You're Wrong About - Terri Schiavo
Episode Date: March 5, 2019Mike tells Sarah how the media, the president and the Pope turned a simple medical story into a complicated legal one. Digressions include canine loyalty, unionized space-workers and polyamory logisti...cs. Both co-hosts recorded in tiny rooms, but with very different acoustics. Continue reading →Support us:Subscribe on PatreonDonate on PaypalBuy cute merchWhere to find us: Sarah's other show, Why Are Dads Mike's other show, Maintenance PhaseSupport the show
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Michael, will you be my guardian?
Can this just be my living well?
I don't want to start another Google Doc.
Welcome to You're Wrong About,
the show where we learned that a story
that we thought was about a woman
was actually about everything but the actual woman.
Ooh, that's very on theme for today.
Well, it's a big theme in our Ann and Nicole Smith episodes,
so I feel like we're kind of carrying that over to this.
I am Michael Hobbs.
I'm a reporter for The Huffington Post.
I'm Sarah Marshall, and I'm a writer working on a book
about the Satanic Panic.
Ooh, you can get that out.
I don't know why I did that.
I'm imagining your book like one of those singing greeting
cards that when you open up, it just makes that sound.
Well, now that you've said that, we can certainly
try and arrange it.
And today, we're talking about Terry Shiveau.
Yeah, which I was reminiscing about last night
with a friend who I went to high school with
because I went to Episcopalian school.
And there had been this sense of a national vigil
as people waited for her to die.
And I remember sitting in chapel in one of our teachers
announcing that Terry Shiveau had died
and this little gasp rising up.
And I remember feeling that it was this very sad thing,
but also that it was a weird thing for people
outside of this woman's family to be following so intensely
and feeling attached to and not knowing what to do with that.
So I'm very curious about what really was going on.
And I have sensed from your text messages
that there is a lot to the tale.
Yes.
And I think my central finding in all the research
I've been doing about this over the last two weeks
is that I remember it too as a debate about medicine,
a debate about bioethics.
Right to die.
And what I found out is that it's really not about medicine.
It's much more about law because the medical issues were actually
much less complicated than most of the media made them out to be.
And it's really much more a case about the 30,
I'm not exaggerating, 30 trials that went on.
What?
Yes.
So the main thing, the hardest thing in the research
about this was just finding a chronological tale
of what actually happened.
So I'm going to try really hard to just do this chronologically
and start from the beginning and end at the ending.
All right.
So where do we begin our story?
So yes.
So I want to start with Terry Shiveau, who
is somebody that kind of disappeared
in the middle of all of this.
So she's born Teresa Marie Schindler.
Her parents are the Schindlers.
Her parents are conservative Catholics, which obviously
becomes important later.
Her dad sells industrial supplies.
Her mom is a housewife.
One of the best descriptions of what
we know about Terry Shiveau's upbringing
is one of the opening paragraphs of this Joan Diddy
and essay.
So she says, we have only snapshots of Terry Shiveau's
life before the series of events that interrupted
and eventually ended it.
There had been the four bedroom colonial on the leafy street
called Red Wing Lane.
There had been the day the yellow laboratory retriever, Bucky,
collapsed of old age in the driveway
and Terry tried in vain to resuscitate him.
There had been the many occasions on which her two
gerbils, named after the television characters,
Starsky and Hutch, got loose and into the air conditioning
unit in the basement.
One thing that's really interesting
is a lot of the accounts about Terry Shiveau's upbringing
right around what I think is sort of the most defining
feature of her life, that she was 250 pounds.
Really?
Yes, she spent all of her life as an outcast.
A lot of the feature length descriptions of her life
don't really go into detail about how lonely it
is for a larger, especially a girl, growing up in 1970s
America.
We don't have a lot of information about the extent to which
she was bullied or what her relationship with her parents
was or what her relationship with the other kids was.
But we know, according to one of the accounts,
she had more animals than friends.
That's something that always stuck out to me.
She doesn't appear to have ever dated anybody.
Michael Shiveau is actually the first guy she ever dated.
There are so many tragedies that begin with a woman
marrying the first man who ever took an interest in her.
Yes.
She just seems like a nice, lonely girl.
As so many of us are.
It's also really important for understanding what
eventually happened to her that sometime in her late teens
or early 20s, she lost 100 pounds.
So she started doing, remember, neutra fast, neutra slim?
Oh, yeah.
That shakes, yes.
The meal replacer, because in the 90s,
everyone was convinced that eating three meals a day
was cyberetic and wrong.
And I really cut that down to the smallest number possible.
Yeah.
She then meets Michael after that in community college.
They get married in 1984 when she's 21
and he's eight months older than her.
They have their honeymoon at Disney World.
He and her parents are really close.
Her brother lives in the same apartment complex as them.
They are a really tight knit unit of Michael Shiveau,
Terry Shiveau, and the Schindlers.
This is a very happy little family unit.
And the gerbils are happy.
The gerbils are happy.
Michael Shiveau is a restaurant manager.
He manages restaurants mostly on the night shift.
And Terry gets a job as an insurance claims clerk,
which I don't really know what that means,
but she works for Provincial Insurance doing claims paperwork
stuff.
But it's kind of like when you're, you know,
I always think of this around two crime novels where there's
like you're setting up the family that the bad thing is
going to happen to.
And you're like, and they both had, you know,
jobs that maybe you, the reader have no idea what that involves.
But like a regular old grown up job.
Yes.
And also they appear to be in what is quite a healthy marriage.
And she's wearing bikinis for the first time in her life.
She's gotten down to 110 pounds.
And she's feeling really good about herself.
Yeah.
And they start trying to get pregnant.
And of course, everybody goes over all of this evidence
a billion times for the next 14 years.
But it appears that because of her trying to keep this weight
off, Terry is undertaking more and more extreme methods.
So she's drinking between 12 and 15 ice teas per day,
diet ice teas.
I think it's because it's an appetite suppressant or something.
It's like one of the cultures of femininity America
is that you learn ways to just sort of lightly abuse your body.
And yeah, it's like caffeine.
It's a lot of volume.
You feel like you're eating, but you're not.
Yeah.
So she's doing this.
They're trying to get pregnant, but they can't get pregnant,
possibly because her body is in starvation mode.
That this is something that happens when you're
anorexic or you're not eating enough,
that regardless of your weight, your body kind of goes
into starvation mode and shuts down
all of these other biological systems.
Essentially, her body was not able to get pregnant.
But they don't really know this at the time.
But it's like she started this war with her body early on.
Yeah.
Based on the world that she's living in.
So it's like we're watching the early stages of what's
going to become this massive land war eventually.
It's like 1961, Vietnam.
That's Terry Shiveau's body.
Yes.
And so because she's drinking all these liquids,
it's messing with the chemical balance in her body.
So one of the things that happens
when you drink a ton of liquid is your potassium levels go down.
So a normal, apparently, level of potassium in your blood
is around 3.5 units of something.
And hers is around 2.
Was she bulimic also?
We don't know, but that appears to be the case.
OK.
The only thing that could explain the potassium imbalance
is if she's not getting enough nutrition.
One of the consequences of having really low potassium
is you can get a heart attack.
So this is what happens on February 25th of 1990.
They have been married for five years at this point.
Michael Shiveau gets home late from his restaurant job,
sometime around midnight, one, whatever.
He gets up at 4.30 in the morning,
just sort of wakes up for no reason.
He sees that she's not next to him in the bed.
And then as he sort of looks around,
he hears a thump from the bathroom.
And he's like, that's weird.
He walks out to the bathroom.
And Terry is face down with her feet in the bathroom
and her torso in the hall.
And she's unconscious.
He, of course, doesn't know that she's had a heart attack.
He doesn't know what's going on.
He just knows that his wife is passed out.
