Sean Carroll's Mindscape: Science, Society, Philosophy, Culture, Arts, and Ideas - 3 | Alice Dreger on Sexuality, Truth, and Justice

Episode Date: July 11, 2018

The human mind loves nothing more than to build mental boxes -- categories -- and put things into them, then refuse to accept it when something doesn't fit. Nowhere is this more clear than in the idea... that there are men, and there are women, and that's it. Alice Dreger is an historian of science, specializing in intersexuality and the relationship between bodies and identities. She is also a successful activist, working to change the way that doctors deal with newborn children who are born intersex. We talk about human sexuality and a number of other hot-button topics, and ruminate on the challenges of being both an intellectual (devoted to truth) and an activist (seeking justice). [smart_track_player url="http://traffic.libsyn.com/seancarroll/alice-dreger.mp3" social_gplus="false" social_email="true" hashtag="mindscapepodcast" ] Alice Dreger received her Ph.D. in the History and Philosophy of Science from Indiana University. She has worked as a faculty member at Michigan State University and Northwestern University. She has been a Guggenheim Fellow, and was the Founding Board Chair of the Intersex Society of North America. She is the author of a number of books, including Galileo's Middle Finger: Heretics, Activists, and One Scholar's Search for Justice, and most recently The Talk: Helping Your Kids Navigate Sex in the Real World. Home page Wikipedia page Publications TED Talk: Is Anatomy Destiny? Twitter

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Starting point is 00:00:50 Hello everyone and welcome to the Mindscape podcast. I'm your host, Sean Carroll, and today we'll be talking about truth and justice. It's very hard to say that phrase without thinking of Superman, right? Truth, justice, and the American Way. The American Way part never quite made sense. Superman was from a different planet, after all. He came from Krypton. He should be about truth and justice for everybody.
Starting point is 00:01:12 In fact, the American Way was tacked on when Superman radio serial was being broadcast during World War II, and people thought it was really important that the superheroes be on America's side in this conflict. It was later dropped, and then it was picked up again when we entered the Cold War. and ever since then Superman has, for some reason or another, thought that America was the best country. But today's guest, Dr. Ellis Drager, is all about the truth and the justice parts of this motto.
Starting point is 00:01:38 And that's a non-trivial thing to say because truth and justice, although both virtues, are two different things. It may happen in the course of human events that the search for truth and the search for justice come into conflict, either apparent conflict or real honest-to-goodness conflict. And Dr. Dregor's specialty, as a historian and author, is in human gender and sexuality, and more generally how our bodies relate to ourselves. As you might imagine, this is a set of hot-button issues when it comes to humanity, bodies, and sexuality. So perhaps it's not surprising that Dr. Dregor has been involved in all number of academic controversies. Her controversies and her research involve things like intersexuality, transgenderism, academic censorship, and so on. Dr. Dregor is the author of a wonderful book called Galileo's Middle Finger,
Starting point is 00:02:32 Heretics, Activists, and One Scholars Search for Justice. As we'll talk about in the podcast, Galileo's actual honest-to-goodness finger is on display in a museum in Florence. You can go see it, well worth it at the Galileo Museum. While everyone else is looking at the art, you can go see the Galileo relics there. But it's also a symbol. Galileo was an an annery kind of person. who fought for both truth and for justice. He didn't back down under political pressure. And that's what we'll be talking about today. We'll be talking about the various ways in which you can try to get to the truth, you can try to get to justice. And even though we would like to think that the ultimate goal of truth and justice coincides, that the most just world is one in
Starting point is 00:03:18 which we're also telling the truth, it can sometimes happen that the road to truth and the road to justice don't always run on parallel tracks. It's a fascinating story, no matter what your actual substantive beliefs are about any of the controversies, the goal of trying to be a good intellectual, an honest scholar, finding out the truth about the world, while also being an activist in the sense of trying to make the world a better place, is one that we can all strive to uphold. So let's go. Your vehicle doesn't just get you from here to there. It's a bridge to the people and places. that matter most. It's how you show up for your family,
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Starting point is 00:04:17 This is Sophia Bush from Work in Progress with Sophia Bush. And now a break from our sponsor, Miracle Grow. Let's be real. We're all feeling a little digitally distracted and time starved lately. We're craving real connections and ways to unplug. And honestly, gardening is the ultimate way to do this. It isn't just about plants. It's about trading the digital noise for a quiet win. As you pour your energy into helping something grow, you're pouring a sense of calm and connection back into yourself too. If you're in an apartment or you've never even touched a shovel, don't let self-doubt stop you.
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Starting point is 00:05:37 to truly thrive, whether it's starting with the right soil foundation or giving plants the boost they need to stay vibrant with plant food. Our friends at Miracle Grow have all the essentials to make growing simple and stress-free. Head to MiracleGrow.com to check out all of their easy-to-use products and start your growth journey today. Alice Drager, welcome to the Mindscape podcast. Thanks, Sean. So you were in the news recently, you've been in the news a lot. Okay, but there was a recent episode.
Starting point is 00:06:26 There was a story in the New York Times by Barry Weiss about something called the Intellectual Dark Web. And it was accompanied with moody photographs of the members of this dark web, all of whom are, it was hard exactly to figure out what the commonalities were, but there was something about saying forbidden, scary truths in a certain set of venues that might not be the most obvious intellectually common ones. And you were invited to be part of this article and part of the dark web, and after some consideration, you declined. You let your picture get taken, if I understand.
Starting point is 00:07:05 But then you asked not to be included in the article, and you wrote a little piece in the Chronicle of Higher Education about that. So could you explain just a little bit what your thoughts were on that? And maybe that will lead us into the bigger picture here. Yeah, I'm not sure I can explain the dark web because, I mean, what I know the dark web as is, you know, the other dark web, right, the place where nefarious things happen off the visible Internet. But the intellectual dark web, as I understand it,
Starting point is 00:07:33 is supposed to be some sort of connected group of people who say, things that in particular piss off progressives, as far as I can tell. And I've certainly said things that have pissed off some progressives. But the reason I asked to get out of this article profile was because it struck me as increasingly silly, the more I learned about it. And the fellow who came out to take my picture, and if you've seen these pictures, I think Moody is a good way to describe it. They were all done exactly at a particular moment with relation to sunset.
Starting point is 00:08:08 And when the photographer called me and told me like that's how it was going to be and we needed to be outside at a very particular time because it was going to be this very particular moment at sunset, I was like, fine. I mean, this guy is a Pulitzer Prize winning photographer. His photographs are amazing. So, you know, whatever. I mean, I know for features, they sometimes do particular types of photos. But then having gone through that and talked to him, I became increasingly worried. I mean, I was already worried before that because I kept saying to Barry, I don't know what this. intellectual dark web is, and I don't even know of half the people you're talking about. So she would
Starting point is 00:08:43 name names like I'm supposed to know who these people are. And it's not that they're not important or famous. I just don't spend a lot of time making a point of connecting with, you know, big names. And so I like connecting with ordinary people and smart people especially. And so it just struck me as something that I had no idea what she was talking about. And then this photo struck me as something where I felt kind of silly doing it. And so I was very nervous. And I remember right after the photographer left, I said to my husband,
Starting point is 00:09:14 I got to get out of this because I just don't think I'm meant to be in this. And I said, I think I'm going to feel silly if I'm part of a group that I don't even know who half these people are. And I certainly don't have a good sense of what makes us a category. And then, you know, the piece came out and I was rather relieved that I wasn't in it because as far as I could tell,
Starting point is 00:09:33 there didn't seem to be any logical category. in which I belonged. There are people in that group that I really respect. I mean, people like Brett Weinstein and Heather Haig, who are, you know, academics in exile, which they say so am I, although I don't know, we all chosen at some level to be out of academia at the moment. But, you know, I really respect the two of them and the work that they do and all of that. But I couldn't figure out otherwise what I was supposed to have in common with these other people. Other than Barry's interests seem to be a lot. about the idea that those of us in this alleged group sometimes say things like, yes, sex does
Starting point is 00:10:13 matter in rape. Sometimes it's not just about power. It may also be about sex in some circumstances for the rapist. That's not to say it's a good thing. It's just to say talking about it as simply as power doesn't really make sense of some of what we see. And we say things like there are some inborn sex differences on average. Or we say things like evolution matters. You know, these are supposedly things that are you're not allowed to say. Only we are all saying them. So what's the claim that you're not supposed to say these things? Is it the case that people push back?
Starting point is 00:10:47 Yeah, sure. Sorry, my mail just got delivered. That's what that clunk was. You know, is it the case that we're not supposed to, you know, that we say these things that people push back? Yeah, certainly people push back. But, I mean, people have been pushing back at things I've been saying for 30 years. That's nothing new.
