of the country heard this entire story
Starting point is 00:29:57 about this man fighting for his wife and how much he loves his wife. And then it's like, but it turns out he's living with another woman and it's like this twist. Yeah, and the idea that you can be unfaithful to someone who's been essentially dead for five years, it's like, really, would you do that random citizen? Would you?
Starting point is 00:30:17 Right, and also one thing that's really kind of beautiful about it is Jody, his new girlfriend, is making outfits for Terry and providing makeup to Terry and she goes and visits Terry at one point. This is a story of a bunch of nice ladies who never deserve to be in all this. Yeah, Michael is radically transparent with his new girlfriend about his situation.
Starting point is 00:30:40 She knows everything, she's with him in court. It's polyamory is what it is, right? And no one has to do a Google doc, which is great, because that's the worst part of polyamorous relationships. Yeah, that you come into this relationship with someone who's like, I still have all these feelings for the woman I'm still married to and she's a part of my life
Starting point is 00:31:02 and he's able to be honest about that and Jody's able to be like, okay, that's the relation, that's who you are. People's lives are complicated and relationships are complicated and this is an unconventional relationship, but what Michael ends up saying is I've been lucky to have two loves of my life.
Starting point is 00:31:19 Oh, that's, yeah. Yeah, wow, it's amazing also that once again, that all of this information was available, that when I was hearing about all of this in high school that it's like, we knew, if we had cared to know as the public, we could have found out that this was this like extremely decent, honest man, but no.
Starting point is 00:31:42 So basically because this whole thing is getting tied up in the court so much, so Michael goes to a Florida court and he says, look, I'm sick of this. I wanna hand this over to a court. Whatever you decide, I am going to abide by, I just want this to be over. So in 1998, the court,
Starting point is 00:32:01 have you heard of this term, guardian ad litem? Yes. It's something where the court essentially appoints an independent investigator to interview everybody, to look at all of the facts. And it's important to note that of the 30 legal decisions that will eventually come down in this case, all 30 of them are in favor of Michael Shrivo.
Starting point is 00:32:22 Wow. Every single legal decision. Serial killers don't get that many guilty verdicts if they actually try them for, I mean, that's amazing. It is something where Terry's parents are saying, she knows when we're in the room, she's responding to me, I'm her mother, she can tell that I'm there.
Starting point is 00:32:40 So they appoint this independent investigator. He looks into it and the nurses are saying, Terry does that in empty rooms. She does that with nurses. She does that when someone comes in to clean the windows. The Schindlers are saying that Michael Shrivo shouldn't have the legal power to make the decision because he will be a financial beneficiary of her estate.
Starting point is 00:33:01 So the $700,000, if Terry Shrivo dies, Michael would then get that money. I mean, people have done worse things for less, but like it's a small amount of money to be in this long of a con to get. Like if that's their theory, then it's not a persuasive one to me. So what happens is, that is very strange is
Starting point is 00:33:21 the guardian ad light on this independent investigator sides with them and says, this is a huge conflict of interest. He should not have the decision. The best article I read on this entire case was called What If the Schindlers Had Won? And it's all about the insane legal precedents that would have been set if the Schindlers
Starting point is 00:33:41 had won any of their challenges. So one of the things that it mentions in that article is if you're saying you cannot have any role in somebody's death, if you're going to be a financial beneficiary of it, that invalidates 99% of end of life decisions because who are the people that know you well enough to know how you would want to end your life?
Starting point is 00:34:04 They are your family. They are people who by definition are going to be beneficiaries of your estate. And I'm sure most of the time you're children and those are the people that you're gonna, unless you're Leona Helmsley, leave most of your assets too. So it's like if we say,
Starting point is 00:34:20 if you're gonna inherit any money from someone, you can't decide whether to pull the plug. No, that makes no sense. Yeah, so if they had won any of their challenges, this would have thrown a huge wrench into a state law generally. So essentially Michael points all of this out and the court is like, yeah, that's insane.
Starting point is 00:34:40 Also the Schindlers, whatever conflict of interest Michael Schreiber has, the Schindlers would have that too because if he gave up the guardian status to them or if he divorced Terry and gave the money over to them, then they would have the money and they would benefit if Terry Schreiber died. Right, so they're saying he is not entitled
Starting point is 00:34:58 to make a decision because the incentives for him are too high, but they would be able to equip themselves adequately in exactly the same situation. Yes, so the judge rules in favor Michael Schreiber and says there is overwhelming credible evidence that Terry Schreiber is totally unresponsive and has severe structural brain damage.
Starting point is 00:35:17 To a large extent, her brain has been replaced with spinal fluid. Oh wow. Again, every medical finding finds this result. There isn't a lot of ambiguity about her actual medical state. They also rule that Michael should be able to remove the feeding tube and the Schindlers appeal.