And you never suspect that about your 26-year-old wife,
who you see as a healthy person.
You don't think heart attack.
Michael immediately calls the paramedics.
He also calls Bobby Schindler, her brother,
who lives in the building with her.
Bobby runs over.
The paramedics get there.
Six, seven minutes later, they administer CPR.
She was without oxygen.
Her brain was without oxygen for some period of time.
We don't know.
But enough that it puts her into what
is known as a persistent vegetative state that
persists for the rest of her life.
And is it a common thing to beat a pride of oxygen
because of a cardiac episode and then end up
in a vegetative state because of that?
That's a very good question.
And this is what's so important about this case
and why it became such a big deal is that the really weird
thing about a persistent vegetative state
is the brain is gone.
So every measurement method we have
of understanding consciousness appears
to show that there is no thought going on.
All five of the senses are down.
You can't see, you can't hear, you can't feel.
There is no electricity in the brain.
So when you do PET scans and MRIs,
there's no activity in the brain.
However, your brainstem, which is all of your reflexive stuff,
everything your body does automatically,
that is unharmed.
So the weird thing about a persistent vegetative state
is that you have normal sleep and wake cycles.
Really?
So you go to sleep at night and you wake up during the day.
Your eyes are open.
Like often you make sounds.
Sometimes they laugh.
Wow.
It's one of these things,
and this is what's so heartbreaking about it,
is you're basically dead, but your body is still alive.
But we're getting way into the existential crevasse already.
I mean, this is from a New England Journal of Medicine
article about this persistent vegetative state
when they were first discovering it.
Patients in a vegetative state are usually not immobile.
They may move the trunk or limbs in meaningless ways.
They may occasionally smile and a few may even shed tears.
Some utter grunts or on rare occasions moan or scream.
Such activities are inconsistent, non-purposeful
and coordinated only when they are expressed
as part of a subcortical, instinctively patterned,
reflexive response to external stimulation.
So it's not something where,
if you shine a light in their eyes,
they will turn toward the light.
Or if you give them a voice command,
they will respond to a voice command.
Their pupils don't dilate.
They're essentially giving out
these reflexive responses at random.
However, I can also imagine that the danger in that
is that just as if you have an idea of the volcano guide
and if I do this, the volcano will explode
and really you're just creating superstitions
around random events.
That like if you have someone who you love
and who's this person that you know
and who you see as that person
and sometimes randomly they will behave in ways
that you recognize as human behavior
and like their old behavior,
then you will I think be vulnerable to storytelling
just on a subconscious level about like,
okay, like if I do this, she does this.
Like when she seems happy on this day,
she seems sad on this day, like there is something.
And like, of course, if you want there
to be something there, then you have evidence
that allows you to construe that.
And this is something they mentioned
in the medical literature too,
that family members often have huge problems
accepting this diagnosis.
Because they're like, no, she's in there.
She can hear me.
So one of the things they mentioned in this article
is these motor activities may misleadingly suggest
purposeful movements, yet these responses
have been observed in patients
in whom careful study has disclosed no evidence
of psychological awareness or the capacity
to engage in learned behavior.
So there's no consciousness,
but if you sit there for a couple hours with somebody,
with one of your loved ones,
who's giving out all of these responses,
it does feel to you like they can sense your presence.
It does feel to you like they notice
when you walk into a room.
That's what makes this so much harder
than if it was this inert sleeping beauty type of figure.
We're not rational beings.
And the problem is that we just really want
to see ourselves that way.
And of course, then law and medicine
are both based very much on this idea
of humans can make reasonable choices
altogether at once and like, kind of.
So one thing that sort of gets lost later on
once the rest of the country finds out about this case
is that Michael and the Schindlers together
spend the next three years doing everything.
They do fundraisers for her.
They fly her out to California
to get this thing implanted in her brain
that will give her electric sort of electric shocks
in her brain to try to kind of wake it up
like a defibrillator.
God, like all the terrible like snake oil salesmen
preying on people with loved ones
with in persistent vegetative states.
I can only imagine the breadth of that industry.
But I mean, it's actually quite touching.
Like before the story gets really ugly,
it's actually really beautiful
that he records family members telling stories
reading books and he puts them on a Walkman
and he puts headphones on Terry
and he plays the tapes for her.
He gets a degree in nursing.
What?
So Michael Shrivo to this day is a nurse.
He switches careers.
Wow.
He goes to school at night.
Another weird thing about persistent vegetative state
is she's not hooked up to any machines.
She's reading on her own.
She doesn't have electrodes attached to her, anything.
All she has is a feeding tube in.
So Michael during these years
will take her in a wheelchair to the mall
and get her hair done, her makeup done.
She was somebody that cared a lot
about the way that she looked.
You know, I find it reassuring in a way
to know that if you have someone you love
who ends up in a persistent vegetative state,
you can take them to get the haircut
that they would have wanted, you know, that's nice.
It's complicated, but it's something.
But it's something that he, you know,
he's really trying to honor her.
He still has this belief that she can get better.
She can, you know, he can get her back somehow.
I mean, this goes on for three years
and the Schindlers are telling Michael to move on.
They're telling him, you know,
she's probably not going to come back.
It's okay for you to meet new women.
They, at one point he's dating a woman
three years after the heart attack
and he brings her home to meet the Schindlers.
So this is something that they're working on together
and their relationship is still really strong at that point.
And when I was in high school,
the narrative around Michael Shiva
was just that he was a no good Nick.
Like that's the only thing I remember hearing about him.
So for all of the debates around this case,
one of the things that really isn't upper debate
is that Michael treated her extremely well
and really advocated for her care.
He was so diligent with the nurses
that they filed a restraining order against him
so that he couldn't visit as much as he was.
Oh, Michael.
So one of the nurses that they eventually interviewed later
for one of the court trials says he may be a bastard,
but if I was sick like that, I wish he was my husband.
Oh, that's such a great quote.
That's his vibe.
Nothing is more important to me than my wife
and I'm kind of a dick to get my wife better care.
And so like if anything,
he's like annoyingly over attentive
and like overly aggressive about taking care of Terry, yeah.
So what happens in 1992,
he sues the hospital that was giving them fertility treatments
for malpractice because one of the weirdest things about this
is that during their year long attempt to get pregnant,
no one took her blood.
And if they had, they would have seen this potassium.
Oh.
He's arguing that this was extremely obvious.
Even a cursory blood test.
Anybody would have been like, oh shit,
we need to get her some potassium.
So he wins the malpractice suit.
He gets $300,000 in compensation for himself,
pain and suffering.
And importantly, he gets $700,000 for a trust fund
for her medical care.
And this is essentially what funds
her enormous medical bills for the rest of her life.
I love that in 1993 money,
you could win only a million dollars in a lawsuit.
Like you could take care of your wife
for the rest of her medically complicated life.
I mean, now it costs like $24 million
to buy a vial of insulin.
Oh, I know, I mean, one of the things I found
was that in one of the 1990 articles
about fundraisers they were having for her,
they're like, oh, we need your help.
Her care costs $3,000 a month.
And I'm like, damn, that's good.
Yeah, we're in like such mad max times by now
that we're like, wow, the horrible medical odysseys
of the 90s, what a great time at once.
So this ends up covering her care.
He hires someone to look after her
whose full-time job is looking after Terry.
One of the lessons of this episode
and of this show generally, I think,
is that it doesn't matter if you equate yourself
incredibly well and are like a great, caring,
thoughtful person or husband or wife or whatever
for like your, you know, a huge proportion of your life
because the minute you suddenly get thrust
into the spotlight, it doesn't matter
what the last 20 years were like,
it matters what things seem like at this very minute.
And so like, that's kind of liberating as well, I guess.
But so the reason why his relationship
with the Schindler's breaks down is over this settlement.
