Good Life Project - The Grieving Body: What Really Happens When You Lose Someone | Mary-Frances O'Connor
Episode Date: May 19, 2025Grief inflicts a profound mind-body toll, yet our culture rarely understands this connection. In this revealing episode, Mary-Frances O'Connor, PhD, author of The Grieving Body: How the Stress of Loss... Can Be an Opportunity for Healing, pulls back the curtain on grief's surprising physical impacts.You'll learn powerful ways to befriend your "grieving body" and navigate loss with more grace by radically tending to your mind and body's needs.You can find Mary-Frances at: Website | Instagram | Episode TranscriptIf you LOVED this episode, you’ll also love the conversations we had with death doula, Alua Arthur, about how thinking about death can change your life.Check out our offerings & partners: Join My New Writing Project: Awake at the WheelVisit Our Sponsor Page For Great Resources & Discount Codes Hosted on Acast. See acast.com/privacy for more information.
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So have you ever felt like your heart was literally breaking after losing someone or
even something deeply meaningful in your life?
That hollowed out physical ache that courses through your body alongside the emotional
turmoil?
If so, you're definitely not alone.
Grief inflicts a profound mind-body toll that our culture rarely acknowledges or understands.
But what if I told you that the very physicality of grief actually holds the seeds for healing? That grief actually lives in a very real
way in your body and by tenderly caring for your grieving body you can open
pathways to navigate loss with more grace, even finding pockets of meaning
and joy along the way. So my guest today is Mary Frances O'Connor, a PhD expert in
neuroscience of bereavement. Her
groundbreaking book, The Grieving Body, How the Stress of Loss Can Be an
Opportunity for Healing, made Oprah's list of best books to comfort the
grieving. She is a professor of psychology at the University of Arizona
where she directs research, illuminating grief's effects on the brain and body.
And in our conversation, Mary Frances pulls back the curtain
on surprising revelations like why the newly bereaved
face a substantial increase in the risk of heart attack
in those first 24 hours.
You'll learn about the crucial one-year milestone
that separates normal grieving
from quote prolonged grief disorder.
But maybe more powerfully, she shares wisdom
for befriending your grieving body with radical compassion,
releasing patterns of avoidance and rumination that keep you stuck,
developing a toolkit to gently honor waves of grief while still savoring life's simple beauties.
So whether you're grieving a profound loss yourself or supporting a loved one,
this conversation, it really offers an empowering new lens, one that honors grief's universality while illuminating pathways to heal profound loss and grief.
So excited to share this conversation with you.
I'm Jonathan Fields, and this is Good Life Project.
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Really diving into your work.
You know, grief is one of these experiences that if you're fortunate to
be around long enough on the planet and to have love deeply and widely, you're
going to experience it as I would imagine the most unifying and common experiences
that we have across the human condition and
yet we don't like to talk about it, we don't like to explore it. And when we do, we tend
to really tap dance around it. So I'm excited to dive into this with you and also really
understand what's happening underneath the hood with the experience of grief. Yeah. It is so universal, you know, all periods of history, all cultures, even some of our
mammals that bond for life, you know, we see grief as a natural response to loss.
You know, I want to tease out a distinction before we drop more into the internal workings. And it's
a distinction that I hadn't heard made until I saw you actually make it. I think a lot of us are
familiar with the word grief, you know, centered around some sort of significant loss in our lives.
But you identified something called prolonged grief. And I guess now there's even in the DSM,
this thing called Pro grief disorder. Take
me into what these are, how they're different, and how we really understand them to be different.
I think it can be really helpful to start with the difference between grief and grieving,
actually. When we have a loss, when someone we're bonded with dies,
we have a natural reaction to that.
And we call this grief.
It's in the moment, that wave of grief
that comes with really strong emotions.
It comes with often a physiological response.
It's a part of the thoughts running through our head. And grief is really in that
moment, in that wave. So I could say to you, Jonathan, how much grief are you feeling right
now on a scale of one to 10, that kind of thing. But what that doesn't really tell us much about
is how your grief has changed over time, right? So most people experience that waves of grief after the loss of someone,
they become less intense or less frequent as time passes, as we learn to accommodate grief in our
life. My favorite analogy recently is I think about it in terms of the stock market. So if you look across days and months of time, the stock market goes up and down and up and
down and up and down, right?
And I think this is very much what we experience as people who are grieving, right?
So the waves of grief look different every day, and some days are really bad. But overall, the trajectory can still
be in a good direction, where in the research we see that for the vast majority of us, we
see more acceptance and less yearning over time. Now, the reason that's important is it means on any given day, you may not be doing very
well, but we can see when someone comes into my lab for a study or someone goes into a
clinician, how they're doing that day doesn't actually tell us a whole lot about their grieving.
Right.
Right?
And in that first year, it's really a little hard to know because there's so much variation, right? And in that first year, it's really a little hard to know because there's so much variation,
right? It goes up and down and up and down. And in that first year, it's a little hard to tell kind
of how they're doing in the big picture. So most of us, this improvement over
time, not that grief goes away, but that it becomes more familiar. And then there's this very small
group of people, maybe one in 10 bereaved people, where we're just not seeing change over time.