Starting point is 00:35:35 This is also a testament to like how long you can drag something out legally. I mean, it's just amazing that like this story starts in 1989 and it ends in the 2000s. 2005. 2005, oh my God. This really gets juicy when the Florida Supreme Court rules
Starting point is 00:35:55 that they should go to some sort of evidentiary hearing with doctors. So one of the main arguments that the Schindlers are making at this point is that Terry's condition can improve. They haven't tried everything. They are saying we will call doctors to give medical evidence that why don't we give it
Starting point is 00:36:15 one more shot, see how much she improves, and then you can decide to take the feeding tube out. I'm so excited to hear what manner of doctors testified at this hearing. So, I mean, this kind of goes the way that you sort of expect it to at this point where the physicians appointed by Michael Shrivo are both neurologists.
Starting point is 00:36:34 They both have academically published papers showing nobody recovers from persistent vegetative states. The doctors appointed by the Schindlers, one of them says there's this technique called vacillation that will open the veins so that more blood goes to Terry's brain and the judge keeps asking for evidence and all she gets is anecdotes.
Starting point is 00:36:59 So if you read the trial transcript, they'll be like, okay, what are the published articles showing that people in a persistent vegetative state recover from this vacillation technique? And the doctor's like, you should meet Emma. Oh my God. She got in a car accident and now she is walking around
Starting point is 00:37:15 and she's fine. Like these stories, the other doctors the same way where it's like, okay, what are the peer reviewed studies that we should consult? And they're like, let me tell you about Tom. Like this is the entire trial. So we have Michael Shrivo's witnesses who are approaching it medically
Starting point is 00:37:30 and then we have the Schindler witnesses who are taking the daytime TV approach. Exactly. And so, you know, we love salty judge quotes. Yes, we do. The judge concludes, what undermines Dr. Hammerfarr's credibility is that he does not present to this court any evidence.
Starting point is 00:37:47 If his therapy is as effective as he would lead this court to believe, it is inconceivable that he would not produce clinical results of these patients that he has treated. And surely the medical literature would be replete with this new now patented procedure. The judge also mentioned, he has only published one article
Starting point is 00:38:03 and that was in 1995 involving 63 patients, 60% of whom were suffering from whiplash. So it's basically people that were in like minor car accidents. There's a point where they take footage. So a lot of the doctors will go and examine Terry and they have a camera there to show whether she's responding to stimuli,
Starting point is 00:38:21 whether she's turning her head toward a light, et cetera. And so at one point, this Dr. Hammerfarr guy says, on the video, he's like, oh, Terry, if you're in there, please squeeze my finger. And then he looks at the judge and he's like, see, she just squeezed my finger on the tape. And the judge is like, no, she didn't. That's not like, I can see the tape.
Starting point is 00:38:39 She's not squeezing shit. Her hand didn't move. And so the judge is just like not having it. So the judge rules again, that all of the medical evidence is that she's unlikely to recover. This is becoming a trend. Yes.
Starting point is 00:38:52 And I mean, I don't want to be unfair to the chindlers. My read on this after listening to a lot of interviews with them is I just think they were in like deep denial. Yeah, we can't hold people to a rational standard. That's not fair. Yeah. You know, with these doctors and everything, it's like when you subject them to court scrutiny,
Starting point is 00:39:11 it doesn't hold up. But I can see parents being really desperate for something to help their daughter and being totally convinced that their daughter still sees them in response to them. I think, you know, at the bottom of it, it's all very human. Yeah.
Starting point is 00:39:26 I also think that we have a general sense in America because of the way that we approach our legal systems that like the law is about your feelings in a way that it really isn't. Our whole way of talking publicly about criminal justice is about the feelings of the victim's family and how do we respect their feelings and how do we do what they want,
Starting point is 00:39:45 unless they want clemency, in which case, fuck them. You know, and this idea that like, that the law is about making someone emotionally whole, which is like really one of the things that it is most incapable of doing. Yeah. I mean, I think another thing that's important to know about all of this, and I think explains a lot
Starting point is 00:40:03 about the early stages. This is kind of stage one of this entire battle, is that all of this is taking place in private. There's no media coverage of any of this at this point. I did a LexisNexis search for Terry Shiveau, and there's one or two articles in 1990 of like fundraisers, like come down to this fundraiser in St. Petersburg, and then zero articles between 1990 and 2000,
Starting point is 00:40:25 and then in the early 2000s around this trial, there's one or two little feature stories locally, whatever, but it really doesn't blow up until 2003. Yeah, and so how did that happen? I mean, basically, this is when the Schindlers start to get a lot less understandable. Like they've run out of reasonable legal challenges, and now they're just doing whatever they can do
Starting point is 00:40:50 to do something. Exactly, and I think a huge part of the story is the way that their relatively moderate, relatively temperate outlook is totally warped when the national religious right gets involved. Once this hits the local media, the right-wing groups see this as a huge cause that they can benefit from.