So it's difficult to find out what exactly went on
because these tales of what actually happened
come out 10 years after the fact.
So we really don't know.
According to Michael Shivo,
he gets this big settlement, $1.1 million
and the Schindlers come to him and say, well, what's our cut?
What do we get out of this?
And he says, well, it's for Terry's care.
So I'm not giving you any of the money.
According to the Schindlers,
Michael just wanted to be done with it
and wanted to shut down Terry's care
and they wanted to keep her alive.
So according to them,
Michael was only interested in the money
and now he wanted to abandon Terry entirely.
And so the Rashomon begins
with two people claiming diametrically opposed things.
Yes, but what we do know
is there was some sort of fist fight.
What?
Yeah, there's some fight
between Michael Shivo and Terry's father.
So they come to physical blows over whatever, wow.
Whatever this conflict was
and they don't, neither one of them dispute that.
There was some sort of scuffle.
And then Michael Shivo and the Schindlers never speak again.
Wow.
This case goes on for another 12 years.
They to this day have never spoken to each other.
They held separate funerals for Terry Shivo.
Yeah.
When you get into separate funerals territory,
you just are like, all right, call all the lawyers.
It's gonna be a bonanza.
You can make a lot of money representing people
who refuse to speak to each other.
The last thing you said is essentially what explains
the next 12 years of this case.
That like no one will just talk to each other.
So everything has to be a protracted legal battle.
Yeah.
This then leads to Michael's first acceptance
that she's not gonna get better.
It's slowly dawning on him
and doctors are telling him over and over again
that people do not exit persistent vegetative states.
People are not there.
And maybe that's like, he's grieved now, you know?
He's had his grief, he's had three years, you know?
And he's sort of separating from the family unit
that he was part of and like, it's healthy.
Like you can't, this is why I hate those stories
about the dog whose owner died
and then they sat at the train station every day
for 12 years and isn't it a great testament to dog's love.
And it's like, no, that's about how we as people
are self obsessed and mean.
And we would rather have someone be devoted to us forever
than like find another human and be happy with them.
Like it's very telling that we like those stories so much
and it's all about how humans are not the greatest, I think.
So just like the idea that like he would have been virtuous
or we would have been trustworthy
when this became national news,
if he'd like stayed at her bedside forever,
like that's a terrible thing to try and impose on someone
to guess that they never move on.
That would be awful.
And also he never really left her bedside.
I mean, another thing, even during this period,
he's visiting her constantly,
he talks all the time about how she was in bed for 13 years
and she never had a bed soar.
Like he made sure that she was really well taken care of.
So what happens in 1994 after the breakup with the Schindlers
is Terry gets a urinary tract infection
and one of the doctors at the hospital tells Michael,
look, she's probably not gonna get better.
Very few people in a persistent vegetative state
even live longer than three or four years.
The longest anyone has ever lived is like 10 years.
Like do you have like a really compromised immune system
within that or is it because your body
is just not performing in most of its functions
or what's that?
Yeah, just the body basically keeps deteriorating
the longer it's in this state that the muscle's atrophy,
the brain actually continues to shrink.
And so at a certain point,
even the reflective functions break down.
And what usually happens is something else happens.
You know, you get a cold or you get pneumonia or something
and then you end up dying of that.
And so in 1994, when she gets this infection,
a doctor at the hospital says,
it's probably best to just not treat this infection
and let it take its course.
It's awful, but that might just be the best for everybody.
And Michael agrees.
He's, you know, I've tried for three years.
I've tried everything I need to move on
and to mourn and get on with my life.
And so he allows this to happen.
And so is he at this point,
like the doctors, if they are making it a station
or like, okay, she has this UTI,
we need your approval to let it,
you know, to just let it run its course and not treat it.
Like, is he the person that they're going to
before anyone else?
And like, he has the saying that and her parents don't.
Yeah, so one of the things that's really important in this
is that he, because as her spouse, he is her guardian.
So when you are incapacitated,
somebody is appointed guardian for you.
And if you don't have a spouse,
it's typically your parents,
but it could be your kids.
It could be a best friend.
It could be whatever.
This is why people make living wills too,
of not only what their end of life care should be,
but who should make those decisions, right?
If they're incapable.
You've got another thing for me to worry about, fine.
I know.
So yeah, so he is in charge of making this decision
as her guardian.
And so the Schindlers, of course, are not happy about this
because they feel totally powerless.
And legally speaking, they are.
This is how it works.
Right.
So the Schindlers contact the hospital,
the hospital then lobbies to give her antibiotics
and treat the infection.
Michael is like, let's treat the infection, fine.
But then because he's not speaking to the Schindlers
and because everything gets into this much more legal frame
from now on, the Schindlers then sue
to get Michael removed as the guardian.
So this ends up getting tied up in the courts for two years.
Eventually, the action is dismissed with prejudice,
basically meaning it never should have been filed.
They have no standing under the law to do this
because the entire law is set up
that the surrogacy of the person
switches from the parents to the spouse
when they get married.
This is the entire basis of law.
Right.
They're like, you can't invalidate heteronormativity.
I'm sorry.
Yeah.
And so essentially they're arguing
that they have some sort of right to supersede her spouse.
There is no legal basis for that whatsoever.
So this is why it's dismissed.
How many suits that are filed
are like essentially a very elaborate legal equivalent
of expecting someone else to Google something for you?
So after all of that mess is over with,
in 1997, he then tries to remove her feeding tube
and allow her to die basically.
Then the Schindlers sue again to try to argue
that the feeding tube should not be removed
because it's not what she would have wanted.
So one of the things that's really interesting
about the law on end of life care
is that people remove their own feeding tubes all the time.
In every state, you are allowed to refuse
any medical treatment that you want
if a doctor says you need any replacement,
you're allowed to say I don't want any replacement.
Under the US legal system, food and water
are considered medical care.
So if you have terminal cancer
or you are in a lot of pain or for whatever reason,
you don't want to get food and water from a hospital
and you want to allow yourself to die, you can die.
That's non-controversial.
Okay, good.
That's good to have in my pocket.
But then it gets tricky when there's a surrogacy issue.
So if you are in a coma
and you cannot declare your wishes,
this job falls to somebody else.
And the legal standard is that your husband,
it's not what he wants for you,
he has to show this is what you would have wanted.
So it's essentially like prosecuting white collar crime
where you have to demonstrate frame of mind.
Yes, exactly.
Which is always impossible.
Yes.
And so so much of the legal battle that happens
over the next 10 years is about what did Terry want?
And by definition, as a 26-year-old,
you haven't thought terribly hard about this issue.
As a 26-year-old, she wanted to not end up
in a persistent vegetative state.
And I'm sure it's not something that people really tend
to think through before it happens.
So all we have of Terry Shrivo's wishes
is random comments that she made
where she'll be like, oh, my aunt had cancer
and I would never want to be hooked up to tubes
or there's something where Michael Shrivo's brother
was watching a TV movie with her
about someone with terminal illness
and she was like, no tubes for me.
Right, but that's like if you and I are watching Alien
and I'm like, you know,
I would just never become a space worker
if I weren't unionized.
But if I actually get a non-unionized space job
in 10 years, like I'm not gonna remember saying that.
Like I love this quote from the Joan Diddyan essay,
imagine it, you are in your early 20s,
you are watching a movie, say on Lifetime,
which someone has a feeding tube,
you pick up the empty chip bowl, no tubes for me,
you say as you get up to fill it.
What are the chances you have given this
even a passing thought?
And I don't know what a better system would be, right?
You're taking these little scraps of evidence,
but fundamentally, it's fundamentally unknowable
what she would have wanted.
And also, I mean, what's important about this trial
is that the Schindlers have not much evidence
that she would have wanted to stay alive in this state.
So they are on record and are still on record
as they think that she should be kept alive
no matter what.