Starting point is 00:11:00 Social media makes it more intense and it catches fire faster. But just by virtue of irritating people, I don't think makes one special as an intellectual. I certainly had no trouble hearing people say that biological differences do matter. It is not exactly a completely silenced point of view out there in the world. Not at all. I mean, you know, it may be the case that among a certain set of progressives saying biology matters is verboten. But, you know, within a large segment of academia, people are researching it. and we talk about it and we talk about how do we think about that in terms of how we approach equality
Starting point is 00:11:40 and how do we think about it in terms of how we support people. So I don't think that that's really something you're not allowed to say. I really like the thing in your Chronicle article. You pinpointed this idea that the goal should not be to piss the right people off, right? It's a tempting thing. And I think that it speaks to the larger trajectory of your career, trying to balance up back and forth between saying true things and resisting kind of being funneled down to an obvious comfortable spot, right? And thinking that you're an oppressed minority saying uncomfortable truths, that's a slightly flattering way to think about yourself that is indeed very tempting. Yeah, I think it also, it becomes an easy way to get out of responsibility. And by that, I mean, you know, if I get to say, oh, I'm so oppressed and misunderstood, I'm sort of not having to be responsible to the fact that maybe what I've said really is very threatening to somebody. And maybe what I'm saying really is disruptive to their worldview, potentially dangerous for them. So I don't like that way of thinking about it in part because I think it's really important that those of us who say things that are politically intense take responsibility for that and address the challenges and the questions that arise from that.
Starting point is 00:12:57 And that definitely is part of what bothered me about the approach was like, oh, you piss people off, therefore you're magic. I don't think I'm magic. Right, right. Yeah. Yeah, it's a, like I said, it's a comfortable place to be for a certain kind of personality, but it's not exactly supposed to be what intellectuals or scholars signed up for. I am bummed. I never got to see my picture.
Starting point is 00:13:20 You didn't get a copy of your picture? Come on. You could ask. I'm sure they're going to. Well, Barry said she was going to send it to me and then I published that piece in the Chronicle and then she stopped talking to me. So I think I'm never going to get to see my picture. It's going to be the famous playing card nobody ever got to see and someday to be worth
Starting point is 00:13:34 a million dollars, don't you think? You should do a parody of it, just standing out in the field with your boots all muddy, right? Like taken on an iPhone. I think that should be your cover photo. I should totally do that. So, and I'm suspecting that when you started off the academic path and you're as a graduate student as a historian, you didn't suspect that this is how your career trajectory would go. Is that safe to say? I guess I didn't know where it was going to go. I mean, the thing is, I dropped out of college, right? So I never really expected
Starting point is 00:14:12 to go to graduate school. I never expected to become an academic. So I never, when I was becoming an academic, I didn't have a firm sense of what that was going to mean for my future. And I don't mean that I didn't know what it involved. I didn't know what it involved. But I also know my husband jokes that I change careers every two pie years. So that would be every approximately six point two. Yeah, that's right. It's tau, right. Tau. That's right. Yeah, every Tau year is good. So you can be hip to a whole another audience by saying it that way. I change careers every Tau years. So I was a very high achieving high school student and I was very burned out and I said to my parents, you know, I should not go to school right now. I'm too burned out. And back then there was no such thing called a gap year. So I
Starting point is 00:14:57 couldn't say I need a gap year. It wasn't named anything. It was just calling, it was being a college student dropout, right? So my parents begged me to go to school, which I did for a year. I went to Georgetown University for a year and I was still totally burned out. So I dropped out and I became a mortgage broker for five years on Long Island. And I only, you know, like finished my degree because I was getting tired of mortgage brokering and I thought maybe I'd go into real estate law. So I finished my degree at the state university down the street and my advisor told me about graduate school
Starting point is 00:15:28 and it sounded really great. Like you could read and people would pay you to read. That sounded really, really good to me. It is kind of awesome. I have to admit. I was also in therapy and my therapist declared me cured and he was like, get out of New York so that you don't relapse. Like get out of here.
Starting point is 00:15:44 Just leave, leave your boyfriend, leave your cats, leave your parents, leave everything. So I thought, well, going to graduate school is a good way to leave everybody. So I did that. And the truth is my graduate department lost my application and they admitted me out of embarrassment. I found out years later. So I was admitted by accident. But I was good at it. And I also worked really hard because I was used to working full time and going to school full time. So I was like a really hard worker. And so when I got to graduate school and everybody else had gone the normal path, they were used to being kind of frankly lazy. because they were used to sitting around and doing nothing but school.
Starting point is 00:16:19 And so I, like, whipped through graduate school and graduated in record time for my department. And, you know, went on and got an academic job and everything. But I guess I always, to think, you know, well, this is the direction of my career, go, I don't know. I had a sense of like I should know what I'm doing next in order to pay the rent. And that's what I've always done. And then when I had a kid in the year 2000, I realized. And I realized I really liked him and I really enjoyed being with him.
Starting point is 00:16:51 He was very interesting. He was much more interesting than I expected having a child would be. And so I gave up tenure in 2004 to be with my son more and also to do more mainstream writing and do more activism of the type I was doing, which was for patient rights in the field of intersex, which is when people are born with not the standard male or standard female anatomy. So I dropped out of tenured life, and I took a part-time job at Northwestern long distance. And so I've never really had, right, and organized life around the standard systems just because I get, I guess I get bored easily.
Starting point is 00:17:25 And so I stick with things. My husband's right around six years as long as I stick with things, except with him. I've stuck up much longer, and I've kept my son who's now 18. So, so I, you know, so the idea that like now I'm in some intellectual dark web, I'm just like, what? Yeah. You're just doing your thing. It just strikes me as weird. This June, the world comes to Los Angeles. Kick off FIFA World Cup 2026 at the FIFA Fan Festival at the iconic Los Angeles Memorial Coliseum.
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Starting point is 00:18:18 This is Sophia Bush from Work in Progress with Sophia Bush. And now a break from our sponsor, Miracle Grow. Let's be real, we're all feeling a little digitally distracted and time starved lately.
Starting point is 00:18:30 We're craving real connections and ways to unplug. And honestly, gardening is the ultimate way to do this. It isn't just about plants. It's about trading the digital noise for a quiet, win. As you pour your energy into helping something grow, you're pouring a sense of calm and connection
Starting point is 00:18:48 back into yourself too. If you're in an apartment or you've never even touched a shovel, don't let self-doubt stop you. With 75 years of expertise, Miracle Grow takes the stress out of the process and makes it pure joy. And let me tell you what, I can confirm this from the garden I love spending time in outdoors in Los Angeles to my little potted plants where I grow herbs indoors in New York, I love working with plants. And I love Miracle Grow because whether I'm doing something in the soil or potting something in the apartment, Miracle Grow takes the best care of my plants. So my plants can help take care of me. And here's the big secret. Most people think water and sunlight are enough, But no, no, your plants actually need more to truly thrive.
Starting point is 00:19:39 Whether it's starting with the right soil foundation or giving plants the boost they need to stay vibrant with plant food, our friends at Miracle Grow have all the essentials to make growing simple and stress-free. Head to MiracleGrow.com to check out all of their easy-to-use products and start your growth journey today. But you did start, there was a point at which in grad school you were going to be a historian in a fairly conventional way. No, I was going to be a philosopher. No, I was going to be a philosopher. Oh, you're going to be a philosopher. I'm sorry. The department I was in was history and philosophy of science, and I went to graduate school thinking I'd do philosophy of science, but I didn't like the kind of philosophy of science being done at my program, which was this very intense theoretical type of philosophy. And so I switched over to doing history, and I really liked it. I really liked it.
Starting point is 00:20:28 I really like the concreteness of history, and I really like the detective work of history. So then I became a historian, but I didn't set out to graduate school. I really went to graduate school to get out of New York. But I became then a historian. Yeah. And now I'm a historian, except now I'm a journalist because I gave up doing academic life a couple years ago. But even as a historian, it's not like you were studying shipping routes. You decided to study hermaphrodism in the 19th century.
Starting point is 00:20:55 Is that about right? yes, because I was an Emma feminist and I was interested in the question of how medicine and science coped with biological blurriness when they were insisting that there were only two sexes. So in the 19th century, so the late 1800s in particular, there was this big political movement that had begun among women for their rights. So that was the early part of feminism. And there was also a movement among people we now would call gay and lesbian people to demand their rights. And so these were people who are challenging gender norms very strongly.
Starting point is 00:21:32 And I was curious to know what doctors did when they were faced with the fact that biology is blurry because all their claims about gender were that there's only two sexes and there's no in between. And in fact, there is in between. So I was curious about that. So I started publishing on what had happened in the late 19th century and then people who were intersex living then, which was the mid-1990s, started contacting me and asking me to look at what was going on today in the medical system and to help them change the medical system. So then I got into contemporary intersex treatment, and that led me into bioethics by accident. So some people think I'm a bioethicist, but I'm not really. I'm really a historian who does patient advocacy work sometimes.