Starting point is 00:41:11 So they start courting the Schindlers and saying, we can get more attention for Terry. We can save Terry. The American right is just a volcano that we're throwing lifeless white women into continually. It looks ridiculous. So what ends up happening is these Christian right groups kind of adopt this fight as their own.
Starting point is 00:41:32 They start paying the legal fees of the Schindlers. So one of the ways the Schindlers were able to file so many lawsuits is because they're getting this injection of hundreds of thousands of dollars from the American right. The American right also starts doing letter writing campaigns to their own members. So Jeb Bush is the governor of Florida at this point.
Starting point is 00:41:51 Jeb Bush in 2003 gets 27,000 letters from people asking him to save Terry's life. Oh my God. This is also the time when the Pope weighs in on the controversy. What? Yes, this is something I did not know until I started researching this.
Starting point is 00:42:07 John Paul II, this is in 2003, he apropos of nothing, sends out a press release. This is the quote, the administration of water and food, even when provided by artificial means, always represents a natural means of preserving life, not a medical act. Its use, furthermore, should be considered in principle, ordinary and proportionate
Starting point is 00:42:25 and as such morally obligatory. Because this is something that the Christian right is really interested in, is reclassifying food and water so it's not medicine, so you can't refuse it. And now we're in this situation where we have this standard in American law and medicine that we have accepted. We're like, okay, we know this, this is on the books, but then the Pope shows up and it's like the Avengers,
Starting point is 00:42:50 where all of the superpowers are duking it out now and we're having this battle of incompatible systems of power, that's crazy. So what happens after all this, after this becomes a massive media sensation, is two big things happen. The first thing that happens, and this is really important for understanding the second half of this conflict,
Starting point is 00:43:11 is the Schindlers change their arguments. So originally their argument for the last, what, 13 years of this fight, their argument has always been Terry is in a coma, but she could get better. We aren't ready to give up on her yet. As soon as the religious right gets to them, their argument becomes, she's not in a coma, she's fine.
Starting point is 00:43:32 To this day, I listened to a lot of interviews with Bobby Schindler, her brother, he refers to her as someone with cognitive disabilities. He's like, Terry was one of millions of Americans living with cognitive impairments. He compares it to Down syndrome, what she has. This is also like there's a huge slice of anti-abortion rhetoric that's about how,
Starting point is 00:43:53 no, actually abortion is genocidal toward people with cognitive disabilities, and therefore, and it's like, all right, if you care so much about people with disabilities as the American right, throw some money at that. Don't loop in some relatively disconnected issue and try and use an unrelated argument in order to get your way.
Starting point is 00:44:14 Which I don't blame the family in any of this. I see the Schindlers as being preyed on by this juggernaut of money and power and legal assets. Yeah, and this is what I sort of think happened to, when you never know what happened behind the scenes, but it seems like they had these pre-existing denial about their daughter's condition. They had this pre-existing anger at Michael Shiveau,
Starting point is 00:44:34 which is sort of metastasized into something much bigger. And then comes these people in that say, we wanna help you in your fight, and we're gonna tell you a new story that feeds on whatever denial is already there, and says, your daughter is fine. Your daughter just needs a little bit of rehab. She's a little bit disabled, but this is a person who wants to,
Starting point is 00:44:53 they use the word murder, too. This is a person who wants to murder a disabled person. Well, once you throw the word murder in there, it's Michael Shiveau, he's a murderer now, so oh well. So one of the people that's advising them has an op-ed in USA Today, this is the perfect encapsulation of this argument. He says, by any definition, Terry Shiveau is alive.
Starting point is 00:45:13 She has now been issued a death sentence in the courts. Serial killers like Ted Bundy have more rights on death row than Terry Shiveau does at her hospice. Can we not bring Ted Bundy into this for five minutes? And this is a huge talking point, is it's all about due process. It's all about, you know, she's innocent, she's someone who's just living her life
Starting point is 00:45:34 as she's a little bit impaired, but not profoundly. She's someone who's working on improving herself, and then comes somebody and just is trying to murder her for no reason. It's this totally up is down, left is right stuff. Yeah, and now it's that her husband, for reasons that no one's ever gonna go into because they don't make sense,
Starting point is 00:45:54 like has this malicious intent for his wife and like wants to kill her, and it's like, what are you using to support that argument, aside from the fact that you need it to be that puzzle piece to complete this picture that you're selling? Well, the thing that they do that is really devious, all of those videotapes that were taken of Terry when the doctors were examining her,
Starting point is 00:46:17 they edit down those videotapes to make it look like she's responding to stimulus. So the actual tapes are four and a half hours long, and it's doctors saying like, Terry, Terry, can you hear me? And she's not responding, but by coincidence, by random reflexive response, one time they say Terry and she goes, huh?
