Good Life Project - Finding Hope & Listening to Intuition | Steph Catudal
Episode Date: July 24, 2023Today's episode uncovers a true tale of resilience, love, and hope as we delve into a deeply personal journey with author Steph Catudal, chronicled in her New York Times bestselling memoir, Everything... All At Once. This riveting conversation explores:The terrifying moment when Steph's husband, Rivs, was admitted to the hospital with what appeared to be COVID-19, only to be diagnosed with the same rare cancer that claimed her father's life.The 84-day battle for survival that Rivs endured on life support, with the ever-present specter of a grim prognosis.Steph's struggle to provide hope for her young daughters while grappling with the reality of their father's condition.How she sought solace in writing and spirituality, discovering the power of vulnerability and the strength of human connection amid profound disruption.The role of suffering in opening up to love and the untapped potential of kindness and intuition when navigating life's most challenging times.Listen in as Steph reveals the tenacity and faith that fueled her fight for her husband's life and how dealing with loss alongside children can force us to face reality with unwavering honesty. Unveil the transformative power of adversity and learn how we can all find light in our darkest hours.You can find Steph at: Website | Instagram | Episode TranscriptIf you LOVED this episode you’ll also love the conversations we had with Mark Nepo about moving through tender moments in life.Check out our offerings & partners: My New Book SparkedMy New Podcast SPARKED. To submit your “moment & question” for consideration to be on the show go to sparketype.com/submit. Visit Our Sponsor Page For Great Resources & Discount Codes Hosted on Acast. See acast.com/privacy for more information.
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Sitting next to him and confronting the possibility that he might die, it just shattered all of the walls that I had built up and just allowed me to just love.
Like I felt more love for humanity and from humanity during that time than ever in my life.
I think pain can do that to us.
But beyond that, I feel there was a spiritual component to whatever closeness I felt to my husband at that time. I felt in some
ways we were able to commune while he was sedated. And I think when you connect with someone on that
level, it's just soul deep and energetic. And it creates this just pure love without all of the
confusion of the day-to-day things that partners go through.
And just to fully see him, I saw him completely during that time. And it was very, very beautiful
and very terrible and painful at the same time.
So one thing every person will share if we're blessed with enough years, at some point, sometimes a number of times over,
we will face profound adversity, struggle, and the potential for loss on the biggest scale.
How we move through these moments, how we step into and are changed by them,
and how we emerge from the experience, it's a big part of how we experience our lives and make it good.
Even in the darkest hours, can we find access to some level of connection, grounding, maybe even
lightness and salvation? That's where we're headed in today's powerful conversation with
Steph Kotschdahl. So when Steph's husband was admitted to the hospital with what seemed like COVID-19-like symptoms,
doctors soon discovered it was actually NKT cell lymphoma of his lungs, the same rare type of
cancer that Steph's own father had suffered from years earlier. Her husband, Riz, was a stunningly
fit, ultra-endurance athlete, but he was immediately placed on a ventilator and an induced coma as his condition deteriorated.
And doctors warned Steph the odds of survival were slim.
Yet something inside of her told her this is not how he dies.
And Steph found herself confronting grief and loss and hope all over again, this time
with her young daughters by her side. As her husband battled lung cancer on life
support for 84 days during the early days of the COVID pandemic, Steph searched for meaning within
her family's profound disruption. And she turned to writing and spirituality, connecting with others
through her vulnerability and sharing, even as she struggled to be real with her own kids about their father's bleak
prognosis. And she shares her story in her powerful New York Times bestseller,
Everything All at Once. In this moving and vulnerable conversation, we explore Steph's
devotion, her action, and faith that propelled her to help save Riv's life. We look at the role
that suffering can play in opening us to love,
how navigating loss with children forces you to confront reality in a profoundly honest way,
and how opening to kindness and intuition along the way can be a stunning difference maker.
So grateful to be able to share this moving conversation with you.
I'm Jonathan Fields, and this is Good Life Project.
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Mayday, mayday. We've been compromised.
The pilot's a hitman. I knew you were gonna be fun. January 24th. Tell me how to fly this thing. vary. As we have this conversation, I feel like the whole world has had a series of years where it's just been shaken, turned upside down. Everyone had to confront groundlessness, uncertainty,
and at times their own wellbeing and mortality. In the middle of all of this, you've had to do
that in the context of your family, but not just for the reasons that everybody else has,
but for some much more intense reasons. I want to dive into all of that with you.
But before we get there, before we get to what Bruce Feiler calls a lifequake in your life,
tell me about the before times. Life was kind of crazy for us before. My husband was a full-time
athlete, an endurance athlete, which requires a tremendous amount of training. And we were
raising three little girls at the time. And so, yeah, there was a lot of balancing and juggling
and in some ways, a lot of misaligned priorities before he got sick, I guess. It just, life was
kind of wild, but also good. And, you know, we were both students and we got married really,
really young at about 20. I was 21 when we got married. And so we just kind of had to figure out
the messiness of life together. And that's kind of where we were at when, when he did get sick.
Yeah. And I mean, also you mentioned he was an endurance athlete, which is, it's interesting,
right? Because, and it sounds like you were very much both in love with the outdoors, with movement, with pushing yourselves
sort of like to the edge to a certain extent, maybe him more than you, but it seems like you
were side by side for a lot of different things. And that's, it's a certain mindset that sort of
like it says, let's push to the edges of life and see what it's all about. At least from the outside looking
in, it seems like that was a bit of your shared ethos. Yeah. And it's interesting because he was
the endurance athlete, sponsored and professional, but we always joke that we were both doing these
endurance feats because while he was out there in the trails for five or six hours a day. You know, I was home with the kids and, you know, balancing
all of that. And, and we didn't ever talk about defined separated roles, but we really just found
a way to, to balance it so that we were both able to do what we wanted to do. But it was definitely
an act of endurance a lot of times, you know, and just kind of grinding through and a lot of mental
fortitude as well.
