Good Life Project - 47 Doctors, Data Galore, and a Problem Only She Could Solve | Giorgia Lupi

Episode Date: October 8, 2026

She measured everything about her illness. The measuring turned out to be part of what kept her sick. Giorgia Lupi is an information designer and a partner at Pentagram in New York, and one of the few... people alive who can take raw data and turn it into something you understand in your bones and feel in your body. In 2020, a mild COVID infection set off four years of long COVID, chronic fatigue syndrome, POTS, mast cell activation, and a level of disability that left her housebound, out of work, and eating eight foods for an entire year. Giorgia did what she does. She tracked every symptom, every test, every prognosis, and limitation. Then she published 1,374 Days, a visual op-ed in the New York Times built from her own symptom data, and readers with chronic illness wrote to say it was the first thing they could hand to the people who loved them.That, however, was just the beginning of a story of recovery that was about to take a wild, transformative turn. One that would find her rethinking her approach to measuring what was wrong and shifting to the opposite, realizing, all too often, that what we measure reinforces our reality.In this conversation, you'll explore:The number of practitioners she saw over four years before a single one offered to coordinate her care, and what her body did in that exact moment, before any new treatment was triedWhat she took off her wrist and archived on her hard drive, after believing for years that it was the thing keeping her safeThe first entry in the new spreadsheet she opened in 2024, and why something that small was the turnWhy the online illness communities she went to for support sent her home more frightened every time, and what she went looking for insteadHow she started charting a different kind of data, and finding new answers that not only refuted much of the dire prognosis she’d been given, but also, slowly, brought her back to life.Why her working definition of recovery now, which is not the one she wrote down while she was sick, is not "getting back to normal"A note on how we held this one. Giorgia is careful, and so are we. This is her story and not a protocol, her symptoms were real, documented in labs, and measurable, and nobody in this conversation is suggesting anyone thinks their way out of illness.If you have ever looked fine from the outside while something underneath was quietly giving way, this is a conversation about what your body might be trying to tell you before it has to shout.You can find Giorgia at: Website | Instagram | Episode TranscriptCheck out our sponsors and resources: Visit Our Sponsor Page Hosted on Acast. See acast.com/privacy for more information.

Transcript
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Starting point is 00:00:00 So what if the very thing that you were trying to do to save your life was potentially part of what was keeping you sick? For four years, acclaimed information designer, data humanist, and pentagram partner, Georgia Lupy, she tracked every symptom, every test, every metric across 47 doctors, wildly detailed spreadsheets, and two smart watches. This was what she does. But when that data collection only seemed to reinforce her illness, her suffering, everything that was wrong, She did something terrifying. She took off the watches. She archived the spreadsheets and fundamentally changed what she was measuring.
Starting point is 00:00:39 That simple yet brutally hard shift opened the door to a recovery that had alluded her for years. Georgia documents her brutal descent into illness in a hypervisual feature in the New York Times called 1,374 days, where she turned astonishing amounts of personal data into a story that readers could see and feel. in their chest. In this conversation, she shares the untold story of her equally incredible recovery, from being housebound, unable to work, barely able to move, limited to eight foods, and weighed down with a mounting list of seemingly unrecoverable diagnoses to completely rebuilding her life and her health. You'll discover what her body did in the exact moment that a doctor, one person finally offered to be that one who coordinated her care.
Starting point is 00:01:30 You'll hear about the tiny first entry in her new spreadsheet that really started the turn. You'll learn how abandoning online forums and refocusing on her brain and nervous system began to change everything and why her working definition of recovery is no longer about, quote, getting back to where she was before, but about creating something new, something better. So excited to share Georgia's remarkable journey with you. I'm Jonathan Fields, and this is Good Life Prize. And we'll jump right in after this short break. George is so great to be hanging out with you.
Starting point is 00:02:09 You and I have known each other for years now. I was thinking, you know, it occurred to me that if you had known somebody seven, eight years ago, and they kind of knew you, what you, who you were, what you were up to, you fell out of touch. Maybe they moved to the other side of the world. They had no exposure to you, your life, to anything. And then they moved back last week. They bump into you at a, you know, like getting, coffee at a deli or something like this.
Starting point is 00:02:34 You look fabulous. You look exactly the same and life is it. They would have no idea. The journey, not just the health journey, but the really deep transformational journey that you have been on for the last six years or so. So I want to move through that with you. And there's so much that you've learned about yourself that I think is so valuable to everybody because everybody is going to at some point be brought to their needs.
Starting point is 00:03:01 And the way that we experience that can really change how we feel both during it and what it might look like to move forward from that space in whatever shape it takes for anybody. Let's take a step back in time. Sort of like in the before. Paint a picture of life for me. Yes. Well, I live in New York and I've lived in New York for 15 years. I am Italian originally, but, you know, I really call New York my home. But before the journey that we're going to unpack, I think from the outside looked pretty great.
Starting point is 00:03:40 I, you know, recently got a pretty dream job. I am a partner at this design firm pentagram that has been around for so long, and my partners way before me have shaped, you know, a lot of the visual culture through brand identity, various kind of graphic designs. I was really excited about this new challenge. I recently started a new romantic relationship. And so, again, the joy of, you know, starting it again with a new person. And I was super active.
Starting point is 00:04:09 A lot of activities, been doing yoga for a long time, dancing, snowboarding in the winter. And actually kind of pack in my time with friends, activity, cultural things. So I would say that from the outside, that was a bit of the picture that people would have seen about me. Then there's a lot that we can unpack. of what I've learned that instead was kind of going on in the background. Yeah. And I want to wait on that because the unpacking, it happens years forward from there. But we're going to go back in time because there's a reflection that I think is really powerful.
Starting point is 00:04:47 But in so many of us, we can be in that season of life. We're from the outside looking in. Everything looks incredible. And we're probably even telling ourselves the story of like, this is everything I've ever wanted. and it's all happening. And yet things aren't quite right. I have certainly lived that, and I'm sure I'll live it again in my life.
Starting point is 00:05:07 So you're kind of moving through life, and it's almost like a charmed life from the outside in until. Take me there. Yeah. 2020, as many of your listeners might remember, was the pandemic. And what seemed to be a pretty mild, acute COVID infection, like, again, many were experiencing in any time during the pandemic, actually was what I understand right now was the kind of like the stroke that broke the camel back or the last drop or the perfect storm in a body in a system that, like, we will unpack, has been probably under a lot of stress for a long time. That actually started a quite harsh journey with my health.
Starting point is 00:05:52 So right now I think we all know that there's an umbrella term that is called long COVID for a series of syndromes. And I still think quite unexplained physical conditions and symptoms that can last for way, way longer than the acute COVID infection. And this is really the beginning of my journey with losing my health and losing a lot of functionality. My first COVID infection in 2020 was pretty mild. It really felt like a flu with a particularly, you know, stubborn cough, but nothing, like, needed to go to the hospital or couldn't breathe. And what happened is after I felt like I recovered from the infection, a few weeks after, actually, as I was getting back to my normal level of activities, doing yoga and running, I started to feel that my body was off. It wasn't responding to me like before. I was getting tired more easily.