So they say at one point during the trial
that even if she had diabetes
and all of her limbs were amputated,
they would want to keep her alive.
And that isn't necessarily based on her own wishes
because she wasn't as conservative a Catholic as they were.
That's based on their own wishes.
So the judge basically says,
look, the evidence that she wanted to end her life
is shitty, but it's evidence.
There's no evidence that she would have wanted
to continue her life in this state.
And then it's also getting into this fairly personal thing
of what do you assume a 26-year-old woman
who went into a persistent vegetative state would want?
If you don't have any real information about the person
you're claiming to talk about,
you're essentially talking about yourself.
And also, they've also now got this animosity toward Michael
because they haven't spoken in five years.
And so they are now casting him as much more of a monster.
They're stubborn people.
Michael Shrivo is a stubborn person.
And both of them are really entrenched
in their positions at this point too
and totally incapable of talking about it.
And also, isn't it so much better to feel
that you are pitting yourself against a clear enemy
than to be in a story where no one's gonna win,
no one's gonna lose, it just sucks for everyone?
That's the thing, I mean, it's so hard to have an enemy
staring you down from the other side of a battle line
and say, their motives are pretty understandable.
It's really hard to do that.
And so you come up with these stories
of like, well, they just want the money.
And I think that explains a lot of their relationship
with each other over the next 10 years,
where it's like the way they talk about each other,
the Schindlers and Michael Shrivo, fuck.
Yeah, but you're just like, you know what?
These are like three basically nice people
who just stopped being able to see each other
based on the conflict they were in.
And so a judge rules that he is allowed
to remove or feeding to.
This is the way that the system works.
So all of this is maintenance of the status quo?
Yeah, exactly, yes.
And then that ruling comes down,
they then file an emergency injunction,
which, I mean, you know, this is sort of the patterns
that as soon as there's a trial,
they appeal it and then appeal it.
And then they try to get the judge removed.
They try to get extra medical,
I mean, they're just kind of running out the clock.
If only the Schindlers could have taken all this energy
and legal go-getterism that they developed
and put it toward death penalty appeals.
Seriously.
A lot of those people don't have parents.
Another thing that happens at this time,
and because we're doing this chronologically,
this is a slight detour,
but we need to cover it now, Michael meets another woman.
Michael has decided to move on.
He meets this woman named Jody in 1993,
but they don't start dating until 1995.
I think the order of information of when you find things out
is very important for what you think about them.
So most of the country heard this entire story
about this man fighting for his wife
and how much he loves his wife.
And then it's like, but it turns out he's living
with another woman and it's like this twist.
Yeah, and the idea that you can be unfaithful to someone
who's been essentially dead for five years,
it's like, really, would you do that random citizen?
Would you?
Right, and also one thing that's really kind of beautiful
about it is Jody, his new girlfriend,
is making outfits for Terry and providing makeup to Terry
and she goes and visits Terry at one point.
This is a story of a bunch of nice ladies
who never deserve to be in all this.
Yeah, Michael is radically transparent
with his new girlfriend about his situation.
She knows everything, she's with him in court.
It's polyamory is what it is, right?
And no one has to do a Google doc, which is great,
because that's the worst part of polyamorous relationships.
Yeah, that you come into this relationship with someone
who's like, I still have all these feelings
for the woman I'm still married to
and she's a part of my life
and he's able to be honest about that
and Jody's able to be like, okay, that's the relation,
that's who you are.
People's lives are complicated
and relationships are complicated
and this is an unconventional relationship,
but what Michael ends up saying
is I've been lucky to have two loves of my life.
Oh, that's, yeah.
Yeah, wow, it's amazing also that once again,
that all of this information was available,
that when I was hearing about all of this
in high school that it's like, we knew,
if we had cared to know as the public,
we could have found out that this was
this like extremely decent, honest man, but no.
So basically because this whole thing
is getting tied up in the court so much,
so Michael goes to a Florida court and he says,
look, I'm sick of this.
I wanna hand this over to a court.
Whatever you decide, I am going to abide by,
I just want this to be over.
So in 1998, the court,
have you heard of this term, guardian ad litem?
Yes.
It's something where the court essentially
appoints an independent investigator
to interview everybody, to look at all of the facts.
And it's important to note that of the 30 legal decisions
that will eventually come down in this case,
all 30 of them are in favor of Michael Shrivo.
Wow.
Every single legal decision.
Serial killers don't get that many guilty verdicts
if they actually try them for, I mean, that's amazing.
It is something where Terry's parents are saying,
she knows when we're in the room,
she's responding to me, I'm her mother,
she can tell that I'm there.
So they appoint this independent investigator.
He looks into it and the nurses are saying,
Terry does that in empty rooms.
She does that with nurses.
She does that when someone comes in to clean the windows.
The Schindlers are saying that Michael Shrivo
shouldn't have the legal power to make the decision
because he will be a financial beneficiary of her estate.
So the $700,000, if Terry Shrivo dies,
Michael would then get that money.
I mean, people have done worse things for less,
but like it's a small amount of money
to be in this long of a con to get.
Like if that's their theory,
then it's not a persuasive one to me.
So what happens is, that is very strange is
the guardian ad light on this independent investigator
sides with them and says,
this is a huge conflict of interest.
He should not have the decision.
The best article I read on this entire case
was called What If the Schindlers Had Won?
And it's all about the insane legal precedents
that would have been set if the Schindlers
had won any of their challenges.
So one of the things that it mentions in that article
is if you're saying you cannot have any role
in somebody's death,
if you're going to be a financial beneficiary of it,
that invalidates 99% of end of life decisions
because who are the people that know you well enough
to know how you would want to end your life?
They are your family.
They are people who by definition
are going to be beneficiaries of your estate.
And I'm sure most of the time you're children
and those are the people that you're gonna,
unless you're Leona Helmsley,
leave most of your assets too.
So it's like if we say,
if you're gonna inherit any money from someone,
you can't decide whether to pull the plug.
No, that makes no sense.
Yeah, so if they had won any of their challenges,
this would have thrown a huge wrench
into a state law generally.
So essentially Michael points all of this out
and the court is like, yeah, that's insane.
Also the Schindlers,
whatever conflict of interest Michael Schreiber has,
the Schindlers would have that too
because if he gave up the guardian status to them
or if he divorced Terry and gave the money over to them,
then they would have the money
and they would benefit if Terry Schreiber died.
Right, so they're saying he is not entitled
to make a decision because the incentives for him
are too high, but they would be able
to equip themselves adequately
in exactly the same situation.
Yes, so the judge rules in favor Michael Schreiber
and says there is overwhelming credible evidence
that Terry Schreiber is totally unresponsive
and has severe structural brain damage.
To a large extent,
her brain has been replaced with spinal fluid.
Oh wow.
Again, every medical finding finds this result.
There isn't a lot of ambiguity
about her actual medical state.
They also rule that Michael should be able
to remove the feeding tube and the Schindlers appeal.
This is also a testament to like
how long you can drag something out legally.
I mean, it's just amazing that like this story starts
in 1989 and it ends in the 2000s.
2005.
2005, oh my God.
This really gets juicy
when the Florida Supreme Court rules
that they should go to some sort of evidentiary
hearing with doctors.
So one of the main arguments
that the Schindlers are making at this point
is that Terry's condition can improve.
They haven't tried everything.
They are saying we will call doctors
to give medical evidence that why don't we give it
one more shot, see how much she improves,
and then you can decide to take the feeding tube out.
I'm so excited to hear what manner
of doctors testified at this hearing.
So, I mean, this kind of goes the way
that you sort of expect it to at this point
where the physicians appointed by Michael Shrivo
are both neurologists.
They both have academically published papers
showing nobody recovers from persistent vegetative states.