And I think it's like that with when you're supporting or with anyone who's pursuing a
kind of like a lofty dream and athletics is like that a lot of times.
So yeah.
What was his lofty dream?
Like what was the ultimate aspiration on his side?
Well, for him just to be a great runner.
He really, since he was a kid, what he wanted to do was run. And it was really his way of metabolizing all of his feelings and emotions. And without running, he really had a hard time just with the day-to-day. And running was really just his way to clear his mind and center himself and ground himself. So he was
lucky enough that he had both the talent and the work ethic to make that dream into a career.
Yeah. Which not many people do. What about you on your side? How did you make meaning of the world?
What was your processing sensibility? Because clearly at some point writing drops into your
orbit, but I'm curious, was that an early part of your experience or did that come later?
Yeah.
Writing has always been my means of making sense of the world.
I remember being, my mom kind of brought this up when I started writing my book that I would
be six years old and I'd take out this encyclopedia of animals that we had back before the internet.
So it was a big, giant book.
And I would just flip open a page and choose an animal and write a short story about an animal. And that's
kind of, I've always had a passion for writing. And then when my dad got sick, writing poetry,
when I was 14 years old, poetry was kind of my way of making sense of the pain I was feeling. And eventually I did go to school
for writing. I went to grad school for media, peace and conflict studies. I wanted to be a
war journalist before I had kids. And so yeah, writing has just always been really the only
true passion that I've had in terms of a sustainable career.
You mentioned when your dad got sick, when you're,
I guess, about 13 years old, your dad ends up with lung cancer. And it sounds like also you
were brought up in a household where faith was a central part of it. And moments like these,
no matter what age you are, can have you questioning everything. And it sounds like for you,
that's exactly what happened. Like this sort of like threw a level of questioning into everything. And it sounds like for you, that's exactly what happened. Like
this sort of like through a level of questioning into you, and especially as what sounds like you
were sort of like an introspective, creative, expressive kid. It seems like you really just
started exploring and saying like, what's real, what's not real, what's right, what's true and
what's false. Yeah, definitely. So I was raised in the LDS religion. So as a Mormon, I was raised to believe in, you know, faith and miracles and prayer in a very literal sense. And my dad was diagnosed when I was 13. And I kind of had believed that if I prayed hard enough, that my father would be healed as though it was an equation, X, Y, Z, and then you get the blessing. And when that didn't happen,
when my dad did pass away when I was 14, I kind of decided that none of it was true.
If this little group of truths weren't reality, then nothing really was. And so I kind of
threw it all away, spirituality, God, any notion of anything universal, really.
And I existed like that for about 20 years.
And I had come to peace with life having no meaning and, you know, that we were all just biological specimens walking the earth.
I had come to a peace, but that all changed when my husband got sick.
I'm curious also, because it's not unusual for a kid brought up in a household where there's a strong faith-based tradition to sort of like, okay, so this is part of my
life.
And then when they leave high school, when they leave the house, that becomes the moment
where so often people start to ask all the big questions and rebel to a certain extent.
For you, there's this moment that happens in your early teens that basically leads you
to this place, but you're still living in a house with people that you love who have
really a very defined set of beliefs.
Do you have a sense for when you were younger, like as you're going through a questioning
process, but also I would imagine still really want to be part of a family and to fit in in a community. How you danced with that tension? That's a great question. I think
it's two part. One, I was so mired in my own grief at that age that I really didn't think
much about other people. And that's one of the, I wouldn't call it a regret that I have, but in my grief, I became quite insular and selfish.
So that being said, I also wanted to kind of help my mom.
I felt terrible for my mom because she had lost, of course, her husband and my father.
And so I did try.
I tried to go to church for her.
I tried to put on the dress and go to Sunday school, but it never really resonated with me.
But my mom did a wonderful thing, which was she just allowed.
She allowed me to be how I needed to be in that moment without making me feel guilty
or making me feel shame for not choosing the path that she had hoped for me.
And I really do feel like in that freedom that
she offered me, I was able to find my own way and know that I was loved throughout it. And I really
do look at that as a huge gift that she gave me. I think what an impossible task, a mother raising
four children, you know, in grief, and we were all probably just, you know, flailing
around. But in my perspective, she did the greatest thing for me, which was just accept me exactly how
I was during that time. Do you have a sense for you actually having that true understanding back
then? Or do you feel like it's more sort of like in hindsight, reflecting back, you're like, oh,
now I kind of have like a better understanding of what was really going on and how I felt and how unique it was that I actually felt loved in that moment.
Oh yeah, definitely hindsight. That's one of the biggest epiphanies of the past few years was
just all my mother did for me and really how difficult I had been for her during the hardest time of her life. And again, going
back to that selfishness of my grief, I never truly communed with the fact that she had lost
her husband. I'd never really considered all the ways that she was hurting because I was so
absorbed with my own pain. It wasn't until my husband got sick and I was put in the same position that she had been in when I was a kid, you know, with a sick husband that I realized what an impossible task it is to be the mother of grieving children.
And then it was just kind of these series of epiphanies of recognition of all that she had done for me and how through it all, all she did was offer me love. And that
love really just, no matter how far I got, no, how reckless I got in my teen years, I do feel like
looking back, it was her love that always just kept me from going over the edge. It always reigned
me. And even though I pushed the limits, her acceptance and her love just kind of rounded me just
a little bit, just enough to survive really.
But again, only in hindsight do I see all of that.