Starting point is 00:06:45 And there was that kind of fatigue that it's not restored with rest. It was very strange to me. And then I started to have some other symptoms that were puzzling a constant low-grade fever, constant elevated temperature with, you know, all of the kind of uncomfortable feeling that having an elevated temperature brings about. And on and on, a list of, in the beginning, I would say, especially in retrospect, kind of mild manifestations of a body that wasn't functioning the way that I remembered it. Headaches that manifested with a lot of pressure that also kind of constricted my field of vision,
Starting point is 00:07:27 tingling in various parts of my body. And so obviously you go see a doctor. In the beginning of the pandemic, my primary care doctor was lovely, run the normal test, which, you know, came back normal, and says, listen, we don't really know. what COVID can do to the body and people are starting to talk about long COVID, which are post-viral consequences as we're really studying it right now. And I remember that at the time, that scared me because one thing is going to the doctor, I mean, you go to the doctor to try to have some answers, treatment, something for you to get better. It's like, give me the diagnosis
Starting point is 00:08:04 and give me the medicine. Exactly. Or the prognosis for a cure, treatment or anything. And it was like, we really don't know. And so I could start sending you the specialists, but I kind of feel that we have to wait it out and see if you get better by yourself. That wasn't convincing to me. I'm a very, you know, driven person to find the causes of things. I work with data in my daily job. And so I started to do my own research. And as I was actually kind of still feeling pretty rough in my body, starting collecting
Starting point is 00:08:35 data about what was going on. And in my job, I do data visualization, design with data is one of the materials that we have to express, you know, concepts and information. And every day I started to track what I felt in my body. And because my doctor didn't really give me any answers, I also started to track potential correlations, what I was doing, my level of activity, what I was eating. I have never worn a smartwatch before. And instead, I went into tracking, you know, my sleep and all of that. So, and I want to pause for a second, right? Because when you say I started to track, most people are probably like, oh, she's probably just paying attention and noticing or maybe jotting down and note or two.
Starting point is 00:09:17 This is not what you're talking about because your brain works very differently than your typical person when it comes to data. Share more detail about what was really, like how are you really doing this? At the beginning, I didn't know how long the feeling or not feeling well if my body was going to last. I kind of tracked as in like logged and documented on paper on a little notebook every day starting to write the symptoms. and in other parts of the page, maybe writing, again, what I was doing, if I went to a yoga class or if I try to do something, you know, that is physical exertion and what I was eating, but kind of rapidly realized that that didn't give me any sense of correlation or potential connecting the dogs. And so I started a spreadsheet that became huge, where every day I would track so many metrics. And so, again, observe and record the kind of symptoms I had, how long they lasted, the intensity of them. And I think that the more that I was tracking and the more that I was feeling rough, the more I added categories.
Starting point is 00:10:19 And so biometrics from my smartwatch of any kind, my heart rate variability, my, you know, maximum heart rate and things. Treatment that I was trying, because at some point my doctor started to, you know, look into the long COVID research and prescribing. some, you know, potential treatments. And the spreadsheet was pretty obsessive, if I have to say. But I think that, you know, we're kind of jumping forward because the reason why the spreadsheet kept getting longer and longer and bigger and bigger is because my symptoms and the way that my body was feeling started to deteriorate more and more. So take me there. What was that? Yeah. On a subsequent COVID infection, which is where my path with my illness kind of really went downhill in 2021 really is where I started to really lose function. My heart rate would go up 50, 40 points,
Starting point is 00:11:14 passing from sitting to standing and wouldn't really go down. I would feel completely dizzy and couldn't see. I started to develop chronic pain in different parts of my body, which is that kind of pain that really doesn't go away and the volume is high enough that your system has a hard time, you know, again, tuning it down and pay attention to anything else. And the more that, you know, really my body was failing, the more I actually did start to see a specialist over and over, more and more, because people then would refer me to another specialist. And over the course of four years, I accumulated actual diagnosis.
Starting point is 00:11:53 Because what I have also learned is that if you look, there are things that are wrong with the body. And in that moment, there were things that were really wrong with my body. And I accumulated a sort of series of diagnosis. is that are famous for chronic conditions. Pots, postural orthostatic tachycardia syndrome, which is the elevation in heart rate that I was describing, mast cell activation, which is a syndrome that pretty much makes you very susceptible
Starting point is 00:12:21 to reaction to foods and allergens. It really has to do your isstamine. And at some point in my illness, I could only eat eight foods. Wow. In the whole year of 2023, I could only. eat eight foods, salmon, chicken. I could eat pork, and so I could eat meat, rice, broccoli, carrot, salad,
Starting point is 00:12:41 lettuce that I don't like particularly. So that was the universe for you? That was the universe for me. It's really, and my partner was a saint in cooking for us, and for me, pretty much that for an entire year and a half. That dysotonomy is a bigger umbrella for general autonomic nervous system,
Starting point is 00:13:00 you know, malfunction. And then this scariest one, which was given to me at the end of 2022, which is chronic fatigue syndrome. It's actually the one that weighted the most on me. If you look at the population of people that have been diagnosed with chronic fatigue in the past, however, many decades, the scary thing is that you don't hear stories of recovery. And for my understanding at the time, chronic fatigue is a bit of a life sentence, something that you always have, or at least this is how doctors portray that to me. And the body, you know, dysfunction that go on with chronic fatigue is actually pretty scary. It's that kind of exhaustion that is not, again, restored through rest and where simple activities,
Starting point is 00:13:49 like for some that have it pretty severe, like brushing your teeth or showering or, you know, walking up a flight of stair, might cause a really bad crash. as we call, you know, in the chronic illness community. And crashes my last weeks or months. And the fatigue becomes also delayed, as in you can't really necessarily say, I'm going to stop now to do whatever small activity I was doing so that I can't prevent it. It's that kind of really weird paradox where you can't rest enough, you can't limit yourself enough, and you're always feeling really, really bad.
Starting point is 00:14:24 My function got pretty limited. I at some point was housebound and bed bound. and I had to stop working, which was pretty, again, terrible to accept for me. Yeah. And we'll be right back after a word from our sponsors. So when you're in the middle of all this, I would imagine. And, you know, you start with just feeling things in your body and then documenting, documenting and tracking every single thing that you could possibly track.
Starting point is 00:14:57 You eventually start saying more and more doctor. earth and then you move from a lot of feelings, a lot of limitation and a lot of data, but no diagnosis. Nobody really knows what's going on, this sort of umbrella term of long COVID, which at that point especially was a very nebulous thing. And then you move into getting, she's more specialist and then like a mountain of specific diagnosis kind of piling on top of each other, all these different things. But beyond that, like you're feeling this in your body. I mean, it sounds like, was profoundly disabling in a lot of ways, the extent where you couldn't even work anymore.
Starting point is 00:15:34 Oftentimes you couldn't get out of bed. A lot of people, in even part of that scenario, I would imagine what are you going to do? You're going to turn to the online world to try and figure out. And oftentimes you see forums and all sorts of other support places like that. As you're going through this, was that part of what you were exploring?