The doctors appointed by the Schindlers,
one of them says there's this technique called
vacillation that will open the veins
so that more blood goes to Terry's brain
and the judge keeps asking for evidence
and all she gets is anecdotes.
So if you read the trial transcript,
they'll be like, okay, what are the published articles
showing that people in a persistent vegetative state
recover from this vacillation technique?
And the doctor's like, you should meet Emma.
Oh my God.
She got in a car accident
and now she is walking around
and she's fine.
Like these stories, the other doctors the same way
where it's like, okay,
what are the peer reviewed studies that we should consult?
And they're like, let me tell you about Tom.
Like this is the entire trial.
So we have Michael Shrivo's witnesses
who are approaching it medically
and then we have the Schindler witnesses
who are taking the daytime TV approach.
Exactly.
And so, you know, we love salty judge quotes.
Yes, we do.
The judge concludes,
what undermines Dr. Hammerfarr's credibility
is that he does not present to this court any evidence.
If his therapy is as effective
as he would lead this court to believe,
it is inconceivable that he would not produce
clinical results of these patients that he has treated.
And surely the medical literature would be replete
with this new now patented procedure.
The judge also mentioned,
he has only published one article
and that was in 1995 involving 63 patients,
60% of whom were suffering from whiplash.
So it's basically people that were
in like minor car accidents.
There's a point where they take footage.
So a lot of the doctors will go and examine Terry
and they have a camera there to show
whether she's responding to stimuli,
whether she's turning her head toward a light, et cetera.
And so at one point, this Dr. Hammerfarr guy says,
on the video, he's like,
oh, Terry, if you're in there, please squeeze my finger.
And then he looks at the judge and he's like,
see, she just squeezed my finger on the tape.
And the judge is like, no, she didn't.
That's not like, I can see the tape.
She's not squeezing shit.
Her hand didn't move.
And so the judge is just like not having it.
So the judge rules again,
that all of the medical evidence
is that she's unlikely to recover.
This is becoming a trend.
Yes.
And I mean, I don't want to be unfair to the chindlers.
My read on this after listening to a lot of interviews
with them is I just think they were in like deep denial.
Yeah, we can't hold people to a rational standard.
That's not fair.
Yeah.
You know, with these doctors and everything,
it's like when you subject them to court scrutiny,
it doesn't hold up.
But I can see parents being really desperate
for something to help their daughter
and being totally convinced
that their daughter still sees them in response to them.
I think, you know, at the bottom of it,
it's all very human.
Yeah.
I also think that we have a general sense in America
because of the way that we approach our legal systems
that like the law is about your feelings
in a way that it really isn't.
Our whole way of talking publicly about criminal justice
is about the feelings of the victim's family
and how do we respect their feelings
and how do we do what they want,
unless they want clemency, in which case, fuck them.
You know, and this idea that like,
that the law is about making someone emotionally whole,
which is like really one of the things
that it is most incapable of doing.
Yeah.
I mean, I think another thing that's important to know
about all of this, and I think explains a lot
about the early stages.
This is kind of stage one of this entire battle,
is that all of this is taking place in private.
There's no media coverage of any of this at this point.
I did a LexisNexis search for Terry Shiveau,
and there's one or two articles in 1990 of like fundraisers,
like come down to this fundraiser in St. Petersburg,
and then zero articles between 1990 and 2000,
and then in the early 2000s around this trial,
there's one or two little feature stories locally, whatever,
but it really doesn't blow up until 2003.
Yeah, and so how did that happen?
I mean, basically, this is when the Schindlers
start to get a lot less understandable.
Like they've run out of reasonable legal challenges,
and now they're just doing whatever they can do
to do something.
Exactly, and I think a huge part of the story
is the way that their relatively moderate,
relatively temperate outlook is totally warped
when the national religious right gets involved.
Once this hits the local media,
the right-wing groups see this as a huge cause
that they can benefit from.
So they start courting the Schindlers
and saying, we can get more attention for Terry.
We can save Terry.
The American right is just a volcano
that we're throwing lifeless white women into continually.
It looks ridiculous.
So what ends up happening is these Christian right groups
kind of adopt this fight as their own.
They start paying the legal fees of the Schindlers.
So one of the ways the Schindlers
were able to file so many lawsuits
is because they're getting this injection
of hundreds of thousands of dollars from the American right.
The American right also starts doing letter writing campaigns
to their own members.
So Jeb Bush is the governor of Florida at this point.
Jeb Bush in 2003 gets 27,000 letters
from people asking him to save Terry's life.
Oh my God.
This is also the time when the Pope weighs in
on the controversy.
What?
Yes, this is something I did not know until I started
researching this.
John Paul II, this is in 2003,
he apropos of nothing, sends out a press release.
This is the quote, the administration of water and food,
even when provided by artificial means,
always represents a natural means of preserving life,
not a medical act.
Its use, furthermore, should be considered
in principle, ordinary and proportionate
and as such morally obligatory.
Because this is something that the Christian right
is really interested in, is reclassifying food and water
so it's not medicine, so you can't refuse it.
And now we're in this situation where we have this standard
in American law and medicine that we have accepted.
We're like, okay, we know this, this is on the books,
but then the Pope shows up and it's like the Avengers,
where all of the superpowers are duking it out now
and we're having this battle of incompatible systems
of power, that's crazy.
So what happens after all this,
after this becomes a massive media sensation,
is two big things happen.
The first thing that happens, and this is really important
for understanding the second half of this conflict,
is the Schindlers change their arguments.
So originally their argument for the last,
what, 13 years of this fight,
their argument has always been Terry is in a coma,
but she could get better.
We aren't ready to give up on her yet.
As soon as the religious right gets to them,
their argument becomes, she's not in a coma, she's fine.
To this day, I listened to a lot of interviews
with Bobby Schindler, her brother,
he refers to her as someone with cognitive disabilities.
He's like, Terry was one of millions of Americans
living with cognitive impairments.
He compares it to Down syndrome, what she has.
This is also like there's a huge slice
of anti-abortion rhetoric that's about how,
no, actually abortion is genocidal toward people
with cognitive disabilities,
and therefore, and it's like, all right,
if you care so much about people with disabilities
as the American right, throw some money at that.
Don't loop in some relatively disconnected issue
and try and use an unrelated argument
in order to get your way.
Which I don't blame the family in any of this.
I see the Schindlers as being preyed on
by this juggernaut of money and power and legal assets.
Yeah, and this is what I sort of think happened to,
when you never know what happened behind the scenes,
but it seems like they had these pre-existing denial
about their daughter's condition.
They had this pre-existing anger at Michael Shiveau,
which is sort of metastasized into something much bigger.
And then comes these people in that say,
we wanna help you in your fight,
and we're gonna tell you a new story
that feeds on whatever denial is already there,
and says, your daughter is fine.
Your daughter just needs a little bit of rehab.
She's a little bit disabled, but this is a person who wants to,
they use the word murder, too.
This is a person who wants to murder a disabled person.
Well, once you throw the word murder in there,
it's Michael Shiveau, he's a murderer now, so oh well.
So one of the people that's advising them
has an op-ed in USA Today,
this is the perfect encapsulation of this argument.
He says, by any definition, Terry Shiveau is alive.
She has now been issued a death sentence in the courts.
Serial killers like Ted Bundy have more rights on death row
than Terry Shiveau does at her hospice.
Can we not bring Ted Bundy into this for five minutes?
And this is a huge talking point,
is it's all about due process.
It's all about, you know, she's innocent,
she's someone who's just living her life
as she's a little bit impaired, but not profoundly.
She's someone who's working on improving herself,
and then comes somebody and just is trying to murder her
for no reason.
It's this totally up is down, left is right stuff.