Only in the last, I'm almost 38, that was probably a 36-year-old recognition.
Have you had a chance and opportunity to just sit down with her and sort of like share your
thoughts about that moment in time and how much you've also realized what was really happening that was never expressed back then, probably in both
directions. Well, you know, the interesting thing is my mom is, she is, I call her the British
Stoic. She's just a keep calm, carry on kind of woman. And so true emotional conversations were never very common. But when she saw me
going through my husband's illness, I think that kind of eroded the walls, whatever emotional
walls may have been between us. And I think we were able to fully see each other and really see
that in our lives, we were the only ones that understood what each other was going
through, which is a very unique situation for a daughter and a mother to have gone through
basically the exact same trauma. And so my hope is that when she reads the book will be the moment
that she sees my recognition of all that she did for me. And the interesting thing is I didn't set out at all writing the book
thinking that that was even going to be a theme. And it turned out to be one of the major themes
of the book was the reconciliation of my relationship with my mother and the gratitude
that I have for her. And it was only through writing that I kind of was able to, you know,
decompartmentalize and just kind of like bring it all together and recognize it all. And that was one of, again, one of the greatest gifts about, as you've described, the season around what happens to your husband and in turn to you, to your family, to your kids, your relationship
with your mom.
So let's jump into that.
You're building a family.
He's out there building careers and endurance athlete.
You're traveling around.
And then a couple of years back, things go a little bit off the rails, maybe more than
a little bit off the rails.
Yeah. Yeah. So he was training, he was trying to make the Olympic trials for the 2020 Olympic trials
for the marathon, full training mode. He was doing three times a week going to the Grand Canyon to
run about 44 miles across the Grand Canyon a few days a week. He was in tip-top shape. And
then one night during a canyon run, he gets to the bottom of the canyon and he feels like he can't
breathe. He thought he had heat stroke. He thought he was going to, you know, maybe die at the bottom
of the canyon. And it took all his strength to make it out. It took him about 10 hours to get
out of the canyon. And it usually takes him two, less than
two. So looking back, just recognizing the sheer mental strength that it took probably to climb
5,000 feet out of the literal Grand Canyon when you're breathless like that. So after that,
we assumed he had COVID because he just kind of kept getting more fatigued and he couldn't really get out of bed and he
developed a cough. And eventually, three weeks later, find out that he has NKT cell lymphoma
of his lungs. So lung cancer. And again, a non-smoking related cancer, just like my father
had had a non-smoking related cancer. So the cruel irony.
So yeah, and then he went into lung failure and that's when he was sedated,
put on a ventilator and sedated.
When this is starting to happen to him,
and I know also this was,
the diagnosis was not given immediately
because this happened to happen at a time
where a lot of people were getting COVID
and a lot of people were struggling and getting a lot of the symptoms in their lungs and their body.
That would have been a lot of what he was feeling. And also a lot of the country was shut down.
It was not easy to get access to doctors and medical help. So you're sort of like moving
through this moment at a really, really challenging time in history with a lot of uncertainty.
When he finally gets the diagnosis, and as you said, this was essentially the same diagnosis
that your dad had gotten when you were 13 years old.
I can't even imagine what was going through your mind, but of the different threads that
were sort of like spinning through, what was dropping in and what were the different things
that were just sort of like spinning? Yeah, there was definitely a lot of
conflicting emotions because for three weeks they were treating him as though he had COVID
because nothing else made sense. He had all the symptoms of COVID and he was just declining and
all the tests were coming back negative. And so feeling that he might die at
the hands of an unknown disease just felt like torture. It just felt like I just wanted a
diagnosis so that at least there could be a possibility of treatment, or at least we could
know. And it was looking like there was not going to be a diagnosis. I remember one of the
ICU pulmonologists telling me that some people just have undefined lung disease or lung injury, and they never figure
out what that is. And I couldn't accept that. And so when he was finally diagnosed, which actually
was a week after he was sedated, so he didn't know his diagnosis until he eventually, you know, was brought out of his coma.
I felt a strange sense of relief that at least we know on one hand.
And secondly, cancer felt familiar to me.
And I know that's a strange thing to feel, but I did feel a sense of I've done this before.
I'd also, my little brother had leukemia when I was
six years old. And so my little brother and then my father and now my husband, and it almost felt
like I had been trained my whole life to be in this position. And I don't believe everything
happens for a reason. I truly don't. But I do think we can look back
on the hard things that have happened to us and assign them meaning in retrospect.
And I was able to do that for my father's passing and my little brother's illness saying,
I don't think they got sick for a reason, but through their sickness and passing of my father,
I was able to better understand and
deal with what was happening to my husband. And in some strange way, I could almost be grateful
for having gone through something similar before. So it was just this relief and of course, this
sorrow and feeling all of it at the same time, but at least we had a way forward. I think that was the
ultimate feeling was, okay, at least we have a way forward.
Yeah. I mean, and as you described, the diagnosis didn't actually come until about a week after he
had been sedated. What led him to the place where you made the decision to say, okay, it's
time for an induced coma at this point.
That was, yeah, not my decision. We were hoping that it wouldn't come to that because especially with COVID, there was a lot of talk of, you know, once you're on the ventilator,
it's hard to come off. Or once you're sedated, you don't wake up. That was kind of the narrative
going around. And so just the words ventilator were just, you know, so just heavy. Of course,
they always are. But at that time, you're just hearing them all over the place. And so
we were really hoping it wouldn't come to that. But it was about midnight when I got the call,
the ICU doctor called and said, you know, we can't wait any longer. He's because he's an athlete and
because he's incredibly fit, he's able to,
he's been able to survive with very minimal oxygen levels. Like his oxygen was in the seventies
and he was still trying to do pushups by his ICU bed, you know, and that he would take off his
little oxygen monitor so we can do some pushups. And they were like, he's super human, but there's
a limit to everyone, you know. Everyone's mortal at the end.