Starting point is 00:15:56 Yeah, it was a really pretty grim piece. period. And the, you know, that was, it was my 24-7 reality. You don't escape from symptoms. You don't escape from the fear of what the symptoms means and the stories that it brings about, especially as you accumulate all of that. And I did turn into online communities. There were at the time, like, quite a few channels and forums where you can connect with people with lung COVID and with chronic illnesses. And it, never felt reassuring to me to have that community kind of support, unfortunately, because those communities, it's full of people that are really suffering.
Starting point is 00:16:41 And they are in tremendous distress and almost despair. And there aren't positive stories in there. And I feel that, unfortunately, the feeling that I had every time that I went in there and try to, you know, write something or look for something if somebody else is at experienced it, left me probably a little bit more scared every time and opened up, again, because nobody was really coordinating care for me and helping me really navigate my array of diagnosis and different potential treatments that kind of search online also opened up other paths for me to be like, okay, maybe this is, maybe this is that. Maybe I need to look into that
Starting point is 00:17:24 particular, you know, lab and test. And that again, opened up even more. potential avenues that were all super uncertain with no clear path and with so much to hold together for somebody who's like fundamentally struggling even to remember the basic things because your brain doesn't even work well when you have all of that reactions to things and reaction to noises and visuals like at some point you know my being at home when I couldn't do things was not being at home and watching TV I couldn't watch things it was too stimulating it really felt horrible when I had to visual and audio stimuli. It was really pretty limiting. My life became so, so small. Yeah. I mean, for somebody who was so, you know, like you, you lived a very, like you said,
Starting point is 00:18:10 a very physically active life and intellectually active life and aesthetically active life. You're also an artist, like an incredible artist who, you're one of those rare people who, who can take data and also has just like really incredible aesthetic sensibility and blend the two to create a narrative in a visual form that tells a story that like my brain just doesn't work that way. I don't know anyone else's brain who works that way. But that takes a huge amount of the ability to actually think and process and focus. And it sounds like that was just kind of gone from you during that window.
Starting point is 00:18:48 Yeah, completely. I kept my job for a little bit in the beginning. It was probably the things that I've struggled the most to do in my life. I couldn't accept that, you know, identity of being sick for a long time. And I was so much struggling going to work. And at some point I couldn't commute anymore with the subway. And so I was taking cabs, expensive, you know, caps to go to work so that at least I didn't, you know, I wouldn't exert myself in the journey.
Starting point is 00:19:16 And, like, I really still remember that as much as I love my job, I love my team, it was such a struggle to get to the end of the day, would write a little like Pollymark for every hour where I got to the next hour to the next meeting. It was really hard. I mean, I don't even know how we all, you know, kept producing good work. Like, you really, I gave a lot of testament to my team here because I had such a hard time doing anything. Yeah. Did they know what was going on with you or the extent of what was going on with you? They knew what was going on. I don't think that this is an interesting point. Like, I never. wanted to share with them the extent of my struggle, but partly because I didn't want to accept it myself. It wasn't a I want to pretend to be different. I just had such a hard time accepting that, you know, for a person who's always kind of taken for granted their own livelihood, functionality, mental, you know, ability and physical strength and power to be faced with so many frightening constant symptoms and limitations, I just like couldn't, I couldn't really.
Starting point is 00:20:20 accept it. Yeah. I mean, I wonder if what was part of what was going on with you also, only because I've experienced this in a much, much small and more limited way, is that when you make something that you're really suffering with, where there's no clear end and maybe this is you for life, when you make that public to other people, even trusted people, it somehow becomes more real. Yeah, definitely. Yeah. Yeah. I mean, and that can be terrifying because then it's like, oh, like, now I really have to figure things out. I saw 40, 47 different doctors. 47 different doctors, you know, can include also, you know, at some point I was like, let's
Starting point is 00:20:56 turn into Chinese medicine or other. So I would say practitioners with probably the best majority, 85% being actual medical doctors and 15% being physical therapists or, again, alternative practitioners. And some I saw because I wanted to go see them, a functional medicine doctor, some really got referred to me by my, you know, current specialist. Oh, you should really go see this other person. And I kind of constantly felt that nobody knew what was going on. And so they were giving the responsibility to somebody else.
Starting point is 00:21:30 And then obviously the tricky part is that then you call to make an appointment, you know, wait for the appointment. It could be a month or two and you don't have a path and you're still struggling and suffering. And you feel pretty alone because, again, nobody's really taking care of the whole picture. Was the net message across all the different people? basically distill down to, we don't know, but as far as, like, what we can tell you, you probably expect this to just be your life forever. Yeah, I think that there were a couple of doctors, and then especially one that I think was kind of like a turning point for his own attitude in my journey that were more optimistic
Starting point is 00:22:10 and said, we don't know, but we are really trying to figure it out. And I still remember some, you know, a negative milestone in this old journey being, you a particular doctor that was very expert in managing chronic condition. I wouldn't say treating and cure, but managing chronic condition that looked at me in the face when she gave me the diagnosis of chronic fatigue syndrome and she said, Georgia, you can't expect to live the life that you've lived until now. Will you get better? Maybe a little. Will you get back to going to the gym three times a week? No, absolutely. From now on, you have to pace. You have to manage your energy. You don't have to.
Starting point is 00:22:50 have an infinite resource of energy like other people anymore. I remember that moment. I remember what was in her desk. I remember the room. I remember everything. What was in her trash bin. Like it was really one of those completely paralyzing moments that I think, you know, really probably even changed the way that I was looking at my potential hope for the future in a very negative way. And I think we have to be really careful here also. And, make it clear that we're talking about you and nobody else. A hundred percent. Because there are a lot of people who are going through a lot of other things or versions
Starting point is 00:23:28 of this. They're not you. They have a very different body, a different support system, and they need to do what they need to do. And for some people, like a diagnosis and certain limitations may actually be the way that this is just the way things are. And making peace with that actually is a really important part of their story. Yeah.
Starting point is 00:23:50 out there. Like, we're talking about just your unique experience here. Yeah, 100%. And I think, obviously, anything that takes away your health is terrible. But I think there's something especially isolating and not even being able to fully explain to people what it was. And so for some people, I know that the diagnosis were at least, you know, kind of like validating of like, okay, I'm not crazy. This is happening. And this is, you know, my body is wrong. And so it means that it's real. And at least, you know, I have a plan. I think that for me, And again, you're 100% correct. It's incredibly individual how you react to that. I don't think that I've ever been able to accept those diagnoses and have been fighting them and not wanting them,
Starting point is 00:24:34 almost like a teenager that is like, I really don't want these. And I remember the intensity with my very little energy that I had, that I, you know, internally was fighting all of this reality. Yeah, I mean, it's just such a tough moment. But you also make a really good point that I don't to gloss over, which is this idea of when you are struggling with something that is not visible to anybody else. Somebody can't just look at you and see like, oh, you've got this going on. Like you said, like, break a leg, you have a cast or something like this or stitches. It's often really hard to express to somebody the depths of suffering that you're in. And it's hard to explain, like, what it feels like to be in your body in that moment.