Starting point is 00:46:39 And that, of course, is the take that they use. And so there's footage where there's balloons in the room and it looks at one tiny moment. I mean, these are like four second snippets that it looks like she's following the balloons across the room with her eyes. And so to this day, the four and a half hour video has never been released,
Starting point is 00:46:58 but this four minute video gets posted on terryshibo.com by the family. This is the tape that everyone in America sees because it's visual, right? So all the news stations want to run it. I remember when this was on TV, and I remember I, God, trying to get back to like what I thought at that time.
Starting point is 00:47:15 I think I felt like I really was not qualified to have an opinion, which is a reasonable thing to think as a 17 year old. And also it turns out today. But yeah, I guess that like, I remember those being these really central images and the public debate about this and this idea of like, look, like seeing is believing, like this is Terry,
Starting point is 00:47:33 this is the situation. Like, and then as an American who's completely disconnected to all this, like if you were given, you know, a little morsel of information that allows you to confirm a story that you would like to believe anyway, then like, great, you'll run with it.
Starting point is 00:47:49 And like Michael Shibo, this whole time is saying, it's a four and a half hour tape. You're getting a four minute snippet. He has the tape. He has the four and a half hour version because he has it from all the court hearings. He could have released it, but he says, Terry was concerned about her looks.
Starting point is 00:48:05 She wouldn't want the whole country to see her like this. Which is, you know, from a cynical media strategy perspective, is like, why the hell didn't you release the full tape, man? But then as just a stubborn guy who loves his wife and is the only person in America that actually knows this woman, is like, she doesn't want people to see her like this. It's embarrassing for her.
Starting point is 00:48:26 And if you're inside of something that's become a media fracas, like you're not seeing things, like through like the optics of the situation or whatever, like you're like, listen, like I know what I know. And like to me, it's like very clear what's going on. And like there's ample evidence for people to use if they would like to, which I hope they would.
Starting point is 00:48:46 So like, why is it necessary for me to throw like another little piece of kindling onto the fire? We see this over and over again that once a public figure is sort of strident about telling the truth about the fundamental bullshit of the fact that they are a public figure, America doesn't like that. America sort of wants you to play the game.
Starting point is 00:49:05 And so one of the things he says that I love this quote, he's, you know, this is once politicians from the Pope and everybody, he says, to make comments that Terry would want to live, how do they know? Have they ever met her? What color are her eyes? What's her middle name?
Starting point is 00:49:18 What's her favorite color? They don't have any clue who Terry is. They should be ashamed of themselves. Yeah, they should be. Yeah. Dude. Like being in that position, like it's understandable to be a little snippy,
Starting point is 00:49:29 I would say. Yeah. Oh, totally. Another thing they do, and this drives me crazy, is they start demonizing Michael Scheibose. Of course. So there's all of a sudden, there's all these questions of why did she have a heart attack?
Starting point is 00:49:41 Did she really have a heart attack? Oh my God. When the paramedics came, they said it was an unusual heart attack. And of course, the only reason the paramedics wrote that it was unusual is because not that many 26-year-old women have heart attacks. How many bananas did Michael buy that year?
Starting point is 00:49:56 And could he have been buying her more? Yeah. And then also there's a lot of lies about this too, that there's this rumor that he waited 40 minutes to call the paramedics, which is not true, because if it was true, she would have died. She wouldn't have been in a persistent vegetative state. She simply would have died.
Starting point is 00:50:10 This really bums me out, that the Schindlers start saying, oh, well, he's abandoned her. He's taken terrible care of her. We're the ones that are trying to take care of Terry, but he has just completely abandoned her. He's off with his new wife. They try to sue Michael Scheibose for divorce
Starting point is 00:50:27 on behalf of Terry, which again, legally precedent speaking, is like, what? If your in-laws can divorce you, then like, a lot of people are gonna wake up divorced tomorrow, if that's the precedent we said. Also, they seize on, as it always is, they seize on these weird non-details. So one of the things is, they were in a troubled marriage,
Starting point is 00:50:47 which there's no evidence of, that he's such a control freak that he keeps track of the mileage on Terry's Toyota Celica, because they hear this from one of her coworkers or something. I keep track of my mileage because I'm self-employed and I travel for my work. You can just as easily construe it.
Starting point is 00:51:04 It's like, what a caring husband who's like keeping track of the family finances and whatever. There are so many reasons that you might do that and Spousal Abuse is low on the list. I think he's kind of a cheapskate, like there's other evidence that he's kind of a cheapskate, which is like, fine. There's also this thing that everyone seizes on
Starting point is 00:51:22 as like weird behavior and bad behavior, that they ask her what he's done with her engagement ring or with her wedding ring and he says, I melted it down and I made a version of it, like I turned it into a ring that fits me and I wear it now. And people are like, wow, that's weird. Like he's taking her ring and melting it down.