And so they called me and said, he's in lung failure now.
We need to intubate him.
But he still called me right before they put him on a ventilator.
He called me and tried to reassure me that he was going to be okay.
And he was still very coherent the minutes before he was sedated.
Yeah.
And at that point, he's still thinking this is either
some identified thing or this is just COVID, but it's not coming up in testing or something like
that. Yeah. COVID was really what we truly believed. And that's what he, we call it fall
asleep. That's what he fell asleep believing that he had. It really took months after he woke up to
fully understand his real diagnosis. And it's the fastest charging Apple Watch, getting you eight hours of charge in just 15 minutes.
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Mayday, mayday. We've been compromised.
The pilot's a hitman.
I knew you were going to be fun.
On January 24th. Tell me how to fly this thing.
Mark Wahlberg. You know what the difference between me and you is? You're going to die. Don knew you were going to be fun. On January 24th. Tell me how to fly this thing. Mark Wahlberg.
You know what the difference between me and you is?
You're going to die.
Don't shoot him.
We need him.
Y'all need a pilot.
Flight risk.
I mean, I know you described what happened with your dad and your teens in hindsight
and really understanding that this actually in many ways prepared you for this moment. It wasn't unfamiliar in the best of ways, in the worst of ways.
I mean, when something like that happens to your dad, especially at a young age, when you're
just really forming, it can be deeply traumatic. And without integrating or processing that trauma,
it basically stays with you. We tend to stay stuck in time whenever the trauma happens, you know, unless and until we intubate it at some point. So years later, decades later,
actually, when this happens to your husband, beyond the fact that yes, in some way,
your earlier experience prepared you for it. Was there a sense of, of re-trauma because it was so
similar in some ways also? Yeah. I mean, absolutely. There was trauma, just hearing the way he was breathing,
hearing his cough, all of those things triggered a lot of unresolved trauma and emotion.
But I think in some way it helped me to confront and accept those things that I had kind of been suppressing. I had done a really good job
of dissociating from my emotions for 20 years. I had built a wall between myself and my grief
and my father, and I was comfortable there. And being re-traumatized by my husband's illness,
I think it was extremely painful, but I think it was
really helpful in me kind of embarking on the path of healing that I hadn't yet been on. I hadn't
healed from my father's death. And I don't think there's an end point. I don't think you're ever
done healing, of course, but I was definitely stuck in some ways as a 14-year-old, you know,
angry that her father had died.
And in some strange way that I still don't understand, sitting next to my husband in the
hospital allowed me to accept and heal from my father's death. And again, I still don't know how,
but there was a sense of allowance and peace that I found in just recognizing that I could
still have a relationship with my father, even though he was gone, because here I was sitting
next to a sedated husband and I felt closer to him than I ever had before. And so in that way,
I had to accept and recognize that there was probably more to existence than just our bodies
and just the empirical and just the scientific. And I hadn't ever believed that in the past two
decades before. Yeah. I mean, it sounds like it not only brought you back to a place where
you were able to start to integrate what happened with your dad, but it also, it brought you back to some
sense of spirituality, whether it's a notion of, of God or however you might define it. Like
after 20 years of stepping away from the tradition that your early life was, was steeped in this,
it sounds like this was calling you back, but differently.
Yeah. Differently without the,, differently without the stigma or the dogma
or the hard set rules that I had been brought up to believe in. What it did was allow me to
recognize that anything's possible. I think I had been so burned by religion and spirituality,
or at least I thought I had been, that I was completely closed off to any possibility of
anything other than the logical and the rational. But what was happening with my husband was I felt
like I was connecting with him on a different level. And I, again, still don't know if that's
soul, energy, whatever it was, it was undeniable. And so it just allowed me to understand that
anything's possible and that I had been mired by my own pain into one belief system.
And I felt so liberated in recognizing that there's so many possibilities and so many realities around us. And one of those is a
spiritual energetic aspect to life that I am now open to. Yeah. I mean, when you described it as
compartmentalizing a lot of things for 20 years, this experience clearly just tears open the
compartment. And it sounds like it pours everything that had been accumulating over 20 years into the moment, which in that moment place in the world is, the nature and depth of your
relationships with everyone, including yourself in some sense of anything bigger than you,
if that's part of your belief system. And it sounds like that's really what happened with you.
I'm fascinated also by this notion of the way you describe feeling closer to him than you had ever
felt before. Tell me how that shows up. What are your cues during that? What are the feelings that
are making you feel that? Because it's kind of a profound statement saying like, you've been
married since you were kids, basically. You've got a family. And in this moment, when he's in
a medically induced coma, you feel just profoundly closer than you had in years.
Yeah. I think a lot of things play into that. One is what I realized in my life is that pain really broke me open to the love that I think I had been safeguarding myself behind in feeling both positive and negative things
and love being one of those.
And so confronting pain and allowing it rather than pushing it away, I think opened me up
to just the full breadth of the love that we shared because we really, really, really
always at the bottom line, loved each other very, very much.
But I think that I was holding myself back because I was afraid of being hurt and sitting next to him and then confronting the possibility that he might die.
And almost in some way accepting that possibility.