10 bereaved people where we're just not seeing change over time. And what that means is they're not finding ways to do meaningful things. They're not connecting with loved ones. It
doesn't mean that anyone's grief has gone away, but this group of people aren't learning
how to accommodate grief in their life. And the reason that a year is sort of an
important moment is because that's when we can start to predict, okay, if you've seen change up
till now, you're probably going to continue to see change. And then if you aren't seeing change by
that point, we can start to predict that we're not going to see change unless there's some
sort of intervention. That's what we call prolonged grief. And of course, because it
is in the DSM so that we can diagnose it and we can do evidence-based treatment, psychotherapy
for it, all the things in the DSM are called disorders, right? So PTSD is post-traumatic
stress disorder, major depressive disorder, they're are called disorders. PTSD is post-traumatic stress disorder, major depressive disorder.
They're all called disorders.
It's just prolonged grief, but in the DSM, they call it prolonged grief disorder.
It's interesting also, as you're describing that the stock market analysis is kind of
funny and weird and I know I've actually probably really apt at the same time.
You take a five-year window or a 10-year window, and generally it's always
slowly trending up and slowly trending up,
but on any given day or week or month or year,
you could be whipsawed back and forth and back and forth.
So it's interesting though, the one-year mark,
why is it a year where you use that window
to sort of determine whether somebody seems like
they're stuck in this sideways
pattern versus slowly, slowly growing through it.
Oh, I love that term, Jonathan, the sideways pattern. That's such a good way to put it.
Feeling really stuck, right? Like nothing is changing. So there's a couple of reasons.
The World Health Organization also includes prolonged grief in what's called the ICD-11,
International House of Vacation of Diseases.
It's what the rest of the world uses.
The US uses the DSM.
And in the ICD-11, it's a six-month window where they start to look for evidence that
people have shown improvement.
And in the US, in the DSM, it's six months
for children as well. The reason that the DSM went with a year was a couple of things.
In the evidence, in the research where we're doing longitudinal studies of how people are
feeling and how they're functioning, we can start to see indicators at six months, but it's clearer at a
year what trajectory you're on. But there's more to it than that. There was a real fear of pathologizing
something that is normal, right? And so for nine out of 10 people, they're going to be struggling.
That doesn't mean they're not normal, right? So we really wanted to make sure
before we gave someone a diagnosis that enough time had passed for them to have the support that
they needed to learn new coping skills and so forth. And then the last piece is, you know,
the DSM is a cultural document as well as a psychological one. And many of our religions and cultures have one year as a special
demarcation in bereavement, right? So there are many one-year anniversary rituals that different
religions do. And so we wanted to, I think the DSM wanted to reflect that as well, that this is
already a naturally occurring timeframe in our culture. Not when
grief goes away, but we recognize that the second year is different from the first year.
Yeah, that's so interesting because that's immediately what came to my mind. I was thinking,
you know, in nearly every faith tradition, at a year, there's some sort of ritual that happens.
Yeah. Yeah. You know, I am a neuroscientist by training, so my thoughts about these things tend to
be more informed by neuroscience than by cultural studies, although I have learned a great deal.
I think of it this way as well. After a year, every single thing that you do, you have a memory of having done it once without the person.
And that can feel really different. Now, there are people who in that first year, they just
feel numb. And the second year, actually, they feel the emotions more intensely. It
doesn't mean that things feel all better after a year, but they do feel
different. This can be a helpful way of thinking about it.
Lukas It's not necessarily that you're looking for
some sort of meaningful positive shift at a year, but you're looking for some sort of shift. Exactly. So this is, you know, I'll just give
you a couple of – because stories are so helpful, I think, in these ways, right? I
have seen hundreds of grieving people now, and I know as a clinical psychologist how
to use the diagnostic criteria. For example, I had a woman tell me it had been about two
years and she said, why would I give my daughters
bat mitzvahs if their grandmother isn't there to see it? And you just see in that she's just not
able to participate in ongoing life without her mom. On the other hand, there was a man who told me,
older man, he had fallen in love with his high school sweetheart
and, you know, they'd had two kids and I think there was a white picket fence in there somewhere.
And then he told me the story of her getting breast cancer and how he had cared for her when
she was terminally ill. And he cried when he told me about her passing away. And it had been a couple of years again. And
he had recently started going out to dinner with a woman who was very different from his
wife, but he was really enjoying it. He didn't know what it meant, but he felt kind of energized
being with her. And he said to me the thing I will never forget. He said, the thing is it was really good then,
and it's really good now. And I think that to me is the sign of mental health. It's not
that you don't cry when you think about your loved one who's died. Of course you do. They
are bonded with you, and that's forever. but you also are able to have wonderful things
in your life. That is the sign of mental health.
It's so interesting that you say that. I was just recently having a conversation with
somebody and it was around like basically her opening question was like how do you define
mental health? My answer to her, which kind of surprised me a little bit also, I said, look, I don't know, this isn't, this is just for me and nobody else,
I said, but you know, for me, it's the capacity to feel everything but get stuck in nothing.
And that's kind of what you're describing here.