Starting point is 00:51:41 And it's like, isn't that just like a nice thing to do so that he can keep her with him all the time? Like that actually seems sweet to me. It is sweet. I think that's lovely. And like the worst part of these media circuses to me is that America becomes this big middle school. And it's just like we're sniping about someone
Starting point is 00:52:03 behind the bleachers in eighth grade. And we're like, I hear that Michael Shivao did this weird thing. And it's like, we've got so excited about being able to lower ourselves into this judgmental feeding frenzy. Yeah. So he starts getting death threats. Of course.
Starting point is 00:52:20 Interestingly, his girlfriend at the time, Jodi, also starts getting death threats. Of course Jodi's getting death threats because she's the most evil person of all in all this. Like the woman who dared to enter a relationship with someone whose wife was in a persistent vegetative state. Like she's the one to be blamed. Also, the wife of his brother starts getting death threats.
Starting point is 00:52:42 Like these cars are driving by their house and it feels like they're just looking for any woman to blame. Like what is it? They're going through the family tree and they're like, Michael, no, like. They find out he has a lady male carrier and they're like, it's all marriage is false.
Starting point is 00:52:57 Yeah. But so the framing that happens here, and this is really important for why the media, I think, super fucked this up, is the shindlers start telling more and more outlandish lies about Shiavo. So they've just been being backed into a corner for years and years now. And now it's like suddenly reached a flash point
Starting point is 00:53:18 and they're just going for it. So I watched a Larry King live interview with Michael Shiavo from 2004, like after it becomes this massive media frenzy. And they do this thing that happens in every interview with Michael Shiavo throughout this entire period where they play clips of Bob Shindler saying, the ramifications of her medical neglect have to be taken care of.
Starting point is 00:53:39 Medically, she hasn't had a gynecological test in 10 years. Her teeth have been cleaned in 10 years. And then they're like, Michael Shiavo, how do you respond? Poor Michael Shiavo then has to respond to, these are lies. Her teeth are cleaned as part of her hospital care. They brush her teeth every night. And he's visibly uncomfortable in this interview. He's like, to do a gynecological exam on a woman
Starting point is 00:54:01 in a persistent vegetative state, you have to pry her legs open. Unless there's evidence of some sort of infection, we don't do that. This is not something that Terry is being denied. This is something that people in persistent vegetative states do not get. Right, it's just doing more harm than good
Starting point is 00:54:18 to be palpating her for cysts or whatever they would be doing. Yeah, and also like because of the order that they do that, whoever speaks first, if you're John Q. Driveway trying to assemble this narrative in your head, the first party is the one you assume to be correct and then Michael Shiavo has to be in a defensive position. What drives me nuts is at this point, there's been an independent investigation.
Starting point is 00:54:40 There's been seven or eight trials at this point and judges every single time have found that Michael Shiavo gave her amazing care. The guy got a fucking nursing degree. Instead of saying like, this is something that the Schindlers are saying with really no evidence and courts have found against this eight times, they're saying like, well, you know they say
Starting point is 00:55:00 that you're trying to set her on fire every day and like, well, how do you respond to that? It's like Michael, like I don't know that you're not a dragon. Yeah, exactly. Like everything I've experienced indicates that you're a human male, but like I don't, it's still possible.
Starting point is 00:55:14 They're also saying that he's doing it for the money, which he points out at this time, there's only $50,000 left in the estate at this point, cause her care is costing a fortune. $700,000 doesn't amortize out very well over 20 years of local care and legal battles. Michael Shiavo claims there's no money left. I wanted to like double check this.
Starting point is 00:55:32 Yeah, that's why you're great. The courts also found that there was no money left and when she eventually died, there's no evidence that he inherited anything. There's no, his salary is $60,000 now, he lives in a small house. There was this rush among the entire media apparatus to see this as there have to be good arguments
Starting point is 00:55:51 on both sides, but nobody wanted to point out that one side of the argument had science, courts, wasn't lying, like there were no outlandish conspiracy theories about the Schindlers. And so that's why I remember it being as like, kind of murky and who can say, and you know, end of life issues are really tough. And this one, I don't know if it's all that tough.
Starting point is 00:56:14 I think it's like, people made it seem tougher than it was. If we were to approach this reasonably, we would have to be like, okay, so like these people are saying things that are demonstrably not true. Like if you don't believe what Michael says about the dental care thing, then you can look at the video and think like,
Starting point is 00:56:29 well, if she hasn't had her teeth cleaned in 10 years, we would be able to see it on the tape. Yeah, exactly. Instead of it making them less credible to the public, it makes them more credible because we're just more willing to believe the story that has a clear villain, I guess. Right.