Starting point is 00:22:11 Right. And so the whole idea of intersex is fascinating. And I think for me, the best way to get into it is you have a page on your blog about the question, can a person be born with two sets of genitals, with one male and one female set of genitals, and you have a very definitive statement about this. No. But you can absolutely be born with parts of both sexes. So males and females start off with all the same parts, and if you have a high level of androgens and you're sensitive to that,
Starting point is 00:22:45 so that's a kind of masculinizing hormone, you'll go the male route, and a low level, typically you'll go the female route. But it turns out there's like a hundred different ways besides that that can go in between or can make. things up. The reason you can't have both sets of genitals is because people are only born with one set apart. So they'll either go left or right or in between or they'll be mixed up in terms of the types, but you can't have genitals of both types unless what you mean is can you have a vaginal
Starting point is 00:23:11 opening with a penis. Yes, you can have that. But you can't have, say, a penis and a clitoris because they're the same organ in development. And you can't have the labia majora and a scrotum because they're the same organ in development. So they're going to go one way or another or in between. So people tend to have this sort of weird imagination that there's like you can be completely male and completely female. You can't. You only have one set apart. So you can go one way or another or blend them up. Yeah, I think that this is just an underappreciated fact about human anatomy and development. But it makes perfect sense from an evolutionary point of view. You know, evolution uses what it has and tries to solve problems in a relatively simple way.
Starting point is 00:23:50 but the fact that the male and female genitalia sex organs are two different versions of what starts out as the same thing, and that the male scrotum is just the female lobia that developed in a different way. That's an amazing fact. I think that is not very well understood. No, that's right. And there are some nice animations now online that show genital development and fetuses that shows you can sort of slide a thing back and forth and see what does it look like if it develops as female or as male or in between. And this is stuff I didn't know, certainly when I went to graduate school.
Starting point is 00:24:23 It was stuff I only found out pretty much by accident. And then I was fascinated to learn, like, well, why have I not heard about this? Because this seems really interesting and really kind of important to know about sex development. And I realized, well, that's because the medical system had suppressed it for generations and kept the knowledge from us because of the idea that this was disruptive, frankly, to the social order. And that telling people about it was just going to confuse people and create a kind of discomfort,
Starting point is 00:24:48 which it does. often does create discomfort for people. And this fact helps explain why there is this idea, this concept of intersex, intersexuality. And you already alluded to the fact that in addition to simply having X, X, X or X, Y, chromosomes, by the way, it's not the only possibilities, right? There's more complicated things you can have. But there's also more to it than that.
Starting point is 00:25:10 There's how these things get expressed because of the hormones that you have and the hormones you're sensitive to and how they develop over time. So as you say, there's all sorts of different specific ways in which you can be something other than the standard stereotypical male or female. There's also randomness in the process. So just like you can be born missing a finger, you can be born missing a penis and have everything else in terms of male development. So there's lots of variation in the system. And you're right. Evolution, this makes sense in terms of evolution because sex development is a key part of evolution.
Starting point is 00:25:44 That's how we mix up our genes. And so sex turns out to be very important in terms of evolution. And whenever anything's important in terms of evolution, then there's going to be a complex developmental process, and there's going to be variation. And that's where you get these variations. And variation happens through randomness, but it also happens sometimes because of genetic conditions running in families.
Starting point is 00:26:05 So there are at least 30-something different ways you can develop in terms of sex. And far more than that if you count them a different way. But there's plenty of different ways. can develop in terms of sex development. And I know you've written on the question, which is extraordinarily important in certain circles, but what about when we have the Olympics and we have men's sports and women's sports, how do we decide? What is the right criterion for dividing up people according to that classification? It's really hard to figure out the answer to that. And the answer to that depends on what
Starting point is 00:26:38 you're trying to achieve. So if what you're trying to achieve is a sort of mythical level playing field, then you're going to be stuck. And the reason you're going to be stuck is because humans vary a tremendous amount. And if you start making the decision, well, in terms of sex, we're going to sort of draw the line right here. You've got to justify why you're drawing the line right there. And what the Olympic Committee would say is that, you know, women, people playing as women can't have too high a level of androgens because it gives them an unfair advantage. The thing is, women naturally make androgens. So I think I'm a typical female based on what I know about my own biology. I've never had my chromosomes checked, but I'm pretty sure I'm typical female. And I'm making
Starting point is 00:27:21 androgens right now in my adrenal glands in the back of my body, just like other women. And I'm also making some androgens in my ovaries right now because that's where we make them. Males, meanwhile, make estrogen in their testes. So all the sex hormones, we're all making all of them. It's just men, males make more of them than the average female will make. And so to make the claim, well, we're going to cut off where it's supposedly unfair for a female to have is a difficult argument to make because we're making them. So why should we be told we're not allowed to have a certain high level of them? We don't do that when it comes, for example, to people's height. We don't say, you're too tall to play basketball. We don't say to people, you know, in terms of their ability to
Starting point is 00:28:05 process oxygen. Well, you were born with a genetic advantage, so you're not allowed to use that genetic advantage. You're not allowed to play. No, we say, look, if you're born with it, you're allowed to play with it. But where women are concerned, where intersex gets involved, that's where the Olympic Committee tries to cut things off. And it becomes very difficult to do that. My own feeling is, and I've written about this most recently for the New York Times, basically the rules they've come up with are pretty absurd because they declare certain sex hormones to be sort of the property of men, even though women do make them. And then they also have a system where they're setting up a system that has to measure something.
Starting point is 00:28:41 They can't really yet be measured. So they're trying to measure not only do you make these hormones, but do they affect you? And we don't have a good system for understanding to what degree they're affecting one's tissues. And the effectiveness of hormones on our tissues varies according to people. So it's kind of a crazy system. It doesn't, they may have the data to show that testosterone improves performance in certain events. And they do have that data.
Starting point is 00:29:07 And I believe that data. I believe testosterone absolutely gives you an advantage in certain events, certain running events. But they then leap to a policy that I think is very hard to justify. And that's where they keep falling down on their faces. And when I advised the Olympic Committee in, I think it was 2012, I was there in Switzerland, basically what I said to them is you're making the same mistake that the Olympic Committee is made over and over again every time it's tried to adjudicate sex according to biology. And you're running up against the problem where biology is complicated and genders come in two
Starting point is 00:29:43 categories for purposes of the Olympics. Why don't you just admit you've got two gender categories and stop trying to police the biology? But the answer is they're afraid the Chinese will raise their sons as daughters and they're afraid that they'll have boys playing as girls in the Olympics. I mean, it's almost as if nature in the natural world is very complicated and fluid and full of all kinds of crazy things, but we human beings really like to impose on nature these orderly categories. And then we get upset when nature does not conform to that order we want to impose on it. We certainly do. And we get even more upset if money's involved in where the Olympics is concerned. And there are winners and losers. There's a crap load of money involved. So there's a lot of a lot of money at
Starting point is 00:30:28 stake in terms of these decisions, and that's part of what's going on. What cracked me up is when I went to that meeting that was an advisory meeting, they had a series of advisory meetings, and I was one of many people that they invited to come and critique and have a conversation about this. But what became clear to me is that it was mostly men making decisions about women's sports, and I was curious what would happen if women were actually in charge of women's sports and what decision women would make. And I suspect it would be different because I suspect women who have been athletes are very sensitive to the idea of having your body policed. That's happened to them over and over and over again. And I think they would have more sympathy for the people getting
Starting point is 00:31:06 caught in that policing. But I don't know because right now men are largely in charge of women's sports at that level. And this policing in some sense in a different context is what led you to go on the journey from being a historian to an activist because you stumbled across the fact that surgeons were policing mailness and femalness of infants as soon as they were were born. They would notice that someone was intersex one way or the other and try to fix them. And number one, that was historically interesting because it started happening, I guess, in the 1900s, but you'll tell me. But then it was still happening even today. Yeah, we started to see the beginnings of that approach in the 1800s, the late 1800s,
Starting point is 00:31:48 but when surgery got better, then surgeons got more aggressive. And part of what has occurred is the idea that anybody who's left sexually in between will grow up to be miserable and depressed and rejected, and therefore they will kill themselves. And so you have to fix every baby to look closer to a standard male or standard female type. Now, intersex, by the way, sometimes occurs where on the outside of the body you look very clearly like one sex, but on the inside, you have the organs of the other. So when we're talking about the early intersex interventions done by surgeons, we're talking about cases where there's visible sex anomalies on the outside of the body. And in those cases, still today, what happens is most surgeons say, well, you don't want to
Starting point is 00:32:35 leave a kid in between, and therefore we should either surgically make this child look more male or more and more female. In many cases, that means female, because surgeons have a sort of high standard when it comes to what a male should look like and a rather low standard when it comes to what a female should look like. Male surgeons are talking about, presumably. Yeah, largely. largely male surgeons. They think penises are very fancy organs and vaginas are just holes.