Starting point is 00:25:16 And I wonder if people sometimes don't want to know from the outside of as much as they want to be there and support you. Because especially if they see, well, you just kind of live in your life. And I'm just living my life right now. They're but for God's grace. You know, like, it could be me. And I don't want to go there. I think that illness is a scary place for people to go to. mentally. And I agree. It's scary. I feel that even through my illness, I've lost touch with some
Starting point is 00:25:58 people in my life that I thought were really close. Luckily, the most important ones, you know, then we had conversations as I got better and we were able to patch it up. But I felt very isolated. There was a few friends that kept, because obviously I couldn't go out. Like in all of these, you know, we're talking about my life, but there was no life. outside trying to fight and survive these and trying to keep my job. Like I didn't attend, you know, birthday dinners. I didn't go home to Italy to see my mom for years. I didn't even want to receive visits because every stimulation was scary.
Starting point is 00:26:33 And also at some point, I didn't want to be reinfected. And so it was like isolation. And through that, I really lost touch with a lot of people. And I believe that it's really not easy to interface with someone who you know. you in a certain way that then all of a sudden has all of these challenges that are scared to look at. Yeah. And I would imagine also for somebody who's a friend, when you literally have no idea what to you begin to do to help somebody, that's probably incredibly frustrating also, just to be on that side and you're kind of back away because you're just like, it's so
Starting point is 00:27:09 upsetting to me to not be able to help in any meaningful way. And my friend can't even ask me to help in a particular because they don't know either. Yes, and even, you know, honestly, my partner, I've been with him for almost seven years, we're still together. He's been super supportive from a practical perspective, but I remember that when I was in the thick of it, I really didn't feel emotionally supported. And I know he was trying his best. But by saying things like, hey, it's going to get better. He just frustrated me so much. And I feel I was in such a negative moment for my reactions where all of the time, but you don't know that it's going to get better.
Starting point is 00:27:46 It doesn't seem like it. And so I think it's really hard to support a person who's struggling so much, even if you're trying your absolute best. It was really, really, really hard. Yeah. And I wonder you can't ever fully agree because you're still just living in a state of uncertainty. You don't know what's real or what's not, what's how long or shortage can last, whether this really is the future, whether it's not the future. So there's a process of grieving and moving forward with whatever, like, might be, that is weirdly ambiguous. It is.
Starting point is 00:28:25 I think that if I, I mean, I feel that also probably there's a lot of that time that I blocked out or don't want to even, you know, remember necessarily. But I had felt, especially as the time went on, a tremendous grieving from my whole life. it felt so distant that because again, like my life was in my bedroom and I hadn't seen people, I hadn't gone out for a long time, even if I was still there and there was still the possibility that I could get better for a long time, I actually didn't see it. And so I was looking back at my life. I was, you know, looking at all of what the other people were doing and achieving and progressing in their life and all of that with really the tangible sense of loss, really. And meanwhile, the measuring, the counting, the documenting didn't stop.
Starting point is 00:29:16 It didn't stop. And I think, you know, it's important to share why was I measuring that. I mean, that's my job to try to figure out things through data. It's the way your brain works. It's the way my brain works. I started to do it when I was a kid. You know, my mom told me that I was charting boys that I liked in elementary school. So it's really part of the way that my brain works.
Starting point is 00:29:35 If I journal, I journal through some sort of systematic, you know, one subject at a time kind of thing. And it felt very natural to me to try to figure things out, to see if I could see correlations, or at least to get to these 15 minutes long, short appointment, you know, with doctors, with all of my information. On the other end, I really felt that I needed to have something that I could control. It gave me a sense of false control when everything was kind of falling apart, that at least if I'm tracking, there's something that I can hold on to weirdly.
Starting point is 00:30:11 And yeah, I did not stop tracking for a long time. Yeah. You, I don't know exactly when you wrote. There was a huge feature that came out of the New York Times that took a whole bunch of the data. Yes. That you had created and you did your data humanism thing and you turned your entire story. You took all that data, massive amounts of data turned into this visual story and basically told the story of your dissent.
Starting point is 00:30:40 When did you write that in the context of like where you were? Totally. So that the article came out in December of 2023 and with my team who's been helping me tremendously with that project, we've been working on it for six months. And so I started to work on it actually before one of my worst crashes that it was the crashes that let me kind of like housebound. And so what happened is that at that moment I, and. To connect to what we were talking about before, I had this frustration where, as I was reading about long COVID online,
Starting point is 00:31:14 especially in the publications that are for general public, again, to try to explain that condition, you could read a list of symptoms like, you know, headaches and fatigue that a healthy person could really interpret like, well, you know, I am tired, tired after work. I have headaches, too, but I couldn't really see an account of what it means and what it meant for me to live with a chronic condition. on a daily basis. And I thought, I have all of these data. I need to do something with it. And I just put together an idea on how I could kind of really put together a visual story about my day by day to hopefully make people understand what living with a chronic condition means. I, you know, wrote to somebody at the New York Times that I didn't even know the director of the opinions, which right now is a person that I know well, that gave me the opportunity to do it. And so pretty much we published a visual opad, one of these, you know, interactive, crawly telling things,
Starting point is 00:32:11 where at the beginning you see some colorful brushstrokes that fill the page. And as you start to read my story in words, and I was explaining at the time I was in my Brooklyn apartment on a Sunday and was describing a day, you'll see the brush strokes interact with the text. And so when there was a symptom mentioned fatigue or pain, the color-coded brushstrokes would kind of really highlight. the word. And as the story progressed, you'd really understand that there was a different symbol for all of the things that I've experienced. Again, different color brushstrokes for my symptoms, you know, different symbols for doctor's appointment, for reinfections, for further diagnoses, until you get to a calendar of at that point almost four years where you, it was all painted
Starting point is 00:32:58 and you couldn't pretty much see an empty day. There was symptoms all the time, even if it was colorful as I didn't want to necessarily paint a super black and green picture. And what also happened in the op-ed is that I wanted to start with my story, but I wanted to open it up. And so I asked two members of the online long-covid community one question, which was, I hope I will be able to blank again. And the end really ends with countless, really heart-wrenching hopes. I hope I will be able to walk my dog again, to play with my kids.