Yeah, and now it's that her husband,
for reasons that no one's ever gonna go into
because they don't make sense,
like has this malicious intent for his wife
and like wants to kill her,
and it's like, what are you using to support that argument,
aside from the fact that you need it to be that puzzle piece
to complete this picture that you're selling?
Well, the thing that they do that is really devious,
all of those videotapes that were taken of Terry
when the doctors were examining her,
they edit down those videotapes to make it look
like she's responding to stimulus.
So the actual tapes are four and a half hours long,
and it's doctors saying like, Terry, Terry,
can you hear me?
And she's not responding, but by coincidence,
by random reflexive response,
one time they say Terry and she goes, huh?
And that, of course, is the take that they use.
And so there's footage where there's balloons in the room
and it looks at one tiny moment.
I mean, these are like four second snippets
that it looks like she's following the balloons
across the room with her eyes.
And so to this day, the four and a half hour video
has never been released,
but this four minute video gets posted on terryshibo.com
by the family.
This is the tape that everyone in America sees
because it's visual, right?
So all the news stations want to run it.
I remember when this was on TV,
and I remember I, God, trying to get back
to like what I thought at that time.
I think I felt like I really was not qualified
to have an opinion,
which is a reasonable thing to think as a 17 year old.
And also it turns out today.
But yeah, I guess that like,
I remember those being these really central images
and the public debate about this and this idea of like,
look, like seeing is believing, like this is Terry,
this is the situation.
Like, and then as an American
who's completely disconnected to all this,
like if you were given, you know,
a little morsel of information
that allows you to confirm a story
that you would like to believe anyway,
then like, great, you'll run with it.
And like Michael Shibo, this whole time is saying,
it's a four and a half hour tape.
You're getting a four minute snippet.
He has the tape.
He has the four and a half hour version
because he has it from all the court hearings.
He could have released it, but he says,
Terry was concerned about her looks.
She wouldn't want the whole country to see her like this.
Which is, you know, from a cynical media strategy perspective,
is like, why the hell didn't you release the full tape, man?
But then as just a stubborn guy who loves his wife
and is the only person in America
that actually knows this woman,
is like, she doesn't want people to see her like this.
It's embarrassing for her.
And if you're inside of something
that's become a media fracas,
like you're not seeing things,
like through like the optics of the situation or whatever,
like you're like, listen, like I know what I know.
And like to me, it's like very clear what's going on.
And like there's ample evidence for people to use
if they would like to, which I hope they would.
So like, why is it necessary for me to throw
like another little piece of kindling onto the fire?
We see this over and over again
that once a public figure is sort of strident
about telling the truth about the fundamental bullshit
of the fact that they are a public figure,
America doesn't like that.
America sort of wants you to play the game.
And so one of the things he says that I love this quote,
he's, you know, this is once politicians
from the Pope and everybody, he says,
to make comments that Terry would want to live,
how do they know?
Have they ever met her?
What color are her eyes?
What's her middle name?
What's her favorite color?
They don't have any clue who Terry is.
They should be ashamed of themselves.
Yeah, they should be.
Yeah.
Dude.
Like being in that position,
like it's understandable to be a little snippy,
I would say.
Yeah.
Oh, totally.
Another thing they do, and this drives me crazy,
is they start demonizing Michael Scheibose.
Of course.
So there's all of a sudden,
there's all these questions of why did she have a heart attack?
Did she really have a heart attack?
Oh my God.
When the paramedics came,
they said it was an unusual heart attack.
And of course, the only reason the paramedics wrote
that it was unusual is because not that many 26-year-old women
have heart attacks.
How many bananas did Michael buy that year?
And could he have been buying her more?
Yeah.
And then also there's a lot of lies about this too,
that there's this rumor that he waited 40 minutes
to call the paramedics, which is not true,
because if it was true, she would have died.
She wouldn't have been in a persistent vegetative state.
She simply would have died.
This really bums me out,
that the Schindlers start saying,
oh, well, he's abandoned her.
He's taken terrible care of her.
We're the ones that are trying to take care of Terry,
but he has just completely abandoned her.
He's off with his new wife.
They try to sue Michael Scheibose for divorce
on behalf of Terry, which again,
legally precedent speaking, is like, what?
If your in-laws can divorce you, then like,
a lot of people are gonna wake up divorced tomorrow,
if that's the precedent we said.
Also, they seize on, as it always is,
they seize on these weird non-details.
So one of the things is, they were in a troubled marriage,
which there's no evidence of,
that he's such a control freak
that he keeps track of the mileage on Terry's Toyota Celica,
because they hear this from one of her coworkers
or something.
I keep track of my mileage because I'm self-employed
and I travel for my work.
You can just as easily construe it.
It's like, what a caring husband
who's like keeping track of the family finances and whatever.
There are so many reasons that you might do that
and Spousal Abuse is low on the list.
I think he's kind of a cheapskate,
like there's other evidence that he's kind of a cheapskate,
which is like, fine.
There's also this thing that everyone seizes on
as like weird behavior and bad behavior,
that they ask her what he's done with her engagement ring
or with her wedding ring and he says,
I melted it down and I made a version of it,
like I turned it into a ring that fits me
and I wear it now.
And people are like, wow, that's weird.
Like he's taking her ring and melting it down.
And it's like, isn't that just like a nice thing to do
so that he can keep her with him all the time?
Like that actually seems sweet to me.
It is sweet.
I think that's lovely.
And like the worst part of these media circuses to me
is that America becomes this big middle school.
And it's just like we're sniping about someone
behind the bleachers in eighth grade.
And we're like, I hear that Michael Shivao
did this weird thing.
And it's like, we've got so excited about being able
to lower ourselves into this judgmental feeding frenzy.
Yeah.
So he starts getting death threats.
Of course.
Interestingly, his girlfriend at the time, Jodi,
also starts getting death threats.
Of course Jodi's getting death threats
because she's the most evil person of all in all this.
Like the woman who dared to enter a relationship
with someone whose wife was in a persistent vegetative state.
Like she's the one to be blamed.
Also, the wife of his brother starts getting death threats.
Like these cars are driving by their house
and it feels like they're just looking
for any woman to blame.
Like what is it?
They're going through the family tree
and they're like, Michael, no, like.
They find out he has a lady male carrier
and they're like, it's all marriage is false.
Yeah.
But so the framing that happens here,
and this is really important for why the media,
I think, super fucked this up, is the shindlers
start telling more and more outlandish lies about Shiavo.
So they've just been being backed into a corner
for years and years now.
And now it's like suddenly reached a flash point
and they're just going for it.
So I watched a Larry King live interview with Michael Shiavo
from 2004, like after it becomes this massive media frenzy.
And they do this thing that happens in every interview
with Michael Shiavo throughout this entire period
where they play clips of Bob Shindler saying,
the ramifications of her medical neglect
have to be taken care of.
Medically, she hasn't had a gynecological test in 10 years.
Her teeth have been cleaned in 10 years.
And then they're like, Michael Shiavo, how do you respond?
Poor Michael Shiavo then has to respond to, these are lies.
Her teeth are cleaned as part of her hospital care.
They brush her teeth every night.
And he's visibly uncomfortable in this interview.
He's like, to do a gynecological exam on a woman
in a persistent vegetative state,
you have to pry her legs open.
Unless there's evidence of some sort of infection,
we don't do that.
This is not something that Terry is being denied.
This is something that people in persistent vegetative states
do not get.
Right, it's just doing more harm than good
to be palpating her for cysts or whatever they would be doing.
Yeah, and also like because of the order that they do that,
whoever speaks first, if you're John Q. Driveway trying
to assemble this narrative in your head,
the first party is the one you assume to be correct
and then Michael Shiavo has to be in a defensive position.
What drives me nuts is at this point,
there's been an independent investigation.
There's been seven or eight trials at this point
and judges every single time have found
that Michael Shiavo gave her amazing care.