Starting point is 00:33:00 And vaginas are not just holes. They're actually very fancy organs. The vaginal tube, the thing that is the vagina, the tube that goes from the opening on the outside up to the uterus is actually a very fancy organ. But they don't treat it as such. They treat it as something that can be replicated by creating a hole, basically, a hole that is medically safe hole. So that started happening in earnest, starting in the 1950s. 50s and there's an entire, their generations now of people who grew up that way who were lied to about their medical history, who have surgical problems resulting from what happened, some of whom
Starting point is 00:33:34 had their fertility taken away from them because any chance of fertility was removed in the sex assignment process. And those people became activists, many of them became activists in the intersex rights movement starting, especially in the 1990s. And it was a pretty active movement at the point at which I was contacted by some of those people and I joined the movement as well, because I could see that what they were describing was absolutely in the medical literature and it was going on. And to me, it was really disturbing to see what was going on. It wasn't that the doctors had bad intentions. They really wanted what was best for these kids. But they had a very narrow idea of what was possible and they had very bad science, extremely bad science when it came to following
Starting point is 00:34:12 up whether or not this was actually working. And did you, is it safe to say that you and your friends and have actually had an effect on the practice, that surgeons now are a little bit more aware of what's going on? They're certainly much more aware, whether or not we've changed the practice is an open question. I'm afraid we haven't changed it nearly enough. What has changed is now doctors say, well, it's the parents' decision.
Starting point is 00:34:34 And so the parents are kind of pressured in many cases to make this decision and are told, you know, well, everybody's fine if you just do what we tell you. And parents tend to follow what their pediatricians tell them to do. So there are a bunch of clinicians now that I know that are reformists who strongly feel, as I do, that you can raise kids as boys or girls, but leave their bodies intact if there's no medical emergency. Let them decide for themselves later whether or not they want to take the risk of changing anything about their body. Let
Starting point is 00:35:05 them have bodily autonomy. And for those clinicians, they find parents are comfortable with what they're recommending. And I think that's because they're, in those circumstances, their pediatricians are telling them it's okay and to wait. And it's okay to let this, child decide for him or herself, how do they want to handle their body? So for some places, it's better, but in a lot of places it's the same old system. It's just now the parents are blamed for the decision making rather than the surgeons taking responsibility for the decision making. And what was it like for you sort of lifestyle-wise and intellectually to become an activist while you were also being an active scholar and a professor?
Starting point is 00:35:45 Well, since I was in the humanities, it wasn't that hard because unfortunately the humanities has largely gone in the direction of doing politics. I didn't think of myself as being in the, what I see often as the lazy versions of that within the humanities and academia in some circumstances. But for me, it was exhausting mostly because I was helping to run a national and international movement from my house
Starting point is 00:36:10 and at the same time doing a full-time academic career, which involved publishing in peer-reviewed journals, which I like doing, but it was, you know, that's intense work, doing the kinds of teaching that was intensive teaching because I really liked teaching and also doing service work. So I was doing full-time academic work and also basically full-time helping to run the Intersex Society of North America's cause. And at the same, and then I had a kid on top of it all. And that just became untenable in terms of the lifestyle. So when I made a list of what I enjoyed doing, the things I didn't enjoy doing involved my academic job.
Starting point is 00:36:45 So I gave that up. switched what I was doing at that point. Your vehicle doesn't just get you from here to there. It's a bridge to the people and places that matter most. It's how you show up for your family, your community, and everyone else that depends on you. That's why for 125 years, Firestone has been building tires with one thing in mind to deliver products that are as reliable as you are. Firestone, always dependable since 1900.
Starting point is 00:37:17 This is Sophia Bush from Work in Progress with Sophia Bush. And now a break from our sponsor, Miracle Grow. Let's be real. We're all feeling a little digitally distracted and time-starved lately. We're craving real connections and ways to unplug. And honestly, gardening is the ultimate way to do this. It isn't just about plants. It's about trading the digital noise for a quiet win.
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Starting point is 00:39:14 There's a lot going on when we talk about sex and how sex plays out in the world. There's sort of at the very least our biological sex, our gender identity, how we think of ourselves as male or female according to the standards of the world we live in, our gender expression, right, how what clothes we wear, our mannerisms and so forth, and our sexual orientation, who we are attracted to. And all of these things are going on at once. intersex is about more or less our biological sex, as it were, and transgenderism more about our gender identity. Is that correct? Did I get that right? Yes. Congratulations. You have it
Starting point is 00:39:56 exactly right. I will just mention that before I got into this controversy over transgenderism, I expanded my work outward and looked at what else was happening to children born with norm challenging bodies. So I looked at things like conjoined twins and the way they were treated in society and in medicine. And I looked at people with dwarfism, people with giantism, and those sorts of things. And the book I did then on that topic was called One of Us Conjoined Twins in the Future of Normal. And that's a very, it was published by Harvard, but it's a very readable book basically designed to be used for freshmen undergraduates, sort of getting into this question of what do our bodies have to do with who we are and when should we change our bodies and when should we hold back
Starting point is 00:40:38 and think about changing society instead. So yes, so intersex is about how our bodies are when we're born and transgenderism or gender is about how we feel about ourselves. So I often tell people that intersex people and transgender people had this opposite problems but for the same core reason historically. So intersex people were getting sex change operations they didn't ask for, and transgender people historically had a hard time getting sex change operations they did want, but they were both suffering for the same reason, which was a patriarchal medical system that said, we get to decide what you'll look like, and we'll get to decide what sex you are. So that's finally changing, and it certainly changed a lot more on the transgender side. And today it's fortunately much easier
Starting point is 00:41:25 for people who may benefit from hormonal changes and from surgical changes to go ahead and elect those for themselves. And that's a very positive development. We're actually swinging very far in that direction, and now we're starting to see some problems with sending people down that route without actually doing an adequate workup to see if that's really what's going to help them in terms of their own personal situations. But it's certainly better than it used to be when it was very, very difficult for people to get access to legal sex change or gender.
Starting point is 00:41:55 change and social gender change and then also surgical changes to their bodies to match the way that they felt. And a similar issue comes up with the conjoined twins, right? There was this surgical idea that it would help them to separate them. That would make them more normal. We have categories. We have a view of what a person should be like and that view doesn't have another person attached to them. And you found that in fact, lots of conjoined twins would prefer just remain conjoined if they're healthy in that condition. Yeah, I was shocked by that. When I came to the subject of conjoined twins, I fully expected that anybody who could be separated would elect to do so, that nobody would be doing okay conjoined. And instead, when I looked historically at all the cases I could find,
Starting point is 00:42:41 there's not as many of them as other types of variations in the world. So that was a little bit easier. When I looked at that, what I found was that there was only one single case in history where conjoined twins old enough to do so for themselves chose separation and both of them died from it. And that historically over time and throughout different cultures, conjoined twins said the same thing if they grew up together. They said, I know this isn't normal for me, for the rest of the world, but this is normal for us. And I wouldn't want to live the way you live. So what was really surprising to me was they consistently said the way we live is superior to the way you live because you must get lonely and you don't have anybody with you all the time and we have somebody
Starting point is 00:43:24 with us all the time. So the thing that we see as a terrible disadvantage is seen by them to be a terrible, a huge advantage. And when I thought about it, I realized that shouldn't have surprised me so much because, so speaking, for example, as somebody is born female and is grown up as a girl and then a woman, I know that I'm discriminated against in terms of wages, in terms of political representation. I'm much more likely to be sexually assaulted than a male is. You know, all of these things. But my solution to that is not, well, I wish I was a man, right? Even though I know that that would eliminate the discrimination I experienced. So conjoined twins were saying basically the same thing. They were saying, I know I'm subject to a lot of discrimination, but I don't think I'm the
Starting point is 00:44:05 problem. I think the problem is the discrimination system. So as I began to look at that and then look at what the surgeries did to people. In some circumstances, separation surgeries are very simple. They're practically outpatient surgeries in some cases. And in some cases, they're just a little bit complicated, but not a big deal. But in many of the cases we hear about, they're enormously complicated, and they leave people really damaged. If they're joined at the head, they leave them brain damaged. If they're joined, say, sharing a body in the middle part, they're left without organs. It often disrupts their sexual sensation and function. It'll disrupt their ability to have normal bowel movements to have urinary function. They'll have problems with pulmonary function
Starting point is 00:44:47 in some cases if what we're doing is separating the upper part of the body. So really it's not the case that it's simple, that they're always better off if you separate them. And so I started to question that. And that became an interesting period of my life because I ended up talking to surgeons who were doing conjoined twin separations who started to hear of my work and read my work and began to ask the question, am I really helping? Which I really appreciated that they would ask that question, you know, am I really helping? Not all of them were thoughtful.