Starting point is 00:33:33 you know, to be myself. And so that was like a moment where I wanted to do what we were talking about before, trying with my tools and with the data that I collected to show to people what it really means, you know, live with something invisible, but pretty, again, debilitating on a daily basis. Yeah. And by the way, we'll link to that piece in the show notes for people. What happened when that piece came out? Well, like anything that is so visible, like the New York Times, obviously a lot of people reached out to me through comments or, you know, went out of the way to find my email on my website. And I have to say that it was really, was very heartwarming to see a lot of solidarity from patients who were sick or caregivers and caretakers. A lot of people even saying, hey, have you tried these, have you tried that? Which is the best intentions, of course. And I think that the majority of people who are sick kind of said to me,
Starting point is 00:34:33 version of the following, I finally have something to show to my loved ones, again, what it means, what my life looks like. And I think that in some way, maybe that was a turning point in my story. There was some sense of not being completely isolated anymore. It was a moment where I think that my body, I wouldn't say that relaxed, but kind of started to feel, I don't know, that maybe what I was living with the purpose. Maybe at least I was doing something with it. There was a moment of small, I wouldn't call it joy because it's really hard to be joyful
Starting point is 00:35:11 when you're so in distress. But I don't know, purpose. Yeah. And I mean, what occurs to me also. I'm curious whether you're feeling this, is that as hard as it was for you to do that, and as long as it took for you to put together that piece when it goes out in the world,
Starting point is 00:35:28 I wonder if it was also, in any way, shape or form, if it said something to you along the lines of, this may be harder and it may take longer, but you can actually still do this. Like, you can still do the thing that you have always done. That's a good point, Jonathan. And I think that, you know, I fundamentally, like you and I have talked about for a long time, I'm a maker and, you know,
Starting point is 00:35:54 seeing something that I've made that, you know, had an impact and people liked, it's something that does give me a sense of identity that I felt that I was losing before, because as much as I was still trying to work on projects for clients, there definitely wasn't anything that I could make that I felt passionate about because, again, I was in complete survival mode. So for sure, that was part of that. And we'll be right back after a word from our sponsors. This was also certainly a certain around time when you then had your kind of like your deepest relapse, if you would call it a relapse.
Starting point is 00:36:31 And you're still measuring the whole time, right? Because again, this is who you are, this is what you do. It sounds like there comes a time when something in your mind says, I wonder if like this obsessive commitment to measuring every single part of my descent and then where I am now is maybe causing more harm than good. Yes. So two things happened around that time. One was an appointment with a doctor, an internal medicine doctor that I've been waiting to see for a long time over one year.
Starting point is 00:37:04 A wonderful doctor here in your city that had, you know, had experience with chronic conditions for a long time. And I had a lot of hope on him. You know, when you're like, put all of your, you know, horse. This person is going to have all the answer. I figure it out for me. I saw him virtually because I can, like, go in. And we had like a one hour long consultation, which was a first for me. usually it was unfortunately 15 minutes.
Starting point is 00:37:28 And I don't know that it was my, you know, expectations on that doctor or really the fact that he felt kind of reassuring. And especially one thing happened during that appointment, he said, okay, listen, from now on, I'm going to coordinate your care. I'm going to take care of, you know, all of your doctors. Because you don't have to talk to your rheumatologists, allergologists, immunologists, you know, cardiologists. So all of a sudden you have a point person. Yeah, a point person. I really remember in that point before we even started any treatment, my body finally relaxed. I felt these almost like, you know, attention that I didn't know that I was scaring being like, okay, I don't necessarily have to track and, you know, figure out all these correlations alone.
Starting point is 00:38:18 I'm not alone in this anymore. And I think that that in my journey that started, you know, I think the chapter that I call recovery, I think that that moment had a place because you can imagine that the amount of uncertainty, distress, physical symptoms gets your nervous system and your mind to be really in a constant state of, you know, being frightening in a gigantic fear loop constantly with nobody answering to you. So that I think really was a bit of a malston. And then, but, you know, to be fair, and I love that doctor, saw him for a long time. we didn't try treatments that we necessarily didn't try with the other doctor.
Starting point is 00:38:57 So there was nothing that was, you know, out of the ordinary that I would say that was my recovery medicine. Something else happened that right after the publication of the article, a wonderful woman that I did an annoying person, but I was connected with, you know, through Instagram, she was a writer. We would comment on each other things, wrote me. And we never really kind of even, you know, message as much anymore. we just kind of knew who we were, emailed me and said, hey, Georgia, I don't know if you remember me from Instagram, I had long COVID too, and it was pretty grim for a while. I am much better. I'm almost recovered. And I was wondering if you'd be willing to talk to me. What I have tried is controversial, is a brain retraining program, but I would be willing to talk to if you want to. And at that point, I had tried brain retraining and different, you know, others, mindboating. approaches that we can talk about before. But nothing really worked for me and I have my theory on why. But I felt compelled to talk to her. But we had a call, like a 30 minutes call and she explained
Starting point is 00:40:04 to me her path to getting out of long COVID. And I actually felt that I needed to give it another try. I have seen a lot of before, you know, stories of people getting better through a different, you know, combination of mind, bodies, approaches, and brain retraining. What I was always
Starting point is 00:40:23 skeptical about looking in the stories online is, are they trying to sell me something? Is somebody paying them to, you know, endorse this program or that kind of a thing?
Starting point is 00:40:33 And the conversation with Molling was very genuine and I kind of felt that we had similar stories. And I was also at that point where I have tried, you know, at that point I tried everything.
Starting point is 00:40:44 I was just also so really sick, actually of not feeling that I had any agency in it. And so I committed to try to look at my journey and what was going on in my body and with the symptoms through a different lens, which is the one of the brain that can really play a big role in how these, you know, variety of body feelings have, you know, a play in your body. Yeah.
Starting point is 00:41:12 So here's, and you and I have both talked about, like, brain retraining, and it comes in various different names, very different worlds. Regardless of how it's offered up and who it's offered up by, and like, whether it's research or not, like one of the fundamental tenets, which you and I both struggle with, and I struggle with to this day, I think you made more peace than I, is this notion that you have to believe in its possibility to help you before you can point to your own. own lived experience or to data, like hard data that proves that this actually can be affected, which is so contrary to everything that you've done your whole life.
Starting point is 00:41:59 You're like, show me the data. Yeah. So how did you wrap your head around that? It was a complete leap of faith. It's one of those things that I don't think one can explain how this switch happens in your brain, but I fundamentally really felt everything that I've done so far is really not working. My way of needing to find the cause that would cause the evidence is a more test and more tests is really not working for me. And, you know, in the beginning I said, why don't I give it a
Starting point is 00:42:28 try for one month? For one month, I'll be very disciplined and diligent and I'll really want to believe that this can help me. And then I'll reevaluate to the point that I put a little reminder on my calendar just because so that I could put it out there to be like, I was still doing brain training a month after. And I committed so intensely. I committed to these as intensely as I committed to tracking before, like with the same kind of energy to be like, now this is what I'm doing. And, you know, just generally, I know that you've had wonderful guests that I've talked about nervous system regulations, brain retraining, and I am really far away from being an expert on that. But my understanding of how these other lens of looking at what your body might be communicating to you is,
Starting point is 00:43:15 is fundamentally to consider that a lot of body sensations that become chronic, a lot of the symptoms that become chronic, could be a maladaptive stress response, something in your brain that got stuck in a loop, and it's really sending signals of danger communicated through different parts of your body to your body. And the whole idea of whether it's brain retraining or nervous system regulation, there's so many tools and methods is to, first of all, believe that your brain is one of the contributing causes is not the biggest causes of what you're experiencing. And now I want to really put a caveat. When I mean our brain, I don't mean our mind, I don't mean that if we only think positive, everything's going to be cured. It's really imagine a rehabilitation from a stroke.