I think it just shattered all of the walls that I had built up and just allowed me to just love. I felt more
love for humanity and from humanity during that time than ever in my life. And I think pain can
do that to us. It can open us up to empathy and to recognizing others' humanity. But beyond that,
I feel there was a spiritual component to whatever closeness I felt to my
husband at that time. I felt in some ways we were able to, I don't even know how to describe it
other than commune while he was sedated. That when I was close to him, I felt that I knew he was
there. I knew he was fighting. I knew that he was trying to, in some
way, show or tell me that he was wanting to fight. And conversely, when my father was in a coma the
last few days of his life, I remember sitting next to him and feeling nothing, feeling like he was
already gone. And it was a very different feeling sitting next to my husband. And I think when you connect with someone on that level, it's just soul deep and energetic.
And it's, it creates this just pure love without all of the confusion of, you know, the day-to-day
things that married couples or partners go through, you know, and just to fully see him. I saw him
completely during that time. And it was very, very beautiful and very terrible and painful at the
same time. Yeah. I mean, when you're, you're basically stripped bare and the relationship,
like everything between you is stripped bare. And I know, and this is some of what you write about,
like you really, during this season, there was a lot of reflecting on not just who you were individually, but
who you were in relation to each other and almost like the history of your relationship,
of your marriage together.
And as anyone has been together, there are moments where you feel deeply connected and
sometimes isolated.
And there's often a sadness that kind of comes and goes.
One of the lines that you wrote that I thought was really powerful is, sadness itself is never held, only the space for it.
Tell me more about what you mean by that. Well, I think what I meant by that was how
recognizing how in relation to my mother, it's almost as though I was trying to
squeeze sadness and try to contain it and try to control it
because I was so afraid of it. I was so afraid of sadness that I just wanted to smother it.
And in holding it open with open palms and just allowing it, I realized how much
healthier it was and how much healthier it was for me and for others as well to
just allow. And I think allowing all emotions is one of the biggest things that I was able to do
or learned to do, which I'd never done before. And that's anger and that's fear and joy and happiness. All of these emotions I came to
realize aren't good or bad. They just are. And they're necessary in the human experience.
They're equally necessary. And rather than trying to stifle or control my anger or my
fear or my sadness, I just held space for it in my own self and allowed
it to move through me. And in doing that for myself, I feel like I was able to do that better
for other people, for my mother, for my husband. But it really started with myself and just learning to accept that all emotions, they just are. And I think I had spent so long
kind of cursing my anger and the rage I had felt in my teenage years and feeling kind of ashamed of
the course that it had put me on and the recklessness and the selfishness.
But looking back, I was able to see that that anger actually kept me alive when my
sadness would have drowned me. I was too young to feel that sadness and that sorrow. And that anger
kind of burned through me and pushed me forward until I was able to accept the sadness. And so
in that way, I was able to accept all of it.
Yeah. I mean, around that time, and you write of your mom and the way that you started to really
rethink your relationship and the history that you've had between her, that while trying to
carry your mother's sadness, you came to this realization that you had also been contributing
to it. That's a tough thing. Yeah. That's a tough thing to realize 20 years later that, you know,
I was trying to make her happy and what all she probably needed was for someone to tell her it's
okay to be sad. And I don't think anyone ever told her it's okay to be sad. And she had to just
put on the brave face and, you know, keep calm, carry on. But all she needed was someone to say, hey, it's okay. Sadness is
okay. And then at the same time, during that time, I was just a crazy teenager. I was horrible for
her and probably kept her up at night. And while she was mourning her husband, and I mean, just
accepting that I had been that way for her during those years was a really hard thing to,
to reckon with. But again, it's just, that was my path and her and I's relationship is better than
ever. So, you know, sometimes things, things follow the path that they should, you know,
the way that they should. Yeah. So as you're in this months long season of just like profound
disruption and sadness and grappling.
And I'm sure fear is a part of that as well.
You're also a mom.
Like you've got kids looking to you to try and show them how to be when their dad is
in induced coma and you have no idea what's going to happen in the end.
If you're open to exploring that, and I'm always super protective of kids,
but just exploring.
So like how you are experiencing that as a mom
and as a partner who didn't have their partner
to help figure out the moment with you
because they were the moment.
I can't even imagine wrapping my head around
like how you show up and handle your own emotions
and your own grief,
and then look to your
kids and figure out what is the appropriate way to be with them? And what's the appropriate message
to send to them right now? Like, how do we, how do we make them okay on a moment to moment basis,
knowing that none of us are actually okay and we may not be okay.
Yeah, that was by far the hardest part of all of this was trying to figure out how to talk to my kids about what
was happening to their father, how to offer hope without it being false hope, because I feel like
I had been burned by false hope as a teenager. And that caused me so much anger. But when I was
faced with the same situation as a mother, I did the same thing.
I offered them hope because I didn't know how to do anything else. I didn't know how to tell them
that their father was probably going to die. I didn't know how to say those words.
I actually think it's an impossible task. I think you could read every book there is,
and I don't think that there's a right answer. And I think that it's also
individual to your children's needs because I had, my three daughters were at such different stages.
I had, you know, an 11 year old and a six year old and a four year old. And so those conversations
are going to be very different, but it's just an absolutely impossible task. And I think everyone's just kind of, you know, flailing their way through it. But I think one thing that I made sure to do was to be as honest as I could with them. And I think that you could be honest without having to disclose every piece of information. My oldest daughter was, she knew the most and she actually was able to visit
my husband in the hospital when he was very, very skinny, very sick looking. And I wasn't sure if
that was the right answer to allow her to see him that way. And she just went right up to him and
gave him a big hug and crawled into his bed with him. And it was her dad, you know, and
realizing that kids are a lot smarter than we give them credit for and probably can handle a lot more.
But at the time it was too hard for me to tell them the truth, which was that he probably wasn't
going to live. I couldn't do it. I don't know if it was the right call, but I just couldn't do it.