Starting point is 00:45:17 I remember what I was talking to, it could hear him opening his mail in the background. Well, we're having this discussion about whether or not it's going to separate these two boys who were joined at the head, who I was sure he was going to kill. So not all of them were so sensitive and sensible, but many of them were. It's very sobering how deeply ingrained this idea is that we want other people to become normal by our lights, right, rather than asking them what they want. There's kind of a relationship. It's a little bit different, but everyone grows old, right? And people get sent to
Starting point is 00:45:53 assisted care facilities, senior centers and whatever. And there's studies have shown that the elderly really would like to have much more autonomy than we give them. What we try to give them is safety, right? the caregivers or whatever, try to protect them. And they tend to want to do risky things that give them a feeling of freedom, but we don't want to let them. It's not exactly the same set of issues, but it's the same human desire to sort of control other people's lives and make them normal by our own standards. We do the same thing with people with disabilities, and we do the same thing with children.
Starting point is 00:46:29 And it's a real problem because in all those circumstances, you think you're helping. but if you actually bother to listen to the people whose lives you're limiting, they often do not feel that you're helping. They feel that you are oppressing them. So I think it is something that we have to think about much more carefully. Certainly, for example, you know, there are circumstances, of course, where people are in nursing care facilities who still want to have sex. And we have the attitude, well, that part of your life is over.
Starting point is 00:46:59 Well, why the heck should that part of your life be over, right? And for adults with disabilities, including cognitive disabilities, many of them do still want to have access to sex or access to going out and having a good time. And so the independent living movement within the disability rights community has been very positive in that way, but there's been a lot of defunding of a lot of systems that allow independent living. And certainly for children, we infantilize our children for a very, very long time. So compared to other nations, the United States, for example, has much higher drinking. aging ages is slower to permit things like control of your own medical decision making. Many places you could be younger and make decisions about your own medical care before you can in the United States.
Starting point is 00:47:44 Age of consent is lower in terms of many other places. So there are many ways in which I think we just infantilize our children in this country in ways that do not empower them and also don't really protect them because the fact is 15 and 16 and 17-year-olds will do what they will do anyway. And claiming that you're not going to do it. Yeah, I know. So my own feeling is that it's terribly important to empower your kids. I did, I mean, more recently I wrote a book about talking to your kids about sex because a few
Starting point is 00:48:20 years ago my son invited me to his sex ed class where they were teaching abstinence, which he knows drives me up the wall. And I ended up live tweeting it, which became viral. So then I was asked to write a book about talking to your kids about. about sex. So that's a book called The Talk. And in there, I just sort of model what I've done in my own parenting, which is trying to take seriously children as real people in the world and to address their actual questions with real answers, not maybe Pam be around stuff. Tell them the truth. Yeah, it's kind of amazing to be sex and death, two of the very
Starting point is 00:48:56 fundamental features of human life. And yet two of the things that at least out there socially we're afraid to talk about as grownups, right? Well, joke, we'll sort of nervously titter about this or that, and we'll get a laugh. But the idea of just sort of talking about it as a real thing that's going to happen, and let's be honest about it. And even with children or the elderly, it's just remarkably hard for the society to catch on to. It is. And this leads sort of natural into the conversation of how I got in trouble by doing the history of that controversy over transgenderism. Part of what I was doing was I was taking seriously the idea that transgenderism also implicates issues of sexuality. And for many years, people in the transgender rights movement
Starting point is 00:49:43 understandably kind of desexualized transgenderism made it all about gender, never about sex, even though one of the things that often happens for people who are transgender is they change their genitals. So it has something to do with sex, right? It has something. something to do with self-presentation and genital feeling, how you want to interact in terms of your sexual encounters. But a lot of the mainstream doesn't want to talk about sex, just as they don't want to talk about death. And so to push for transgender rights, it became necessary to sort of desexualize it.
Starting point is 00:50:13 Just like when gay and lesbian people were actively working on marriage equality, they often stopped talking about sexuality. They talked about adopting children and about cooking dinner together and watching TV together. watching TV together, but nobody was mentioning what's happening in terms of sex because the straight population is more comfortable with the idea that we're not going to talk about sex. And so it's easier to access your rights in that way. And so this controversy that I got into had to do with one particular area of sexuality studies around transgender, we was looking at transgender women who transitioned because of sexual
Starting point is 00:50:49 orientation issues. And this was extremely dicey a thing to talk about, political. And so the researchers that I was tracking the history of got attacked for talking about this. And then I became attacked as well for having tracked out what happened to those researchers when they crossed the line. So in particular, the idea that at least some people who want to transition from male to female do so because they find it sexually arousing or sexually interesting or that that's part of their motivation. not all people, and that's not the only motivation, but at least it's there. Right, that for some people transition isn't just about gender identity, it's also about sexual orientation. And I don't think that should be that surprising because I think for many
Starting point is 00:51:35 of us, our sexual orientations are connected to our gender identities. So when I'm having sex as a woman, I think I'm doing it as a woman. I've paused to think about it sometimes because I'm interested intellectually in this question. But I think for a lot of us, when our gender feelings become most vivid is actually when we're having sex. So I don't think there's anything unusual in that a transgender person might have that interaction going for themselves as well in terms of their orientation and their gender identity. But to talk about that was to be seen as going back to a really nasty old conversation about transgenderism that saw it merely as a fetish and merely as a kink and merely as something that was sort of something perverted and inappropriate.
Starting point is 00:52:19 And that's not what these researchers were saying. They were saying, no, this is actually a legitimate way to be transgender. And they would say there's absolutely no reason to deny people access to transition because of this. It's just sometimes sexuality is part of the equation. You have a lot of interesting material for your Tinder profile here, I think. Some of the researchers said these things in ways that were sort of cold or even outright offensive. And so that's how they got in trouble. but what happened to one of them, Michael Bailey is what I traced in the book Gallo's Middle Finger.
Starting point is 00:52:52 And that was that he was beset upon by a group of transgender activists who basically made up a whole bunch of lies about him. And when I came to that part of my research and I decided to look into this, because I knew people on both sides of this controversy. I was rather curious to know what really had happened. I really like questions where like, I've been told one thing and everything else seems to be true. So I looked into that for about a year, looked at a thousand sources and interviewed about 100 people. And at the end of it, what I found was that the charges about Bailey were simply made up and that the people who had made them probably knew that these were false charges. But I'd basically tried to just shut him up because they didn't want his view of transgenderism getting out into the popular realm. So when I did that, they came after me.
Starting point is 00:53:37 And that was very, very, very unpleasant. And that was in around 2008 when it was easier because of Google's algorithms to take over a person's identity. And that's what occurred. And actually, I'll tell you, so literally yesterday I was going to a local coffee shop that I go to a lot. And the woman who owns it came up to me and said, Alice, I was wondering if we could have coffee sometime soon. I said, yeah, sure, of course. I'd be happy to have coffee with you. And she said to me, because people are telling me that you hate transgender people.
Starting point is 00:54:09 And I was like, oh, my God. And this was, this traits back all the way to that stuff. And this claim that's out there that I somehow hate transgender people, even though I've agitated for transgender rights and sports, I've worked on national projects to improve the care, the medical care of people who are transgender. I mean, but, but what happens is if people want to defame you in the social media world as it exists today, it can happen pretty easily. And then it takes on a life of its own and people cannot. figure out what's true about you. So it's, and what can I do, right? There's a whole bunch of stuff out there online about me that's simply not true and there's nothing I can do about it. And this showed up on your webpage, you had the very vivid story of what you recently gave a talk
Starting point is 00:54:51 at Wellesley, was it? Was it? And certain opinions about you had been shared and people came with protest and as far as you could tell, they were protesting a completely different person than you would think of yourself. Which is a very surreal thing when you've spent your whole life studying the relationship between anatomy and identity, and you're standing there, you're bodily standing there, right, in your own flesh, and people are yelling at you about an identity that they swear is yours that you don't recognize at all. It's a very strange experience. And in the picture I put up of that moment where I face these hundred-something people, young people
Starting point is 00:55:26 protesting me, only protesting a version of me I don't recognize. I'm just standing there listening to them and thinking of myself, you know, like, how do you even begin to get a foothold here because at the end of the day, their politics and my politics, I think exactly aligned, but they think I'm the enemy. Well, that's what I thought, that's what I felt very strongly when reading Gallo's middle finger, this sense of heartbreak in some sense, because you and the people who are coming to attack you in some sense want what is best for transgender people. Neither of you are trying to shut them down or not let them live their lives, but there is a mismatch.