Starting point is 00:56:44 And so speaking of villains, this is when this gets really political. So in 2003, after these 27,000 emails, Jeff Bush steps in. Wow. So this is after the dueling doctor's case, a judge has ordered that Michael can remove Terry's feeding tube.
Starting point is 00:57:02 The Florida legislature passes a law called Terry's law. Oh my God, no. No more laws named after white women, right? I know. And in a continuation of the theme from this episode, that's an insane precedent where it allows a governor, the law says a governor can overturn a court ruling, but a governor can only do this in a situation
Starting point is 00:57:28 involving a patient with no written will in a persistent vegetative state with a family conflict whose feeding tube has been removed. Whose name is Terry? Like, they're essentially saying, we don't like how this court has ruled. We're going to pass a law saying the governor can overrule court rulings in this one case.
Starting point is 00:57:47 You feel like Jeff Bush saw this massive rumble happening down the street, you know, and like the Pope shows up on his Harley and gets in the mix and you know, the conservative right is there whipping their chains around and so Jeff Bush like suits up and puts on his Costco fleece and he just runs in there, you know. He's going to get in on it too.
Starting point is 00:58:07 He's in the dog pile now. And that's almost literal in that what happens is she's been moved to a hospice, care facility, like about to parish facility. Jeff Bush orders cops to come and get her and move her back. Yeah, that's the best use of police manpower in the state of Florida at this time. Sure.
Starting point is 00:58:26 Literally an ambulance with a police escort moves her back to where she was. Lord, I mean, you certainly get a lot of public goodwill for being the man who valiantly saved the poor abused vegetative woman from being murdered by her evil husband. Oh yeah. And this is wildly popular at the time
Starting point is 00:58:46 with conservative Christians. I mean, I'm glad that Jeb got praised for something one time in his life, but it seems rather ill-gotten. Yeah, and of course, I mean, it only lasts, I think it's six weeks before a court overturns it. When a court is like, fuck no, you can't just say we don't have powers that we do have.
Starting point is 00:59:03 Like that's not how the three branches of government work. It's a very low standard for politicians in terms of like how the legal system holds them accountable for what they should have known, right? Like we expect people living and grinding poverty to be 1,000% on top of their paperwork and citations and bills and whatever and to like never miss a beat. But if you're the governor of Florida,
Starting point is 00:59:25 you're given the benefit of a doubt for attempting to pass legislation that openly flouts the law in your state and your country. And this is basically what salty judge number two says. The quote is, the judicial branch would be subordinated to the final directive of the other branches. Also subordinated would be the rights of individuals,
Starting point is 00:59:45 including the well-established privacy right to self-determination. No court judgment could ever be considered truly final. This is a huge violation of Michael Scheibo's rights that he was acting completely in accordance with the law. And you're just saying like, no? You're right, like every way that you have of invalidating this case specifically also,
Starting point is 01:00:04 you then throw out a huge swath of the legal foundation of our society. It's amazing. And so this gets struck down. They're trying to take out the feeding tube again, but then the Schindlers file another emergency appeal. Oh my God, you guys, I know. Please.
Starting point is 01:00:20 This then gets appealed to the Supreme Court. The Supreme Court, thank God, declines to hear it. Good for them. We're nearing the denouement. So in March of 2005, this is two years after the court decision law, whatever, the feeding tube is removed again. And this is when the U.S. Congress gets involved.
Starting point is 01:00:38 Oh my God. Because they were like, you know what? I feel left out. Yeah. I want to be a part of this too. Why wasn't I invited to the irrational legal challenge party? This is where we get the famous thing where Bill Frist,
Starting point is 01:00:51 who's a Republican senator, he's a former surgeon, he looks at the four minute videotape and he says, there's no way she's in a persistent vegetative state. I don't feel comfortable imposing a sentence that we would not wish on the worst criminal. Yeah. Oh, go. I know, right?
Starting point is 01:01:07 You guys, you actively, vocally, verbally wish way worse things on all kinds of criminals all the time. Like you can't use all the high flying rhetoric you want, but don't directly contradict something you said yesterday. I mean, yes. This is also, of course, fucking Rick Santorum shows up in this. It's a who's who of terrible mid-auts, politicians,
Starting point is 01:01:29 and media. Yes, and it's so notable for the way that it shows how the rhetoric has changed. So Rick Santorum compares Terry Shiveau to someone with cerebral palsy. Oh my god. He's like, you know, you're talking about murdering lightly semi-disabled people who are perfectly
Starting point is 01:01:46 capable of functioning in a society. And could rejoin the workforce at any time. Yes, exactly. Like she's a little bit disabled. She has maybe some physical therapy she still needs to do, but fundamentally you're trying to kill this woman who's basically a normal person and perfectly capable of functioning on her own.