Yeah. I mean, you have to imagine there's no right or wrong there. There's just, you do the
best you can in the moment because you're going through your own thing. And there's so much
playing into how you step into this experience too, because of your history and because of the
moment. Remember a couple of years back, we had a conversation with Katie Camillo, who writes these
beautiful, beautiful books, but she's also known as writing books that are really honest and where sometimes
there's tragedy in them and for young kids. And I was asking her about that balance. And she's like,
you know, her motto is basically always tell the truth, but leave them with hope.
And it sounds like that was a little bit of the dance that you were doing. Like,
how do I do that? And how honest do I get?
And because you had this history of feeling burned by hope, like you're doing that dance
as well.
It sounds like as you're trying to navigate all of this, there's a moment that happens.
Something just, there's something inside of you that says, this is not how he dies.
Take me to that awakening.
I feel like because I had spent so many years disconnected from myself in a lot of ways,
I wasn't in tune with my intuition or whatever you want to call it, inspiration.
And it was about two weeks after Rives started getting sick, but he was still at home.
He was quarantining in the basement because we thought he had COVID.
So, and my sister-in-law had come out with her kids to kind of quarantine with us during COVID.
And we had decided to go for a picnic.
And so I, you know, I told Rives, he was kind of sleeping and I told him we were going to go out for a couple hours.
We'd be back soon. And we were about halfway to the picnic and I just was overcome with this.
It was not even like a voice. It was just a knowing. It was just this deep, intrinsic knowing
that said, go home and check on Rives. And so that was the first time that I felt this voice or this intuition speaking to me. And I got home and he was
passed out on the floor and he needed to be rushed to the hospital. And after that moment,
I was more open to these moments of inspiration. And so when this is not how he dies came to me
in the middle of the night, soon after he was put on a ventilator when the doctors were telling me there was nothing else they could do.
And I almost awoke in a start and it was almost like a battle cry saying, this is not how he dies.
You need to fight.
You need to have a voice.
You can't be passive.
You can't be disconnected from yourself anymore.
You need to
fight because this is not how he dies. And that's when the next day, I think it was the next day I
got him out of the hospital he was in, got him transferred, put on the ECMO machine, which is
basically what saved his life. And it was just in listening to myself and trusting in myself
that I was able to, I mean, have those moments,
those deep realizations. Do you feel like that moment or moments like that were in some way
connection with something bigger coming back to you? Yes. And my sister and I talk about this a
lot because she firmly believes that that was my father talking to me.
And I say, I don't know, I can't go that far, but I do believe that something, someone or
myself was connected enough with whatever universal power, energy, love is out there
that I was able to connect with myself in order to be open to
receiving that kind of intuition, that kind of inspiration. And I kind of leave it vague in my
book as well as to what exactly that voice or that knowing where it's coming from, because I think a
big theme of my book too is I don't know, and that's okay not to know.
It's okay not to have the answers, but just be open and allow it.
Yeah.
The Apple Watch Series 10 is here.
It has the biggest display ever.
It's also the thinnest Apple Watch ever, making it even more comfortable on your wrist, whether you're running, swimming,
or sleeping. And it's the fastest charging Apple Watch, getting you eight hours of charge in just
15 minutes. The Apple Watch Series 10, available for the first time in glossy jet black aluminum.
Compared to previous generations, iPhone XS or later required, charge time and actual results
will vary. Mayday, mayday, we've been compromised. The pilot's a hitman.
I knew you were going to be fun.
January 24th.
Tell me how to fly this thing.
Mark Wahlberg.
You know what the difference between me and you is? You're going to die.
Don't shoot him, we need him.
Y'all need a pilot.
Flight risk.
While all this is going on, and this is one of the things that you write about,
and I would imagine anyone who's been in a circumstance that extends for more than a
couple of days and sometimes weeks, months, sometimes even years, where there's just a
profound alteration of reality and life and death stakes are just really, really high stakes.
It does something to the notion of time also.
It's not like everything is just like, oh, one day and the next day and the next day. It's almost
like time. I think you actually use this language. You wrote something like time folds into itself
or collapses onto itself. Tell me more about how you were experiencing that in the context of
what ended up going on for months.
Yeah. Time was so interesting during that period. I think every moment was so critical for sometimes
his life was minute to minute. They weren't sure if he was going to last hours. And so
every moment I remember feeling like would last an eternity. Every moment held
everything. And when I was sitting next to him, every inhale felt like a triumph.
And those are the things we take for granted all the time, just breathing. And at the same time,
the days just dragged on. The days just felt like they were dragging. And I remember
a couple of times sitting beside him in the hospital and just putting my head down and
trying to connect or commune or whatever, just trying to feel him. And I'd lift up my head and
the nurses would say that I had been my head down for four hours. And it felt like in those four hours, I had lived lifetimes. I had gone on trips with him around the world and we had been
communing and talking and talking about the kids. And it was just so, it's just very,
very interesting, this notion of time. And it did collapse and it did expand at the same time. And now, so what I take from that now is that every single moment contains everything.
Every moment contains the everythingness of existence.
And I try to hang on to that feeling and that gratitude for every moment that we get to
have together and every moment that I get to be here, which I think happens to a lot of people when they have to confront the death of a loved one.
Yeah. It takes you right back to the Annie Dillard line, like how you live each day is
how you live your life. And you describe actually, I mean, you write so beautifully that this notion
of what, you know, from the outside looking in just seems like a horrific circumstance. You
describe the experience of actually sort of stepping into the room with
him as passing from the mundane to the sacred.
And like within this space of the sacred,
so often that's when time fugues or morphs into something that is just like
completely different than it is outside of that sacred space.
Yeah.