Starting point is 00:56:04 because you're trying to be an intellectual, be a scholar, trying to say what is the truth about the situation as best we understand it right now. And of course, it's always subject to change if more studies come along or whatever. And they have a certain strategy for winning fight for justice that they think that this particular point of view that you say might be right gets in the way of. And it's almost an impossible dilemma to address in some sensible way. It is. And I've, I mean, I've largely given up on that front and have talked to other people who unfortunately have done the same.
Starting point is 00:56:47 You know, the good news is there's a lot of really fine clinicians now who are working on changing the system within medicine for transgender issues. There are a lot of terrific lawyers working on the legal and social issues. So there are a lot of people in politics changing the laws. So there's real progress happening. And that's why I don't feel like I'm needed too much. But it is nevertheless disappointing that we can't have conversations that go beyond sort of, you know, screaming around about who is a bigot and who is not a bigot.
Starting point is 00:57:17 And it just, it feels very frustrating. But that's the whole social media experience on everything these days. So this area is not special in that way. It's just a little disconcerting when somebody you've known for you. years, you know, has heard that you're a Nazi basically and feels the need to ask you, are you a Nazi? And you're like, well, I'm going to tell you I'm not a Nazi, but what's my proof, right? What is going to, so I just what a Nazi would say. I know, exactly, right? So I brought a stack of my books and I'm like, I hate to give you a lot of homework, but I'm going to give you what
Starting point is 00:57:48 I've actually written and what have actually done. And if you want to look at it, you can look at it. So I gave her whole stack of stuff, you know, and said, this is what I've actually written and actually said. And, you know, some of it does irritate some people, but I think if you read it, you're not going to find any evidence here that I, as people have claimed, want to send intersex people to the gas chambers or want to stop people from transitioning who will benefit from transition. None of that is true. It's a very surreal situation. It's a very surreal situation. Of this human desire to categorize people, like, okay, you're either male or your female full stop. You're either an ally or you're an enemy full stop. And if you're an enemy,
Starting point is 00:58:24 you're the worst kind of enemy. That's all you could possibly be. You have it exactly right. And I've always sucked at categories. I mean, look at like what I study, right? I've always been interested in people who don't fit categories. And in that sense, I think it's something I've always related to. I don't, you know, I was at the top of my class in high school. I was not supposed to be a college dropout. You know, I got tenure early. I was not supposed to give up tenure, but I'm not satisfied with the world's categories. Like, I don't find it interesting to live in those categories. So that's why the people I study often are people who are challenging those categories, whether intentionally or
Starting point is 00:59:04 unintentionally through their bodies. But it does drive me crazy because I keep running up against people who want to say, well, are you X or are you Y? And I'm like, I don't recognize that set of categories. Like, really, you don't think there's any other way to be in the world. So, for example, I mean, I'm a progressive, but I run a nonprofit news. nonpartisan newspaper now for East Lansing, Michigan, which is where we live. And, you know, there people want to say to me like, I don't understand it. You're progressive, but like you're taking developers seriously. And my attitude is, why should I not be interested in the thoughts and the actions of people who are not like me, right? But it's very, it's very, very frustrating.
Starting point is 00:59:45 But the thing about these categories is that they are in some sense, there is a landscape of where you can live intellectually and gravity pulls us down to some certain valleys and that's where the categories live. So this makes you literally Sisyphus trying to constantly push the ball back up the hill and try to say, well, there's all sorts of places you could live. Well, and I hate to sound like I, you know, I'm anti-capitalist because I'm not really anti-capitalist, but I will say money does matter here again. So if you are online, the way that people will make money off of you is if you feel strongly about categories. So if they can convince you that a particular brand
Starting point is 01:00:25 is absolutely the type of running shoe that you want or the type of underwear you want or the type of politician you want or the type of law you want, whatever it is, if they can convince you that you have a particular category that is the only category you want, they will figure out ways to monetize that. So when we look at places that are conventional newspapers,
Starting point is 01:00:48 they have largely become opinion pages because opinion pages cause people to click and clicking means that you can sell ads. So there is a strong bias in our world today towards convincing people to be narrow-minded. Being broad-minded is not a good way to sell products. Getting people to be narrow-minded is a very good way to sell products
Starting point is 01:01:10 because they will narrow what it is they're going to choose and they'll pay more because there's not very much in that category. So they will pay more to purchase within that category. And that's how we end up in the situation we do politically in terms of the undermining of newspapers, becoming pure opinion pages. That's how we got here. And it's really problematic. So, you know, if you go on YouTube and you click on what you like on YouTube, it'll draw you down an ever more sort of particular path because that's when you end up with the ads. If you're actually pretty broad and you click on this and that and you're not really interested in
Starting point is 01:01:46 number of views and you're just watching whatever, there's no money to be made off of you. But there's money to be made off of you if we can convince you, you are really into X and you're not into Y. So I conclude from this that you are a rabid anti-capitalist and you would like to collectivize the farms and institute five-year plans, right? That's just a logical consequence of what you just said. Yeah, with my retirement money invested in Wall Street. Yeah, that's me.
Starting point is 01:02:10 And anti-capitalist. Yeah, no. I mean, it's, I don't know how to solve that problem. other than trying to convince people that living within categories is actually not very interesting or satisfying. But that said, I will recognize I'm much more comfortable with change and ambiguity than most people are. And so I think part of what we have to do is think about how can we cultivate a value of volatility
Starting point is 01:02:40 and ambiguity among our populace and make them realize it doesn't have to be scary. But a lot of people are very scared of ambiguity. But they don't have to be. I think it is scary. I think you're not going to get rid of the scariness. I think that the best you could hope to do is to say embrace the scariness of it all. I think that's right. And there are limits to what we can embrace.
Starting point is 01:03:03 I mean, when we have a bat in the house, every now that we get a bat in the house, right? Because we live in a part of Michigan with big trees in our neighborhood. And that means we have a lot of bats. And every now that we get a bat in the house. and there is this otherworldly sense of ambiguity that there is some creature that will not communicate with us that is in our space. And we have to figure out where the hell it just went and get it out. And that is the moment which I realize I am not comfortable with certain kinds of ambiguity. I am not comfortable when there's another creature that will not communicate with me that is in my space.
Starting point is 01:03:41 It freaks me the hell out. And so, yeah, no, we all have our little. limits and I'm not different from people that way. I mean, I definitely have my limits in terms of the ambiguity I can tolerate. Well, there's one sentence in Galileo's middle finger that I thought really pinpointed for better, for worse, the dilemma that is faced by people who would like both truth and justice in the world. You say, we didn't know of any successful rights movement that wasn't based on an essentialized shared identity, even if just constructed and politically expedient ways. So that's kind of pinpointing the difference between this anti-category,
Starting point is 01:04:23 live in fear, that's the complexity and the subtlety of the world intellectual point of view, and the idea that, well, we want to make the world a better place, we want to improve things, and maybe that means bringing people under an umbrella of a certain shared identity, even if it's not a completely perfect fit to how the world actually is. Yeah, no, there are times when it's very useful to do that. I mean, we do that as families, for example, right? The way we define who is in the family or who is not in the family will depend on the immediate need of the kin and we'll change the boundaries on that as necessary.
Starting point is 01:04:58 We do that within our own communities, whether there's a, if there's a threat, for example, communities may form that are not logically their own communities, but they'll form temporarily in response to a threat. So certainly we all do that. And the challenge to me is how do we not make the borders of that so strong that we can't be flexible and allow change to occur when it's time for change to occur again? That can be really difficult. Up to a couple days ago, I was a huge LeBron James fan because it looked like he might join the Philadelphia 76ers, which is the best basketball team in the world. But now he's joined the Lakers, so I think he's a terrible, terrible person and he's the enemy.
Starting point is 01:05:37 You know, what can I do? Sorry, he's in the wrong tribe. Change which sport you watch? I don't know. No, I can't do that. No, because you're still in that category. Oh, yeah, no, I'm very happily in the category of crazy Philadelphia 76ers fan who thinks that all other teams are morally failures. But you didn't stop. You didn't, despite the transgender controversy and the emotional toll it must have taken.