Yes, that's exactly it. And in fact, we, I teach at the University of Arizona in the
clinical psychology graduate program. So we're
training researchers and future psychotherapists, clinical psychologists. And in the class where
we talk about psychopathology, we actually do a whole effort on what's the difference
between mental illness and mental health. Because, you know, the World Health Organization describes mental health
as being just what you said, being able to deal with sort of the slings and arrows of day-to-day
life and life events without getting stuck, right? So having both positive and negative emotion in
your life. But they also go on and say things like, feeling like you can make a meaningful contribution
to your family and community, right?
So a person who is grieving a lot
or a person who has a chronic illness like myself,
I think a lot about what is it day to day
that I do that's meaningful,
not did I have a lot of fatigue
or did I have a lot of, you know,
did I break down crying today?
To me, that's not the definition of mental health. It's about, did I do a couple of things that I
feel like made a difference or I really connected with someone today? That seems important.
Yeah, that makes a lot of sense.
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The notion of when you bring up a chronic health condition
also, it speaks to another curiosity of mine,
which is the bigger curiosity, the deeper curiosity
is if we just take that one year,
sort of like point to do the measuring, why?
It's like the distinction between post-traumatic disorder
and post-traumatic growth.
Like why do some people hit this window
and they stay stuck in a spin cycle of suffering,
whereas other people still feel the things
and they come in and out of their lives,
but they're still, they're able to move forward
and sometimes even integrate and grow from the experience.
Again, not dishonoring the loss in any way, shape or form,
but there's something about them that allows them.
And the reason that surely you're mentioning chronic illness
raise that question for me also is this notion of,
is your state when the loss actually happens,
meaningfully impactful in your ability
to actually at this year mark, be able to move
through grief or stay stuck in it?
It absolutely matters who you are when your person dies, right? Or when you're separated
from them in other ways because grief can come in lots of forms even if we mostly study bereavement
because of its sort of basic building block of grief. And I think what you describe is exactly
that. I mean, I would take just a step back for half a second because you can't really talk about
grief without talking about love and bonding. You have to understand what
it is that you have before you can talk about what you've lost, you know? And so when we bond with
someone who becomes our spouse, when we fall in love with our baby or we, you know, connect connects with a very close friend. We encode that person as a part of us. What that means
is I will always be there for you, you will always be there for me. And we even forget
that it means that our bodies become entrained with each other. That when I go home at night
and I get a hug from my partner, my heart rate goes down a little bit.
My blood pressure goes down a little bit. And he is the external pacemaker for my cardiovascular
system. Because I can predict that we're going to have that over and over and over again.
And so now to understand, well, this is what I have, right? That I am bonded. He is a part of myself.
He is a part of the way I regulate my physiology. When that loved one is gone, there's the initial
loss reaction that we call grief. And that is both an emotional one, wait, what is happening? Where are they? What's going on that we call protest?
And then also the despair of, oh no, they're gone.
Grieving is a form of learning.
We have to learn that they're gone.
We can't just automatically know that
when we hear this information
because our attachment system
allows us to believe they are out in the world even if we can't see them. This is how we
can all go off to work each day because we know we will do everything in our power to
come back together again. So I sometimes call this the gone but also everlasting theory. On the one hand, we have
a memory. We know we were there even when our loved one died. We can tell you the reality.
But on the other hand, you have this encoding. A part of ourself is I am a wife, I am a sister,
I am a daughter, and I can't make sense of their absence. They're always going to be there. That's
the everlasting part. And given both of these can't be true, we have a wave of grief when we
realize yet again, oh, I can't pick up the phone to call them, right? I bought a birthday card.
And of course, they're not going to have a birthday this year. So that learning
curve takes a really long time, but it takes a different length of time for different people.
So back to your question of why, what predicts how people are going to do in this grieving
trajectory? And I don't really think there's something magical about a year, I'll be honest.
In fact, we usually have an anniversary reaction.
So actually, in grief research studies, we study 13 months.
So we don't capture that accidentally.
So this is what happens.
Physiologically, we know there's an acute response.
In fact, in the first 24 hours after a loved one dies, we're 21 times more likely to have a heart
attack than any other day of our life. Isn't that just a crazy statistic? So we know there's this
acute reaction. In the first six months, research by Thomas Buckley in Australia shows our heart rate
and blood pressure, 24-hour heart rate and blood pressure, 24-hour
heart rate and blood pressure, on average are increased in people who are bereaved compared
to those who are not bereaved.
But by six months, we see a return to baseline physiological functioning in most people.
And so we're seeing that this natural reaction, sort of we're adapting as our resilient body got
slammed and our person was amputated from us. And now we start to see adaptation and understanding.
And then over time, we get better at confronting the really hard things,
accepting that we're gonna have these waves of grief
and learning how to comfort ourselves,
to soothe ourselves when we have those waves of grief.
So I think the other thing that happens is,
while there's a natural response to loss,
we also have to learn how to work with it.
And we have to develop a pretty big toolkit of strategies.