The guy got a fucking nursing degree.
Instead of saying like, this is something
that the Schindlers are saying with really no evidence
and courts have found against this eight times,
they're saying like, well, you know they say
that you're trying to set her on fire every day
and like, well, how do you respond to that?
It's like Michael, like I don't know
that you're not a dragon.
Yeah, exactly.
Like everything I've experienced indicates
that you're a human male, but like I don't,
it's still possible.
They're also saying that he's doing it for the money,
which he points out at this time,
there's only $50,000 left in the estate
at this point, cause her care is costing a fortune.
$700,000 doesn't amortize out very well
over 20 years of local care and legal battles.
Michael Shiavo claims there's no money left.
I wanted to like double check this.
Yeah, that's why you're great.
The courts also found that there was no money left
and when she eventually died,
there's no evidence that he inherited anything.
There's no, his salary is $60,000 now,
he lives in a small house.
There was this rush among the entire media apparatus
to see this as there have to be good arguments
on both sides, but nobody wanted to point out
that one side of the argument had science,
courts, wasn't lying, like there were no outlandish
conspiracy theories about the Schindlers.
And so that's why I remember it being as like,
kind of murky and who can say,
and you know, end of life issues are really tough.
And this one, I don't know if it's all that tough.
I think it's like, people made it seem tougher than it was.
If we were to approach this reasonably,
we would have to be like, okay,
so like these people are saying things
that are demonstrably not true.
Like if you don't believe what Michael says
about the dental care thing,
then you can look at the video and think like,
well, if she hasn't had her teeth cleaned in 10 years,
we would be able to see it on the tape.
Yeah, exactly.
Instead of it making them less credible to the public,
it makes them more credible
because we're just more willing to believe the story
that has a clear villain, I guess.
Right.
And so speaking of villains,
this is when this gets really political.
So in 2003, after these 27,000 emails,
Jeff Bush steps in.
Wow.
So this is after the dueling doctor's case,
a judge has ordered that Michael
can remove Terry's feeding tube.
The Florida legislature passes a law called Terry's law.
Oh my God, no.
No more laws named after white women, right?
I know.
And in a continuation of the theme from this episode,
that's an insane precedent where it allows a governor,
the law says a governor can overturn a court ruling,
but a governor can only do this in a situation
involving a patient with no written will
in a persistent vegetative state with a family conflict
whose feeding tube has been removed.
Whose name is Terry?
Like, they're essentially saying,
we don't like how this court has ruled.
We're going to pass a law saying the governor
can overrule court rulings in this one case.
You feel like Jeff Bush saw this massive rumble
happening down the street, you know,
and like the Pope shows up on his Harley
and gets in the mix and you know,
the conservative right is there whipping their chains around
and so Jeff Bush like suits up and puts on his Costco fleece
and he just runs in there, you know.
He's going to get in on it too.
He's in the dog pile now.
And that's almost literal in that
what happens is she's been moved to a hospice,
care facility, like about to parish facility.
Jeff Bush orders cops to come and get her and move her back.
Yeah, that's the best use of police manpower
in the state of Florida at this time.
Sure.
Literally an ambulance with a police escort
moves her back to where she was.
Lord, I mean, you certainly get a lot of public goodwill
for being the man who valiantly saved
the poor abused vegetative woman
from being murdered by her evil husband.
Oh yeah.
And this is wildly popular at the time
with conservative Christians.
I mean, I'm glad that Jeb got praised
for something one time in his life,
but it seems rather ill-gotten.
Yeah, and of course, I mean, it only lasts,
I think it's six weeks before a court overturns it.
When a court is like, fuck no,
you can't just say we don't have powers that we do have.
Like that's not how the three branches of government work.
It's a very low standard for politicians
in terms of like how the legal system holds them accountable
for what they should have known, right?
Like we expect people living and grinding poverty
to be 1,000% on top of their paperwork and citations
and bills and whatever and to like never miss a beat.
But if you're the governor of Florida,
you're given the benefit of a doubt
for attempting to pass legislation
that openly flouts the law in your state and your country.
And this is basically what salty judge number two says.
The quote is,
the judicial branch would be subordinated
to the final directive of the other branches.
Also subordinated would be the rights of individuals,
including the well-established privacy right
to self-determination.
No court judgment could ever be considered truly final.
This is a huge violation of Michael Scheibo's rights
that he was acting completely in accordance with the law.
And you're just saying like, no?
You're right, like every way that you have
of invalidating this case specifically also,
you then throw out a huge swath
of the legal foundation of our society.
It's amazing.
And so this gets struck down.
They're trying to take out the feeding tube again,
but then the Schindlers file another emergency appeal.
Oh my God, you guys, I know.
Please.
This then gets appealed to the Supreme Court.
The Supreme Court, thank God, declines to hear it.
Good for them.
We're nearing the denouement.
So in March of 2005, this is two years
after the court decision law, whatever,
the feeding tube is removed again.
And this is when the U.S. Congress gets involved.
Oh my God.
Because they were like, you know what?
I feel left out.
Yeah.
I want to be a part of this too.
Why wasn't I invited to the irrational legal challenge
party?
This is where we get the famous thing where Bill Frist,
who's a Republican senator, he's a former surgeon,
he looks at the four minute videotape and he says,
there's no way she's in a persistent vegetative state.
I don't feel comfortable imposing a sentence
that we would not wish on the worst criminal.
Yeah.
Oh, go.
I know, right?
You guys, you actively, vocally, verbally wish way worse
things on all kinds of criminals all the time.
Like you can't use all the high flying rhetoric you want,
but don't directly contradict something you said yesterday.
I mean, yes.
This is also, of course, fucking Rick Santorum shows up
in this.
It's a who's who of terrible mid-auts, politicians,
and media.
Yes, and it's so notable for the way
that it shows how the rhetoric has changed.
So Rick Santorum compares Terry Shiveau to someone
with cerebral palsy.
Oh my god.
He's like, you know, you're talking about murdering
lightly semi-disabled people who are perfectly
capable of functioning in a society.
And could rejoin the workforce at any time.
Yes, exactly.
Like she's a little bit disabled.
She has maybe some physical therapy she still needs to do,
but fundamentally you're trying to kill this woman who's
basically a normal person and perfectly
capable of functioning on her own.
Does anyone probe this argument at all?
They're just like, OK, so if she just needs a little rehab,
then why has she been non-responsive and in bed
for the last 16 years?
Like if this is so easy for her to overcome,
then why hasn't she at any time?
And at this point, we've now had more than 24 legal rulings.
We've now had a second independent investigator,
also a conservative Florida Christian, who also looked
into this and also concluded that she was getting amazing care,
that she was never going to come out of this coma,
and that the Schindlers were wildly
misconstruing what her condition was.
So all you had to do was look at the vast court records
on this.
Also, speaking of terrible precedents,
we have Tom DeLay, the House Majority Leader of the Times.
Of course, he's a part of this.
The time will come for the men responsible for this
to answer for their behavior.
He's talking about the judges that ruled in the case.
He threatens to impeach them.
And he says, we're going to have to look
at the unaccountable, arrogant, out-of-control judiciary
that's thumbing their nose at Congress and the president.
Don't come for the salty judges, Tom DeLay.
I will fight you.
I mean, the most cynical thing about this,
there's a memo that goes around the Hill
and eventually gets leaked to the Washington Post,
where it's talking about how this is a winning political issue
for Republicans, that this is a way to fire up your base.
This is something that Christians are really concerned about.
And so giving a speech about this,
doing something about this, is a way to really rally these people
to you for the next election.
Yeah.
And it's like, the Republican Party, I think,
really became the party of anecdotes also.
Totally.
So they pass a law to put her feeding tube back in, basically.