Starting point is 01:06:03 Like, I'm a conflict-averse person. I don't think I could have stood up to what you had to put up with. but you've managed to get into a couple of new controversies since then. There was the Maria New controversy on, I'm not going to say it right, dexamethazone steroids. Oh, you said it right, yes. Yeah, that related to the intersex rights work. So this is a researcher, physician, who, the short version of it was that she was convincing
Starting point is 01:06:33 women at risk for having daughters born with intersex genitals to take a, steroid when they were pregnant with these fetuses and to try to prevent the intersex development. And the problem with it was not only that this was ending up affecting fetuses who could not benefit because only seven out of eight of the pregnancies identified would actually involve a child of that type. The bigger problem was she was telling the families that this had been found safe for mother and child when in fact she was at the same time getting money from the National Institutes of Health claiming that she needed to say.
Starting point is 01:07:08 study these families to see if it was safe or effective. So she was using the same population she had brought in with a sales pitch that it was safe to say, oh, I need grant money to see if this had been safe. And that was extremely disturbing to me from an ethics point of view. And this was not some fringe figure. She's like the grand old lady of the field. She's a member of the National Academy of Sciences. She's a highly distinguished pediatric underchronologist, one of the top people in her field. Yeah, so I tried to get the government to intervene in that case with a bunch of colleagues and that failed. The government doesn't function very well in certain ways. Shocker. Shocker. The government doesn't protect you like it's supposed to protect you.
Starting point is 01:07:50 Exactly. So that took a couple years off my life, both at the time and probably at the end of my life it'll shave off a few years. I got into a fight with the Food and Drug Administration with the American Journal of Bioethics and the medical schools of Cornell and Mount Sinai. I have have to tell you, you know, this is another reason why I think if we can go back to the beginning of our conversation, why I think I don't fit in the intellectual dark web. Because a lot of those people spend a lot of their time sort of dealing with, you know, hot button controversy issues out in the mainstream. I dig my feet in a lot of the time and take on small, but I think, morally, deeply important projects and work on them for years. And, you know, the kind of stuff I do is
Starting point is 01:08:37 like hardcore historical investigations. I take on projects that literally take years at a time in order to try to figure out what happened and to try to bring some justice. And so I just don't think those people are doing that. They're doing a different kind of political punditry that doesn't really, I do a little bit of political punditry, but a lot of what I do is hardcore research in historical areas involving science and medicine. A few years ago, John Brockman has these collections, these edge questions of the year that he then collects into books. And he asks his, he's a literary agent. He asks his stable of writers to write something pithy and small in response to some question. And the question was, what have you changed your mind about? And I've changed my mind
Starting point is 01:09:25 about a million things. Most of them wouldn't be that interesting. So what I wrote up was being a heretic is hard work. And I think it as a, yeah, well, being a good heretic, right? Being a heretic at all is actually no work whatsoever. And I think that when I was a college student and I was first learning about physics and so forth, I had this romantic idea of having some heterodox view of mainstream physics and I was going to overthrow it and change the world.
Starting point is 01:09:56 And having a view that is both correct and widely disparaged is really hard. You have to do a lot of work. It's easy to just be contrarian. it's hard to do the dirty work of establishing the truth of something that is not considered to be already pretty obvious. Exactly. And that, I mean, I also find that work really satisfying because it, maybe it's going to show that I was raised Catholic. It's very thankless.
Starting point is 01:10:26 And I really like that about it because you're not doing it for any kind of conventional reward system. You're really doing it because it's hard core work. To me, it's like when I go running and I'm not a natural runner, but when I go running and I push myself really hard and there's nobody with me and I'm not tracking the run or anything, I'm just doing it because it's hard. I really like that. And I think a lot of intellectuals are like that where they really like a difficult problem and they really want to tackle it.
Starting point is 01:10:54 And that's where, by the way, a lot of activists are very different from intellectuals because I think a lot of activists really want the easy way out. If they could flip a switch and get what they wanted, they would be. do it. I would never be interested in flipping a switch if I didn't understand what was behind the switch and what all the implications are of flipping the switch and can I think about the unintended consequences, you know, can I think through that and can I figure out what the switch is really, you know, like you, I really want to, you know, really want to get my feet into it. But that is, it is really hard work. Well, the categories of activist intellectual
Starting point is 01:11:28 are hard to straddle equally, right? I think that both are important. It's important to make the world a better place. It's important to find the truth and be objective about it. But one tends to have a value that is more important. And if you're an intellectual, if finding the truth, regardless of its consequences, is the most important thing to you, then that leads you to certain practices and certain things that you're going to consider
Starting point is 01:11:54 to be enjoyable and having a good time. And it might not be the same as those who are juiced up by the activist lifestyle, by just changing the world for the sake of changing the world. The world needs to be changed. Yeah, I think you're right. We need both, but they often feel very different. There are, though, I mean, there are pockets of places where people are intellectuals and activists, and those to me are very exciting places.
Starting point is 01:12:17 For example, the ACLU at its best is a place that joins intellectualism and activism. There's a lot of legal groups where really cool stuff happens, but then there's also some medical activist groups. For example, some of the medical groups around Trump. trying to bring evidence-based clinical practice into being. So, for example, the Lone Institute that tries to look at what we really know in terms of the data and tries to avoid over-intervention, over-treatment in medicine, and tries to pull back and say, you know, we don't need to over-medicate.
Starting point is 01:12:49 We don't need to over-send too many people in for procedures that don't actually help. Those kinds of places, I think, that join that heavy intellectualism with a real activist strategy of trying to improve people's lives. Those are really exciting places. Well, you mentioned in the Chronicle piece that despite the fact that you are no longer, strictly speaking, a professor, you love the professoriate academia walking across the college campus. It's a space that is kind of unique in our culture where trying to figure out hard questions and answer them deeply is valued. But nevertheless, you quit your job. You had a 10-year faculty job.
Starting point is 01:13:29 So why don't you tell us that story? So after I gave up tenure, I was working at Michigan State University for where I got tenure, my friends at Northwesterns Medical School in the program of Medical Humanities and Bioethics offered me a long-distance part-time job, which I took. I had a big name by then, and they were interested in having my company and having my name, and in exchange, I would have their name, and it would all be lovely. And it was. I loved my colleagues there, and I ended up working there for 10 years.
Starting point is 01:13:57 the job sort of swelled and set back depending on what was needed in terms of my home life because I was raising a kid at home 200 miles from my job at the same time. So it all depended on like, did I have a big speaking year? If I had a big speaking year, I laid back on the Northwestern job, et cetera, et cetera. So about a year and a half before I ended up giving up that job, I was asked to edit the annual magazine slash journal of our department, which is a journal called Atrium. And Atrium published short, intense, interesting pieces
Starting point is 01:14:33 that were on a particular theme for each issue. So these are medical humanities themes. So we had themes like power and the liminal and good and evil. I mean, these are sort of interesting themes within medicine. And we would invite people to submit proposals in terms of what they wanted to write. And some people were physicians or historians of medicine or philosophers or biotheists or nurses or patients,
Starting point is 01:14:55 whoever it was you could submit and on the theme and we would choose a certain number of them and publish them. It's a very high gloss beautiful production and we edited it very carefully. It was very well respected. It was subscribed to by 3,000 people and it was also read very widely online for free. So the year I was invited to be the editor of it. The theme that the editor-in-chief chose was bad girls, which was perfect because it was about gender, it was about morality and stuff I do. So I solicited, we put together a call for proposals as a group and sent it out as we always did. And people sent me about 33 different proposals. And out of that, we could pick about 13 of them.
Starting point is 01:15:33 And one of them I chose was a piece by a cultural anthropologist named William Peace, B-E-A-C-E, at Syracuse University. And Bill Peace was writing about his own experience. He does cultural anthropology and disability studies. And Bill was born with a neurological condition that meant when he was 18 years old, he became paralyzed from the waist down. And he was in a long-term rehabilitation facility at that point. And he was wondering about his own sexuality. This was in the late 1970s.
Starting point is 01:16:05 And, you know, it's the sexual revolution. He is a young man. He wants to have sex, of course. Someday he wants to be a father. So he's asking his doctors about this, and none of them are really willing to talk with him about it. So he talks about the fact that he's in this institution where basically these men were there for a very long time,
Starting point is 01:16:21 and they got to know the nurses really well. And sometimes there were relationships that blossomed between nurses and patients in this circumstance. Because this was not like a hospital. It wasn't like people you just meet once and then they're disappearing. These are people they knew for months and years at a time. And in his circumstance, he tells the story in this piece that I published where one night he was thinking he finally got bladder control and he wet the bed again and he was very depressed and crying and he hits the nurse call button. and this nurse that he'd become very close friends with coms.
Starting point is 01:16:52 And basically she reassured him by giving him oral sex. And he writes about it as a moment of compassion and a moment which really gave him hope that he could go on to have a positive sexual life. It still makes me tear up when I write about it because I think it's one of those moments where somebody really reaches out to you and meets you where you are.