And not everyone has the support or the grief literacy, right? To know, oh, it's okay to avoid
thinking about this while I'm in a work meeting, to just like pretend this is not happening because
I've got to get through this work meeting. Or I'm cheering my daughter on at her soccer game. I'm completely ignoring the people
who are asking me how I am because I can't do that right now, right? Denial and avoidance
are just one tool in our toolbox and they have their place. But if those are the only
tools that you have, then it makes the learning to understand the
painful reality you're living, it makes it much harder.
We also need the tools of going for a run because it settles our restless, bereaved
body or learning to do deep, relaxing breathing that calms and soothes our nervous system. Or when I'm in the grocery
store and I see something that reminds me of our dad, I'll text my sister and be like,
yep, having a little welling up here in the grocery store again. And she'll write back
and say something lovely and sweet and we connect, right? And that makes me feel better.
lovely and sweet and we connect, right? And that makes me feel better.
So I think avoidance, rumination,
these are things we have to develop skills
to navigate in grieving.
And not everyone has access to that.
Yeah, and I would imagine the state of your mind
and your body and also your,
how full or empty your toolbox is
coming into the experience of loss
is going to have a huge impact because it changes the starting line in a weird way.
That's right. Yes.
So you described one of the aspects of what actually happens to us from a neurological
and a physiological effect when we experience loss. You were talking about the increased
risk of heart attack by 21%,
which so many people say, like, my heart is broken. Obviously, that's more than just a phrase than an
emotion. There's something physiologically going on there. Is there science or do you have a sense
for what is actually happening here that would literally dramatically increase somebody's risk of a cardiac incident.
This is such an interesting area of research right now. And we've actually been able to document
in large population-based studies this increased risk for cardiovascular incidents
for decades now. It isn't just a metaphor, right? It is there in black and white. So in the
first three months, a man is twice as likely, almost twice as likely to die of a heart attack
compared to a man who remains married during that same time. Almost twice as likely. What boggles my
mind is that if we have known these statistics are true for this long, what
are we doing about it?
In my mind, the minute in the emergency department, in the nursing home, in the hospice unit,
in the ICU, wherever, the minute that a patient dies, we know that the person next to them is at incredibly high risk from
that moment decreasing but nonetheless for a few months. And why do we not, as a bereavement
support, why do we not inform them? You know, give them a red card that says, if I turn up in the emergency department
with chest pain, take it really seriously. Because my left one has died recently. I think of it this
way sometimes. Grief is not a disease, right? But pregnancy is not a disease, and yet no one would
say it's not physiological. And we have really increased
medical risk during pregnancy, right? So we have whole systems of prenatal care where
we do education. These are the changes you can expect. And these are some changes that
we should be cautious about. You should come in for prenatal care so that we can test for
gestational diabetes or hypertension and then
intervene if your body is not responding to the stress of pregnancy in the way that is
difficult.
So why could we not also have bereavement care in the same way? Here are the changes
that you might expect. They are very difficult and we are so sorry that you have to go through this.
And at the same time, your body will learn to regulate if you use these suggestions about
how to work with your sleep system or your appetite system to try and get a little bit
back on track.
But if you aren't seeing improvement, then I need you to come back in three months or six months.
We can test for hypertension.
We can test for why are you getting pneumonia or flu so frequently, which we know happens
in people who are bereaved.
I think a system of care that really understands the contemporary science
would benefit society so much. It's such an interesting contrast too, that when somebody
is about to bring life into the world, all of a sudden there are all these additional things.
There are check-ins, there are expectations, there are books and books and books about what to expect
week after week after week. There are plans you know, like their plans for like care for nutrition for movement for
measurements for you know, like imaging for all like testing and
As you described, you know part of it is is because you know, you want to do everything you can to try and you know
Like hopefully bring the healthiest new life into the world and also take care of the adult at the same time.
And there's a realization that there is this increased risk
during this window.
It's such an interesting contrast, right?
Now you're saying the sign shows us
there is an increased risk of all these different things
in this post-loss window, this bereavement window.
And yet we just say, this is really tough.
Make sure you've got people around you and bless them on.
And don't say, well, here are a whole bunch of things
that you might expect to feel, to experience, to unfold.
Look out for these.
Here is typical, here is atypical.
Here's what might be normal, here's what's not.
And here are some people you might want
to have check in on you or
appointments you want to schedule. Maybe you want to see your GP or your therapist or your pastor or your rabbi. Maybe for this window of time. And yet on the cultural side of it,
I think there are these traditions and rituals. But on the medical side, I've never heard of
sort of like a post bereavement medical plan. I've never heard of a post-bereavement
medical plan. Some of this stems back to the mind-body dualism. Our helping professions,
psychologists, psychiatrists, GPs, as you say, nurses, they don't get any training in contemporary bereavement science. And so they don't know.
I mean, there's actually a national effort in the US,
an even more advanced effort in Europe and the UK
and Australia to put bereavement policies in place.
And what they realize is that even if we screen
for bereavement, we have to be able to tell clinicians what to do.
Partly, we need more research to understand what is typical, what is not typical. But having said
that, it is so fascinating to me how people get confused about what's emotion and what's physiology. Your brain
and body don't know there's a difference, right? And so people will say, well, yeah,
my blood pressure is high, but I think it's just the grief. And I think, well, you can
still take antihypertensive medication, whether it's grief or salt, you know.