And that was,
that was the very interesting part of,
of this was when I stepped into his hospital room,
it was like stepping into a holy place. And it was because there was so much love in that room.
I mean, there was that trauma and there was that fear and the sadness, but the nurses were just
caring for him with so much love. And the doctors had so much love for him and for our family. And then there was so much love from just the world coming in to us from people we didn't
know, sending cards and letters and just well wishes.
And I felt like I entered his room every day armed with that love and brought it into that
space.
And it truly transformed that space from this scary ICU
room to just this really beautiful, terrible place of love and communion. You can't recreate that.
When I even try to put myself back in that feeling, I can't quite get there. It stands alone,
but I do try to recall it because it was very, very special.
At a certain point, you also make a really interesting decision, which was you're going
through this. This is your deeply personal private experience. It's you and your immediate family,
but you make a decision to share. You make a decision to basically say,
okay, so maybe I'm processing this on my own. Maybe I'm processing this through my writing, but I also want to share this experience
beyond just what's happening with me. And you actually start to share it with an online community.
I'm curious about that decision. And I'm curious what it was like when you actually start doing it
and people start responding to what you're sharing.
Yeah. It's interesting because even though, you know, my husband has an online presence being
an athlete and he's a very private person. And so I knew I didn't want to share any details
about what was going on, but I did want to share what was happening to me because when I started to share what was happening and the feelings and the
fear and the hope that, you know, I was going through so many people reached out and said,
I connect with you. I see you. I'm feeling this way too, or I felt this way too. And in such a
lonely time during COVID everyone's quarantining, you know quarantining. I couldn't see any of my friends during that time because I couldn't risk bringing any
illness to him.
I felt connected to humanity through my writing.
I was able to connect with other people.
And it was such a gift to be able to do that because it just made me feel so much less
alone in such a lonely time.
And I think it's because pain is personal.
It's also universal.
Everyone goes through pain.
Everyone suffers.
And so it didn't matter what circumstances I was going through.
Everyone could connect to that feeling of helplessness and fear, but also hope and love.
And I was just so grateful to be able to connect
with people during that time. Because I really think in a lot of ways that that saved me
from feeling just really alone and isolated. When you decide for the first time, I'm going
to share something. And then you write that first entry. then you basically hit post and you know that
any number of people may see this, may read it, may share it around. The moment after you
make it public, do you recall the feeling? I remember feeling free in some way because again,
after so long of feeling, I had never written like that before. I
had always been a lifestyle writer or kind of a comical writer and quirky writer. I had never
written about emotions before because I wasn't allowing myself to access those emotions.
And when I sat to write that first time and those emotions just poured through me without even thinking really, it felt like they were just coming out of me, like through me without much forethought. Oh, I'm free. I can express myself and it doesn't matter what everyone else thinks because that's
how I feel. And there was so much liberation in, in just, just expressing myself. And then
just to have people respond with so much love was again, such a gift. I wasn't expecting that,
to be honest. I just wanted to, to share, this is how I feel. And it's okay to feel
because I haven't felt for 20 years and now
I'm finally feeling. So here's another question around that then is, so what you shared and what
you continue to share. I mean, if somebody follows you on Instagram, they look at the captions.
It's not just sort of stream of consciousness. This is how I feel. It's gorgeously written prose,
often poetic. And that was happening at the time that you're
from the first days that you started sharing this. What you were writing was raw, it was
vulnerable, it was real. And it was also literary. It was just really, really beautiful from a writer
standpoint. I'm stunned because so often it's difficult to not just express our feelings, but actually bring our art into the
expression of our feelings when we're in the moment of pain. Oftentimes we can circle back
and express it in a much more artful way when we're reflecting or processing after, but you're
doing this in real time. I'm kind of mesmerized at the ability to
do that because it's, do you realize that like that was really unusual to be able to actually
do that and to write in a way where, I mean, if you read some of those entries from those times,
you know, it's, it will move you to tears, but at the same time, break your heart open in the best,
most expressive ways, like the greatest artists do?
Wow. Well, first of all, thank you so much. I mean, that is the greatest compliment. I really,
really appreciate that because it's hard to put yourself out there, to be that vulnerable. So thank you for saying that. I honestly have to say that I only can write when I'm feeling that pain. I have a hard time
writing in an artistic way when I'm not feeling the depths of myself and connecting with my true,
genuine, authentic self. And I was more me during that time than I've ever been.
And I've slowly closed myself up a little
bit because it's almost impossible to live broken open like that, feeling everything,
feeling the world and the weight of the world and the beauty and it's too much. And so I've
had to make myself close up a bit. But to be honest, when I would sit to write,
it felt like in some ways an out ofof-body experience. It felt like I was almost not even
thinking about what I was writing and it was just pouring out of me. And in conversation,
I'm actually not a very emotive person. I don't like to talk about my emotions that much in person.
I'm kind of shy and guarded. And when I sit to write, it just all came out during that time. And it was like my
catharsis. And like many other things, it was one of the things that saved me during that time to
in real time process my hurt, but also my gratitude. And the fact that it came out in a
intelligible way is really great because I didn't even care what it sounded like.
It was just me expressing myself. When you reflect back on it and we should also,
we should close the loop a little bit and say, at the end of the day, there's actually a lot
of beauty and there's good news at the end of this story. Yeah. Yes. Let's say, please.
Yeah. It's like the ribs was known as effectively like a medical miracle and actually makes
it through, comes back, goes through multiple rounds of chemo.
And it sounds like, as we have this conversation is relatively healthy and out there and active
and involved in the family again.
When you then go back and say, okay, so I've been writing publicly through all of this.
And now I actually,
I'm compelled to turn this to actually tell the full story in the form of a book.