Starting point is 00:44:00 There's a part of your brain that has been taken over in a wrong way. And the idea with, again, a lot of different tools and ways to interact with your body and yourself is to recognize and be aware any time that you are in a loop, in a loop which could be body scanning. Am I feeling this? Am I feeling this more? What does it mean? And so giving a meaning to your symptoms, which could be, this means that I'm getting worse. This means that I'm not going to recover. Oh, my gosh, this is going to, you know, get more serious.
Starting point is 00:44:31 Anything that is that. So recognizing it, sometimes it's hard to recognize this. You're in that state where you're just embedded. Yeah, it's very hard to go meta and actually see, oh, this is what's happening. What's happening. So recognizing, interrupt it. And again, interrupting it might have so many forms. In the more top-down brain retraining, it means actually literally saying stop, stop, stop.
Starting point is 00:44:55 Or like, pause, stop. And like, sometimes you even have, if you're alone in a room and not with people, physical things that you have to do, you physically change. place so that your body and situations around, you are changing and you're interrupting. And interrupting can instead mean doing something body-based from a somatic perspective. It can mean, you know, looking around, naming things. It can mean anything. But interrupting that loop and redirecting. And redirecting, again, could be having a list of positive thoughts that are visualizations of health that you can go to, doing something pleasant from a body perspective,
Starting point is 00:45:31 focusing on something else. And it seems really simple, which it is, but it takes an incredible amount of work to do it when you're constantly in these activated and fight or flight stage because things are terrifying. It's interesting, right, also, because part of what you're describing, and somebody joining us maybe hearing this
Starting point is 00:45:50 and saying, that sounds really interesting, but there's another thing that I'm hearing. And so I want to address this head on, right? because somebody's going to, a whole bunch of people would be like, this sounds really interesting to me. And then somebody else is going to be like, I'm suffering a lot. I had a number of the syndromes that you described. It's very real.
Starting point is 00:46:11 The pain is very real. The inflammation is very real. The illness is very real. I am suffering. And, but what I hear you saying is part of this is being caused not by an illness, not by an injury, not by anything that is current in my body right now, but by my brain, basically a faulty loop in my brain continuing to reproduce the symptoms in me. So you're telling me that I'm causing this to myself.
Starting point is 00:46:39 This is very important to address. And I want to make it clear that if at the thick of my illness or even when I was like mildly trying brain retraining, somebody told me that a brain retraining program or, you know, anything that didn't have an actual, you know, chemical component like a medicine would have cured these, I would have really wanted to punch them. in the face. Like I'm doing, I'm serious, really serious, because those symptoms are real. They're real. They're measurable. There are physical measures. And you measured all of them. I measured that my test, like at some point when I started to go to specialists, I had those diagnoses, not from anecdotal conversations about my story with the doctors, but from all of those tests that were wrong,
Starting point is 00:47:18 anomaly, actual anomalies in my body. And I also really, of course, want to say, I am not a medical professional. This is my story. And then I really understand that it's incredibly controversial right now because any time that we hear about something that has to do with something from the neck up, your brain, your mind, like we immediately go into, oh, so you're causing it. So you should just calm down and everything will be fine. And this is, you know, couldn't be farther from the truth. I think we have to think about it. If one want to look at these syndromes through this lens, which again might not be a conversation for everybody. It's really understanding that it's more of like it's a brain injury. It's an injury in your nervous system and your brain, not a physical malfunction of an organ or a viral
Starting point is 00:48:04 persistence in your body. And I think, you know, even though even the world mind, body is. Yeah, people really struggle with that. And you know, and long time, you know, like community members of ours have known that over the last few years in particular. I've had a number of people on to talk about this in various different ways, often in the context of chronic pain. And I'm looking for primary researchers at universities. And through the type of protocol that you're talking about had stunning results. And it's not fake. And I'm not going to go out there and say, like, everything that you see on the internet and every intervention is the same.
Starting point is 00:48:39 But I think you and I are both fascinated by like, okay, so like there is, like, is there science behind this? And where is it? And what are the validated protocols that people use? Yeah. And I think you're, I mean, even in the past season of your podcast, or Tuesdays of your podcast, you've done an amazing job at, I think, speaking with some of the people that I personally been following. And I also really just want to acknowledge that when somebody's suffering very much, like all of the people that are living with this condition,
Starting point is 00:49:10 like I was suffering tremendously. It's really easy to feel dismissed when we are saying that there's not an actual physical condition in the body. So this is all a completely delicate conversation. and I want to respect that. And this is my own personal story. And I don't want to claim that this is the only way that people can get better. Yeah. I want to talk a little bit more about sort of than how this helps you. But I don't want to leave behind the measuring point, right?
Starting point is 00:49:43 Is part of you then sort of like shifting gears into a different mode or a different approach to say, like, can something else actually make a difference for me? changing your lens on measuring what's going on on data basis to you? Part of my understanding as I decided to believe that I could have some agency in it was also the understanding that unfortunately as much as I thought that all of that tracking helped me, what it ended up doing
Starting point is 00:50:10 was constantly pointing me to observe what was negative, constantly pointing the focus on my symptoms. And part of the way in which you start to interrupt a pathway in your brain that his tending to go towards these again body scanning or analyzing
Starting point is 00:50:28 is to try to look at that I wouldn't say as least that possible but to try to point the focus somewhere else and so what I did and again it was a total leap of faith and it felt frightening I took out my smart watches I had two at the time it felt very naked
Starting point is 00:50:44 where's my heart rate what was happening right now and I changed my spreadsheet I started a new one and so I archived in a place where I could still have it, but far away from my shortcuts, this big spreadsheet of the symptoms. And from 2024, I started a much smaller spreadsheet that every day was tracking my progress and what was good in the day. And we were looking at my spreadsheet earlier. Like what would a couple of entries look like?
Starting point is 00:51:12 I mean, the first one, the first day was I could walk outside for 30 seconds. Like that was the extent of where I was. Yeah. Some other days where I could lay in the sun in the back here in the afternoon without feeling too terrible. Some other days where I felt like standing, felt a little more stable. But, you know, if I think about it, I could have had those moments even as I was collecting the other data. Oh, that's interesting. Because there were 30 seconds that I could go.
Starting point is 00:51:41 But it wasn't looking at this moment. So you weren't tracking them. So I wasn't tracking them. I wasn't paying attention to that. Yeah. Because I am sure. I mean, it's a long time ago, but I am sure that sometimes. that I was brushing my teeth.
Starting point is 00:51:51 At that, you know, particular moment, I wasn't felt that I was completely fainting. I didn't pay attention to that. I was paying attention to how from the bathroom to the bedroom again, I was actually feeling like I was fainting. So that was a very important shift. And my progress, you know, slowly and absolutely non-linearly, you know, not in a chart like you would expect to go up,
Starting point is 00:52:14 started to get a little bigger. And my window of tolerance, for things started to get a little bigger. It took me a long, long time and hard, hard work to recover, this I want to say before we unpack the rest. But that shifting data collection, the shifting attitude, the interruption of those pathways that probably kept me sick for longer than I needed to was definitely the shifting point.