It's like there's no but in that sense.
There's no but in that sentence. There's no but in that sentence.
Yes, it is grief.
And also, oh, your menopausal,
okay, so that's where you started.
That was your starting line when the loss happened.
So that all gets incorporated.
Oh, you're 25 and that feels different
than when you have the huge toolkit of strategies
when you're 55 to deal with some of the emotional stuff.
Yeah, that's a different starting line. It doesn't mean that we divide things up and say,
oh, well, this doesn't need treatment or this does need treatment. I guess I think of it this way.
And this is the difficult line. As I wrote The Grieving Body, I worried about walking this line.
On the one hand, it is totally normal, natural, typical
to have physiological feelings you've never had before, to have a lump in your throat, to
not be able to digest your food the way you used to. These are actually pretty common when people
are grieving. And physical pain also also like, oh, this hurts. Yes, exactly. My chest hurts, right? So on the one hand, this is totally normal, and much less
terrifying if you know that that's pretty common. On the flip side, because it's a medically risky
time, the body is this, you know, elastic rubber resilience where it can absorb the blow of loss. We can have someone
amputated and our cardiovascular system learns how to regulate itself again. But if it becomes too
much, if we get outside the bounds of normal human physical functioning, then we really do need to make sure to take care
and intervene medically where that's necessary.
You see why this is a difficult line to walk.
On the one hand, it's normal, and on the other hand,
and this is why I like pregnancy as an example, right?
It's typical, you will get through this.
It is terribly unpleasant.
And also, if you have hypertension, you should get that treated, right?
So I think of it, I guess I think of it this way. A lot of it is paying attention, not being afraid
of what your body's telling you while you're grieving. People get afraid of a wave of grief.
They think if I start crying, I'm never going to stop.
And that's just not how it works. The waves of grief, they come, they feel unbearable,
and then they also recede. And it is going through these again and again, you know, that
teaches us, oh, this is part of what it is to be human. And it allows us, if we
listen to what our body's telling us, we learn to try courageously a few coping
strategies, what actually makes me feel better, then we have that wisdom when we
sit with the next grieving person and we say, hey, listen, this is the worst you've ever felt.
You're not going to feel like this forever. Borrow my hope because I've been there in a
different place, but I can connect with what you're experiencing. I will be here until you
get to that different place. We don't know what it's going to look like, but I will be here.
Borrow my hope. It's a powerful offering. And at look like, but I will be here, borrow my hope.
It's a powerful offering and at the same time, I know in depression, one of the most brutal aspects
of this when somebody's really deep into it
is the loss of belief that the feeling they have
in that moment will ever end.
Absolutely.
And I wonder if, you know, like that same phenomenon
happens in bereavement.
So even if somebody is sitting there next to you and saying, look, I can't fix this.
I'm not going to try and fix it.
All I'm telling you is like, I'm right here next to you.
And I know that over time it will be different because I've been through this and you can borrow my hope.
If somebody, if you're saying that, if the person who's actually bereaved is just looking at you
and has the same response as somebody who's in a deep depression, which is, I just can't believe that. Like, this
is just going to never end.
Yeah. And you know what? That is also a part of the experience. The feeling of isolation
and withdrawal and despair is one of the natural reactions that we have. So part of it is knowing first that we have a community of people around us to just keep us upright,
not, you know, just keep us plugging along temporarily while we're in that despair place,
making sure we're getting at least enough to keep us going.
But you're exactly right
that it's okay to have protests. This shouldn't be happening. I'm so angry that you can't
understand where I'm at. That's a normal part of the process and despair. You just
don't understand how I feel if you're saying it's going to change because I'm telling you this is how I'm
feeling. And I think it makes supporting folks who are grieving really tough and really worthwhile
because that is part of the learning curve. They have to go through this learning. And
there's a wonderful book by this man named John Anwachekwa, and the book is called
We Go On. His parents are from Nigeria, he has a lot of difficulties that have happened
in his life, and his brother dies, and he really talks about his own just figuring out
how to go on. So I think it doesn't happen all at once, right?
There's no way to short circuit the learning curve.
But if we allow the learning to happen,
if we allow the healing to happen,
I'll give you one final example.
In some Native American traditions,
so for example, in the Cherokee Nation,
people sometimes cut
their braid off when a loved one has died. And I think it's so powerful, right? It communicates
right away to the people around you. My life is different, right? I am not. Please handle
with care, right? I am not my usual self. But also think about how long it takes your
hair to grow. And no one says
to you, why isn't your hair growing faster? What's wrong with you? Because it's just a natural
process that takes time. And we just support each other through that. And if there's one thing I
would say to grieving people, it's just having compassion for yourself that you are going through this.
Just being as kind to yourself as you would a motherless child who can't really tell you
what's going on and doesn't understand that a future could look different. Just holding just holding your grieving body and just being so thoughtful and kind to yourself can help you as you go on.
Now that lands powerfully. And you keep using the phrase grieving body, which is what you write about as well.
And I think that reinforces the fact that we tend to think, you know, like the grieving is in the heart and the mind.