When the deep pain is, it's really close in your horizon, but you're kind of through it.
How was that for you to say, I'm going to step back into this in the name of telling the entire story. It was harder than I thought it would be. It took about a year for me to write that portion
of the story. And it was, I don't think anyone liked to be around me during that year. I really
had to, in order to do it justice, I had to put myself back in that feeling, in that kind of, that duality of
fear and hope and anger and gratitude. And I had to, I had to live there a lot of times,
which is really hard to do when you're raising kids and, you know, with your husband, who's been
in a coma for four months. But I knew that if I didn't do it soon, that I wouldn't be able to access
those feelings and put myself back in that room. Because even now, a year after finishing my
manuscript, I have a hard time remembering the feeling, recalling the feelings and the full
breadth of everything. And so I just knew I had to do it.
But I did. I went through several months of depression during that time. I think I was
dealing with some PTSD, but also in some way, like you said, re-traumatizing myself from
having to relive the hardest moments of my life. And at the same time, it was therapy. It was truly a beautiful
thing to do because I was able to see how everything tied together in a way that I wasn't
able to see in real time. Like I mentioned with my mother and the love that she offered me,
not only then, but she lived with me for the full nine months of RIP's treatment.
And she took care of my kids when I was in the hospital every day, along with my husband's mom, which is another beautiful
full circle thing for my mother to be caring for my children, you know, while my husband's sick
with cancer. And so it was a necessary thing for me to do. I think even if it hadn't been published,
I would have written in any way, because that's the only way I was able to fully understand everything that had happened and to kind of
just process it all. Yeah. As we're having this conversation, it's sort of on the eve of the book
moving out into the world. As we lead up to that moment, as you said, you've been a writer from
the time you identified as a writer from the time you were a little kid. Now as you head into your
late thirties, now you're
putting a full length book work out into the world. And it's not just a book about something
that's interesting to you. This is a book about you and the deepest parts of you in the story.
When you think about that book moving out into the world, what's going through your head?
Like literally we're days away from this potentially having a huge audience interacting with it? you know, honest and authentic. And I, oh, I did that. I didn't really hold back in any way. And
when people started to read it, I was kind of hit with this realization that, oh my goodness,
everyone's going to know everything about my life. And not only that, but my insecurities and my
fears and my regrets. But I do hope that putting my book out there, if nothing else will make people feel like they're doing okay.
You know, that I want to think of my book as a hug to be like, you know, no matter where you
are right now, just accept yourself because, you know, you can't see down the road and what's
coming and why all of these things are happening, but more than likely they're equipping you for whatever's going
to come to pass in the future. And so even though my book can be hard to read sometimes, because
sad things happen, I hope in the end it feels positive and the message is just love. And if
nothing else, if people don't like it or if it gets torn apart by critics, I just hope that whoever does read it, that it resonates with them and just feeling some form of self-acceptance.
And then I just have to let go because there's nothing else you can do.
And also, I told my mom, don't read chapter four.
It's like asking your publisher, can you print one copy without Jeff recording it to my mom?
She already promised she wouldn't read it. And I trust she won't. Really beautiful thoughts and words and stories publicly, actually on your Instagram feed.
There's something that you shared on November 3rd, which feels like a lifetime ago, but it's really just a couple of months ago.
I'd love to invite you to share it.
It's the post that begins, there is no poetry in heroism.
There is no poetry in heroism.
It is all, I can't, but I try.
I can't, but I try. I can't, but I try. I can't, but I try. And I'm scared and
I can't, over and over, until it becomes, I couldn't, but I did. There is no poetry here,
just fear and hope, defeat and persistence, final truths finding each other, two trails that learned
they had always been a circular path.
Bending towards each other.
Folding in on one another.
Shaking hands and saying, I needed you all along.
Was there something that happened that led you to write that on that day?
Well, it was actually, if I remember correctly, my husband preparing to run the New York Marathon.
And only a year earlier,
he could hardly walk. He was relearning to take his first steps and watching someone who
made a career out of running miles and miles now being brave enough to walk a marathon in probably seven hours and being one of the last ones through.
To me, that was the greatest act of heroism I had ever seen and the greatest bravery that I'd ever
witnessed. And seeing how his humility made him brave, I think made me recognize the truth of strength. And that is just being
completely broken and still making it to the finish line or even to the starting line and
just moving forward no matter how broken we are. And so I wrote that for him, just wanting him to
know that I saw him as stronger now than ever before. And it had nothing
to do with how fast he was going to run or if he was even going to finish. It was just getting
there. Yeah. So beautiful. Thank you. It feels like a good place for us to come full circle in
our conversation as well. So in this container of good life project, if I offer up the phrase
to live a good life, what comes up? Oh, to live a good life is just appreciating
what's in front of us to not be blinded by just the rat race of what we get caught up in, but just
how waking up and having coffee with my husband in the morning is a gift that I hope to never
take for granted again. Or the fact that, you know, he can drop
the girls off at school in the morning. And it's not about the big things. It's not about the
accolades. It's just about appreciating the little things that make life beautiful. That's been
so important for me to learn in the last few years. Thank you. Thank you.
Hey, before you leave, if you'd love this episode,
safe bet you'll also love the conversation
that we had with Mark Nepo
about moving through tender moments in life.
You'll find a link to Mark's episode in the show notes.
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Until next time, I'm Jonathan Fields, signing off for Good Life Project. The Apple Watch Series 10 is here.
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Mayday, mayday. We've been
compromised. The pilot's a hitman.
I knew you were gonna be fun. January 24th.
Tell me how to fly this
thing mark walberg you know what the difference between me and you is you're gonna die don't
shoot if we need them y'all need a pilot flight risk