Starting point is 01:17:10 And sure enough, you know, he did go on to have a good sex life. He ended up becoming a father. He's had a really good life. And so he wrote this piece for me. And part of what he was doing in this piece was asking the question, do we yet take care of the sexual needs of people who are newly disabled? You know, are we addressing this at all? And he didn't say this should be what should happen in rehabilitation facilities.
Starting point is 01:17:32 In fact, he called it the Wild West period of medicine and rehabilitation medicine, which it was. It was a very crazy period. It's when infection control got good enough that people were surviving at levels they never had survived before. But what happened was after this was published, a few months after this was published and had gone out with a bunch of other intense articles, frankly, articles about transgenderism in Samoa and articles about women who give birth without a medical system. I'm very, you know, articles about abortion, one of which made me really uncomfortable and I'm pro-choice. You know, like very intense stuff,
Starting point is 01:18:03 as we always published. My dean, Eric Nielsen, the medical school at Northwestern, saw the issue and saw Bill Pease's article and flipped out and apparently said that he was worried that it would violate a branding agreement with Northwestern's Hospital Corporation. So he ordered it censored. He ordered it taken down offline. This had been published. This was not like he prevented it. It was already published and he took it down. I was told, shut up, don't say anything. We're going to try to work this out. And I'm not very good at shut up, don't say anything, but I was worried about my colleagues, so I shut up and did nothing. And then it went on and on and on. And one of my other colleagues started really questioning it. That was Christy Kirshner, who's a physician and a disability
Starting point is 01:18:43 study scholars in rehabilitation medicine herself, she had written a piece for me for that issue about women with disabilities and how they take back their own sexuality. So Christy was increasingly disgusted with the censorship, as was I. You know, I'm in the middle of publishing Gallo's middle finger. I literally brought to the dean's office, the book jacket as it had been designed with all these people praising me for advocating for academic freedom. And here I am being censored in my own medical school. And I'm supposed to stay quiet about this, right? So like they keep telling me like, well, there's nothing we're going to do about it because we pay for it so we have the right to decide. And I just kept saying, have you Googled me? Like,
Starting point is 01:19:23 do you know who I am? Like I cannot put up with censorship, right? Like I have spent the last several years fighting for academic freedom and I'm not going to put up with this. So finally what happened was Christy resigned and then I ended up trying to go to the provost office and get them to reverse the decision. They did finally put Bill pieces work back up, but they didn't say that it had ever been censored and they never explained why it disappeared for a while. They also required that from then on that the journal had to be approved by the dean's office and by the PR department. And we would have to get permission on the themes, permission on the call for proposals, permission on what we were going to publish. They were going to approve everything. And that's not academic freedom in the
Starting point is 01:20:01 least. So I couldn't put up with that. So I resigned quite publicly over it and called them out on it. And they never disagreed with my version of the events in public. They never challenged it. They basically admitted that what I was saying was true and they never apologized for it. So clearly that was the wrong place for me to be. So in the great sweep of irony, if you know if you know who Northwestern's chief rival is, Northwestern thinks that their chief rival, the other side doesn't think they should bother having a rivalship with Northwestern. But that is the University of Chicago. I used to be on the faculty there. As it turns out, that's where my son is going in the fall as a college student. And I will say that when I was there,
Starting point is 01:20:43 with him last and I was walking across the green with him. I was incredibly jealous of him. I was so jealous because that wonderful intellectual life that exists there is something I really do miss. It was a beautiful thing and that's why in that piece on the dark web I say to people, you know, you are where you need to be. You don't need to be in a dark web. You should be in a light web. And that I think is true. You are kind of the Taylor Swift of academic controversies. At some point, do you worry? Is it you? I think what's... The reason I get into these things is both because I'm kind of fearless and I don't mind being uncomfortable a little bit.
Starting point is 01:21:27 But the other thing is that I'm articulate. And when you're articulate and willing to fight, that gets you in a lot of trouble. So in the book, the book Galloismillianle, I talk about the Galilee and personality. And that's not to say I'm anywhere near of the intellect Galileo is. But it is to say I have this similar personality to him, as do the other people I track in the book who get in trouble. And that is this personality type that is unafraid of fighting. When they believe that something they know to be true is being denied, they will fight and fight and fight to try to get people to see what they see. And they're people who believe that eventually the truth will save them.
Starting point is 01:22:02 And they're stupid that way because it's not going to. The book is named after a literal digit of Galileo, his middle finger, which is mounted on a stone pillar under a glass jar pointing forever more at the heavens that is in the Galileo Museum in Florence. And to me, that's a story of like, well, yeah, technically he won, but look what's left of him, right? It's like a middle finger wanting out of the sky. He died under house arrest. It sucked. The truth is it sucks. So that's the reality. I was one of the people that your publisher worried about. I thought that the book was about Galileo when I saw the cover and the title because I knew about the finger. I had been in Florence and Jennifer, my wife had gone to the museum and was raving about this little relic that sort of the closest we have. Secular version of the Catholic relics of the saints, right? It is. It's fantastic. No, I love the relic. And I tell the story in the book that when I came upon in graduate school, I just started laughing hysterically
Starting point is 01:23:07 because I thought it was so incredibly funny, right? That of all the things left of Galais, and of his middle finger pointing up at the sky was just so incredibly funny. But it's also a metaphor for there's just so much you can do as an individual. I mean, there is just so much you can do as an individual. You have to hope that you can move people to look with you at what is true. And if you're right, then they will find what you found, hopefully. There won't be mass hysteria. find what you find. And one of Galileo's many virtues was that in some sense, he was a public intellectual in our current sense, right? He wrote in the vernacular. He tried to reach people other than his academic colleagues. Just sort of finishing up here, how do you view the role of the
Starting point is 01:23:52 public intellectual these days? I know that in science, there is a whole separate category of science popularizers, people who write books and have TV shows and so forth. And if you write a book or appear on a TV show that popularizes science, then there's certain segments that remove you from the list of active intellectuals doing work, right? So clearly you've gone over to a different side. And the idea that you're both doing research and doing your work and trying to reach a bigger audience is not a category that they quite accept. But I suspect that in the humanities it's a little bit more established that this is something
Starting point is 01:24:32 we can at least aspire to do. No, I think there's the same suspicion. I'm guessing you're talking about yourself running into this, since you like to take both sides. No, and I know personally, but I've heard of people. Asking for a friend. Asking for a friend. Asking for a friend.
Starting point is 01:24:49 So, yeah, no, there is that bias. And I've always assumed what that really is is jealousy, right? That that's some form of, well, you can do that, but you can't do what I do well. And in fact, there are people. There are some people who can do both really, really well. And I think that's really okay if they do both really well. And, you know, is it the case that some people dumb stuff down too much in order to sell books? Yes, and that's regretful and that should not happen.
Starting point is 01:25:19 But there are some folks who stick with it, stay in the field they actually know, don't wander into fields. They have no clue what they're talking about. And some of the stuff that comes out of that is really very good. So, you know, I try hard when I'm conducted by newspapers or broadcast venues or whatever it is. And they say to me, we want you to talk about X because you're, you know, you speak so clearly on this. And I say to them, that's not really my field. You know, you need to talk to this person or that person. And they're always surprised.
Starting point is 01:25:48 But my own feeling is if we're going to do public intellectualism well, we should be very careful to talk about what it is we actually know. And where the danger zone comes in is when you have people who are wandering into fields that they really don't know what they're talking about. about. That is not good for intellectualism. That becomes mere punditry. It does seem, though... It's easy to do that for you, though, because the places will let you publish wherever you want. They need content now because of the Internet. They need so much content. There's so much crap published. And they don't know who to ask, right? In my field, there is the famous example of Bill Nye, the science guy, showing up on CNN as an expert on climate change.
Starting point is 01:26:25 They fired all their real science reporters. That's what they were left with. And Bill Nye is extraordinarily articulate and a good champion of science. He knows nothing about climate change. He's certainly not a researcher in that field. So I have mixed feelings. Like, good for him, but he could have said no and pointed them at somebody who was a better choice. And there are plenty of people who are very articulate. Yeah. Yeah, exactly. It's worth making a little bit of an effort if there are, you know, news producers out there. But I think, you know, I'm heartened, maybe I'm reading in, so you should, you should verify or fix this misimpression. After all of this, after all the controversies, after all the back and forth, you still seem to cling to something that seems like an optimistic view of the intersection or union of being an intellectual and being an activist of seeking both truth and justice.
Starting point is 01:27:16 It's hard, it's not linear, but it's worth the fight. Is that fair to still saying? I've often called myself a bitter optimist. Yeah, no, I think that's right. I like doing intellectual work, but I also feel like we have a limited amount of time on Earth, and we should spend that trying to help improve the lives of others as we are able. I think that's a perfect place to stop. Alice Drager, thanks so much for joining us on the podcast.
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