Starting point is 00:52:42 So would it be accurate to say that you shifted from, meticulously tracking losses and suffering to tracking possibilities and wins. Absolutely accurate. Yeah. To the point that, again, following, there's many online programs. There are brand retraining. So I don't think necessarily one is better than another. It's about you finding a spoke person for, you know, those videos that explain things that you click with.
Starting point is 00:53:12 Part of a lot of those is also to start to look at health and look at hope. and I was spending one hour a day, like prescribing that program, to visualize health. And I, you know, in preparation for this to put my head onto that journey, I kind of printed out some things that were part of my notes at the time. And I had a list of visualizations of health, meaning, you know, beautiful places and photos that I could visualize and out loud, like in the present tense, saying, I am here at the top of this mountain. I'm feeling my feet on the ground.
Starting point is 00:53:47 I'm seeing the beauty. I'm feeling the air. I am going for a hike. And I needed to do it with like an extend of physical sensation for one hour a day for a long time and months and months. So it was really looking at, again, looking at what in the present was actually good and looking at the future only through the lens of what is possible. And really training your brain to do it. The power of, you know, visualization is wild. in terms of improvement and things like that.
Starting point is 00:54:19 So you start to really engage with these practices. You start to say yes to them. You start to change the way. You're still tracking, but you change what you're tracking to be more on the possibility side of the equation, the hope side of the equation. And you make a commitment to do 30 days. You're just like, I am all in on this.
Starting point is 00:54:42 And then I'll reassess in 30 days. knowing you, I know you reassessed. Definitely. Was there, did you see enough of like the slightest evidence of like there's something happening? Even if you weren't fully convinced, you weren't fully recovered. Like there's enough evidence here for me to be like, oh, there's something going on. Yeah, to be clear, up until two years after when I could kind of say out loud, I finally feel recovered, I think up until that point, I wasn't 100% sure.
Starting point is 00:55:19 You just really don't know. It's not that, again, there's an x-ray that points to something, that then, you know, the x-ray is solved, and then you're cured. It's really very much a leap of face. But after those 30 days or, you know, I think that even before, I was already just looking at that little thing on the calendar and saying, I'm going to keep doing this. What shifted was not necessarily that in a month I regained a ton of functionality.
Starting point is 00:55:42 But I felt a complete different, you know, feeling in my own nervous system. I kind of finally felt that there was like something grounded, something that was more stable than before. And I really wanted to cultivate that feeling. I also just started to fully believe that, you know, there can really be a connection between the brain and the physical sensations in the body. Because I had a couple of evidences and moments in which, I mean, I wouldn't say that I could turn down the volume with some. practices, but something shifted. I could feel shifts in my symptoms. Again, I can't say that, you know, I was able to turn down the pain, but like there was a shift in my body, and so I really wanted to keep going. As you start to, so you commit to this for, as you said, in like a full two
Starting point is 00:56:31 years, and slowly, painstakingly, very, very slowly. And like you said, not a straight line. There's good days and then there's like things about and but the jagged line but the trend is moving the right direction until a couple of years later you get to a point where you're kind of like I'm pretty much back um as you're nearing that point are you starting to think about the life that you had before and seeing tells that maybe it wasn't the life that you thought you were living now that you're sort of like you just reflected in a very different way and connecting dots in a very different way To the point that I would not say two years after I felt like I was back, I was a very different person. Interesting.
Starting point is 00:57:18 Yet I felt that I was recovered from the condition that kept me sick for a long time. So definitely. So the work that I have done in these two years in the beginning, and again, we talked about volumes of the symptoms, was very military and top down. And at the same time, at times body base. but it wasn't any kind of inner work. It was really trying to interrupt, retrain my brain, retrain my nervous system. It was kind of technical, actually.
Starting point is 00:57:49 And I believe that for me and for how I was in my journey, that was needed to, again, reduce the volume so that I can start to look at the things that probably were causing that, you know, tension and settlement that if I'm being honest with myself, I've always felt before I got sick. one of the, you know, things that I really felt at some point is that the life that I was living before, even if in surface was great, probably was really contributing to why my system was in such a fragile state before that COVID infection. I've learned it so much later.
Starting point is 00:58:27 And with a lot of work that, again, passed from being purely nervous system and, you know, brain related to look into the insight. to looking at the parts of me that weren't aligned with the life that we were living, to looking at post-trauma, personality traits, ways of living, attachment styles even, all things that I see right now that have kept my nervous system in a mild state of alert constantly for the first, you know, 37 years of my life. Because to me there was something about, again, the control of the spreadsheet and the letting go. I was still going about my recovery for the first phase with the same. controlling energy that I had in the beginning of my illness or in my illness. And so I needed to do it
Starting point is 00:59:14 right. I needed to know that I was taking the right steps. I've documented all of that. And I think that brought my journey of recovery to be much lower and harder than it could have been, though I needed to go through that. But something also important is that my own timeline for my recovery was in two months I needed to be there. I needed to have a certain kind of outcome. And I think that it was only when I let go of the timeline, the things started to shift again, right? So, I mean, it's really interesting, right? Because I'm fascinated by the concept of sliding doors. You know, like if you had never gotten COVID one time, let alone four times,
Starting point is 00:59:54 if you had never ended up with long COVID or any of the various syndromes that you were then diagnosed with and gone through this brutal, brutal season, And if looking back now, you can see a whole bunch of contributors to elevated levels of stress and activation. You almost wonder, you know, like, would something else have at some point triggered some version of what you went through? I think so. Because to me right now, and what's fascinating to me is that, you know, I still think that before this illness, I was a smart person interested in my ear. inner world, interested in, you know, the science about your own personality and all of that. But I definitely didn't have the awareness of understanding how my system has been very strained by,
Starting point is 01:00:45 and I mean, I can really name it. I mean, nothing traumatic really happened in my life, but from my childhood, I've kind of always felt a little unsettled. There was always something a little missing. And, you know, if I look back, I was born in the 80s. My parents were just perfectly lovely people that were trying to do their best, but they were very cold. They were very distant. It worked very much. I was an only child and my parents were both only children too. And so I think that also this other thing that was underlying always, you know, a part of my narrative is I will be alone. I will not have people. Oh, that's interesting. You know, no cousin, no aunts, no uncles. And so I think there was a little bit of like a scarcity kind of mentality
Starting point is 01:01:29 throughout my life. And then, you know, like many other kids, I really wanted to impress these parents that were not paying so much attention to me. I started to, you know, wanted to be the best at ballet, wanted to be the best at all of that. And I think that that contributed to probably pushing mentality in that sense.
Starting point is 01:01:51 And on the other sense, because I felt that sense of, I'll be alone, this doesn't feel right. I constantly wanted to fill my time and pack my schedule with people and activities, right, that already, I think, for, you know, if you pile them up, contributes to a bucket that it's kind of spilling. And I mean, I think that then, you know, the previous couple of years before the illness itself, you know, my dad died in a car accident. And, you know, that was, again, even thinking about my smaller family and my mom live in Italy, a bit of a, a traumatic event that happened. We ended with my ex-husband, a 10-year-long marriage. I changed my job. And so that happened in the two years before the pandemic itself. And then the pandemic itself that for everybody was terrifying. But I think that all of that and the, you know, no matter
Starting point is 01:02:45 the yoga and the meditation that I was doing, I really wasn't looking into what was keeping me in that, you know, pushing, achieving and stressful way of living. Yeah. And again, I want to make it clear to anyone join us. You're not saying and we're not saying, oh, you did this to yourself. No. You know, like we all live in a world where we carry a certain amount of stress, of dysregulation, of capital or little T trauma, not because we did something or something was definitely done to us, because it's just life. Yeah. You know, and some of us, our systems can handle a lot better just intrinsically. Some of us not.