And as we all know now, like there's no distinction between your physical health and your mental health.
Like it is one seamless feedback mechanism.
And as you've shared, the way that grief lands
in your body and your physiology and your,
as you've described, your heart, your immune system,
your endocrine system, your nervous system, like, you know.
And if any of these things were a little bit jacked
before this, it's gonna hit harder
and you're gonna like start from a more dysfunctional place and have to deal with that.
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You've shared some of the ways to reframe this, to think about it, the compassion.
Talk to me a little bit more about what tools we might think about adding to our toolbox
as we're moving through this experience.
It is interesting.
I love your line about we all are in a different starting line. Our body is in a different
place. Our development is in a different place. Our emotional stability or mental health is
in a different place when this loss event happens. And I think of it, well, so I have
to tell you that after my mother died, about a year later, I started having these symptoms,
had these what felt like twinkling in my arms, which is such a weird, like that's not a
symptom.
Dr. Kahn-Torsten Kuehn Twinkling is a very distinct medical and
technical term.
Dr. Julie Kuehn Exactly. So it took quite some time, but I was
eventually diagnosed in my mid-20s with multiple sclerosis.
I just want to be super clear that my mom's death didn't cause my multiple sclerosis.
My paternal aunt had MS, and so I run to my family, and I grew up in northern latitudes where
you get less vitamin D from the sun. I had all these risk factors, right? That was my starting line. But it's perhaps no
surprise that during the stress of my mom's illness and then her death, that that was
the time that it emerged, right, in my body. What's interesting about it is there's a way in which I almost, I think it just informs
who you are, right? And who you get to be in this lifetime. So I won't joke with you,
I really just ricocheted through my life. I was a professor. I wanted to be a professor,
right? I had no space in my head for whether
my stomach, what my muscle tone was like or something like that. My body was there to
move my brain around, basically. And my body eventually told me, you don't get to live
that life. That's not actually the body you're in. And I had to learn to pay attention to it and to develop a day-to-day and even hour-to-hour
awareness of what my body could do because it came also with a lot of fatigue and brain fog
at times and so forth. And so I write a lot, especially in the second half of The Grieving
Body, I think there's some sort of parallel here between
having to cope with a chronic illness and the grief that comes with that and having
to cope with a loved one being gone forever, right? And so I will tell you that there are
days, I mean, I mean this, Jonathan, there are days I wake up and I think, wow, I'm going to have to cancel
everything except the one thing that I know I have to do today. For a long time, I had all this,
oh, you're lazy, you could just power through, or I had all these beliefs about that.
And eventually, on a good day, I can tell myself, no, this is the body you got, for
better and for worse.
It means you're really empathic.
It means you understand physiology in a very embodied way.
But if you're sitting at the window with your brain fog, which means you can't do any statistics,
you're not going to be writing anything today. I still enjoy the
hummingbirds outside my window. And it takes a long time to accept that this is not the
life that you had expected. Your loved one was not supposed to die. And yet here we are. And so the toolkit includes that developing awareness, developing equanimity, compassion for
who you get to be, and then an authenticity of, nope, this is my life that has loss. And I still
get to do a few things that I really, really want to.
And I'm glad you shared that deeper reference also, because a lot of times when we think
about loss and bereavement and grieving, what we really focus on is another being, a person,
a pet.
And what you just introduced also, there's like, grieve the loss often of the life we
thought we were going to live in the context of our own minds and bodies.
Grieve the loss of a certain expectation about physical ability, about health and wellbeing.
We're just like assume it's like this is what we're promised.
And then when it gets taken away either in the blink of an eye or slowly and progressively
over time, at some point we kind of have to say, oh, that expectation, it's actually
no longer valid. It's a learning curve. Right, oh, that expectation, it's actually no longer
valid.
It's a learning curve.
Right.
So it's really, it's similar in so many ways.
So it's interesting for you, what you're describing is you have this compound loss
and compound grief cycle, and both affect the other because they each affect your psychology
and your physiology and your neurology.
So there's like these multiple overlapping feedback loops and I could see how it could
create a really brutal doom spiral if you don't have the tools, the community, the support
to actually help you navigate this.
I would imagine that there are many people joining us right now who have either been
through that or in it right at this moment. So much of what you're speaking to in terms of that toolbox is what I've
heard is community. What I've heard is, you know, awareness and attention, like actually
owning not what you thought would be or wish would be, but actually this is what is true
now. And then compassion. So these are all powerful qualities and I think we
can all see how they would be just incredibly important. If you don't feel like you have easy
access to them, how do we start to get access to these experiences and skills and just abilities?
I think there are many ways, honestly. It's very interesting. I have a graduate student who's been doing research project about
grief in the black community. You know, we forget that bereavement is a health disparity, right? If
there's different life expectancies in different communities, that means that there's loss that
happens too soon or too often, right? And so when I think about her research, what she shows is that
in this study, she was asking about the experience of witnessing. So did you have a witness to your
grief? So not just like social support, but like, did you have someone who validated that this was your experience and really gave you
permission to have that experience?
And what was fascinating was we had a whole hypothesis about how people would do if they
had no witnesses.