And historians say it's the only law in American history
that only applies to one person.
It is literally like an anecdotal law.
It's like, again, it's written in this extremely narrow way.
And it's pretending to be jurisdictional.
It's like, oh, the jurisdiction should
pass to federal courts when end of life guardianship issues.
But it's technical and weird.
And what's really amazing, it passed overwhelmingly.
It passed the House 203 to 58.
47 Democrats voted for it.
Barack Obama voted for it.
Barack.
He says it's his biggest regret from when he was in Congress.
And also Bush, George W. Bush at the time
who's the president, flies back from his Texas ranch
in the middle of the night to sign the bill on Palm Sunday.
He does this whole big thing.
As he signs it, he says, and you'll love this.
The essence of civilization is that the strong have a duty
to protect the weak.
In cases where there are serious doubts and questions,
the presumption should always be in favor of life.
Yeah.
I mean, there's this whole right-wing patriarchal rhetoric
of there are people who are the Kallis,
and there are people who are the wolves.
And the Kallis are the alpha males.
And most people are sheep, and presumably all women are.
And so I'm a Kali.
And he's being his best Kali self in that.
One of the inspiring things about this
is that this was actually wildly unpopular with the US
public.
I think the politicians overplayed their hand.
They got overexcited about a product.
No one actually wanted as much as the new coke
of political gandas.
I mean, listen to this.
There was a poll in 2005, just after her feeding dupe was
removed, 61% of white evangelical Protestants
were against blocking his wishes.
Wow.
The Christians themselves were like, look, dude,
it's up to the husband.
Like, people were not as enamored with this
as politicians thought they were going to be.
Yeah, politicians also just they
love to be able to crusade on behalf of someone who
can't communicate their own wishes.
And this, I think, was probably more fun for them
than for anyone else.
So the last gasp of this is that Congress
passes this weird law.
Courts in Florida, again, overturn it
because they're like, you can't just overturn a state court
decision.
This is not how it works.
Then this is nuts.
Jeb Bush tries to file a motion on behalf of Terry Shribo.
She's being abused, again, no evidence,
and tries to have state troopers physically come and get her
and remove her from the hospice facility where
her feeding tube has been removed.
This is like the ultimate case of white people calling
the cops unnecessarily.
He's essentially sending in a police force.
He's imposing martial law.
Yes.
And again, because there's so many wonderful,
ridiculous constitutional problems
with this entire case, everyone points out
you've got a constitutional crisis
where the local cops who are defending the hospice
because they're getting all these death threats
are then going to have to clash with state troopers who
are going to come and get her.
So you've got two law enforcement agencies
with two completely different mandates.
What is your plan, son?
The same salty judge from the doctor's trial knocks this down.
Oh, God.
To his credit, Jeb Bush abides by the decision.
It takes 13 days, and she dies in early April of 2005.
One of the really interesting things, and one of the things
that comes out a lot afterwards, is an autopsy is performed
that finds that her brain is half the size
of a normal human brain of what it would
be for a woman of her age.
And she's been legally blind for more than a decade.
So all that stuff with the balloons of following
the balloons is physically impossible.
And so this essentially vindicates everything
that Michael Shiavo has been arguing in court for 15 years,
that her brain was mostly liquid.
There was no sort of fiber material left in it.
It's just like a little ball of liquid at that point.
So it's essentially gone and had been gone for years.
And so her gravestone says, beloved wife, born 1963,
departed this earth 1990 at peace 2005.
I kept my promise.
Oh, wow.
I learned that I'm wrong about Michael Shiavo.
Right?
Because I certainly didn't think coming in
that he was the monster that the media had depicted him as,
because that's never the case.
But I was ready for him to just be a regular, OK husband who
just was adequate in all this, and didn't make great choices,
and didn't make terrible ones.
I mean, it was because whatever.
I was ready for him to be just a regular person.
But he was devoted.
I mean, the thing with the bed sores still gets me.
That she had really good care her whole life.
And after Terry dies, about a year later,
he and Jody end up getting married.
And he takes the ring that he made from Terry's ring,
and he puts two rings onto Jody, because one is for Terry
and one is for him.
It just shows that there were three people in this marriage,
and it sounds like he was totally honest about it.
Yeah.
And there are more than two people in a lot of marriages.
The question is not whether that should or shouldn't happen,
but whether people are being honest about it.
And of course, Jeb Bush, the day after Terry dies,
calls the state prosecutor and asks
him to investigate Michael Shribo for abuse.
Jeb, settle down.
So of course, this guy comes back in like two weeks,
and like 50 other people, he's like, I've looked into it.
There's no evidence for abuse.
Like, there's nothing there.
It's too bad that there are like no other cases of domestic abuse
anywhere in Florida at this time.
And this is the only guy that we need to be scrutinizing.
I mean, my thing is like the power of denial,
the power of both siding in the media,
the power of the religious right to make things
into controversies that sort of weren't controversies.
The public rarely contemplates its own power
to abuse people by making them the focal point of attention.
And ultimately, that level of attention, I think,
always constitutes abuse to some extent.
Because if you're in the center of that,
you're always going to be stripped of your humanity.
You're always going to become a figure in allegory.
Like, fame is essentially abuse in some ways, I believe.
And like, there was no compelling reason
for any of these people to receive as much attention
as they did.
Yeah, I mean, you think about somebody like Michael Shribo
and what he was going through that he didn't choose any of this.
You know, he wanted this to stay a private thing.
And it was really the Christian right that made it
this rallying cry.
And then politicians who picked up the baton.
And I remember the sense at the time of like, oh, you know,
he just wants to be done with it and kill his wife
and move on and marry someone else.
Because obviously, no one can get divorced in this country.
Right.
You know, one of the big questions
is why didn't he just divorce her, right?
Because if he divorces her, her control of her
goes over to her parents.
And then he can walk away.
And what he says is he loves her.
This is what she wanted.
And I mean, we don't know that well what she really wanted.
I think he's just kind of a stubborn person.
I think that's probably in there, too.
But I mean, you can see it as fanatical and crazy,
but you can also see it as kind of amazing and kind of sweet.
I don't know if that's an answerable question
of why he didn't divorce her.
Yeah.
And also, it's none of America's business.
It doesn't affect us.
Totally.
It doesn't matter to anyone but the people in this family.
Totally.
The way that people determine if they want their loved ones
to remain in the state, if they want them not
to remain in the state, it's really none of my business
and I'm not comfortable having strong opinions on what
other people should do.
I think you need to run on the platform of the none
of my business party.
And I'll be like, when Tammy Metzler ran for class president
in election, you'll be like, my party
says that I will leave you the fuck alone.
And vote for me or don't.
I don't care.
I think we really get in trouble when we feel as if saying
that one argument has objective legitimacy in a way
that the other side doesn't means
invalidating the intent of the other side, which
you don't need to do.
You can say legally, Michael Shivo, everything
about our legal system, everything
that science and medicine was able to say conclusively
about any of this supported his argument.
And that doesn't mean that her parents had bad intentions.
They seemed to have really flailed at the end there.
But they were doing what they did because they had a daughter
who they loved and who was taken from them
in this horrible and senseless way, way too early.
And also probably had some perhaps staggering amounts
of residual guilt about the fact that she died
because she was damaging her body in this way
that no one noticed.
Because that's very, there are so many things
that we can't know about the people that we are closest to.
And they don't have to be anything but just decent,
tragedy struck people in all this.
The fact that they're wrong and the fact
that they're producing arguments that don't really
make sense, that doesn't, you know, that's fine.
Like we can acknowledge that and it doesn't mean anything bad
about them.
It just means that they were having a really hard time
because something really hard happened to them.
Can I still hate Rick Santorum, though?
Oh, yeah.
Ha, ha, ha!
I'll get good.
Ha, ha, ha!