Starting point is 01:02:03 Does anyone probe this argument at all? They're just like, OK, so if she just needs a little rehab, then why has she been non-responsive and in bed for the last 16 years? Like if this is so easy for her to overcome, then why hasn't she at any time? And at this point, we've now had more than 24 legal rulings. We've now had a second independent investigator,
Starting point is 01:02:27 also a conservative Florida Christian, who also looked into this and also concluded that she was getting amazing care, that she was never going to come out of this coma, and that the Schindlers were wildly misconstruing what her condition was. So all you had to do was look at the vast court records on this. Also, speaking of terrible precedents,
Starting point is 01:02:49 we have Tom DeLay, the House Majority Leader of the Times. Of course, he's a part of this. The time will come for the men responsible for this to answer for their behavior. He's talking about the judges that ruled in the case. He threatens to impeach them. And he says, we're going to have to look at the unaccountable, arrogant, out-of-control judiciary
Starting point is 01:03:06 that's thumbing their nose at Congress and the president. Don't come for the salty judges, Tom DeLay. I will fight you. I mean, the most cynical thing about this, there's a memo that goes around the Hill and eventually gets leaked to the Washington Post, where it's talking about how this is a winning political issue for Republicans, that this is a way to fire up your base.
Starting point is 01:03:25 This is something that Christians are really concerned about. And so giving a speech about this, doing something about this, is a way to really rally these people to you for the next election. Yeah. And it's like, the Republican Party, I think, really became the party of anecdotes also. Totally.
Starting point is 01:03:40 So they pass a law to put her feeding tube back in, basically. And historians say it's the only law in American history that only applies to one person. It is literally like an anecdotal law. It's like, again, it's written in this extremely narrow way. And it's pretending to be jurisdictional. It's like, oh, the jurisdiction should pass to federal courts when end of life guardianship issues.
Starting point is 01:04:07 But it's technical and weird. And what's really amazing, it passed overwhelmingly. It passed the House 203 to 58. 47 Democrats voted for it. Barack Obama voted for it. Barack. He says it's his biggest regret from when he was in Congress. And also Bush, George W. Bush at the time
Starting point is 01:04:26 who's the president, flies back from his Texas ranch in the middle of the night to sign the bill on Palm Sunday. He does this whole big thing. As he signs it, he says, and you'll love this. The essence of civilization is that the strong have a duty to protect the weak. In cases where there are serious doubts and questions, the presumption should always be in favor of life.
Starting point is 01:04:47 Yeah. I mean, there's this whole right-wing patriarchal rhetoric of there are people who are the Kallis, and there are people who are the wolves. And the Kallis are the alpha males. And most people are sheep, and presumably all women are. And so I'm a Kali. And he's being his best Kali self in that.
Starting point is 01:05:09 One of the inspiring things about this is that this was actually wildly unpopular with the US public. I think the politicians overplayed their hand. They got overexcited about a product. No one actually wanted as much as the new coke of political gandas. I mean, listen to this.
Starting point is 01:05:25 There was a poll in 2005, just after her feeding dupe was removed, 61% of white evangelical Protestants were against blocking his wishes. Wow. The Christians themselves were like, look, dude, it's up to the husband. Like, people were not as enamored with this as politicians thought they were going to be.
Starting point is 01:05:45 Yeah, politicians also just they love to be able to crusade on behalf of someone who can't communicate their own wishes. And this, I think, was probably more fun for them than for anyone else. So the last gasp of this is that Congress passes this weird law. Courts in Florida, again, overturn it
Starting point is 01:06:03 because they're like, you can't just overturn a state court decision. This is not how it works. Then this is nuts. Jeb Bush tries to file a motion on behalf of Terry Shribo. She's being abused, again, no evidence, and tries to have state troopers physically come and get her and remove her from the hospice facility where
Starting point is 01:06:26 her feeding tube has been removed. This is like the ultimate case of white people calling the cops unnecessarily. He's essentially sending in a police force. He's imposing martial law. Yes. And again, because there's so many wonderful, ridiculous constitutional problems
Starting point is 01:06:41 with this entire case, everyone points out you've got a constitutional crisis where the local cops who are defending the hospice because they're getting all these death threats are then going to have to clash with state troopers who are going to come and get her. So you've got two law enforcement agencies with two completely different mandates.
Starting point is 01:06:59 What is your plan, son? The same salty judge from the doctor's trial knocks this down. Oh, God. To his credit, Jeb Bush abides by the decision. It takes 13 days, and she dies in early April of 2005. One of the really interesting things, and one of the things that comes out a lot afterwards, is an autopsy is performed that finds that her brain is half the size
Starting point is 01:07:25 of a normal human brain of what it would be for a woman of her age. And she's been legally blind for more than a decade. So all that stuff with the balloons of following the balloons is physically impossible. And so this essentially vindicates everything that Michael Shiavo has been arguing in court for 15 years, that her brain was mostly liquid.