And in this particular study, now granted it's not an enormous study, but we didn't
have any black folks who didn't have a witness.
And people talked about how they just kept reaching out.
So for example, a young man who was at college
reached out to his community of origin, right?
And he reached out online in order to find other black folks
that were going through what he was going through
to try and make sense of his experience.
And so I think human beings need other human beings.
We get in our own way of not reaching out for support,
but if you're not getting the support you need right now,
keep reaching, go online.
There are wonderful support groups online now. Go to an older person in
your life who you know gets it, right? That could be a pastor, that could be your yoga
teacher, right? That could be your grandmother. How did you get through this? What feelings
did you have that you've never told anybody about? And how did you make a life for yourself
after grandpa died? My father, who obviously was
widowed pretty young because my mom died in her early 60s, he used to collect all the widowers in
my hometown and he would make dinner on a Sunday for them. So these older men would come over and
have his crockpot meatballs. It was not fancy food. And he said that over time they learned,
oh, you have to plan these things, right?
Like you have to make an appointment with someone
if you're gonna get to see them later
and then you can look forward to it.
But you have to make a grocery list.
You have to actually cook and come over or go over.
And so just keep reaching out.
I mean, I think that's powerful,
and also probably really hard
when you're in the depths of it.
Absolutely.
Your motivation is really low.
Yeah, and I've heard whether somebody's going through
an immediate loss or they're just dealing
with a health crisis, that so many people around you,
if you're fortunate to have that community
who's really connected to you, that very often people say, what can I do? What can I do? What can I do? And I've
been told by a number of people who are in that situation not to ask that question because
the person who is in it very likely doesn't have the capacity to answer it even though
they really would appreciate and need your help in some way. I think this has a lot to do with what I might call attunement, right? So there was some
point with my partner that I realized, oh, you know what? I don't always have to ask
how he is. Sometimes if I pay attention, I can tell how he is. And this is similar with Friends. I think, hmm, I wonder if this would be helpful.
And then I offer it and I say, hey, this may or may not land, but I'm sending you this
book that I've read. I think it might connect with your experience. We can talk about it
if you want to or not, your choice. And you might throw the book across the room and not read it. And that's fine too, right? Like, I
think it's about offering, not just asking, hey, if you're
having trouble getting your kid to their dentist appointment, I
could pick them up on the way home. Or I don't know what your
grocery shopping is looking like these days, but I'm going to the
grocery store anyway.
Can I bring you X, Y, and Z healthy snacks?
Because I know you're not eating very much right now.
So I think some of it is about offering.
Yeah, I would imagine starting out with the phrase
like why don't I dot, dot, dot.
There you go.
So all the person has to do is basically nod.
Yes, exactly.
It's sort of like you're taking some of that decision making away from them at a point
where like, but the precursor that as you're describing is this attunement, which is like,
really paying attention. Like if you know this person well, like you know what they generally
need and how they are and how they respond and how they recover. Like what do you sense would be
helpful in this moment? And try and anticipate
that and then offer it in that why don't I type of language or whatever your version of it,
because it just takes some of the burden off of them.
LS. But I will add one more piece, and I'll do it through a story because that often works best.
I teach this psychology of death and loss course to undergrads and they often have a surprising amount of life experience. One of my students, she said that she and
her boyfriend lived next door to this older couple and at some point they realized that
the husband had died. And so around Christmas time, her boyfriend went over and knocked
on the door and said, hey, listen, I know your husband usually put up Christmas lights
on your house. You know,
I could do that if you want this year." And she said, no, and slammed the door. And he came back
and he said to my student, he was like, oh my God, I've totally done the wrong thing. How could I be
so insensitive? That was awful. And 24 hours later, the widow came over and knocked on the door and was like, hey, listen, I'm
so sorry. It just makes me so angry that he can't do this anymore. I just can't believe
or bear that that's true. Of course, I would love to have you come over and put up Christmas
lights and I'll tell you about how he did it and why he did it the way he did it and share some of that story with you. I mean, think about all the courage
that took on both of their parts, right? Because it's just not easy. It's just not. And so
giving each other and ourselves a little grace, we may not react the way we wish we did, but
we keep, we may not react the way we wish we did, but we go on.
That compassion that you referenced earlier, the self-compassion and also compassion for
the other.
Is there in your mind when you think about the research that you've done and that you're
aware of, is there a big lever here in your ability to fully experience loss and grief and then move with it, live with
it, grow with it, and not get sort of like in this stuck place of prolonged grief. Is there a big
lever or like a big hammer in the toolbox that you've seen be sort of like most effective,
most determinative at helping you
move through this experience of loss?
I think my gut answer, my first answer is no, that there's lots of little tiny things.
You know, a hammer is such a great tool, but doesn't work for fixing a window.
So I think on the one hand, it's trying lots of different things.
If a child falls down on the playground and scrapes their knee, sometimes it's the right
thing to run over and scoop them up and hug them and tell them they're going to be okay
and put a bandaid and a kiss on it.
And other times it's okay to look at them and be like, no, no, you got this.
You're okay.
Try it again.