Starting point is 01:03:29 Some of us, we feel like we're handling it really, really well for a really long time. And our systems tell us eventually, like, we're not. I happen to be one of those people too. Like, my mind I've learned can take so much more than my body can take. Yes. You know, I've got great mindset practice. I've got good self-care. And it has often masked a reality of the way that I'm living.
Starting point is 01:03:51 and how hard I'm pushing and what I'm chasing in a way that's really not functional or healthy for me, and eventually my body responds not in a good way. And this is just being human. It is. Sometimes, I mean, it's so interesting because throughout my recovery, I thought that the goal of recovery, and I even wrote it into, you know, they have you do those kind of ladders of the hopes and what you wanted at the end. end of it, full recovery for me meant being able to do exactly what I want, when I want, how I want, and feel great. So it was still a pushing, you know, my body is a machine kind of
Starting point is 01:04:35 mentality. What I'm understanding about recovery right now, it was to finally be able to, this might sounds like a cliche, but it seems so true to me, to finally be able to see myself and to be able to be in touch with who I am, what I need. And this is beautiful. And this is beautiful. It felt when, you know, I remember that I met some coaches that I work with for, for time, at times that, you know, really fundamental part of my recoveries. And when they were actually saying to me, recovery is not never needing to rest. Recovery is being so in touch with yourself that you're going to crave rest. And I just didn't like it. I was stealing like, but come on. It's like there's only so many hours in a day, that things to do.
Starting point is 01:05:15 But it is so beautiful right now to understand what they meant. I also think that for me, Again, things that for people that are more in touch with those, you know, ideas might sound very banal. But I don't think that before, you know, two years ago I've ever had compassion for myself. I didn't know what that word was. I was looking at myself in the mirror in the morning and seeing what I needed to do, what I wasn't, you know, fine in whatever my appearance was, what I should be doing and stuff. And I've never just seriously look in the mirror, saw my eyes and saw a person. Like, it was, at some point it happened during all this process of being able to sit with the discomfort enough that you open up curiosity for what's underneath, right? That was like such a fundamental opening for me, even though I have done therapy before.
Starting point is 01:06:06 Again, I was interested even in all my 30s into all of our inner world. I think that unfortunately probably I needed to go through an extreme version of my body's shout. know to be able to listen. I'm picturing you coming home from therapy sessions and spreadsheet. Is that happening in a session? Plotting the grass. I love the notion that you said. I'm not like back, I'm not finally back to where I was,
Starting point is 01:06:36 but like I am now moving forward. Like I am moving into, like there's a new me, there's a new life, there's a new way that I'm showing up in my life and that it's showing up for me. and it's different in all the ways. I'm just, I love learning from you. It's been incredible sort of like seeing. We've had conversations when you're in a tough place, and we have conversations and sort of like emerging more from it.
Starting point is 01:07:04 There was a chunk of time where, like, we weren't really in touch, and I had no idea what you were doing. I think that was probably during the window where you were just really so inward-facing, which you needed to be, to kind of, like just do what you need to get through every day. And I'm glad to be sitting here with you, having this conversation with you feeling the way that you're feeling.
Starting point is 01:07:23 It feels like a good place, rusticum, full circle. So in this container of good life project, if I offer up the phrase to live a good life, what comes up? To live a good life means to believe that you're exactly where you're supposed to be. I could unpack it. In my journey many, many times, I didn't want to be where I was so many times through the illness and through the recovery.
Starting point is 01:07:48 I wanted it to move faster. I wanted it to be one of those stories that I was seeing online. But I learned that I absolutely needed to go through all of the things that happened to me, the way they happened to me, because that's the only way. And there's so much freedom in believing that wherever you are now, it's the place that is conducive for you to be whoever you all. are because of that, that is what really to me frees you to finally be in the present and not look so much forward anymore. Thank you. Thank you, Jonathan.
Starting point is 01:08:24 So let's talk about some of the things that I'm still carrying from this conversation. The thing that keeps coming back is really how ordinary the turning point was she didn't find a miracle cure or a miracle drug or a miracle treatment. Georgia just changed what she was paying attention to and documenting. For four years, everything that she measured was a measure of loss, of suffering. And every day the spreadsheet told her the same story about who she was becoming. It reinforced it. When she archived it and opened a new one that only recorded what was good, what was getting better,
Starting point is 01:09:01 the first entry was 30 seconds of walking outside. Those 30 seconds had been available to her before. She just wasn't attuned to them. And that, that changed everything. It's set in motion so many other actions and shifts internally and externally that led to an open door to a different way of being and life. The second thing is that appointment, that one appointment, one doctor said they would coordinate her care and her body relaxed before a single new treatment or approach was even tried. The work of holding it all together alone was its own symptom. And the third thing, the definition she landed on, recovery isn't never needing rest.
Starting point is 01:09:44 It's not getting back to the way she was. Recovery is being in touch with yourself enough that you crave it, that you crave the things that are nourishing good and also reimagining what the future might be. And along the way, taking an honest look at what the past really was. So here's the thing that I'd love you to maybe explore this week. pick an area of your life that you're maybe quietly monitoring for evidence that it's not going the way that you wanted to go. And for seven days, don't ignore that. Maybe that's part of your reality, but for seven days, write just one line a night about what is going your way, what did work, what is good.
Starting point is 01:10:25 Small counts, itty-bitty passing moments, a few seconds counts. We saw that in Georgia's case, 30 seconds counted. Then read back the week at the end of those seven days. and see whose story that you've been telling about yourself. The last thing, Georgia's story is hers alone. In sharing it, neither of us are suggesting it is yours or it should be yours or anyone else you know who may be navigating a personal or a health challenge. Every person has their own experience, their own journey, their own story, and it is important to honor that and to not layer on promises or expectations
Starting point is 01:11:03 that might just not align with where they are or where you are. Be good to yourself and do whatever you need to do in order to feel most authentic and a lot. And hey, before we go, do me a quick favor. Think of one person in your life who may be dealing with something that nobody can see. Send them this episode. That's it. It helps us get discovered and brings more people into a conversation that just might make a real difference. and if you feel really compelled, go ahead and leave us a review wherever you get your podcast.
Starting point is 01:11:38 This episode of Good Life Project was produced by executive producers, Lindsay Fox and me, Jonathan Fields, editing help by Troy Young and Alejandro Ramirez, Chris Carter crafted our theme music, and of course, if you haven't already, go ahead and follow us wherever you get your podcast, so you never miss a conversation. Until next time, I'm Jonathan Fields, signing off for Good Life Project.

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