Starting point is 01:07:46 There was no sort of fiber material left in it. It's just like a little ball of liquid at that point. So it's essentially gone and had been gone for years. And so her gravestone says, beloved wife, born 1963, departed this earth 1990 at peace 2005. I kept my promise. Oh, wow. I learned that I'm wrong about Michael Shiavo.
Starting point is 01:08:09 Right? Because I certainly didn't think coming in that he was the monster that the media had depicted him as, because that's never the case. But I was ready for him to just be a regular, OK husband who just was adequate in all this, and didn't make great choices, and didn't make terrible ones. I mean, it was because whatever.
Starting point is 01:08:28 I was ready for him to be just a regular person. But he was devoted. I mean, the thing with the bed sores still gets me. That she had really good care her whole life. And after Terry dies, about a year later, he and Jody end up getting married. And he takes the ring that he made from Terry's ring, and he puts two rings onto Jody, because one is for Terry
Starting point is 01:08:51 and one is for him. It just shows that there were three people in this marriage, and it sounds like he was totally honest about it. Yeah. And there are more than two people in a lot of marriages. The question is not whether that should or shouldn't happen, but whether people are being honest about it. And of course, Jeb Bush, the day after Terry dies,
Starting point is 01:09:08 calls the state prosecutor and asks him to investigate Michael Shribo for abuse. Jeb, settle down. So of course, this guy comes back in like two weeks, and like 50 other people, he's like, I've looked into it. There's no evidence for abuse. Like, there's nothing there. It's too bad that there are like no other cases of domestic abuse
Starting point is 01:09:25 anywhere in Florida at this time. And this is the only guy that we need to be scrutinizing. I mean, my thing is like the power of denial, the power of both siding in the media, the power of the religious right to make things into controversies that sort of weren't controversies. The public rarely contemplates its own power to abuse people by making them the focal point of attention.
Starting point is 01:09:52 And ultimately, that level of attention, I think, always constitutes abuse to some extent. Because if you're in the center of that, you're always going to be stripped of your humanity. You're always going to become a figure in allegory. Like, fame is essentially abuse in some ways, I believe. And like, there was no compelling reason for any of these people to receive as much attention
Starting point is 01:10:13 as they did. Yeah, I mean, you think about somebody like Michael Shribo and what he was going through that he didn't choose any of this. You know, he wanted this to stay a private thing. And it was really the Christian right that made it this rallying cry. And then politicians who picked up the baton. And I remember the sense at the time of like, oh, you know,
Starting point is 01:10:30 he just wants to be done with it and kill his wife and move on and marry someone else. Because obviously, no one can get divorced in this country. Right. You know, one of the big questions is why didn't he just divorce her, right? Because if he divorces her, her control of her goes over to her parents.
Starting point is 01:10:45 And then he can walk away. And what he says is he loves her. This is what she wanted. And I mean, we don't know that well what she really wanted. I think he's just kind of a stubborn person. I think that's probably in there, too. But I mean, you can see it as fanatical and crazy, but you can also see it as kind of amazing and kind of sweet.
Starting point is 01:11:05 I don't know if that's an answerable question of why he didn't divorce her. Yeah. And also, it's none of America's business. It doesn't affect us. Totally. It doesn't matter to anyone but the people in this family. Totally.
Starting point is 01:11:18 The way that people determine if they want their loved ones to remain in the state, if they want them not to remain in the state, it's really none of my business and I'm not comfortable having strong opinions on what other people should do. I think you need to run on the platform of the none of my business party. And I'll be like, when Tammy Metzler ran for class president
Starting point is 01:11:38 in election, you'll be like, my party says that I will leave you the fuck alone. And vote for me or don't. I don't care. I think we really get in trouble when we feel as if saying that one argument has objective legitimacy in a way that the other side doesn't means invalidating the intent of the other side, which
Starting point is 01:11:57 you don't need to do. You can say legally, Michael Shivo, everything about our legal system, everything that science and medicine was able to say conclusively about any of this supported his argument. And that doesn't mean that her parents had bad intentions. They seemed to have really flailed at the end there. But they were doing what they did because they had a daughter
Starting point is 01:12:23 who they loved and who was taken from them in this horrible and senseless way, way too early. And also probably had some perhaps staggering amounts of residual guilt about the fact that she died because she was damaging her body in this way that no one noticed. Because that's very, there are so many things that we can't know about the people that we are closest to.
Starting point is 01:12:44 And they don't have to be anything but just decent, tragedy struck people in all this. The fact that they're wrong and the fact that they're producing arguments that don't really make sense, that doesn't, you know, that's fine. Like we can acknowledge that and it doesn't mean anything bad about them. It just means that they were having a really hard time
Starting point is 01:13:06 because something really hard happened to them. Can I still hate Rick Santorum, though? Oh, yeah. Ha, ha, ha! I'll get good. Ha, ha, ha!

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