Do it again. Right? Those are both two tiny
tools, you know? But I guess I do think in the research, we see two mechanisms that people
struggle with. And one is avoidance and the other is rumination. And so avoidance is really being honest with yourself. What is the thing I'm avoiding
doing that I'm avoiding feeling? That I'm avoiding confronting because my loved one is gone and I
don't think I can handle it, right? And find a way maybe with support to start approaching it, you know? So that could be going out to dinner with your couple friends
after your spouse has died, you know? Or it could be, I've been driving an hour out of the way,
so I don't have to go past the place where the accident happened. What would it be like to drive
past? Or a woman told me, you know, I haven't had any family photos, any family portraits
because I feel like one of us is missing. What would it mean to have a family photo taken now?
You know? So it turns out that we learn when we actually experience and allow ourselves to learn even though it's not pretty. And that can
take support. Take someone with you. Be like, I need to do this thing and I really don't want to.
Will you come with me? Will you drive with me past the site? And then we can go pause by the side of
the road and have a good crying jag or whatever. The other one is rumination. It turns out that we get very
caught up in our mind, in our thoughts. And one of the ways this happens is what a friend
whose son died by suicide calls the would've, should've, could've thoughts, right? This
is, if only I would have gotten them to the hospital sooner, or the doctor should have known
to run that test, you know. The thing about, and our brain is amazing, our mind can come up with an
infinite number of these stories. And each of these stories ends in, and then my loved one would have lived. But the reality is your loved one didn't
live. And all the time that we spend caught up in these other stories means that we're
not in the present reality. And it's only in our present reality that we can connect
with living loved ones. That you see, you you see the beautiful cactus flower that flowers for
24 hours on your walk at night, or you see the puppy doing that hilarious thing in the
park. If you're caught up in your mind, if you're caught up in these other thoughts,
you're not actually in the present moment that yes, it does have grief and pain, but it also has love and joy and pride and silliness
and all the other things that come with life as well.
So learning, how do I get out of my head?
Is that going for a run?
Is that calling a friend?
Is that drinking a cup of coffee?
Although, you know, I don't recommend that 100% of the time.
That's not gonna help your insomnia. But my point is, how do I shift? How do I
become aware? Oh, I think I'm ruminating. I think I'm doing that mind thing. And
then how do I shift out of it? Yeah, I mean that makes a lot of sense. I'm
guessing also really distills down to just a lot of classical techniques on
how to stop spinning and get present, like
CBT, movement, things like that. I want to zoom the lens out a little bit here. So you
have been studying bereavement and loss and grief and the psychoneuroimmunology of it
and the neuroscience of it for a long time now and teaching this. And as you shared earlier
in our conversation, part of that means that you have been engaging with people
who have experienced profound loss, hundreds of them,
maybe more for many years.
How is that for you?
That's such a thoughtful question.
People tell me, my students are like,
you are way too happy to be doing this work.
And I tell them that's because I do this work.
Donathan, I got to work today. I made it into my office after a whole, you know, regular morning,
but that was full of challenges and difficulties and emotions. And I get to be here with you and that's amazing.
So it doesn't change that I had all of these moments where I was like my body is never going
to do what I wanted to do and I'm so sad about things. It doesn't change any of that. It's that
I also get to be here. I have had the enormous advantage of getting to learn what human
beings know about how grief works. And because of that, I feel like I can live my life pretty
differently than when I was just ricocheting through my day to day. I feel very fortunate
to have gotten to have the experiences I have to talk with the people and
see the bravery that I've seen. But it doesn't mean that I don't have ups and downs exactly like
everybody else. I think I try to connect with the grief experience in me because it feels
disingenuous to talk about this stuff without connecting on the inside. And at the same time I also recognize when I'm
doing it too much. I learned at one point I really need to go take care of a
friend's baby on Saturday mornings because I need some baby time which is
joyful and future-forward. so I think having boundaries as well
about how much time you wanna spend
in different emotions is important too.
Yeah, no, that makes a lot of sense.
It feels like a good place for us to come full circle
in our conversation as well.
So in this container of good life project,
if I offer up the phrase to live a good life,
what comes up?
if I offer up the phrase to live a good life, what comes up? I think for many of us who in our American culture are taught to strive, you know,
we're always optimizing and so forth. I've really had to learn that to live a good life also means to sit and have a bar of chocolate or a glass of wine with a good friend, feeling
the weather of the day and being grateful and kind and savoring whatever it is that
the moment you're in has brought you to.
Thank you. project was produced by executive producers Lindsay Fox and me Jonathan Fields, editing help by Alejandro Ramirez and Troy Young, Christopher Carter crafted our theme music and of course if you haven't already done so please go
ahead and follow Good Life Project in your favorite listening app or on
YouTube too. If you found this conversation interesting or valuable and
inspiring chances are you did because you're still listening here. Do me a
personal favor, a second favor, share it with just one person. I mean if you want
to share it with more that's awesome too, but just one person even. Then invite
them to talk with you about what you've both discovered to reconnect and explore
ideas that really matter because that's how we all come alive together. Until
next time, I'm Jonathan Fields, signing off for Good Life Project.
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episode and grab the LaMeller gloss collection today because I'm officially declaring this spring
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